As you all probably know by now, we were chosen as the 2016 March of Dimes Ambassador family for the Los Angeles area. We’re just about done with our role, but we had one last event to attend: the March of Dimes Celebration of Babies. The CoB is an annual lunch and awards ceremony where members of the entertainment and health communities come together to raise awareness and, most importantly, money. For the 2016 Celebration of Babies, Mike and I were not only invited to attend, but I was also asked to speak.
I’ve spoken at several March of Dimes events this year, so I wasn’t nervous about speaking at this one. I have my speech basically committed to memory at this point, but I still always bring notes with me because I’m afraid that the one time I don’t, I’ll be overcome with emotion and forget everything. So when the March of Dimes people told me I would have a teleprompter, I was relieved. I also should have thought, “Hmm, a teleprompter, that’s…really fancy.” But no, I didn’t.
When the day of the lunch arrived, I was more concerned about it being Mike’s birthday than anything else. I am so grateful to him – he doesn’t like March of Dimes events (they are really hard, emotionally), but he always goes to support me. I spent the entire drive thanking him for coming and promising to make it up to him, and it was only when we pulled up to the hotel that the lunch was at that I realized we weren’t at just any hotel – we were at the Regent Beverly Wilshire, the fabulous hotel Julia Roberts and Richard Gere stay at in Pretty Woman.
Reg…Bev…Wil.
Mike and I were quoting movie lines as we walked into the ballroom, and then we stopped in our tracks because the room was gorgeous – and ENORMOUS. There were so many tables with so many chairs. I looked at Mike with wide eyes and he said, “You can do this, you spoke at the March for Babies in front of 20,000 people, this is nothing for you.” This is why I am so glad he comes along with me to these things.
After getting the lay of the land from my March of Dimes friends, Mike and I went out into the lounge area to wait for everyone to start arriving. As I was chatting with a M of D employee, she suddenly said, “Give me your phone, let me take a picture of you guys right now.” When she handed my phone back to me she said, “I thought it would be cool if Reverend Jesse Jackson photobombed you.”
Uh, yeah, that would be cool.
We also got to actually pose for a few photos ourselves.
I knew that Jennifer Hudson was going to be receiving an award at the lunch, but I didn’t really consider that there would be other famous people there, too. But suddenly, I started seeing a bunch of awesome people, like Elizabeth Banks, Monica Potter, Bryce Dallas Howard, Kelly Rowland, Ellen Pompeo, Nick Cannon, and Derek Hough. From our spot in the lounge, we could see them all arrive and pose for pictures on the red carpet. And that is when I started to feel like I might throw up.
When I said as much to Mike, he replied, “Since when do you care about famous people?” and I was like, “UH since ALWAYS?” Don’t get me wrong, I’m from LA so I follow the unspoken “notice them, but leave them alone,” rule that we Angelenos live by. But I get excited when I see someone from one of my TV stories in real life. Also, these are people who are paid to talk really well, and the idea of speaking in front of all of them suddenly made me really nervous.
But not like, so nervous that I couldn’t eat the first three courses of the lunch, plus a bread roll. A girl’s gotta eat.
There were three awards given away at the lunch. The first award went to an amazing doctor, Mary Kerr, who specializes in high risk pregnancies. The women who presented the award to Dr. Kerr were Ellen Pompeo and Monica Potter, aka Meredith Grey and Christina Braverman.
They both got teary as they spoke about Dr. Kerr, and I thought about all the times these two women made me cry when I watched them on Grey’s Anatomy and Parenthood. I whispered to Mike, “I’m going to get a weird form of payback when I make both of those women cry in a few minutes.”
After a stretch of time that felt impossibly short but still agonizingly long, I was brought backstage to prepare to give my speech. While I was back there, I met Nick Cannon, who was the emcee and was wearing the most amazing sparkly shoes I’ve ever seen on a dude in my life. I stared at them for a minute, wondering if they’d fit me, and then it was my turn to go on stage.
The speech itself is a blur to me. I was able to focus and not stumble over my words, although I did notice some familiar faces as I looked around at the audience. Usually at events like this, the “Fund the Mission” speaker has had a happy ending, so the audience is always very shocked when they hear about Maddie. Even though we didn’t have a happy ending, we still had seventeen wonderful months with her and that’s what I emphasized in my speech. I also told everyone that I won’t feel successful until premature birth isn’t a worry for my own children, and I’m hopeful that with continued research and innovation, this really could be an achievable goal.
