I wanted to thank everyone who has left comments on my site since Maddie passed. I haven’t been the best at commenting back the last few months, but all of the advice, kind words, and sympathy has meant the world to me.
It has been a few weeks since I last posted because I’ve been in the doldrums, even more so than usual. A large reason for this is that grieving is just so exhausting. It never stops. Minute after minute, hour after hour, day after day…the pain is always there. If for just five minutes I could walk around without the knowledge of what happened to Maddie weighing down upon me I think I could deal with everything a bit better, but I can’t.
Yesterday I watched a documentary on HBO called “Boy Interrupted,” which was made by the parents of a fifteen-year-old boy who commited suicide by leaping out of his bedroom in their New York apartment. The film is very interesting because the boy was bipolar, and the parents, despite being able to afford the best psychiatrists and special schools, couldn’t save him. Adding another complexity to the situation is the fact the boy’s uncle committed suicide when he was twenty-one, so the boy’s mental illness may have been genetic. While you don’t have to have lost a child to appreciate the documentary, it doesn’t hurt.
I particularly related to a couple statements in the documentary. The first was made by the boy’s paternal grandmother who lost her son, then, thirty years later, her grandson. She said, when asked to describe what it is to lose a child:
“I can’t tell you. Words don’t exist to tell another person how destroyed part of you has been…they just don’t exist. I can’t tell you, but I’ll tell you this – it is something you never recover from. Life goes on but not the way you wanted it to and not the way you planned for it to, but you don’t recover, I don’t think.”
Later her daughter-in-law, when discussing the loss of her son, said:
“The thing I think about the most is…I can’t believe it. I can’t believe this. I can’t believe I’m sitting here. I can’t believe I gave birth to this boy, raised him…buried him. I can’t believe it. It’s just a sense of disbelief. I don’t know if I ‘ll ever really understand that it’s true that this really happened. I can’t believe it really happened. Tell me it’s a dream. I can’t believe it, and I can’t believe that the days continue to go by and that the world could choose to rotate without him.”
They say when you lose a child you become a member of a club no one wants to join. That much is true, and the words spoken above capture a truth the members all know well.
Interestingly, in reading about the film online some reviewers wondered how anyone could document the death of a child on film. Those same people, I’d imagine, would question how anyone could write a blog after losing a child. The reason we do this, I think, is because those of us in this horrible club have an intense desire for people to understand what we are going through, to give them some glimpse into the reality of what our lives have become.
Otherwise it is too lonely carrying around all this grief all day, every day.
Headless Mom says:
It must be awful to be in that club. Please know that there are so many of us out here that think of you, no, PRAY for you two every.single.day. I know that I can’t “know”, but I sure hope that you can, at times, feel that we are here.
.-= Headless Mom´s last blog ..Wordless Wednesday =-.
Alicia says:
So sorry you’re a member of such a terrible club. I can’t imagine the complete disbelief of losing a child, but it makes total sense. Because it makes absolutely NO sense.
pamela says:
i cannot even imagine how it must feel to lose a child. Heartbreaking.
.-= pamela´s last blog ..Wanchai Ferry – Courtesy of MyBlogSpark =-.
Lindsey says:
So sorry.
.-= Lindsey´s last blog ..milk drunk =-.
AmazingGreis says:
I’m glad that you have an outlet, a space to let your emotions and feelings out. I hope that you know we will always be here for you. To listen and support you when you need it most.
(((HUGS))) My thoughts are always with you, Heather and Maddie.
XOXO
.-= AmazingGreis´s last blog ..It hurts… =-.
chrissi says:
I have said this MANY MANY times – it’s a club that NOBODY wants to hold a membership too. My husband and I are members as well. sigh.
In fact, I wrote an article about this..
.-= chrissi´s last blog ..Yes, I am a sissly la la =-.
Miss says:
Grief is a heavy thing. While it may not feel like we are carrying some of it for you and for Heather, we are. And glad to, every day.
.-= Miss´s last blog ..Wordless Almost Thursday =-.
Betsy says:
You are a brave man.
Nanette says:
Mike, I thought of you and Heather when I watched the mom say that last quote.
.-= Nanette´s last blog ..Bounce and babble =-.
Noelle says:
I hope writing gives you a little bit of an outlet for that pent up grief. It’s so overwhelming. We are always here to listen, and send love and strength your way every day.
.-= Noelle´s last blog ..20/100/5000 Contest =-.
Candice says:
Though I hope I never fully understand what you’re going through, please know that you’re not alone. We’re all thinking of you and rooting for your family.
.-= Candice´s last blog ..Kruger National Park- Water Babies =-.
Anna Marie says:
I saw that documentary also – and I thought of you and Heather. It is a painful journey you are on, but you are not alone. Hugs.
.-= Anna Marie´s last blog ..For Maddie =-.
