“I do not know you.”
We have received so many comments and emails in the last two weeks. Fellow bloggers know that comments can be so important. They are how we reach out to each other, establish initial contact and maintain relationships. I have not always been great at commenting back. It’s something I promised myself I’d try to be better at. But I always read every blog. I tried to respond by email. I tried.
“I’m just someone else that doesn’t know your family.”
In the last two weeks, the internet community has done more than try. They have acted. They have united together, a huge group of strangers helping a small family. You have cried. You have sent cards, food, donations. You have started March For Babies walks. You have grieved with us. You’ve turned your blogs purple. And you have used your words. Your beautiful, glorious words. There are so many blog posts dedicated to our Maddie that we are floored. And that means so much to us, because we know how precious each individual blog is. It is your personal space, and you gave part of it to our daughter. We will be eternally grateful.
“I’m another stranger that cares about your daughter.”
I’ve been on Twitter for about a year or so. I used it off and on at first, but I didn’t fully embrace it until October, when I was thrust into my new role as a stay at home mom (SAHM). Most people don’t understand Twitter. And it’s a hard thing to explain to people who don’t “get” Web 2.0. But it’s easy for me to explain WHY I Twitter. Being a SAHM can be isolating, especially when you are used to a busy environment with a lot of co-workers. But thanks to Twitter, I was never alone. I had all my co-workers at my fingertips. I had the food bloggers to help me with recipes. The humor bloggers to tell me jokes. The single bloggers to complain about dates gone wrong, the political bloggers to keep me informed, the tech bloggers to “help” me spend my money, the fitness bloggers to encourage my weight loss. And the mommy bloggers. Oh, the mommy bloggers. I’ve relied on them to give me advice, cheer me on when I did something right, and hold my hand when my baby was sick. I never hesitated sharing my family’s life on Twitter because I always considered everyone on Twitter to be part of my life.
“I’m just some unknown person.”
On the internet, we use a term called “IRL” to describe the people we know “in real life.” So you have “blog friends” and “real life” friends. I used to throw that term around a lot, careful to keep friends separate. I feel ridiculous now. My blog friends and my real life friends are now one and the same. They rallied together to care for us. Their comments interlace on my posts. Old friends are joining twitter and interacting with new friends. Seeing everyone mingling together at Maddie’s service felt natural and right.
“You don’t know me.”
But we do. We DO know you. Because we love and miss our Maddie, and you do, too.
anymommy says:
I don’t know how I stumbled here right after you posted, but I’m so glad I did. I don’t know how you spread peace and love right now – it’s amazing. Hugs. We do love and miss her.
anymommy’s last blog post..Snippets
AMomTwoBoys says:
This is beautiful. YOU, are beautiful.
I love you and Mike and Maddie to the moon and back. xoxo
AMomTwoBoys’s last blog post..What You Can Do
VDog says:
You’re so beautiful, honey.
xoxoxooxox
Undomestic Diva says:
Wow. You are so graceful under the most difficult circumstances. Thank you for letting us in to yours and Mike’s and especially Maddie’s life. We are lucky to be a part of it.
XOXO
Undomestic Diva’s last blog post..Counting calories
Molly says:
I don’t know how you do it. You amaze me Heather. Mike too. Just know that she will never be forgotten.
Molly’s last blog post..roneydapony: @themaggers yessssssssss. Oh perez. how I love thee
Amy says:
Beautifully written. I’ve been floored by the outpouring of love and support that has (literally) flown your way. It makes me PROUD to be a part of this community.
Continuing to think of you several times a day…
Amy
EmmieJ says:
Once again, you amaze me with your grace. My thoughts and prayers continue to be with you, your husband and your family.
EmmieJ’s last blog post..I’m Either Raising a Master Manipulator Or I Suck As A Mother
Lin says:
Thinking of you and your family. I can’t help but notice that Maddie’s fund for March of dimes keeps on growing. Her legacy will continue to live on forever! She has touched more lifes then most people do in a life time…. =)
Kellee says:
You have such a beautiful heart. You continue to amaze me with your courage and grace and love. We all love you back. All of you. You and Mike and Maddie. *hug*s to you.
Jen says:
I am happy you’re writing. Even though I don’t know you in real life, and I have only run across your blog a handful of times, I think of you so often now and worry about you. I’m so sorry! And so angry. Sweet Maddie.
Sending you love and prayers.
Jen’s last blog post..thank you!
Nanette says:
I PPH* the internet.
And I PPH* the internet for having led so many of us to your wonderful family, and for providing the support that it has during this time in your lives.