As I made my way back to my table after my speech, several people stopped me to say they were going to donate in honor of Maddie, which always blows me away. I enjoyed watching the rest of the Celebration from my seat, including when Jennifer Hudson was honored for her work with MoD.
When the event was over, Mike and I hung back a bit to let the crowds exiting thin out. When we eventually made our way to the valet line, I started digging through my purse to find my ticket (I am notorious for losing them), only to look up and see Monica Potter standing in front of me. “Your speech was…wow. Can I hug you?” As we hugged, she told me about how March of Dimes was her dad’s favorite charity, and after he died she decided to make it hers, too. She was so incredibly kind and gracious, and she was also crying a little bit so then I cried a little because I can’t see someone cry and not also cry and what is my life? When she walked away, Mike said, “That was like watching a scene from Parenthood.”
I found out yesterday that the Celebration of Babies lunch raised $1.4 million, and that my Fund the Mission appeal brought in more money than any other appeal ever – even more than when Chris Pratt spoke at the same event two years ago!
Maddie continues to do amazing things.
Beverly says:
Wow! I am glad you had Mike with you to give you confidence and it sounds as though you were wonderful. It sounds like an exciting evening. Thanks for all you do.
Nellie says:
Your sweet precious girl has and always will shine brightly!
Reading this made me so happy for you and also brought me to tears!
Love & Blessings to you and your beautiful, amazing family!!
Sarah Rose says:
Aaaand I’m crying. Kudos to you for your bravery and hard work.
Jenn says:
Awesome….that is all….just awesome. Your Maddie does awesome things.
Kathy says:
Amazing. Thank you so much for sharing your adventures with us!
Mel says:
Yes, Maddie does continue to do amazing things but so do her parents.
Melanie says:
Trying not to cry at my desk…
rachel says:
Cheers for Maddie (and you!)!! May I ask something (without offending): You always say that you won’t stop until prematurity isn’t a worry for your own kids. Do you think this is feasible? As I know that nowadays, kids make it that wouldn’t have had any chance 40 years ago when I was born. And I would expect that children that are born more and more premature would get a chance in the future – but that there will always be children that won’t make it or survive with the health effects of prematurity. Are you hoping to end premature birth/miscarriage all together?
Becca says:
You have a beautiful knack at wrapping up posts (and, I would assume, speeches) with showstopping elegance. “Maddie continues to do amazing things” gave my goosebumps and made me shed a tear at my desk. I honestly think I’m going to go make a donation today, in honor of Maddie, because of this post.
Marjorie Steele says:
What a wonderful way to honor sweet Maddie. Keep up the good work guys!
Rachel says:
Wow… just wow. Now I’m fighting back tears at my desk. You’re amazing.
Steph says:
What Rachel said^^^ Also, is it bad that I’m a bit jealous you got to meet and hug Christina Braverman?
Erica says:
Beautiful
MC says:
I’ve always admired you and your family–your NICU stories made me think more about what my own parents experienced when I was born at 30 weeks. But now I’m mom to a 32 weeker NICU grad myself. You are doing amazing work and Maddie is too.
Kristen says:
I don’t really know what th say but have to say something. Congratulations on the speech and successful appeal. I am so glad that maddie can continue to have a positive impact. I work in fundraising for a large nonprofit as well and I have to say from the employee perspective having someone like you and your family – who have been through the unthinkable and choose to turn it into something positive – it makes us all want to be better at our jobs.
Debbie B. says:
Amazing things being done by an awesome little girl and her wonderful family.
Megan says:
This is so awesome. What an amazing opportunity and a wonderful job you did. Maddie is, indeed, still doing amazing things — as are her parents!
BTW, I've been a fan of the blog for years… but don't know that I have ever taken the time to say "thank you" for sharing your story (and continuing to) as preemie parents, which meant all the more to me when I became a preemie parent myself in 2015. I thought of Maddie and all you went through, and your words became a source of great comfort as we navigated the NICU… in a weird way, it felt we "weren't alone" because you have been so open about your lives and journey as a family. So thank you.
