After my grandma died and her funeral was over, my mom and I took my aunt and uncle to the train station. The rest of our relatives had long since left, but they had lingered. They knew what I hadn’t realized yet. I stood on the train platform and watched their train roll away, and it hit me: I had to go back to my routine, and everything was going to be exactly the same. Other than, you know, the big hole in my life. The world suddenly looked very different.
Maddie’s death didn’t just leave a hole in my life, it shattered it. But I still looked the same on the outside. Or did I? The circles under my eyes were darker, the hair was limp, my eyes were lifeless. But strangers didn’t know my story by looking at me. I’d go for walks in my neighborhood and I’d be crying. Once, a passerby stopped me, concerned, and asked me if I’d broken up with my boyfriend. If I’d seen a woman in her twenties walking around crying, I probably would have thought the same thing. Who thinks, “oh, I bet her child just died?” No one, because that’s not supposed to happen.
When I walked away from her I wondered if it would somehow be better if a person could just look at me and know my daughter had died. In Gone With The Wind, Scarlett O’Hara wore black for a year after her husbands’ deaths. But that wouldn’t suffice – grief doesn’t end after a year (unless you are Scarlett). And then, there are times when I don’t want anyone to know about Maddie, usually because I don’t want to deal with the sadness, the questions, the pity. So, being instantly identified as a grieving mother wouldn’t always be better.
As I lay here sick and tired, I wonder if any of the old me survived Maddie’s death. I now know that anything can happen – even the really bad things that I thought only happened to other people. When I look at pictures of me taken before 2009, it’s like looking at a different person. Would Maddie recognize me now? Would Annie recognize me then?
edenland says:
You are a battle-scarred, war-weary warrior woman.
You are fucking beautiful. Both of your girls would remember you, from either different worlds.
XXXXX
Amanda says:
OMG I’ve never been first!
Personally, I think that recognition goes beyond a physical ‘look’. It’s your mannerisms, your speech, your empathy. All of which I’m sure are the same. True, your empathy might be ‘changed’ because of Maddie’s passing but in order for it to change it also had to be there to begin with. Your love for Annie is obvious, just like your love for Maddie. Your willingness to stop what you are doing and ‘be in the moment’ for Annie is the same as it was for Maddie.
These are the things that I think that make you recognizable for Maddie and for Annie, regardless of age. At least this is what *I* think.
Hugs to you today Heather. I hope that you, Mike, and Annie had a wonderful holiday season.
Amanda
Antonia says:
This is beyond beautiful and I fully agree.
Editdebs says:
Yes, I believe Maddie would. She and Annie know your heart.
Heather says:
Oh heavens, this. Well said Editdebs.
Pattie says:
Beautifully said, simple and true, Editdebs.
cj says:
exactly. beautifully said.
thinking of the Spohr family.
kim hartman says:
I was going to post, but Editdebs said what I was going to post. Word for Word.
jen says:
This is a really thought provoking post. Wait. Let me stop here and introduce myself to you. I found your blog via a friend’s blog link when your daughter passed. I mean no disrespect when I say this but at the time I was not sure you, Maddie, any part were real. I mean, this is the internet. People will say anything. I was skeptic at your ability to experience the horror of losing a child and then to…write about it. It blew my mind but in a good way. When I read your posts I almost felt guilty like I was taking something from you. That I did not have a right to read what you wrote if only for the fact that I could never, ever begin to pretend to know the despair you faced. But then as tears would pour down my cheeks and I would stop and pray for you and I felt like I was giving something to you instead of taking it.
Eventually, I stopped reading. I don’t have a blog and reading blogs I enjoyed just fell to the wayside. Work, kids, whatever.
Today I was wondering how your family was doing and happened upon this post. My two cents is this: We are not the same people we were before. Life before becomes unrecognizable. I think you look back at your former self as almost like a character in your favorite movie that was your life. You know what you thought and liked and wore and did but everything from that moment of sheer devastation on is different. I just haven’t figured out for myself if this is a bad thing, yet.
My experience did not involve the death of a child though.
Thank you for sharing this journey with some random nurse from Cleveland.
Jessica Makuh says:
I liked what you said about our lives being like that of a character in a movie. I agree.
Nikki says:
Your girls’ love for you is as unconditional and unwavering as your love for them. So, yes, they know you – then, now & always.
XOXO
Lindsey says:
Beautifully said, Nikki.