Kate says:
I saw that documentary as well. I had to watch it twice, it was so moving and sad. I wish there was something I could say to ease your pain, but words are not enough. Thinking of you.
.-= Kate´s last blog ..Another episode of bad parenting =-.
Krissa says:
Since I don’t have children, I won’t presume to say I understand what you are feeling. But I do care. And like so many others, I will always read what you write, I will always care, and though I never met her, I will always remember Maddie with love.
Karen says:
I’ve been thinking of you a lot lately. I’m sorry that you’ve been inducted into this horrible club. Maddie is so beautiful and always will be because of your words and memories. Binky is going to love hearing about Maddie from you.
Just remember, you aren’t alone.
.-= Karen´s last blog ..The Loch Ness Monster =-.
Sherry says:
Hi. Long time lurker here. Just wanted to say I’m so sorry that you have to carry this heavy load of grief, I’m sure it is exhausting. Please find comfort in knowing there are thousands of people praying and thinking of you. I run across Maddie’s little picture/button on so many blogs out there, she is everywhere! I hope you and your wife find even a glimpse of comfort as your lives continue to unfold.
PS, I just read the book “The Shack”…maybe you’ve heard of it? Regardless, the entire time I was reading it, I thought of you and your family. Thank you for sharing your story and allowing it not to be quite so lonely for you.
Sherry
.-= Sherry´s last blog ..Krispy Kreme–Take 2 =-.
Krystal says:
This is not a club I would want to join anytime soon. And I am so very heart broken that you have.
Mike, you and HEather both have carried yourselves with grace thru this nightmare. How? I don’t know. Maybe cause you have a great family, one that is with you in person, then all of us our here in the blogosphear?
I know you three(soon to be four!), will always carry a special place in my heart. My love goes out to you.
Krystal
Diana W says:
What a sad club to belong to. Your daughter was beautiful. Through all your suffering and pain you are so eloquent.
I am so sorry for you. You have my deepest sympathy.
.-= Diana W´s last blog ..Design Wall Monday =-.
Ms. Moon says:
A friend of ours lost his son recently in a diving accident. Completely sudden, completely freaky, completely unexpected. And I immediately thought, when I heard the news, “Oh. E’s in the club now.” And then I wept.
As the lady in the film said, I don’t think you ever recover, but things change over time. A long time. Change, not necessarily better, but making it possible to live.
.-= Ms. Moon´s last blog ..And Barney Is Also A Man =-.
Kristen says:
I tried to watch Boy Interrupted too. I’m nowhere near brave enough. But I imagine the family is grateful maybe, that there is something… that tells his story. Maybe.
Though I’d bet they would rather just have him, and not a documentary.
Heather says:
I remember an episode of “Six Feet Under” where one character asks another something like, “What’s the word for a parent who loses a child? [pause] There IS no word for it, because it’s too fucking terrible.”
Glad to hear from you. I think of you and Heather often and wish you both nothing but happiness.
Kellie says:
My friend is a part of that crappy club too. She lost her child by her childs hand as in the documentary. Having three babies of my own, I can not fathom the pain of losing a child. I can not imagine the pain and torture that you have to carry around all day. And then to add insult to injury, parents like my friend and the people in the documentary have to carry around an added burden of why. How can their son love them as much as they did and cause so much pain on them. It is the part they struggle with most. I would never question why somone would document a childs death…I understand it. I see my friend live it day after day. I saw the entire town come out for them, only to disappear within months. I know they feel that if they are able to talk about him, it keeps him alive in some way. I see people come talk to them at events, only to dance around the situation. Their instinct is to ask the emotionally toned question, “Oh, How are you?” Sometimes my friends let the strangers off the hook with a quick answer. Sometimes it is too emotional and they sigh or look pained. Everyone asks but very few want to listen. Its as if they feel if the parents do not talk about it, it has magically gone away. So they all quickly change the subject. Society seems to give you a brief time to heal and then they want you to move on because if you are talking about the pain, you are not coming out of it. What they don’t understand is you never come out of it. You just find ways, as lots and lots and lots of time passes to cope. I don’t know the depth of pain you and Heather and my friends feel, it is beyond anyone who does not go through its imagination. But I have learned that the healing process seems to take place when you talk about it. My friend always seems happier after a big long remembering session. If she can sit there and talk about her son, and hear about how his friends are graduating High School now, or hear about the things that he would have been doing and talk about how painful it is for her that he is not here, or to talk about a memory we all have of him, or just recount that awful night in the hospital – somehow she seems more peaceful at the end. As easy as it would be to just not talk about it, that is not an option so I understand the need to document. What some people do not understand is that it not only helps the parents, it would help them to hear it as well. We could not control having them ripped from our arms, we can control having them in our hearts and minds.
