I am connected with many in the baby/child loss community, and in the last few months I’ve noticed a huge uptick in rainbow baby announcements. For those who don’t know, a rainbow baby is a child who is born after a miscarriage, stillbirth, or infant/child loss – the rainbow after the storm. Annabel and James are both rainbow babies, so I have gone down this road twice before.
My first rainbow baby
Dear Rainbow Mom,
Congratulations on your baby! I know how hard it was to announce this baby, the complicated mix of jubilation and guilt. You want to be excited about this new life, but you want to be respectful toward the life who is no longer here. This is the tightrope you’ll walk down for the rest of your life, but it will get easier.
It’s okay to be afraid. It’s okay to take it day-to-day. It’s even okay if you’re not excited. You’ve learned, in the worst possible way, that nothing in life is guaranteed. But it’s also okay to have hope, and make plans. Yes, the baby deserves that, but so do you.
A baby after loss is scary. There’s no such thing as a normal pregnancy pain after you’ve miscarried, no such thing as a normal sneeze after your baby has died. Be kind to yourself. Accept help when it is offered, and ask for it when you need it, even if it seems outlandish. For me, that meant asking someone to sit awake with the baby while I slept, because I couldn’t physically rest unless I knew someone else was awake. I knew it was silly, but I literally couldn’t relax without someone else’s eyes on my child.
Even the practical things are complicated. Will you be able to handle giving your new baby items from your deceased child? Even if that child never had the chance to use it? You’ll resent that you don’t get to look at these things as normal hand-me-downs instead of the few cherished possessions your child left behind – yet another reminder of how unfair life is.
There will, of course, be people who assume that with the arrival of a new baby, you are “better.” They won’t get why you’re “still sad.” There will be others who think you’re a terrible person for daring to go forward with your life, as if having another baby means you’re replacing who is gone. These people will never understand. Aren’t they lucky? Ignore them.
The day Annabel was born was one of the best days of my life. The day we brought her home was one of the hardest. My emotions, fueled by postpartum hormones, were all over the place, and I was completely unprepared. I sobbed onto the top of her tiny head a lot. My heart was swelling and breaking simultaneously and it overwhelmed me. I urge you to have a support system in place. Be it a doctor, therapist, grief group, friend, or another Rainbow Mom, make sure you have a net in advance, because then they will catch you before you even realize you’re falling.
In the last six-and-a-half years, I’ve learned that life can still be good (even great) after unthinkable loss. There was a time when I would have been horrified to even type that sentence but now I can write it knowing it’s true, although I’m still working through the associated guilt.
Every day, you will be able to breathe a little bit deeper. Every day, you’ll love your babies – all of them – just a little bit more, until one day, that love overtakes the pain.
Congratulations on your beautiful rainbow.
Michelle A. says:
Heather, Thank you so much for being a spokesperson for those of us who have suffered loss. I hope to one day take home a rainbow. I’m still in the painful first trimester, where every ultrasound is an exercise in controlling my PTSD response. The critical ultrasound for us is this Friday, and I feel my anxiety building. Last week, I had an ultrasound nightmare, which luckily hasn’t happened again. This post is very timely, and I will try to focus on the idea of bringing home my rainbow as Friday approaches.
Nellie says:
Michelle – Sending you loving thoughts and prayers for your ultrasound. Know that there is so much love and hope that surrounds, guides and forever will, protect you and your beautiful heart that’s been through so much pain, loss and heartache.
Heather – Your words are so beautifully written and though I’ve never experienced this type of loss, my heart aches for those who have and I know that even when words fail me or I don’t know what to do, simply being there is just as important. Continued love and blessings on you and your beautiful family, Heather!!
Kelly says:
This is beautiful Heather. Thank you.
Ms_DH says:
This is beautiful. I remember when you had your first rainbow baby, Annabel. I was at work at some ungodly hour and you guys posted that she was born. I remember crying happy tears to hearing “here come the sun.” I know I am not a “friend” in real life so to speak, but I was just so happy for you guys and hopeful for everything that the future held for you both. Thank you for sharing the good and bad with us. I may not have ever met her, but I will never forget your precious Maddie.
Margie says:
I am a rainbow baby and I have always known my role in my family. My momma lost a stillborn 2 years before my birth. I have a living older brother and, after me, another brother whom we lost last year. I’m sad but sadder for my momma that lost a baby she never got to know and a baby whom she knew for 34 years. Life sucks sometimes but it’s also nice and that is the part worth living for.
Hugs to all the moms and dads who lost a baby they never got to spoil and hugs to those that got the chance even if for a moment.
DefendUSA says:
I’m printing and saving this for me and my SIL. Perfect.
Mary says:
Thank you for sharing. My rainbow baby just turned 1 (I had her after 2 back to back mcs one of which was particularly traumatic). Thank you for being so open about your mcs-it was so helpful to read as I was going through it (before I learned that many of my friends had mcs and I could talk to them-it’s so amazing how no one talks about this..very sad). I still think about my lost little ones and sometimes I feel like I’m the only one that even remembers.