*pink puffy heart, for those not in the “know”
Nanette’s last blog post..Solid as a rock
badassdad05 says:
So glad to know you.
badassdad05’s last blog post..do not underestimate the power of the tummy
Magda says:
Heather your words are beautiful, I truly hope you know how much your sweet Maddie is missed and loved my all of us. The little community that has sprung up is truly amazing. So much love for your Maddie.
Magda’s last blog post..Questions and few answers
melody says:
Perfectly spoken. Your Maddie is touching so many.
melody’s last blog post..SOOC Saturday [or Sunday] Under the Table
Maternal Mirth says:
Ah-mazing post.
I feel lucky to have met you… to be ‘in the know’, but you & Miss Maddie reach beyond that and into people’s hearts from their computer screens. Lives are forever changed having ‘known’ Maddie.
Maternal Mirth’s last blog post..Apologies… and My Ass
Mrs. Flinger says:
XOXOXOX.
That is all.
Mrs. Flinger’s last blog post..Today we hum.
Lotus Carroll says:
Oh, Heather.
You don’t cease to amaze and inspire me.
to you, lady. Big <3.
And to this damn amazing community, too.
Lotus Carroll’s last blog post..Weekly Winners April 12-18
Girl With Curious Hair says:
I too am one of the unknowns who found you from the blog of a blog of a blogger. I’m so very sorry for your loss. I have not had the words to offer, but you have my sympathies and condolences. I pray for your family’s strength.
Girl With Curious Hair’s last blog post..Am I Evil? Perhaps
Dawn says:
awesome arm pumps here. there is a crowd going wild in my head all for you and mike and little M. A. right now.
Dawn’s last blog post..Earing For Maddie 65
threeundertwo says:
Beautifully said.
threeundertwo’s last blog post..Finished for Friday: Holiday Mash-up
annie says:
I spent the weekend reading your blog from the beginning. I’m familiar with Stephanie Wilder-Taylor from her books. They kept me company during the 18 months my husband and I spent traveling five times to Russia to adopt our three children. Her website led me to you and your beautiful Madeline. I’ve wondered how to reach out over the past two weeks when we haven’t even met. I’ve told everyone I know about Madeline and my family and friends are holding you and Mike close in our hearts and in our prayers. I am so sorry. One of my best friends lost her four year old son in a freak household accident. Shortly thereafter, someone told her she would be able to smile again and she has. You will too. Thank you for the courage to share your story with the rest of us.
perksofbeingme says:
I love you so much Heather. You and Mike both. I will you on Saturday. I love you.
natalie says:
i’m so glad i know you! thanks for sharing your life with your friends, both virtual and IRL. i feel privileged to be a virtual friend.
natalie’s last blog post..Random pictures
Jayme Q. says:
You’re so incredible, and you’re so right. I’ve been on the internet in various full-time ways for over ten years now, and it never ceases to amaze me how people that you *don’t* know “IRL” can sometimes be the best friends you’ve ever known. I’m so glad that you’ve had this great net to catch you in the time you need it most. I am just another one of those people you don’t know, but I do feel like I know you, and I am grateful for that.
Danes says:
Maddie is unforgettable. Never doubt that for a second. I can’t even imagine the pain you are in right now, but I am glad to see you writing. You and Mike are SO loved, and I am not surprised by the outpouring of love from ‘real life’ and ‘internet friends’. All of the care, love and attention that you have received is because you DID give to others tenfold, and Maddie was the bravest little girl I have or ever will meet. I write all this, yet there are no true words to express my deep love for you, Mike and Maddie.
Trish says:
The Internet is an amazing, wonderful, scary place.
I met my husband on a chat board.. but before that, I dated a few online guys that were………. not good. But all in all, the good outnumber the bad 99:1.
I, too, feel like we’re all just friend’s, no explanations necessary.
Trish’s last blog post..Not so Zen
Cindy says:
Yesterday, my friend who had never heard of Maddie before saw my blog post about her, followed the link to your blog, and then quickly donated $100 to the March of Dimes in her honor. The internet is truly an amazing thing. You and Mike and your sweet little Maddie in her too-short life have touched so many hearts, it has been truly inspiring to see. I was already a big fan of John Mayer’s “The Heart of Life” that you used in your video tribute, and those lyrics ring more true than ever for me now, having witnessed the reaction of so many to a little girl most of us never got lucky enough to meet.
Cindy’s last blog post..Remember Maddie.