Mary says:
For the reviewers who questioned the documentary, I don’t think anyone can anticipate what they will do in that situation. Or what they will need to do to help them start to heal in some way. All of us will do anything we can to help you and Heather carry this burden. At the very least, we all support you with our thoughts and prayers for strength for your family. Anything you need to do to help you get through it, that’s what you do. Even if it’s running naked in the ocean…although I wouldn’t recommend that during daylight hours. Not that I know from experience…I’m just sayin’.
Please know that I will continue to hold all of you in my heart.
Mary
amanda says:
This line got me: “I can’t believe that the days continue to go by and that the world could choose to rotate without him.” No comparison at all, but when I lost my father, I couldn’t believe that the world kept on spinning – that it dared to keep on spinning. Like I said, no comparison to losing a child – but still.
xo from CT,
Amanda
PS as your readers, I think we are happy you continue to blog, because it gives US a chance to respond and feel as if, in some small way, we might be able to help, or give support at least.
.-= amanda´s last blog ..weekend. update. =-.
stephanie says:
We blog about, make movies about, talk about and write about those that are no longer with us because if we don’t who would? Who else would say to the world: “Pay attention! They were here, they were wonderful and they mattered!” When our loved ones leave us, it’s up to us to carry the messages and images and that beautiful soul that they can no longer carry for themselves on this physical earth. I never, ever bat an eye when people commemorate their loved ones for decades, or forever. Of course they do. Of course we all do.
Thanks for opening our eyes to this film, too. It seems very powerful.
.-= stephanie´s last blog ..We’re home… =-.
Christine says:
Thank you for continuing to share your journey and struggles. Knowing your story has helped me keep perspective in my own life and reminds me to relish every single second I have with my son, even the tough ones. I feel like these words are so trite, but I really am so, so sorry for your loss.
sam {temptingmama} says:
That club should never exist. I HATE that it does. But… Club or no club, you’re never alone. Though I may not know exactly what you’re going through or what you face on a daily basis doesn’t mean that I’m not here for you and Heather. I will always be here, no matter what.
Hang in there buddy. *hugs* XO
Brandy says:
Mike, I commented a few times when times were happier. I’ve had a hard time knowing what to say since the tough times started. I can’t say that I know what you’re going through, though we had an agonizing few days watching our son nearly slip away, his ailment was identified in time to save his life. That time alone terrified me beyond anything I’ve ever felt. However, your post reminded me of someone.
I haven’t had a good relationship with my grandmother in years. She’s gossipy, backstabbing, angry, a bit of a liar and generally a negative person. But when I think about cutting ties with her, I remember that she buried a child. That child was my 37 year old mother. Despite their rocky relationship, I saw the genuine heartache it caused my grandmother to lose a nearly middle-aged daughter and it’s something that allows me to tolerate her behavior and perhaps forgive it somewhat. I’ve seen this documentary in the listings, but passed it as too difficult to watch. Now I think, if Mike can watch it, who am I to be a coward?
All I can say really is that you have lots of friends out here. If you ever need a virtual shoulder, I know I and countless others would be happy to share what we can of your burden.
Middle-Aged-Woman says:
Maybe the most noble thing about this big, messy internet is the opportunity we get to connect with others, and offer love and support, even from two thousand miles away. {{Hugs}}.
.-= Middle-Aged-Woman´s last blog ..Travel Tip Thursday: East Coast vs. West Coast =-.
jenni says:
glad to be here to listen and lighten your load, even if it is just the littlest bit.
.-= jenni´s last blog ..And Then There’s Miles =-.
Notesfromthegrove says:
I wish so much you weren’t a member of that club. I think the people that read your blogs and love you guys so much would do anything to erase the past 4-5 months. I think the “I can’t believe it” stuff never goes away. Although my loss isn’t the same as yours, I still can’t believe that 6 years later, one of my best friends was killed in a car accident. I mean…out of everyone, I can’t believe it was HER. Still, I just don’t understand it. But it does hurt less now. It just took awhile to get here.
.-= Notesfromthegrove´s last blog ..Sad news. =-.
amy d says:
Mike,
I saw that documentary and it profoundly affected me. I was struck by how that boy had such a fascination with death at a young age and despite the gueling efforts put forth by his parents they were unable to save him. It’s a very scary thought that maybe he was just born that way, with the bi-polar gene, and this was inevitable. I like to think otherwise though. Tragic.
I have followed Heather’s blog since Maddie’s passing, and have grieved with you both. Even though I have never met you, reading your words, thoughts, and feelings about losing your Maddie have touched me. I will never tell you I understand what you’re going through because I don’t. Just know that I support both of you and wish you all the best. I pray for you and your family often.
Much love to you all.
Amy
.-= amy d´s last blog ..And A Prince Shall Save Us…. =-.
Aunt Becky says:
I’m just so sorry.
Dulce says:
I watched the documentary last evening. The mothers comments were heartbreaking and shed some light on the day to day struggle “the club” faces. My prayers are with you.
