Now that it’s been a little more than a week since we found out about the baby, we’ve come to accept what happened and started to look toward the future. We want to try again, but for us it isn’t as simple as just trying again. As Dr. Hirisk told us, “Heather’s medical history is significant,” and that means there’s no guarantee things will work out next time. Thankfully, a game plan is coming into place that will give us the best chance possible.
The first thing we have to do is wait out a couple of Heather’s cycles. Dr. Hirisk said Heather’s uterine lining needs time to build up again – if it is weak when she becomes pregnant, other problems can arise. Obviously, as Dr. Hirisk pointed out, we don’t want to get pregnant and then run into trouble for a reason totally separate from our already existing issues.
Once we’re able to start trying to conceive, Dr. Hirisk wants Heather to take baby aspirin every day. This will help thin Heather’s blood and hopefully minimize the possibility that Heather’s blood clotting disorder (Antiphospholipid Antibody Syndrome) will rear its ugly head.
In addition to having Heather take baby aspirin while trying to get pregnant, Dr. Hirisk wants Heather to start injecting Lovenox as soon as she gets a positive pregnancy test. This is a change from her last two pregnancies, when Heather only started to inject herself with Lovenox after we saw the heartbeat for the first time. Dr. Hirisk hesitates to prescribe Lovenox so early in a pregnancy because it is a very serious medication (one which can lead to dangerous complications if you get cut or injured), but considering the problems Heather’s had he thinks being aggressive next time is best.
Long before we get to that point though we will have our appointment with our obstetrician to discuss the results of the chromosome testing. We will either learn the pregnancy failed because of chromosomal abnormalities (the cause of most miscarriages), or for other reasons (most likely related to Heather’s clotting disorder). Knowing which of these is responsible for the miscarriage will help guide our doctors’ decisions in our next pregnancy.
None of this is going to stop us from being very nervous when Heather does get pregnant again (and we’ll likely stay that way throughout the entirety of the pregnancy), but it does give us a little comfort to know there’s a plan and that Dr. Hirisk will soon get more information about our situation. It’s not much, but it’s something, and right now I’m going to cling to any positives I can get.
sounds like you have some great people looking after you, wishing you the very best of luck xx
I’m proud of you guys. Sending Good thoughts, juju, prayers, etc your way.
Betty M says:
I am very sorry to read of your loss. As someone with an APL related issue I took and still take low dose aspirin at all times on the basis that it would help when I got pregnant. It did help for 3 of my children. I miscarried 3 as well so it isn’t a magic bullet but is definitely first line of defence for APL this side of the Atlantic. Wishing you all all the best.
All my best to you and Heather, Mike……absolutely two of the best parents that I’ve ever seen!!!!
I also have a blood clotting disorder and my doctors started me on lovenox as soon as I had a positive pregnancy test. I have 2 healthy little boys because of that protocol. It is a scary drug but I even had a miscarriage (unrelated to the clotting disorder) and a D & C while on lovenox and I was ok. I hope this works for Heather too.
I know how important it is to feel like you have the smallest bit of control or hope. Puttin anplan together and having doctors who are are willing to do that with you is huge for your mental health. I am glad to hear you are thinking these things through and have good support.
I’m glad that you have so much knowledge and support from your medical team. I wish you the best of luck.
I’m pulling for you guys. I know switching doctors is hard as is, so I’m glad this doctor seems to know what he’s doing. Much love to both of you as always.
I suffered 3 miscarriages before my clotting disorder was discovered and treated properly. Started lovenox the day I found out I was pregnant was a game changer for me- each time we did that, I ended up with healthy, full-term pregnancies. I really hope the same can be said soon for Heather!!
Lisa F. says:
What amazing doctors you have! Will keep you guys in my prayers.
I also have a clotting disorder and was on Lovenox for the last two of my three pregnancies from the start. My first daughter was born 7 weeks early due to a blood clot on my placenta (was unaware I had this issue and had never had any clotting problems previously). I was lucky to have a high risk OB who put me on Lovenox and baby aspirin daily during pregnancy and had two healthy, full term babies after that! It sounds like you are in good hands.
Hugs to you and Heather and Annie. So glad you have good doctors looking out for you guys! We’re all thinking of you.
Good thoughts always!!! To you and Heather!!!
Thinking of the both of you!!!
laura m says:
I am so so sorry you are all going through all of this, but so glad you have such a great bunch of Drs looking out for you and that are going to all extents to try to figure this all out and hep make things better in the future. Hugs to you all!
I’m glad to hear the doctors are being so proactive about a game plan for the future. It sounds like you are all in good hands.
Thinking of you both and wishing you all the best. Sounds like you have a good team of doctors on your side.