Nanette says:
Maddy says:
That is wonderful that the appeal raised so much. I wonder if your appeal is so successful because of what you say in the post, that you guys didn’t get a happy ending, really pushing home to people that this is still a big problem and still something that leads to babies dying
Payal says:
This was amazing! I’ve been following your story since I was on bed rest and had a preemie (7 years ago). I love reading about your work with the MoD and seeing how far your family has come.
Christina says:
Hi there! Do you have a transcript of your speech? You are such a great writer, I would love to read it.
Thank you and Happy Holidays to you and your family!
Sincerely,
Christina Hanson Furasek (NPHS class of 1996)
Lisa says:
Ahhh, this whole post is so amazing. Congrats on such a successful appeal and OMGOMGOMG on getting to hug Christina Braverman! I’m grinning and teary. You’re awesome.
Barb says:
goosebumps! all over me right now! How awesome is it that Maddie’s story still touches so many lives. Congratulations on such a successful year with the March of Dimes!
Auntie_M says:
Bawling.
Yaaaaay Maddie, you marvelous, amazing girl!
And thank you Heather & Mike for your continued fight for the health of babies every where!!!!
Auntie_M says:
Bawling.
Yaaaaay Maddie, you marvelous, amazing girl!
And thank you Heather & Mike for your continued fight for the health of babies every where!!!! XOXO
Melissa says:
Maddie does amazing things but it’s all because of you and your family. Thank you for being the spokespeople for those that are too young to speak.
Peggy says:
Maddie is still making a difference!! I can’t tell you how happy this post made me! I really admire you for being brave enough to speak in front of all of those people, especially when talking about your beautiful Madeline. Congratulations on such a wonderful achievement!
Eric says:
What an amazing tale. You continue to honor Maddie by giving such incredible support to the March of Dimes, and all of us who support the MoD are grateful to you. It can’t be easy to get up there and share your story.
My family and I (including our now 10-year-old 32 weeker) are fortunate enough to be the Ambassador Family for 2017 here in Charlottesville, Virginia. Somehow I doubt that our events will be as star-studded (or as HUGE) as the LA versions.
Jeanie says:
So very cool!
Toni says:
Nice job Heather, and yes Maddie continues to do great things!
LD's Mom says:
Maddie is amazing!!! Her light shines so incredibly bright!
Krystal says:
And I’m crying too. So amazing and so amazed at the work you do. I’m not preemie parent too and have recently had friends lose their twins due to prematurity too, so March of Dimes is so very close to my heart. Thank you for what you do!
Effie says:
WOW! Amazing!!Thank you for all you do for the March of Dimes in memory of your sweet girl.
AuntieMip says:
Way to go Heather. It cannot be easy. Reliving those sacred and painful moments, that deep and constant ache. Your girl, she is so proud of you! So am I!
meg says:
“Maddie continues to do amazing things.” What a beautiful legacy. Peace.
Jessi says:
Beautiful. What a wonderful legacy Maddie continues to leave.
amourningmom says:
Thank you and Maddie for doing such amazing things. (& an extra thank you to you for sharing them with us). I am hoping with you that premature birth is something future generations will not have to worry about. Sending you hugs and as always lots of hope. xoxo
Brooke says:
This is amazing! I love that you’re able to do this. What a way to honor Maddie and help so many. xo (Also omg you hugged Monica Potter!)
Leslie Young says:
Teared me right up! Maddie is amazing. One day, I was going for a run. I got tired, I wanted to quit. But then “Daughter” came on my running mix, I thought of Maddie, and I had to keep on running. She’s amazing!
Lisa says:
Your way with words and finding humor in sadness (dark humor sometimes is the only way to survive)….”weird form of payback when I make them cry” had to be my favorite line in this. Besides the beautiful line of Maddie. You and Mike are incredibly funny, strong and amazing….and made the beautiful and sweet Maddie. AND YOU ATE!!!!! Rockstar status and beyond!
Jenn Mercer says:
You’re right….Maddie continues to work her Magic as do you!! I’m so PROUD of you Heather and I’m PROUD to call you my friend. Love ?? from Jenn