.-= Dulce´s last blog ..First Grade Already? =-.
Lauren says:
God, I wish there were a way for me to revoke your membership card (so to speak) for this particular club.
.-= Lauren´s last blog ..The name itself sort of funny. Just. FYI. =-.
Issa says:
I wish I had something great to say. Some words that would help. But I just don’t. I just wanted you to know that I was here. Reading, thinking about you (Heather and Maddie too) and I’ll still be here, whenever you feel like writing.
.-= Issa´s last blog ..Guess what? =-.
Sara Joy says:
It’s the club that every member hopes will never expand. Membership is free and the most expensive thing in the world all at the same time. I have said more than once that the thing of it is that nobody gets it except those in the club, you just can’t.
I hate that you’re in it. I hate that I’m in it. I hate that it exists.
What I don’t hate is that you are still posting here – we appreciate your words whenever it moves you to share them. I know there is no right way to do greif but it is so striking how similar some of our thoughts and emotions are sometimes. It’s exactly like those quotes.
Do what you have to do Mike, just know that there are a gozillion of us readers, those in the club and not who are thinking of you, praying for you, and would do anything to help.
.-= Sara Joy´s last blog ..Be It Ever So Humble =-.
AMomTwoBoys says:
Oh, Mike.
We’re always here for you. Always.
xoxo
.-= AMomTwoBoys´s last blog ..I Took a Pregnancy Test Yesterday =-.
Deborah says:
I think I can assure you that those of us who read your blog and Heather’s blog will always be here for you, even though we may never meet and even though many of us can’t begin to imagine what it is like to live with such intense, never-ending pain. I think you are so brave and so strong for keeping your blog going and for giving the world a glimpse of your life. I think of you and Heather daily and I am always praying for moments of unexpected peace for you both.
Amanda says:
This shitty club should never EVER have been invented. I can only begin to imagine what you’re going through. Before I had my baby, I didn’t really get it. Now that my heart has expanded more than I ever could have dreamed, I just ache thinking of what my life would be without her. And I cry for what you no longer have. You are in my thoughts daily. We’re here for you to help through the good times and the bad. Keep writing. I often want to comment again just to let you know that I’m still out here thinking of you.
.-= Amanda´s last blog ..Creep =-.
Danielle says:
I don’t even want to imagine what you are going through. It is a fear of mine and I am sorry that anybody has to endure that kind of pain. Please know that we are all here to listen and read when you need to tell and write.
.-= Danielle´s last blog ..Eww, did you see that train wreck? =-.
Meg...CT says:
No doubt about it…your club sucks.
It must be so sereal to have the world still go on…w/o even a pause when you are in such despair. I heard a quote recently…something like, “always choose kindness, for you never know what the person you encounter is going through”. Peace to you and your wife as you manuever this life without your precious baby girl.
Alexis says:
I think about how I reacted to the death of a child before, and then after, I had my own kids. Once I had them, I understood how broken I would be if I lost one, and I fight every urge to hoarde them to myself, to keep them from the world, so that I won’t have to experience that pain, although, of course, there’s no real way to do that. If there were, Madeline would be here, there would be no awful club. And I totally understand why you write, and I am so, so glad that you do, especially if it helps, even in the tiniest way. Your grief is not yours alone to shoulder unless you choose to, and I think you’re making the right choice, because it is just too heavy for a person to bear. All of us who read this do it with love.
missy says:
“Give sorrow words; the grief that does not speak whispers o’er the fraught heart and bids it break”
– William Shakespeare
Lisa says:
I think those reviewers who questioned why the parents did it just didn’t get it. It was an outlet, just like this blog is an outlet for you. If you are forced to keep it all inside what happens. Sharing with the world what you are feeling means that someone else can kind of get it, can help support you, can help hold you up and if they are going through the same thing, know they are not alone. I commend anyone who shares they story, the good, the bad and the ugly.
Hugs to you and as always I’m thinking about you and keeping you and Heather in my thoughts.
.-= Lisa´s last blog ..First Day of School Jitters =-.
Jodi says:
Several years ago, my brother’s fiance was murdered quite viscously. When I got back from the ensuing chaos, and funeral, I found myself telling my friends precise details – how many knives were used, how many times she was stabbed, the condition of the body, the state of the house. Really horrible things. Not because I wanted to gross them out or scare them. I needed someone to understand even a small portion of my HORROR, that this to happen to someone I cared about, and the world went on as before. How could it do that?
.-= Jodi´s last blog ..Team Buffy =-.
Patty says:
Mike, I think of you and Heather so very often. Although I did not personally “lose” Maddie, I also always feel like I can’t believe it happened, it just doesn’t make sense! I am glad that you write about this, I do believe it helps you and I always show up to support you and Heather. I know that you will never be “better”, but I do hope that you can find some peace, and some happiness in your future. I am fully aware that with Binky coming, there are so many emotions going through you right now, but know that YES, you will have more love for Binky (and any others that may be blessed to come into your life as your children!) then you can possibly imagine, and don’t feel guilty about that because Maddie would want that, this I can assure you!