Sounds like you’re getting a lot of support, which is great. I wish you all the best, I always do.
Sounds like Dr. Hirisk doesn’t fool around. I know he’s not the doc Heather would have preferred but it sounds like he is going to take great care of your guys and offer a lot of support.
I’m glad the doctors are working with you on a plan for next time. I’m hoping for the best (i.e. the lesser of two evils) for your chromosomal test results – and I hope the likelihood of a successful pregnancy in the future helps you get through this rough time.
This is exactly what I had to do with both my pregnancies. I also had to take prednisone for the first trimester as well. I’m only telling you this that besides being scared the entire pregnancy, I was able to carry to term and have two healthy children despite all of the issues APA, ANA, Lupus Antibodies, PCOS, Endometriosis. Your plan sounds like a good one and while it seems so scary (I know), once you are in the middle of it all, it doesn’t seem so bad. Oh and then I also developed Gestational diabetes just to top it all off. Still had NO issues and normal to small weight babies. Thank goodness for advance perinatal medicine, is what I say!
My heart goes with you through this process. I wouldn’t wish the strain and worry on anyone. Just know that it CAN all work out well in the end with both a healthy mom and healthy baby!! I wish you all the luck in the world that your dreams for a sibling for Annie and Maddie come true!
I also have a clotting disorder. I’ve had 6 miscarriages but have also carried 4 babies to term. I also have MTHFR which can also come along with certain clotting disorders. You might have your doctor check that as it is just a simple blood test to check for it but can save you from another miscarriage by taking very high doses of folic acid before pregnancy. Also, I too take Lovenox as soon as I get a positive pregnancy test (I have with 3 pregnancies that I have carried to term now) and have had no problems with it. So, just want to let you know there is hope! I know how incredibly horrible it is to go through. While most of my miscarriages have been early term (between 6-12 weeks) I also had one at 19 weeks. They are all equally hard and heartbreaking. My thoughts and prayers are with you. If I can be of any help at all let me know!!!
Wow! I had never heard of AAS until you & Heather started blogging about it and now I read all of these comments from people who also have blood clotting disorders that have affected pregnancies.
Reading their comments in addition to your post really makes me feel that perhaps it’s a good thing that you guys were forces (thru the whole insurance/hospital thing) to meet Dr HiRisk. It sounds as though you are in capable and caring hands.
You both continue to be in my thoughts & prayers, as is Miss Annie and Rigby. I know they too are affected by this–even if they don’t understand what is going on. Sending love from WA.
Expat Mom says:
I’m glad you have a plan and aren’t giving up. You’re such great parents, I would love to see you with another little one.
Is there any way to find out whether one has AAS before one starts a family? I am curious if it’s something that’s tested regularly, or if it’s too rare, so doctors don’t focus on it. I’ve had a few friends who’ve lost pregnancies due to things that could have been tested for — if only they’d know to look for it. So I am curious about this.
Wishing you all the blessings in the world and hopefully another girl in the future. I think that a house full of girls (with you and Rigby) sounds amazing. Just think of all the weddings you’ll have to afford
Most clotting disorders aren’t diagnosed until a woman loses a few pregnancies. It’s really unfortunate. But clotting disorders aren’t common, so no one tests for them without any indications (in my case, blood clots were present in my pregnancy with Madeline). The tests are pricey. It’s a crappy situation in general. So sad to hear that about your friends!
Oh Heather. I have the same clotting issue. I had 1 normal pregnancy, one where it caused minor issues towards the end (an “aging placenta”), and for the 3rd one, I began daily heparin injections on my first visit to confirm the pregnancy. And that was 8 years ago. Hopefully, immediate intervention will do the trick for you next time. I know we were lucky to have been 3 for 3. Fingers and toes crossed for you that the next one is a home run! Till then, be kind to yourself. Xo
Having a plan is really helpful and so is having some hope for the future. We found that after our miscarriage, talking about and planning for another baby made us feel a lot better.
Thank-you so much for sharing your story. I am so sorry for all of the pain that your family has gone through. I have two healthy children that I was able to carry to full term with out any issues. Recently however I have had two late miscarriages (18 weeks and 21 weeks) and one early loss at 7 weeks. I have just learn that I also have AAS. The doctors have been recommending that if we try again that I take aspirin and heparin daily. This is has been a very isolating and terrify experience Thank-you so much for sharing your experiences. I am sorry that we both share this similarity but it helpful to read some one eles experience with AAS and pregnancy. I hope your next pregnancy is a healthy. Wishing you peace and happiness in your journey. All the best.
Nadine – I am so sorry to hear your story! I hope that your doctors finally have a handle on things. I am so sorry you had to find out after three miscarriages. My heart goes out to you! I hope your next pregnancy is healthy and successful. xoxo