I hate March. I hate April. I hate the whole lead up to April 7th. I’m feeling very angry this year and I don’t know if that’s going to subside before the seventh…and I don’t think I care if it doesn’t. Apathy and anger are some of the hardest emotions to work thorough in the grieving life; at least, they are for me. And they always seem to come back. I hate this time of year.
No matter which grieving process I’m working through, I can always recognize how much support we have. So many of you, “strangers” who have never met us, will reach out to acknowledge that we have a painful day on the horizon. I am always gobsmacked by the emails we get every year. Some are just a few lines while others are many paragraphs long. I can’t imagine what this would be like without the enormous network we have. I am simultaneously so grateful and so apologetic that we have such an amazing group surrounding us when so many don’t.
I still live in fear that one year, everyone will forget. One year, no one will sign up to march for Maddie, no one will remember what a horrible day the seventh is, no one will remember her at all. And that fear transports me back to another time…a far worse time. In the months after Madeline died, I rarely left our condo. If I did, it was either to go to the doctor, or to check our PO Box. My friends had set it up so people could send cards, and wow did they. We received some of the most amazing cards, letters, and packages. I was simultaneously comforted and overwhelmed. I put many envelopes aside, comforted by their mere existence. It’s hard to explain, but often holding the literal proof that people cared was all I needed. I did eventually open everything, and there were many times when I’m glad I waited because the contents was very emotional.
I knew that, despite all the promises to the contrary, people would eventually stop sending cards, emails, and texts. I didn’t blame anyone for it, of course, but I absolutely dreaded the day that I’d show up to the PO Box to discover there was nothing inside. I was honestly terrified of what would happen. I hoped that it wouldn’t arrive until I was more emotionally solid, and I was very lucky that’s what happened. But even still, the day the mailbox was empty practically knocked me to my knees. It didn’t mean that people had stopped caring, but it was still so, so hard.
I’m often asked what someone can do to help a grieving friend or family member, and this is a big one: Go out of your way to tell that person you remember and miss their loved one. Set reminders on your calendar, then send cards, emails, and texts. I had a friend who literally texted me at 4pm every day for a year with a simple “Love you.” I had someone who sent me cards twice a week, another who sent one on the seventh of every month. These were often my daily and weekly goals, like, “I just have to make it until I receive C’s text,” or “R’s card will be arriving tomorrow.” They helped me make it through the hardest days. It was so easy for them. It will be easy for you, too.
Taking a few moments out of your day to tell someone who’s grieving that you remember their loved one can literally change their entire day. I can’t stress it enough. Please, for Maddie: tell someone that you remember. Don’t stop sending the cards.
Laura says:
I can’t even read you’re whole post because I already feel your pain. I cannot imagine, yet I have a close friend who can. Her daughter was her third child. I can’t think there is any difference.
Lilian says:
Oh how I am crying reading your post. I am so relating. I now hate January and February for the same reasons. I hardly ever leave my apartment either. I’m still in shock and trying to live with acceptance, but the pain increases. I’m still receiving the occasional card,or Facebook message, or just a text, and like you, I dread the day they stop. Since I joined your club, I am so angry, and feel like I will be angry for ever. I hate that we have bonded through tragedy, but at the same time, grateful to have your posts to show me I’m not alone, and that my emotions are not all crazy.
Auntie_M says:
I know, logically, that a post box full of cards will eventually dwindle and end….but I wish for every grieving family that it wouldn’t.
As for your fear that Maddie would ever be forgotten: it isn’t possible. She has staying power. Once “met,” never forgotten.
(In fact, both my cell & Kindle immediately suggest the name “Maddie” if I type “Annie” and vice versa. I also am offered “James” so not only am I stalking your family, but so is my technology. Other words that come up are “LOVE,” “expression,” “adorable,” “amazing,” & “grief”….apparently I just say the same things to you over and over again. Which should verify that I am being honest when I say: your precious Madeline will NEVER BE FORGOTTEN. It simply isn’t possible.)
XOXO
Bessie.viola says:
I don’t know how anyone could forget Maddie. I didn’t know her, but I think of her and your family often. Whenever I wear purple, I think of her. Sending love and prayers your way.
Shelly says:
I completely agree. I wish I had words that could help but please know Maddie will not be forgotten. Her life has had the most amazing impact across the world.