Brooke says:
This made me get teary-eyed. I feel the same struggles with joy and guilt since the birth of my two rainbow babies.
Ashleu says:
Thank you for this beautiful post, Heather. I suffered a miscarriage in April after trying to get pregnant for more than two years. Had that not happened, my first baby would be born in December, around the time of my own birthday. After spending the last few months working through my grief in therapy (which has been enormously helpful), many people close to me don’t understand why I am positively dreading the month of December if I’m “feeling better.” While I know I will get through the month, I’m eager to just turn the page on this year and focus on creating my own rainbow baby.
Katrina says:
I lost a pregnancy that was due on December 25th. Every single Christmas that comes around, I think about that baby. The grief has subsided as the years have passed, but it’s still there in my heart. Friends and family should understand that “feeling better” does not erase the loss, and the feelings that coincide with that loss. The sadness on an expected due date is normal. And wanting to get that first year behind you after a loss is normal, too. I wish you the best of luck conceiving your Rainbow Baby:)
Amy says:
Thank you for this post. You, and many of your readers, have experienced terrible things that I, thankfully, have never had to go through. But each one of these posts makes me more aware, and hopefully better prepared, to be an empathetic, supportive and loving friend to others. Thank you for sharing your journey so publicly. And please know that each time I see pictures of Annie and James, I celebrate with you — and whisper dear Maddie’s name in my heart as well.
Stephanie says:
That last sentence caught my breath. Beautifully said – a sentiment I think many of Heather’s readers share.
Toni says:
Beautifully written!
Anne says:
Thank you so much for everything you do. I come to your blog every day to read about your family, and it’s things like this that touch me the most. Beautifully written, beautifully expressed. Again, thank you.
Michele says:
Thank you so much for this post, Heather. It’s so important for parents to know they’re not alone in struggling with simultaneous joy and grief. Your honesty is a gift to your readers!
Amy says:
Thank you for this post. I’m 4 months pregnant with my rainbow baby. November will be what-should-be the first birthday of my first baby, and the due date of my second baby, as well as when I find out the sex of what will hopefully be my rainbow baby. I know that things are going much better with this one than it did with the other two, but still, pregnancy after loss is rather complicated.
Lanie says:
Heather – thank you so much for this post and for sharing the stories of all of your children. There is so much joy and sadness in having a rainbow baby/babies. It continues to be a balancing act – hope that they will be healthy, happy and grief over what will never be. Sending you hope and hugs.
Jennifer Brandt says:
Thank you so much for this, Heather. Right now, I’m all about the hormone rage and the battle to ask for help. But it takes strength to ask for it and your post reminded me of that. I’m so happy to have another name for my boy now… I knew he was special but the rainbow baby just… perfect. xoxo
Norma says:
You are the most amazing woman. You’ve been an inspiration and comfort to me many times. I thank you for that. May you and your family find yourselves in good health and filled with peace and love.
Auntie_M says:
This is such a beautifully written post. So true. And not just for moms and dads, who of course feel all of what you describe more fully, but also grandparents (because they grieve for a grandchild and their child and their hearts are on a knife’s edge with joyful anticipation on one side and worry over their child on the other) & aunts and uncles too (similar dilemma as that of the grandparents).
So glad that you point out that the rainbow child doesn’t erase or replace the child that has passed away and that joy over the one doesn’t erase the pain of loss over the other.
November 12/13 marks the 6 year date of my nephew’s stillbirth. He has a wonderful younger brother who will be 5 in Feb. It doesn’t change how much we still miss him.
Love you Heather!
Rita A. says:
What a great post. Pregnancy and parenting after a loss is really such a tight rope walk. When I was pregnant with my rainbow I didn’t tell anyone until I started showing… and even then I didn’t officially tell many folks. Even down to my coworkers I never told not one (except my boss) and after my rainbow arrived they all confessed they thought I might have been prego but did want to ask for fear it was just weight gain. lol
a says:
…made me cry
Katrina says:
Such a beautifully written post. My two year old is a Rainbow Baby. He came after five consecutive pregnancy losses. He was the baby we thought we would never have, because we were ready to just call it quits…and then we found out he was on the way! After he was born full term and healthy, we decided to “end it on a happy” and my husband was planning on a vasectomy. I didn’t want to risk having any more miscarriages and I really felt “done”. But before that happened, we discovered another Rainbow Baby was on the way. I was so excited! But it turns out this Rainbow Baby will actually be another loss (but this time an infant loss, not a pregnancy loss) due to his Trisomy 13 diagnosis There is a huge part of me that wishes we could have another Rainbow Baby after him …. but that’s not going to happen. I’m 46 years old. I am done after this baby is born. I will love him up while he’s with us, though. To the fullest. He can be our special Rainbow Baby for however long he is with us.
Ashley says:
Thank you for your kind, supportive words on my comment. My heart breaks for your losses. I wish you strength and support in the coming months. I’ll be sending it from afar.