.-= Patty´s last blog ..My sweet little lady… =-.
Kate Coveny Hood says:
Who is to say what make sense when it comes to loss and what survivors should be doing with it? I think that documentary sounds fascinating. Any kind of death (illness, accident, suicide) has a different set of issues – but they all have that core of loss – of disbelief. So much of life is hard and painful. But I do wish you had some respite from your exhausting sense of loss.
.-= Kate Coveny Hood´s last blog .."I Never Thought I’d Like Sunglasses" or "Shooting Practice Begins Tomorrow" =-.
Another Colleen says:
Last weekend my husband and son went canoeing. He called midday to say that they were facing headwinds and unexpected portages and they were booking it to make it off the river by dark. He turned off his phone and the storms came. I was beside myself and couldn’t contact them. As the hours went by, and it got dark I went into my son’s room and just imagined what I would do if anything happened to him. I could smell him, and I looked at every thing precious to him (and me). I looked at every single thing in that room and how much it connected me to him. Suddenly, I was overcome with heart wrenching grief, as if something had happened. It was just a minicule portion of real grief, but it was smothering. They eventually made it home around one in the morning, all in one piece. I can’t imagine what I would do if they hadn’t and my heart just goes out to you and Heather. Binky woun’t take Maddie’s place, but it will be a good place to direct your love. I pray for you both to heal.
Lindsay from Florida says:
Very similar to a quote from Six Feet Under mentioned by someone above, this quote from ER haunted me when I first heard it (and I’m not even a mom yet): “When your parents are gone, you’re an orphan. Spouse dies, you’re a widow or a widower. But when you lose your baby … there’s no word for that.” I’d never thought about that before. Our language doesn’t even have a name for it … it’s that unthinkable and seemingly insurmountable.
But, what amazes me again and again and again, is that you ARE surmounting it. Please understand I don’t mean that you’re forgetting or moving on, I would never say something like that. But you and Heather reach out to us, to each other and your families … you have hope for another baby … you created an incredible organization to honor Madeline. You two do the seemingly impossible every single day, with such courage and grace. And we will all be here to listen, as long as you want to talk.
Paula says:
Very interesting way to describe it, as disbelief. Looking on your own life and what’s happened in complete disbelief. It can’t be true; not forever true! I can’t wrap my head around it either. When you just can’t experience living it for another minute, your brain just seems to go in observation mode for a while. Hmmmmm. It’s like auto pilot and hollow and empty and meaningless. Good post, Mike. Keep sharing. It helps some of us out here as much as maybe it helps you.
Amy says:
I watched that film as well. It has haunted me to say the least. Despite all of their efforts – their son could not be saved. So tragic on so many levels. I am SO sorry there is such a club… it is painfully unfair.
Thinking of you and Heather.
ali says:
I hate that you are in that fucking club.
hugs, friend.
.-= ali´s last blog ..sam’s mom and other freaks. =-.
andi says:
I watched that documentary, too. It was awful. Well, not awful, so beautifully done, but so sad. And hard to watch. While I was watching it, I thought of you and Heather. I’d give anything for you two not to be members in the shittiest club there is. As always, sending hugs and love to you two.
.-= andi´s last blog ..First, but not last, half-marathon =-.
Redneck Mommy says:
Bug’s four year anniversary is coming up.
I won’t lie and tell you that the pain goes away. I still carry it with me every second of the day. I still am struggling with the disbelief. I still want him back with every second of my life.
All I know is that people who have shared the same loss and choose to talk about it help make my pain a little more tolerable.
So I thank you.
.-= Redneck Mommy´s last blog ..The Couple Who Builds Together… =-.
Barbara says:
I can’t imagine what you go through daily or even minute by minute.
I’m glad that you share what is going on, I don’t always post a comment because sometimes I don’t know what to say but I feel like I’m listening to you. You are sharing something that you need to share and we are all listening, offering advice when we can or just lettng you know we are here. I have never been in therapy (although after my daughter’s NICU stay I could have probably used it) but I think that it must be kind of like that to share thoughts.
I think about you and Heather daily. I think of Maddie every time I see the color purple. What you and Heather have been able to do for the March of Dimes and Friends of Maddie truly inspires me.
I’m very sorry that you are a member of the dreaded club…
.-= Barbara´s last blog ..NICU Grad Party =-.
Loralee says:
My blog saved me after Matthew died.
I wish I had known about them sooner.
Maybe if I had known people who knew the horror I was trying to scrape through day to day I would not have hit bottom as hard and horribly as I did.