Jenni says:
your grace continues to be awe inspiring. Like so many others I dont “know” you but I cry for Maddie and the huge loss you have faced. I pray for you and Mike. You are an insperation.
Jenni’s last blog post..Down for the Count
Debbie says:
Thank you for sharing your life and your sweet Maddie with us!! You have such an unbelievable strenghth you inspire me to be a better person!! BIG HUGS!!
Courtney in FL says:
Another person who sheepishly admits to not knowing you or your blog before the unimaginable. All I can is say is that I think of you and your family daily and am sending you love.
Katelyn says:
I’m an “unknown.” Found your blog through Matt. I have cried many, many tears for your sweet Madeline. Wishing you well and praying for you all.
Katelyn’s last blog post..Snow?
Funsize says:
We love Maddie and miss her too, but don’t forget that we love you and Mike as well. I am constantly thinking of you, I am so sorry you two have to go through this journey.
((hugs mamma))
Funsize’s last blog post..A fun day at the beach
Jessica Gottlieb says:
Perfect, again.
I’m startled by your grace.
Jessica Gottlieb’s last blog post..@iPhoneGran Records History
rachel-asouthernfairytale says:
You are exactly it.
Exactly.
Heather, your strength, y’all’s family, everything.
You leave me without words, because you’ve said them all.
Dammit woman. You are such an inspiration.
Thank you for the hope.
You, Maddie and Mike, you have sparked a fire that will never burn out. Through Maddie, we as a community, have proven we are more than faceless beings behind a computer, we are a family. We are power, passion and strength. We are the future and all that it holds.
We will change the world and you are one who has given us the path.
Love and adore you. See you soon.
rachel-asouthernfairytale’s last blog post..Let’s Talk Grilled Cheese
Anne Younger says:
Again, I am so sorry for your loss. I am more amazed with how strong you are everything I read a new post. I am also proud to be part of a community that can rally together to help out another person in need. I look forward to your return to the blogosphere and wish nothing but the best for you and Mike.
Anne Younger’s last blog post..Weekly Wins & Totally Free Stuff
Kristen says:
I am so very proud of you, mother to mother, woman to woman, for your courage and strength and grace. There’s something about the unique pain of being a mother that starts with the physical pain in pregnancy – you learn to lean into it, because it’s the only way to survive. You exemplify this beautifully in these days you should never have had to face. As they say, when you’re going through hell, keep going. You are both very loved, loved as deeply as you love Maddie.
stacie says:
Beautiful words and a beautiful message. Heather, your grace during these darkest of hours in your life is amazing. Sending much love and many hugs your way…
stacie’s last blog post..Thay Say It’s Your Birthday…
Ellen says:
Takes my breath away….beautiful post.
Amy says:
Your grace at such a time as this is beyond amazing. Your family continues to be in my thoughts and prayers. I am so very glad that the best of humanity has been shown to you, IRL and in the blog/web world. Thank you for continuing to share your lives with all of us – we are blessed for it. May you be as well.
Amy’s last blog post..A New Day . . .
Adriennevh says:
Beautiful words
Beautiful people
In real life
Virtual
The MoD is not gonna know what hits them Saturday when 70+ show up with the strength of Maddie in their legs and hearts.
Adriennevh’s last blog post..Did I mention I need a Vacation?
dysfunctional mom says:
I have read your blog for several months and commented occasionally. I always looked forward to your Maddie posts and I’m just shattered to know that there will be no more. I definitely feel like I know you, and I’m glad that I do, and that I knew Maddie. Your strength amazes me. I think of you all so often; you’re never far from my mind. Xoxo
Jennifer says:
The Internet is a very cool and amazing place and you are so right–we all miss Maddie. Thank you for that post!
Jennifer’s last blog post..Dr. Hoppy’s Dinner?
Sam {temptingmama} says:
XOXO I just wish I was closer. God do I ever wish I was able to just come by and do something more. When I began this online journey I never once thought that it would become so much a part of my life. I never thought I would care so much for people that live inside my computer, but I do. I really do. I care about you and your little family so much I can’t even tell you.
… And I’m crying again..
I’ll leave before I get snot all over your comments.
Mike, Maddie, Heath – you’re always in my heart.
Sam {temptingmama}’s last blog post..And The World Keeps Spinning
Heidi Lee says:
Your blog is so true…I may not have known her, but truly do miss her. I can not see the color purple without thinking of your sweet family and your dear Maddie. I pray for you so very often. Thank you for being so willing to share your story with the rest of us. And the way the whole country is embracing you during this time is simply amazing.