Melissa says:
Love this. Thank you. My own little James is a Rainbow Baby as well. We tried for over a year to get pregnant, then had a miscarriage. The very next month we found out he was on the way. The pregnancy was… awful. I was so scared something was going to happen to him. People kept telling me to enjoy it. It was so, so, hard, especially when I ended up with a ton of complications. Thankfully, James was born at 39 weeks happy and healthy. A pregnancy after loss is never easy, and it’s so hard to explain to someone who has never been there.
Stephanie says:
Thank you for this, Heather. I don’t have any children, nor have I ever even tried to conceive a child (almost at that stage, but not quite!), however; your posts have made me so much more aware of the importance of loving through life AND loss. I know that your goal is to educate and empower others through your experiences, and you do just that every day. Because of you I am more empathetic, more aware of my wording towards others, less judgemental, and I pass along your advice when I can. There have been one or two times when a friend of mine said something (innocently) inappropriate to a grieving mother. I gently explained to her that the wording she chose may not have been the best, though her intentions were good. That is why I come here every day to read this blog.
Heather says:
Thank you, Stephanie! That means so much to me!
Cécile says:
Your article was published today by the French Huffington Post. And I really wanted to thank you.
I lost my little girl just a few weeks ago ; and she already was a miracle. So I don’t know if there’ll ever be a rainbow baby and I’m not ready to think about it.
But you gave me hope. Hope that I can and will find happiness again.
And I really love the words “rainbow baby” you use in english !
Heather says:
Cécile, I am so sorry to hear about your little girl. My heart breaks for you! Please let me know if there is anything I can do. Lots of love to you.
Cécile says:
You already did with the hope you gave me.
And by teaching me the word “rainbow baby”. It so exactly fits, expressing the hope, the pain, the happiness, the fear… In french, we just say “the baby after”, there’s no meaning in that !
Emily says:
Last week I read this post and prayed that my daughter would be my only rainbow baby. This week, I miscarried, and as I re-read your post, I hope that one day we are lucky enough to have a second rainbow baby. Thank you for posting, and sharing your story.
Heather says:
Oh Emily, I am so, so sorry.
Mrs Sull says:
today is the first day I’ve read your entries. I’m going to be reminding myself a lot that it’s ok to make over the top requests and that it’s okay to sob while holding my to-be-rainbow.
I want this baby to use everything baby Lucetta never got to. June 11, 2016 our incredible 13-day-old daughter died in my arms without warning. I was nursing her and nodded off. Less than an hour later she was dead. I tried, the paramedics tried, the ER… But she was gone. “Sudden unexplained death”
My pregnancy was perfect, my birth went flawless. My baby was perfect and so very pretty. We did everything right but she still died without warning.
I don’t know how other parents curb their fears, after their biggest nightmare becomes real, to family on and make more babies. I tell myself I will be able to push through the worry. I’d fretted my entire pregnancy and after she was born that I was too happy and she was too good of a baby. I knew she’d be ripped from us.
After a few months of floating lost- we are excited to try to conceive now. I know my excitement will turn to anxiety and fear every moment. I’ll have to learn to ask for help, not let my fear consume us, try to enjoy our baby through pregnancy and infancy.
you’ve done a great service to other grieving parents that you’re not just venting and sobbing- you’re a reminder that we will be over protective, over sensitive, very emotional, elated and sad- and nobody has a right to tell us any of our feelings are wrong.
Yesterday was our first try at conception. Although we are excited I know as soon as that pregnancy test is positive I’m going to be a mess of nerves every second until I hear those wee cries. Then a new game of worry will start. But we won’t let fear stop us from making our family.
As I feel I can handle bits of your posts- I will read on. Knowing what panic I inevitably will experience through your honest words will help calm me I believe.
My friend says it’s been 50 years and she still misses her toddler. I will always miss my new born. I know watching another baby hit milestones Lucetta never got a chance to will be painful and joyful. But you’ve done it. Other mommies can do it. I will too.
I have a very tiny network and I don’t know if I can handle expanding that. So I will be relying on blogs like yours to wise me up.
Your’s is the first story I’ve read (about both your rainbows) and for today that’s enough. I can’t cry anymore today or I’ll make myself sick- and it’s only 9am.
Anyhow- thank you for your honest and informative posts. It’s a reality for what to truly expect to feel during pregnancy, postpartum, and even years to come after your child dies.
Donna says:
I have only foumd this post but thank you for posting it my rainbow baby has just turned 1 and i find it hard to cope someday his brother would of been 7yr old 2 days before him i am on own with not much support my uncle does stay with me sometimes but even he wont try to suppprt me for example my son is a premmie baby and a couple months ago I got him weighted he was only 18lb 8oz and about a wwek after that a friend got her son weighed and he was 1lb smaller and is 7month younger but i got told there’s nothing wrong with my son i worry to much or because i wnted to soak his bottles to make sure there was no milk on them im been to fuzzy it make me worse and feels like im not doing things right but when i got people to read this they understand why im the way i am a little bit better