Though I know divorce compared to the death of a daughter are two entirely different things, I can so relate to this post. I felt – being left with 1,3 and 4 year old kids while their footloose and fancy-free dad moved halfway across the country with very little contact with his kids for yrs and only now, 20 yrs later, trying to establish relationships with them — I felt so adrift, so alone, so afraid and like I was no longer the same happy, optimistic, carefree person but a very different, darker, depressed, lonely, trying-to-put-on-a-good front for the kids person. I really would not recognize the person I was compared to now. Very sad truth.
But Heather, I think judging from your posts that you do still have moments of happiness, carefree times, funny, crazy moments…..it’s not just a front to make life happy for Mike and Annie. I think you are feeling out of sorts now due to your illness and so much down time, thinking of Maddie…..but though I don’t know you personally, I feel like you are doing a fantastic job of keeping on keeping on, giving Annie fun, loving, memorable times. She is so obviously a very happy little girl and your posts and Mike’s make it clear that you are over the moon for her. I for one would love to have been parented by you and Mike!! Feel better and know you are loved by many, many faceless people out here who want the very, very best for you!!!!
Jenn says:
Sometime the only thing that gets me through the day is the knowledge that I can help other people through my life experiences and what has happened in my life; whether it be good or bad.
Maddie and Annie will always know you. You are their mother. You aren’t the same person you were in March 2009. But then again in March 2009, you weren’t the same person you were before Maddie was born prematurely.
Things happen to us to mature us, to age us, to make us wiser. It’s not always right or fair and you’re one hundred percent right in saying that sometimes it’s just easier to grieve in private by avoiding the questions.
Your family and your story has truly changed the way I look at life. I tell everyone who will listen about Maddie; her big eyes and her love of purple. I think of your family almost every day and send many prayers.
Melissa says:
I read this post a few times — it was *that* powerful … Heather, I’ve never commented here before, but you are such a beautiful writer and, more importantly, a beautiful mother – to both Maddie and Annie. I can’t pretend to imagine all you’ve been through but the love you have for your daughters — and Mike — is just so clear, so evident … I am sure they would all recognize those parts of the old you. Thank you for sharing your life with your readers.
Tammy M. says:
I had some time off over the holidays. I browsed through a lot of Maddie’s pictures and thought of your family. She and Annie both touch my heart. So do your blogs. You have a gift for sharing your story and feelings. Thank you for that.
Jenn says:
AAAhhh, Heather…of course your girls would know you but not by your eyes, hair or smile but by your heart & soul!! B/c Heather, is it that same heart & soul you conceived, carried, gave birth to and nutured both of your babies with. They would know you, as you would them b/c Heather…..love…LOVE never dies.
Jen says:
You may or may not be the *same*, I can’t really say for sure but I know for SURE that the person you are today is just…the best. I love exactly who you are today and I’m quite sure that Maddie would totally agree. Love you H.
cindy w says:
What Jen said.
Colleen says:
We are never the exact person we were the day before, much less years before. Every day we change, adapt and evolve. Everything we do and is done to us, changes us. Some things are constant (eating peanut butter out of the jar) and some things go away (the idea that something can’t happen to you). We get stronger (or weaker), we may lose our optimism, or we may become more optimistic. As humans, we learn, consider, adapt and change in small and large ways. No one can go back and time just marches on like it’s a race. I wish, sometimes, that I could stop it, or slow it down a little. Annie knows you as you. You are who you are and you wouldn’t be the Heather that Annie knows (and loves) without
the events that have preceded her. That’s life. Sometimes it sucks, and sometimes we are relieved (like I’m glad I didn’t marry my first love, phew). I bet you miss the you you were, but even if Maddie hadn’t died, you would be a different person. Annie loves you no matter what and so did Maddie.
Glam-O-Mommy says:
Whoever you were before and whoever you are now, Maddie and Annie are lucky to have a mommy who loves them so so much. It must be so hard to walk around carrying Maddie’s loss with you everyday, but you do it with an uncommon amount of grace, in my opinion, you and Mike both. *Hugs*
lisaj says:
That part of you that is inly you, that has always been you, that shines regardless of circumstance…they see that. Annie would see that in you then. Maddie would see that in you now. That essence that makes you their Mother…it may look different, but there is a familiarity that is unique to you and your girls.