Elizabeth says:
Maddie is unforgettable. She and your famiy have changed me and the world for the better. Sending you much love.
Nelly Ritchie says:
Couldn’t help but shed a tear at this post, I know the feeling. I lost my Mum 3 years ago and I am terrified people will forget her.
Sending internet hugs to you all, if I could send a card I would. xxx
Antonia says:
It is coming up to the 20th anniversary of the death of a friend’s 17-year-old son and I’ve been wondering whether to send a card or not. We were close friends at the time but have over the years drifted apart. Your post has inspired me to go ahead and send a card so she and her husband know Oliver’s not been forgotten and nor has their loss. Thank you x
shannon says:
defendUSA says:
Sigh. Let me tell you that I know as long as there are people who know you and what you went through, forgetting is not really an option. I’m on 22 years and people still remember who know me.
And I remember the few who have passed before me, and I reach out whenever I am reminded of said persons.
I don’t know if I mentioned this to you or not- In August of 2012, I was in Michigan helping my kid move to new apt. for college. I went to Macy’s for stuff. That day, I forgot my coupons. There must have been a fundraiser for the March of Dimes. The thing is, the balloons at every register were purple. I took a picture meaning to send it to you to tell you that I remembered Maddie and purple. When I took the pic, a man was on the other side of the register. He asked why, I told him. He handed me coupons that saved me 50 bucks and said, “It’s Christmas in August!” He smiled and went on his way. It’s always the little things, but remember that your blog and it’s impact has a far reach.
sherry russo says:
I remember your sweet little Maddie EVERY time I read a new post about your two other sweet babies! WHO could ever forget that sweet little girl of yours
Sue says:
I will never, ever forget beautiful,little Maddie, Heather! I remember her with almost every post you write, whether it’s directly about her,,,or not.Sending so much love to you and your entire family………..we will always, always remember!
Brandy says:
I have never met you or your family but I care so very much about all of you. Maddie touched countless lives and she’s thought of regularly in Indiana. She won’t be forgotten.
TamaraL says:
My best friend lost a child 17 years ago…she has since moved out of state and we do keep in touch but I haven’t been the ‘best’ friend that I can be. His life was so short, so fleeting, and I know she worries that he will be forgotten. Thank you for the reminder to always let her know that I haven’t forgotten her boy. I could never forget your Maddie either…
Lanie says:
I will always remember Maddie. I hate March and April for you. If I had the right words/actions to take awya your pain please know that I would say/do them. I know those words and actions don’t exist so I will send you hope and hugs.
I wish none of us had to live in a world without our child/children. It amazed me after Jake and then Sawyer died how the rest of the world kept going (as it should) when my world had stopped.
Thinking about you, Mike and Maddie extra during this time. xoxo
JoAnn says:
I just want you to know that you and your family, and Maddie especially, are a part of my daily life. I read your blog daily, I feel a connection to you. And what’s more- Madeline touched my life in a way that I can’t describe. Every day leading up to April 7th I feel a keen sense of its arrival, I think of you all so much during this time.
TonyaM says:
Maddie will never be forgotten. Sending you love and prayers.
Nellie says:
I may never meet you but your blog has touched me and affected me in ways you ccan’t even begin to imagine. Purple in any shade is always “Maddie’s color” whenever I see it or wear it. You will never, ever be alone in your grief and your beautiful, amazing first born will never, ever be forgotten.
Sending lots of love and hugs your virtual way!
Megan says:
I love that photo of Maddie. I don’t think I remember seeing it before. I never read here until after Maddie died, but I think of her often and wish I could be reading about her adventures in kindergarten along with Annie’s adventures in preschool. I am thinking about you, Mike, Annie and James as April gets closer.
Jenny says:
I think about Maddie every time I read your blog, which is every day. I don’t know you and never got to meet her, but I have a daughter, and my heart aches for your loss.
Susan says:
Often, when I see purple anywhere (clothes, curtains, wall colors, anything), somewhere in the back of my mind I think “Maddie’s color”. I have done so for years now, and I always will.
I feel like I have learned, through reading your writing about grief (and the many forms it can honestly come in), how to better understand and help people. I didn’t realize until recently how lost I was when it comes to the topic of grief, but I feel much more educated and ready now.
Meg says:
Love and light and hugs. xoxo
Terri says:
Every time I see Abby Cadabby I think of your little Maddie Moo. That will never change. I miss reading posts about her adventures. Keeping you close in thought.