.-= Loralee´s last blog ..The only thing that would have made attending a luncheon with a senior advisor to the president to hear my views on health care reform cooler is if it had actually been held at The White House. (I would have totally pinched some hand lotion from Obama’s bathroom. I bet he uses the good stuff.) =-.
Neena says:
I think it takes more strength to share the stories, the grief. While many of us can’t understand we always hope to offer even just a hug to make it a bit better.
.-= Neena´s last blog ..only two days in… =-.
Rebecca says:
I’ve been reading your blog & heather’s since I lost my son in february last year. It was such a shock when you guys lost Maddie too. I keep reading what you both have to say and often I think or comment – yes you’re so right about the grief & berwilderment. Keep on writing – i’m sure it helps you and it does help others too.
Sally says:
Nodding and understanding. From another lonely club member. This club certainly does suck.
Wishing you and Heather nothing but love in the months ahead.
.-= Sally´s last blog ..Hope =-.
Shannon Kieta says:
Mike…
Know that you are NEVER EVER alone, no mattter how alone you may feel. You have family everywhere now. Maddie is with you wherever you go. I know it is not how you want it to be. I can’t answer the question WHY this had to happen to you, but I do know that Maddie was the luckiest little girl ever to have parents like you and Heather. I do believe SHE gave you and Heather Binky. Not to fill her place, but to remind you just how wonderful of parents the both of you are. There will only ever be one Maddie. Like there will be only one Binky. You wil learn to love Binky just as much as you love Maddie. He will bring you soooo much joy, too. In a different way. You will be able to share stories with Binky about his big sister Maddie. Eventhough Maddie may only be here in spirit now, she will ALWAYS be here, always be a big part of your everyday life. I hope you can find strength to go on for Binky and Heather, as hard as it may be…you are a srong man, a good husband, and a wonderful father. I continue to pray for that strength for you to make it through. Shannon
Lucy's Mom says:
I’ve actually tried to write this comment all day, more than a few times I’ve deleted it. I read both you and Heather because it gives me strength to deal with my child. Lucy was diagnosed bipolar 6 months ago – I had to have her hospitalized after a suicide attempt. She’s 13. There has been a second attempt since then.
I am a very middle class person with great health care coverage so we’re lucky there – she is getting the best possible medical/psychological intervention available. Lucy has been in gifted and talented programs in school since kindergarten. I read and sang to her every night of her life until she reached 7th grade. We played board games, went to festivals, the ballet and symphonies. She excelled in everything she did. My friends always said that it was the weight of fairness in the world that she was the perfect child, her older brother is on the Asperger spectrum and struggles daily. Her father couldn’t deal with our son and his disappointment about his limitations so he left last year. Lucy began a downward spiral that she has never recovered from.
Every morning I walk downstairs frightened that I will again slip in a pool of blood in the kitchen. I spend my work days calling her every hour to make sure she’s still there. My life isn’t interesting at all, it’s flat out terrifying. My friends warned me away from the documentary saying it was too close to home for us. I don’t know about the genetic links or any other “explanations”. I just know I’m frightened for my little girl.
The reviews you read questioning why that child’s parents chose to document what happened were the voices of people who may be very lucky, who have never faced the loss of a child or the struggle to keep a child alive. I believe you blog for the very reason you stated. I hope you know that what you and Heather give to parents like me is a lifeline, a very real and palpable experience that, in my case, reinforces what an unspeakable loss it would be if my daughter actually succeeds in her attempts to end her life. And I know I must never stop doing everything possible to save her. It’s just so hard, I feel like I’m standing on the railraod tracks watching the train roar towards me.
I know this is too long for a comment and I hope I was clear on how much your words, and Heather’s have meant to me and my daughter. Please keep writing, I think it’s good for you and I know it’s good for any number of parents like me. And as I commented on Heather’s site, Maddie reminds me so much of Lucy as a little girl, the curls and the big eyes. My heart breaks for you all.
Al_Pal says:
Gah. I think of you & Heather & your family a whole lot.
*HUGS*
tara says:
mike, all i can say is that i am so so so sorry this happened to you and heather and maddie. it’s so unfair. i think of you all every single day. always sending you love and hugs. xo
Rebecca (Ramblings by Reba) says:
Another reason to blog is for OTHERS who find themselves in the same terrible “club.” Not everyone would want to or be willing to write about these experiences. But, I think you’re providing a valuable resource for that man or woman who one day sits down to the computer and opens a search engine looking for some answers of for some measure of comfort… from those who have experienced it, too.
.-= Rebecca (Ramblings by Reba)´s last blog ..It was perfect, except for one small detail… =-.
Colleen says:
On February 3, 2008 I got a phone call telling me my friend’s almost 3 year old daughter had drowned in their swimming pool. 4 days later I attended her funeral. It has been a year and a half and every day, EVERY DAY I think of my friend and her darling Josephine. I don’t live in the same town as my friend but I send her cards and emails a lot and I try to remember every significant occasion I knew about for Josephine. Sometimes I have no idea what to say to my friend and just write “I’m thinking of you.” on her Facebook wall. I am clueless, heartbroken, and often sitting here wondering how I can help my friend in a completely helpless situation.