Big hugs, Heather,
Mommy Boots says:
Your picture of grief from an outsider’s view hits home so much with me right now. This is in no way the same type of grief, but I just went through having to become my mother’s power of attorney, deciding to put her into Hospice on Christmas, and then having her die in a week. Our relationship was complicated and not in a good way. While we were in the hospice unit, I’d often wonder if I had those feelings written on my face; if they could see in my eyes how I was feeling on the inside. Tired, drained, terrified, already grieving. I wanted to tell people. I wanted to scream in peoples’ faces as they wished me a Merry Christmas.
I think that grief changes us not into someone wholly different that our loved ones wouldn’t recognize.. But just a slightly different version of who we already are inside. Affected, changed forever, but not beyond recognition. Your true heart and self are always there, and that’s someone both of your daughters knew, and will know forever.
Glenda says:
I carry your heart. I carry it in myheart. E.E. Cummings
Unconditional love… mother/daughter bond…it’s unbreakable.
Amanda says:
I had that revelation while I was making copies at a local community college. I get asked a lot how many kids I have (it’s the nature at work, being a L&D nurse) and of course, it’s always 3, but then they ask the ages, and everyday I wonder, how will I answer that question today?) Depends on my mood, I guess. It’s a club no parent ever wants to be a part of but it is a badge we must now wear. I think Maddie and Anna would be so proud of the courage you have, the love you have for both of your daughters, your honesty and your perseverance. The hurt will always be there, you loved and lost in such a big way, but it’s how you choose to deal with it that will heal or harm you. As someone who has just recently started reading I think your honesty is refreshing and you are not forgotten in my prayers.
judi ferrara says:
I’ve been reading your blog for a while now. Got over here from another blog about Matt & Maddie. This post moved me to comment since I have had a loss as well. My younger son, now 28, has severe and profound intellectual disabilities. He was born full term and seemly healthy. At one year old he had a seizure and it started us down the road to where we are now. I look at pictures of us before the diagnosis and I see happy, joy filled faces. Not a care in the world except running a house and taking care of children. I didn’t take pictures of us for a long time. I had no joy, just going through the motions. The old me died and a new me emerged. It was a long dark tunnel until I emerged a fighting tiger mom. I have worked hard this past 27 years trying to get services, housing, medical treatment, you name it for Michael. In the meantime I had to raise an equally gifted older son and tried to give him the time and attention he deserved as well. I tell you this so you will know that you will survive this grief and become another Heather. Not a bad thing. Maddie will always be in your heart and will live on always. Know that folks like myself find strength in reading about you and your family as you move forward. I hope today is a better day for you. Praying for your strenght from someone who knows what it’s like to grieve for a child and a future that will not be.
Dawn @What's Around the Next Bend? says:
You may not be the same person, Heather, but I’m not the same person either… and that has to do with YOU, and Mike, and Maddie, and Annie.
Your family has taught me to squeeze my boys a little tighter, to never take any moment for granted, and to find the joy after the pain.
Your daughters will ALWAYS know you… for the love you have for them will always shine through… no matter your age.
Staci says:
Everyone has said it so eloquently previously that I’ll just muck it up. But, you’re beautiful. YOU. You are who you are because of where you’ve been and you may “look” different (mostly in your eyes) but when I see pictures of you with Mike and Annie, I see a beautiful woman full of love. And your girls are both better for having YOU (at whatever point in your life you are) as their mom.
jess says:
You brought up something I never thought about. I’ve mentioned before how close my gram and I were. I wonder if she would recognize me now, if she would like who I’ve become. (Nothing bad, no drugs, nothing like that, lol). And my boyfriend, I wonder if he would’ve loved me then. It’s interesting who we are, how death and grieving changes us.
Overall though, yes, Annie would love you any way you are (until she dates) and Maddie would still love you, who you are now. They are your girls. Of course they would.
Just as my gram would love me, and my boyfriend would love. That’s what they do.
Jessica Makuh says:
I know exactly how you feel. My daughter has a congenital heart defect. When I look at photos of myself before she was born, I look different to myself. There was so much I didn’t know then and had not endured. I wonder if what I see in those photos is naivete? I think I see a sadness and a fear in new photos of myself that I’m sure others don’t see. Or maybe strength, who knows? I certainly have more than I used to. CHD has become so much a part of me, I think it’s funny that others can’t see it in me. When she was diagnosed and we were driving to the hospital behind the ambulance, I remember thinking it was weird that the other people on the highway seemed so normal when our world was falling apart. I wondered then if they could see the fear in the faces of myself and my husband as we drive past. I know what you have endured, so I feel like I can see the sadness in your eyes, even when you are smiling.