Kate says:
Sweet Maddie had such a huge impact on this world for a person of any lifespan. I never knew or read about her when she was alive, but I still think of her beautiful smile and her amazing spirit often, and it reminds me to hold tight to my son, rock him just a little bit longer, and take every opportunity to make him feel loved.
Michelle says:
Maddie is unforgettable! This time of year sucks for a lot of my close friends because of loss so I want to thank you for this reminder on how to best care for those who mourn. I will be sending virtual love and light your way.
Anna says:
It’s interesting that this is your post today, because I was actually thinking about Maddie this weekend. I’m not sure what train of thought led me there, but I was thinking about the fact that I didn’t find your blog until Maddie passed away (I’m pretty sure it was from Moosh in Indy), and I was wondering how many other people joined your journey right after her death. Through the work of Friends of Maddie, you have taken your personal tragedy and turned it into great exposure for the March of Dimes and lots of extra people wanting to help. Even though that doesn’t make it okay that you lost your daughter, and nothing can ever replace her, it’s so wonderful that you’ve been able to help countless other babies (and will continue to through the years). Love and prayers to you and your family this March and April (and for years to come!).
Ashley says:
Words… they’re just words… why can’t I think of any amazing/profound ones to say?!?!
Maddie will not be forgotten. There’s just no way people could forget those beautiful blue eyes and those gorgeous curls. Shades of purple and Abby Cadabby are things that remind me of her and I only *know* you through the internet. Your words have touched so many people, I’m sure “your” people won’t let you down.
Lisa says:
Tears here. I will always remember you, Maddie, your family. Matt has a couple of big sad/happy days coming up next week. I don’t forget them. My heart aches for what you guys go through. Keep posting pics of Maddie- I love to see them, and do something nice for yourself and Mike on 4/7. Get out of the house and do anything you want to, you and Mike deserve the best.
Sara Mc. says:
My Nana lost her son when he was 11 (in 1969) and my Aunt lost her son days before Christmas 2013. I know my Aunt has had an unimaginable hard time and I never know what to say. Reading your post, as I do everyday, let’s me know that sending her the random I love you texts might be making a bit of a difference. I ask my Nana about Scooter periodically but I usually wait until she mentions him. Even after all of these years you can see the effect on her of losing him so I don’t ever want to open wounds. Thank you for your post today about going ahead and letting that loved one know you are thinking of them, the lost loved one, and what they are going through. Know your precious Maddie is thought of all the time. As you, Mike, Annie, and James are thought of. I hope you have a blessed day.
Kyla says:
I really needed this post today as our school struggles with how to support a community member who has lost their Dad. No one seems to be stepping up, they seem to be retreating and I myself was just wondering how we can help…now I know I have to be the one to lead the charge to comfort. Thank you and believe me, I remember Maddie every day though I never met her.
Christina says:
I can’t imagine not remembering her and your family.
Paula says:
Heather – this will sound silly (or not) but when I drive to work in the morning and the sun is rising and I see pinks and purples swirled with the orange and white I always say “Good morning, Maddie.” If I see it during a sunset I repeat the process. I have tried taking pictures and wanting to share them with you but they either don’t make the colors looks as brilliant or…I fear you will think I am stalking you.
This anger you feel – this is great. It’s another stage of grieving. I am stuck in this stage. There are days I am so angry I swear I could chew through steel. Then there are days I find myself curled up asking why. It’s not easy but it’s okay to feel this way. I did not lose a child but I lost my brother to suicide and he left three beautiful daughters behind.
Your Maddie will never be forgotten. You and Mike have shared her life with millions. Her memory lives on in through Friends of Maddie, this blog, through family and friends, and through March for Maddie. You can rest easy knowing that she also will live on through Annie and James as well. They are part of Maddie as much as you and Mike are part of Maddie.
Lisa says:
Maddie was so beautiful; it’s amazing how her little legacy lives on through you, all your family and friends, and through countless more people who have been affected by your story and therefore by Maddie’s life. She’s always with you, and she’ll always, always be a part of you. And because you share her life with us, her light is a part of us all.