Reading your blog, reading Heather’s blog, has helped me though. Hearing your thoughts, crying over your words, makes me feel closer to her. It makes me feel like I know how she is feeling, even if just a little bit, for just a little while. Knowing from you that even the smallest gestures have helped makes me feel a little more confident in how I have reached out to her since Josephine died. While cards and emails may be small, at least it’s something so she knows how much she is loved and how much she is needed still. She doesn’t share her grief in the same way you do. We talk about Josephine but it’s not the same. I don’t push because it’s not my right. I am also terrified I will say the wrong thing and not help at all. (Like now really, commenting on your post.) But I also don’t want to be that friend who shies away from her because I don’t know what to do. I never want to lose her friendship because my grief for her grief is so uncomfortable that our lives drift. So you help me. It is beyond comprehension but you make it so.
I have no idea if that makes sense. I hope so.
I don’t want to say thank you for helping me. It’s not fair that your grief helps me with my friend’s grief. It’s not fair that your beautiful darling daughter and my friend’s beautiful darling daughter are gone. I hate it.
I think of you and Heather, Maddie and Binky and your families all the time. I appreciate you and Heather more than you can know.
Much love.
.-= Colleen´s last blog ..Road Trip Day 2 =-.
Amanda K. says:
There is a song that I heard the first time I went to watch Rent…it is called Without YOu. When my Aunt lost her son (my cousin) to suicide I thought about that song and how it talks about how things still go on but you feel as though you are dying without the one who is missing in your life. I always think about the parents who have last a child when I hear that song. Praying for you today and always!
wn says:
Like everyone else, of course, I am sorry….and I couldn’t comment without saying that.
But I also wanted to tell you how useful this blog has been in terms of getting a rare glimpse inside the mind of someone who is going through this kind of grief. While I understand that everyone is different and grieves differently, there are commonalities. Many of us have known people who have faced this kind of grief…and as an outsider, there is not much you can do except to simply BE there. For a long period of time.
It has helped however to hear directly (and honestly, I might add) from someone in the trenches. I hope to never fully KNOW what you are going through…and I am not “glad” you are going through it in any way….I am grateful that you have chosen to share it though….if for no other reason than to provide someone like me, with some insight or some minute understanding, of how to be a better friend, partner, sister, co-worker, etc….in the face of tragedy.
.-= wn´s last blog ..watermelon days =-.
Lisa says:
I’m so, so, sorry.
Kristin B says:
I recently read a book that I think you should read. (honestly I think EVERYONE should read it) The Shack by William P. Young. I’ve not experienced loss like yours, but the book changed my outlook on the great tragedies of this world. I hope you’ll pick it up.
You are so lucky to have so many readers here to support you, to listen (…read), to cry, and to hope and pray for you and your family.
brooke says:
i’ve never commented here before but have been following your, heather, and maddie’s story for a few months. while i can’t imagine what it feels like to lose a child, i think your sharing of your story helps many who struggle with loss and grief.
i stumbled across the documentary you discussed just days before you made your post. it was not even a week after my bipolar fiance had attempted suicide. very fortunately he was not successful and was hospitalized to get the help he needs to continue his struggle with this terrible illness. needless to say, it has been a very emotional time for us and watching the scene of the boys mother at his burial and realizing that had things turned out differently in my fiance’s attempt, i would probably have been at his services that week or possibly even at that moment, was heart-stopping. listening to the uncle’s fiance talk about how her life just stopped for years after his suicide and realizing i could have been living those very words. while the words are distant, unfathomable and i’ve blessedly not been forced to live them, it was striking to the core to have that glimpse of the pain of what easily could have been my life. but i think i understand why the parents shared the story. i think they did a great service in doing so, to those who are struggling with bipolar disorder or trying to understand a loved one that is, and to those who have lost a child for reasons that might be medically explainable, but nevertheless we can never really grasp. i don’t know why my fiance has to endure this awful stuggle, or why anyone has to endure losing a child, but i know that sharing the hard times helps us keep perspective and shows us that we are not alone in dealing with the heart-wrenching emotion that accompanies them. i’m so sorry that you are living the stark reality of losing maddie and wish that it was not the case, but thank both you and heather for you words and maddie’s sunshine smile will always warm those that you’ve shared with.
Sarah says:
Bless you for always sharing and for always being so honest.
Those of us who haven’t lost a child can’t understand the depth of your pain. Thank you for being able to share it with us.
