Not long after we brought Madeline home, I signed up for just about every parenting website under the sun. I was so excited about being a parent that I apparently wanted my inbox flooded with information about my child. I quickly grew frustrated with the “My Baby This Week” kind of emails because, as a preemie, Maddie was on a different schedule. I slowly unsubscribed from all of them, or so I thought.
A month before Maddie’s second birthday, I received an email that had slipped through the cracks. “Madeline’s second birthday is just around the corner!” It was a punch to the gut, but I couldn’t bring myself to unsubscribe. It felt like I was deleting her. Four and a half years later, I’m still on the mailing list.
I haven’t watched the TV show Glee regularly for a few seasons, but I watched it last week. It was the episode that dealt with the death of Cory Monteith and his character, Finn. I don’t know what I was expecting, but of course it was terribly sad. The part that resonated the most with me was the scene with Finn’s mother. She said something I know I’ve expressed often:
“You don’t get to stop waking up. You have to keep on being a parent even though you don’t have a child anymore.”
It’s true. But as you get further away from your child’s last moments, you cling to any opportunity to be her parent. Sometimes that opportunity is reading a form email about her birthday. Often, it’s the first time in weeks that someone other than yourself brings up her name.
Last week I received the email again. Madeline’s sixth birthday is just around the corner! It’s the fifth time I’ve received it since she died, and it still hurts…but I still read the email.
Becca Masters says:
I watched that episode. It was incredibly heartbreaking and when Finns mom broke down, I thought of you and all the other moms I know who have had a child pass away. Even being a mom, I cannot even begin to comprehend the hurt and pain and grief. I could barely breathe when I watched that episode.
Mary says:
Vicky says:
I have no words – only love.
Maris says:
Ditto
Sue says:
Sending so much love your way, Heather…………..
Ella says:
I love that photo of you and maddie!
please know, that maddie isnt forgotten or less thought off as time goes by. i still think about her often, even though i never met. if i see purple things, hear that single ladies song and so much more often…
sending love your way!
suzanne says:
Heather, Maddie is in my thoughts always. I can’t click on your blog and not think of her, I see the color purple and instantly think of her. I miss Maddie and never even met her. She just was a special person that had a big impact on complete strangers.
cj says:
your Madeline is remembered. thinking of and praying for your beautiful family.
Meg says:
I thought of you during that scene, and of Maddie, and I want you to know that we — the people from the internet who never met her in person — will never forget her.
Melissa says:
It’s like this post was written about me. My daughter Skylar was stillborn but I was on the baby center pregnancy list. It told me yesterday she would be 17 months. I cannot delete that list, I feel the same as you it would be like I was erasing her which we could never do.
MG says:
I am so sorry to all the moms and dads that lost precious ones like you have. {{hugs}}
Katrina says:
Such a great photo of the two of you.
I think of Maddie often. So many of us do.
Lisa says:
So sad for you… But I understand why you don’t unsubscribe. And I think of Madeline often, in fact every single time I read your blog. My daughter Ava was born 12/11/07, so they were born quite close to each other. And when I read that it is about to be Maddie’s birthday, I feel a twinge of guilt that we will be celebrating Ava’s soon. Can’t help it. And Glee, wow. Balled my eyes out.
PattyB says:
I felt the exact same way about the Glee episode last week. I watched it over the weekend with two of my daughters, my 23 year old daughter and my 9 year old daughter. My older girl understood EXACTLY why I was crying during the scene with the mother; my younger girl thought I was just being emotional. She doesn’t understand that I was recalling my own loss 23 1/2 years before when I lost and buried my first baby girl. Watching shows like this always bring it back. Those moments are fewer and further between but only because I am very careful about the types of shows and movies I watch. I hadn’t expected the scene with the parents, but I’m very glad I watched it. Thoughts, prayers and hugs for you and Mike, as always.
Molly says:
Gorgeous photo of you and Maddie. Happy almost sixth birthday, lovely girl.
Christina says:
There’s no need to unsubscribe from the emails. It’s true, her 6th birthday is just around the corner, whether she’s here or not. And you guys will celebrate and we’ll all celebrate with you, remembering her again, just like we do every week when we read your blog.
Glenda says:
Hugs to all of you!