Amy Collen says:
Oh I love this post, Heather. I remember back when my Noah died how much all the letters, hugs, and love meant to me. It lifted me up during my worst days. Just to know that so many people cared. Then I had many many angels here on earth who freely donated their sick time to the county catastrophic bank (whoever had the idea to even establish that program walks above the earth in my opinion) so I could have almost a year of paid leave to take care of my other very sick micro preemie, my Sam. There were at least 30 or 40 people that donated, and donated anonymously. Anyway, just want to tell you that I am still in that marathon with you, Heather. July is the month for me. On July 9th it will be 8 years. Wow.
Jolene says:
No words are profound enough to express what I want to say. I will never forget your precious Maddie Moo. I never met her and have only recently met you but having an almost 17 month old daughter myself reminds me that life is precious and to cherish each day with her. My heart and my thoughts are with you, Mike, Annie and James. Your sweet Maddie is in my heart forever.
Donna P says:
Ditto every one of the 34 comments above. Heather, you’ve kind of made us all a part of your family and along with you we grieve for Maddie, your adorable little girl that most of us never got the chance to meet in person. We’ll never forget her, there’s not a day goes by that she’s not in our thoughts. My heart goes out to you, I can’t imagine how hard this time of year is for you and Mike.
Jennifer says:
Heather,
Thank you for your comments today. I have a co-worker who lost his son several years ago. Each year, on the anniversary of his death, I send he and his wife a card telling them that I am thinking of them. I was never fortunate enough to meet their beautiful son but I do remember. And it is my hope that they will always know that somebody out there is thinking of their dear sweet child.
You and your family are likewise in my thoughts and prayers. Looking at your beautiful family always reminds me of your beautiful Maddie. She will never be forgotten.
PAOLA says:
Heather,
I dont even know what to write, but know that I will follow your advice, and also that i will always remember Maddie!
Lots of thoughts love and prayers in this difficult time and always,
Paola
Kristen Smith says:
I will never, ever forget Maddie. Ever.
Nikki says:
Maddie will always be remembered, she was an amaze kid and an beautiful lil angel. I wish there was someway to make it easier but i know it’ll always be an impossible day. I hope James and Annie can make it a little bit easier..
schoolofmom says:
Thank you so much for posting this. I have a friend I need to text.
(Maddie will never be forgotten. I get heartsick for you every year about this time, thinking of what you have to go through, but I promise, so many, many people remember.)
Bianca says:
Another one here never forgetting to remember Maddie. Wearing purple today as it happens xx
Meg says:
xoxo
dawn says:
I found your blog a few months after Maddie died, but I’ve been a faithful reader a few times a week since. Crazy how much time has passed, and yet even for me, a stranger, how fast it has gone. I actually really like this advice, because i am terrified i will have a close friend or family member who is grieving and i won’t know what to do.
I also always think of Maddie, and absolutely love all the pictures and videos of her, though the videos are hard for me to watch! She was such a sweet little thing
JustAMom says:
I think about your girl all the time. When I see purple flowers, anytime the MOD is mentioned, when he jacaranda trees bloom……. and – especially when I’m frustrated with my 8 yo. I can honestly say that I never, ever, take a single day for her for granted – and it’s because of your Maddie. I can’t even begin to imagine how excrutiating the pain of missing her must be. Rest assured, she will never be forgotten.
Courtney Contos says:
I remember exactly where I was when I learned of Maddie’s passing. I remember you every single day. I will never forget her bright, beautiful light.
AuntieMip says:
Heather and Mike,
I have posted here before. I usually say some version of the same thing.I will say every chance I get in the hopes that it brings you some measure of relief and hope.
On April 12th my family will acknowledge our 49th year without my brother David. I was the youngest when he died,just 3 but I have memories. Lots of them.
Here is my promise. Maddie will never be forgotten. She will always be cherished and remembered. My mom’s friends, while they do not know the exact date, know he died in April. She still gets Mass cards for him. Friends will take her to lunch. She will get emails and calls. It is interesting because it is so much easier to reach out now with social media that she will here more from people in 2014 than she did in the years after he died.
Like Annie and James, my younger brother was born after David died. He knows about him because David was a part of our lives every day after he died. He still is.
But here is where the hope lives, in Annie and James future children. All 8 of my nieces and nephews talk about their uncle David. They know the story of the day he died. That cold, Spring April 12th as he drifted in and out of consciousness. When he asked my daddy over and over when it would snow (we live in Seattle)and my dad continued to remind him that it was Easter and it rarely snows in Seattle. He continued to ask and daddy finally told him when the angels came it would snow. Moments after David died Seattle experienced a rare Spring snow storm. It is an impossible story to forget. And all 8 know and tell it with pride.