I was diagnosed with shingles this week and have been out of my mind with pain. My doctor proscribed some pretty intense painkillers, but they cause horrible nightmares. One of my nightmares was that I was on vacation with friends who have a son the same age as ours. We were siting on this deck, not paying much attention to the boys playing by the lake. Then we heard a neighbor scream and dive into the lake. I bolted up from my seat and sprinted towards the lake as the neighbor was bringing my limp son’s body out of the water. I started hysterically shrieking “no, no, no!” as I knelt over his still body and in my dream I thought, “This is what it feels like to be Heather and Mike.”
I woke up screaming.
And then I cried, because I know that you don’t get to wake up from your nightmare.
My thoughts are with you, always, even in my sleep.
gypsygrrl says:
i dont check in on you & heather’s blog as often as i would like ~ but i carry maddie and her brilliant smile ~ and you and heather in a special place in my heart. with my chosen career as a nurse about to start, i think it is important to know what grief looks like, to be able to sit with others in their grief and just be present for them, in whatever for them need. blogs are amazing outlets, and opportunities for people to learn how to help those who are in grief work their way thru it.
our culture does not like to look onto sad and devastating things. it is hard to know there is such ache in the hearts of people we care for. but i think with blogging, in some way, allows us to be here, and perhaps deal with our own vulnerabilities and heartbreaks in private, to cry it out…etc… and also to leave words of support.
sometimes all we need is for someone to just say “i am sorry. i am here with you. you arent alone” even if your walk thru the grief IS alone, that presence makes a difference…
much love and prayers,
gypsy
Krissy says:
Thank you. Those were the exact words I needed to hear right now..
.-= Krissy´s last blog ..Happy Angelversary My Snowflake =-.
Molly says:
Great post. I am so glad that you and Heather are still writing. Wishing you both some peace.
Debby Pucci says:
Hi Mike, I am always over by Heather’s Blog but was directed here today. I pray for you and Heather all the time. I only know Maddie from your pictures and videos that are often posted.
I love her, she is so precious. I am so sorry for your loss and the club you have been made to join. I am excited for the little Binky who is coming. I haven’t watched the HBO movie yet but I am going to. My heart aches for you and Heather. Take care and God Bless.
.-= Debby Pucci´s last blog ..ALL PARKING SPOTS SHOULD BE THIS WAY =-.
badassdadblog says:
Just want you to know we’re still here. We, in this case, meaning me. I’m still here. Still reading – if a bit belatedly. Still thinking of you and Heather and Maddie. I want to say “hang in there” or “keep writing” or “peace, man,” but it all sounds kinda dumb. So I’ll just say again, I’m here.
.-= badassdadblog´s last blog ..dear badass dad =-.
rachelcortest says:
Mike.
I always read Heather’s blog and I always think about you and her. I just read your blog about BOY INTERRUPTED. I could not see a place to comment. My son, Tomás, died by suicide at 15 years old and was bipolar. When I watched that movie, it was my story. Thank you for watching it. I feel that the whole world should watch it so that they can understand how we, parents of deceased precious children, feel. I would never want anyone else to know this pain and I can tell you that I think about Maddie every day. Your song is beautiful also. There will never be another Maddie. There will never be another Tomás. We will always be their parents. hugs, Rachel
Vic says:
Dear Mike,
Maddie has been on my mind. I’m sorry I have never commented before. No words will ever describe your loss. Maddie was a gift and I cannot say just how sorry I am that she was taken from her mummy and daddy. Please know that you and Heather are in people’s thoughts and prayers. Sending you love and hugs and strength.
.-= Vic´s last blog ..14 days……. =-.
Kelly says:
Mike I have been thinking of you and your family. Somehow I missed this post when you wrote it. It is so powerful. I haven’t been able to put to words exactly why I connected with Maddie and her family so strongly. It is more than that she was a glorious child or that her parents are strong writers. It is not about voyeurism or some strange interest in the aftermath of tragedy. To say I wish you had no reason to write such painful truths is a fact. I wish with all my heart that you and Heather had been spared membership in that most terrifying club.
All of us face death. All of us will encounter it in various forms and experiences. Most of us can pass happily through our days at a distance from this truth. We have a certain comfort in ignoring our finite nature that you will never have. No other loss, in my imagining, can be more horrific than the loss of a beloved child. And as you and Heather explain there is no longer any respite from the terrible knowledge of death. To tell this part of your journey with such honesty, such tremendous courage, and the tenacity to go forward into a future where the only certainty is that your daughter will not be with you is an amazing thing to see and read. I know that it speaks so profoundly to others who are “in the club”. And when I read either of Maddie’s parents I am always reminded of the great beauty of life. We, for brief moments, participate in miracles like the lives of our babies.
Maddie’s birthday week has arrived. I am sure it is such a difficult time for her family. Please know that she is remembered and that you her parents have changed peoples lives. You have been thrown into a club you wished never to join and there you have made a profound difference. I send you love and thanks.
.-= Kelly´s last blog ..A Mean Moon and a Bullet-list =-.