My mother LOVED the color purple… it was her fav color. When she passed we buried her with a purple pant suit. Her flowers were purple. Pancreatic cancer is a purple ribbon. Just so many reminders.
When I see purple these days I think of her…of Maddie and of Ronan (www.rockstarronan.com)
Kim says:
We cling to what we can because it’s all we have. I totally get it.
Mary Brock says:
Your sweet Maddie will never be forgotten!! I am so sorry for you and your entire family that you have had to deal with such a tremendously terrible loss, I can’t even imagine the pain. I think of Maddie anytime I eat a cream puff or see the color purple. She will remain in our (strangers) hearts forever!!
Jillian says:
I stopped watching Glee pretty much last season, but I did watch the Cory/Finn tribute episode because Cory was such light. I didn’t care for much of the episode, but I thought of you at that exact line. *hugs*
And I was on the way home from a trip the other day and saw some beautiful purple flowers that made me think of Maddie. There’s many of us who still think of your beautiful girl. <333333 *hugs to you and Mike*
karin says:
Much love to you and your family.
Karin
Nadinsche says:
I think of Maddie very often!
Paula says:
I love that picture of Maddie with you. The look on her face is one that I see when I see the sun coming up in the mornings and see pink and purple skies being painted. I can’t see the color purple anymore without thinking of Maddie. I re-watched The Color Purple (for the gabazillionth time) and when Shug says “I think it pisses God off when you pass by the color purple and don’t notice it…” I thought of Maddie.
Your daughter touched so many people. Adults and children alike. All the years I’ve been on the world wide web I’ve never been so distraught as I was the day I read of Madeline’s passing. I spent hours worried about you and Mike and your parents and wondering what I could do to just be there. Nothing adequate came to mind.
I don’t even remember why I came to your blog all those years ago but I read every word you ever wrote about your pregnancy, Maddie’s miraculous birth, the Corso v Spohr thingy, Jackie!, and so much more. What has always caught my breath is the sheer connection you and Mike have as parents. How adept you are at handling everything life comes your way. How FUN you both are when it comes to allowing your children to explore their surroundings and encourage them to use their imagination. That? Is parenting.
I’m rambling now and I’m sorry. I just let my fingers keep typing.
Lanie says:
One of the biggest kick in the gut moments for me after Sawyer died was on what should have been his 1st birthday. The cord blood company that we had used sent Sawyer a book for his 1st birthday. It would have been very thoughtful (and a good marketing move) but the same company knew he had died. They had shipped Sawyer’s blood to the Mayo clinic to submit it to a study after his death.
Now on his birthday I write about him and no one sends him anything. I so get it why you do not unsubscribe from Maddie’s birthday emails. Sending you hugs and hope.
Courtney says:
I thought of you during that Glee scene. Her words reminded me so much of the things you’ve written here. I was glad they seemed to have really captured the emotion of losing a child, even if it was difficult to watch. Maddie is definitely not forgotten; she has such a beautiful legacy here and through Friends of Maddie and the MOD walk every year.
Jolene says:
I cried during that scene and have never experienced your loss. I can only imagine what you must’ve felt. Your beautiful little girl is in all of our hearts and has helped me never take a day for granted that I have with my daughter. Hugs to you and Mike…
JustAMom says:
Love this picture!! I bought purple pansies yesterday and immediately thought of your girl.
Tricia says:
I still have my purple ribbon and I have it where I can see it and I think of her every day. Love you guys and sending you a giant hug and so much love.
Liz says:
My daughter’s favorite color is purple and everytime she tells me her favorite color is purple or she wears something purple, I always think of Maddy. So know that she is not forgotten and even those of us who have never met her think about her all the time!
Eithne says:
I’ve lived through that experience too. My younger son Neil would have turned three this year if he hadn’t died from a super-bug picked up in hospital while being treated for a lesser infection. And my firstborn son (now my only child) now has his birthday be a bittersweet day because it reminds him of the anniversary of his brother’s death.
Our extended family has also lived through the same experience with three other preemies — my youngest nephews and my god-daughter who were all suddenly taken from us during what had been a normal-and-uneventful second trimester up until the point where things went horribly-wrong. Robin would have turned 5 this year, Benjy-Jon would have turned 3, and Brent Jr would have turned 2.
Heather says:
Eithne, I’m so sorry about all the losses you have suffered. It’s too much. My heart breaks for you xoxo