This year we will gather as many of us as we can to have dinner on April the 12th. Because, as life is want to do, we have multiple reasons to gather. We will remember the David who left us 49 years ago and we will celebrate the David who joined us exactly 30 years to the day later as my nephew celebrates his 19th birthday.
Madeline Alice Spohr has a legacy of love, courage, beautiful eyes and a killer smile. How could anyone forget that?
Meg says:
I try to tweet at you when I see a baby who looks like Maddie — I hope that’s okay — often it’s the curls or the smile.
I get the donation solicitations from March of Dimes and I am hoping I can contribute again this year . . . I just started a new job this week, so maybe I will be able to do so. (Right now I’m hoping I get a check before next month’s rent is due. Economy, bah.)
I’ve never met any of y’all, I probably won’t, but I personally won’t forget Maddie, and not just because purple has always been my favorite color.
Tambrica says:
Well said Heather. Thank you for sharing this so people know not to be afraid to “bring up the topic.” April is bad for my family too. My two sisters had a child die on April 17, and April 24…one week apart. It will be three years this April. This April 7th will be especially sad because it would have been one of my nephew’s 21st birthday. Thanks to technology, it is possible to instantly send a message of hope. Thanks for the reminder that parents never “get over” the death of a child and they shouldn’t be made to feel like they should. Take care!
Kay says:
I’m sorry for your losses too. My family has quite a few bad days in April too- I think it’s just a bad month for a lot of families.
Another Amy says:
Your Maddie has touched more people than you will ever know Heather and Mike. I truly mean that.
kakali says:
We will always remember Maddie!!!!
Buffy says:
I promise you I will never forget Maddie. Ever.
Eli says:
I remember sweet Maddie everyday as I read your posts, every time I see an instagram pic or a facebook update ???? she will not be forgotten xoxo
Eli says:
???? = was supposed to be a heart
Nicole E says:
Praying for you and your family, Heather !
C Lo says:
Long time reader, first time commenter.
I was reading your blog when Maddie died. I was in some common mommy blog circles at the time and we had peripheral friends in common, so I remember that day and my entire internet world just breaking down.
Since then, I radically cut back on my internetting. I don’t even blog anymore! But your blog is one I always check back on. Partly because it seems so fresh still. I read your other post and I CANNOT BELIEVE it was in 2009. Like……..what!? It seems like last year, in a way. My brain gets that you guys have two more kids now and they are growing like crazy, but I still feel like Maddie’s loss was so so recent.
And like others have mentioned……..for that reason, purple became “Maddie purple” for me. I mean………that’s just her color. So I always think about that little girl I never met when I wear it.
I feel like Maddie’s memory is not anywhere remotely at risk of fading.
Kay says:
I was procrastinating studying for AP exams during my spring break in 2009 when I wandered onto your page (I have no idea how I got here) and found out that Maddie had died. I had never been here, and my curiosity (and procrastination if I’m honest) got the best of me, so I read every post from the beginning over the course of two days, completely engulfing myself in everything you posted. By the time I got to that last post, I was devastated. She was such a beautiful child with so much ahead of her, and her loss was heart breaking. There has not been a year when I didn’t remember her anniversary or birthday, and though I’m not religious at all, I do say a few words in the hopes that *maybe* the universe will make something good of it. I hope you and your family know that there are many people who will always remember Maddie, whether we knew her or not.
Melissa says:
I think of Maddie whenever I see the Abby Cadabby dolls at my work
Elizabeth says:
I walked into my bank Wednesday and it was bedecked with March of Dimes purple and had pledge cards and all of that stuff. My first thought was of you guys and Maddie. I wish I had gotten a picture of it to share with you.
Christa says:
As I sit here crying, know that she will never be forgotten. With everything that you, Mike, Annie, and James do, she lives on, and she lives on in the lives of all your friends, family, and those of us who have come to know your story through this blog. I know how hard it is, the first birthday without my mom was last week and I was so touched that when her close friends posted wishes for her on her page, sent me and my brother their thoughts, and then all the texts I received letting others know that she may be gone, but never forgotten. *hugs*