Jennifer Taggart, TheSmartMama says:
Heather –
I haven’t turned my blog purple because I don’t know how – it is in Joomla and I can’t seem to reset the color. I haven’t posted about Maddie because I can’t come up with the words. But you amaze me. The blogging community amazes me. We are clearly a family us mommy bloggers. We may not always agree. We have different interests. We go our own ways. But when we are in trouble, we come together. We offer support, strength, time, love, wisdom.
I grieve with you for your loss. Your strength and grace amaze me.
Jennifer Taggart, TheSmartMama’s last blog post..Earth Day Giveaway!
Sam says:
You and Mike are amazing!
It is always difficult to know what to say in situations like this…you are always so strong and open in your writing and I appreciate that. I have read your blog for a while now…about a year (I emailed you about Maddie being a Gap model)…..
Since you understand blogging relationships I can tell you…..I love Maddie and I am inspired by her…I checked your blog and twitter that Tuesday every few minutes….obsessive I know..but I was worried. I was shocked and SICK when I read the note that she passed away. I am still shocked and sick…
There is no question to all of us “internet friends” the love that surrounded her and it is comforting to know that in her short life she had no doubt how fabulous life can be. You made the best of what you had and documented it well for all of us to see. Thank You!!!
I hope that you guys are holding up ok. You have alot of support as you know… if you guys ever want to spend a weekend up in wine country you are welcome to stay here with us …it would only be awkward for the first couple hours…….we are fun!!! And we have a picture of Maddie on our fridge………
Take care and thank you for keeping us all posted…….if all of Maddies fans are as curious and concerned as me………well they are pretty concerned and appreciate the little updates that you send our way…….
She was a beauty Heather!!!! A true ANGEL!!!
Dixie says:
I’m just another stranger (or as Matt Logelin says
strangerfriend) who found you through his blog. I have been reading about Maddie for several days, unable to stop and not yet though reading. She is a precious little girl and you are so lucky to be her family as she is lucky to be your daughter. I am a fostermom from the Bay Area who has started 120 newborns, one of whom was much like Maddie so very much of your story is painfully familiar. I will be proud to honor Maddie’s memory by making a donation to the March of Dimes. I wish I could do more. Blessings to you both!Blessed says:
I’ll never forget your Maddie even though I never visited your blog before this sadness overwhelmed your life. I wrote a short note about Maddie in one of my posts (but I didn’t add it to the linky…) I’m a mom, I hurt for you and I have to admit that I’m hugging my little one a little tighter and lingering a little longer over her crib at night. You and Mike have been in my prayers and will continue to be.
Also – I loved the way the two bloggers honored your Maddie by taking the care bags up to the ICU. I’m going to be doing that too and I’ll blog about it when I do.
Blessed’s last blog post..Marketing I Like!
Patty says:
Your strength has been something I admire! I think of your family and especially little Miss Maddie constantly. My heart really goes out to both you and Mike. Maddie will watch over you for the rest of your lives and you will see each other again in due time. Thank you so very much for keeping everyone posted, please don’t stop. I am so very sorry for your loss and will keep you all in my heart and prayers!
Amy says:
But Heather you did email me, several times. And you didn’t “know” me, and you certainly didn’t have to email me in response to several of my comments, but you did and I truly have always treasured that. It made me feel closer to you, to Maddie, to Mike, to your life. It made me feel like I have known you in IRL. But virtually, or IRL, its all the same.
Thanks for writing, thanks for sharing. I miss Maddie like crazy…
Amy
Lex - @laprimera says:
It’s no mystery why Maddie was so wonderful. Love you, Heather! And Mike too!
Janet says:
We’re all thinking about you, Mike and Maddie and putting our virtual arms around you. Thank you for letting us do that and not making us feel like awkward intruders into your lives. Much love and peace to you and Mike…
Janet’s last blog post..Wii Caved
Laurie says:
I am so sorry for your loss.I to have lost a child.And truthfully,I dont know how you are feeling,Everyone grieves differently.All I can say,it does get easier in time.My husband lost his first son from a previous marriage,the couse H.U.S. syndrome.He was 22months old.Also a baby girl born premature.When I got pregnant with our first child together.I was terrified.All I wanted was to have a healthy child.I carried this child 3 days over.We named him Jeremy Tyler.Jeremy was home with us for two weeks.We ran him into childrens hospital.He underwent three surgerys by the time he was eight weeks old.You see He was born with a bad heart.Jeremy died do to comlications.He would turn 18 years old come this July.my husband,and I were lucky though.We have two healthy boys together now.they are 11 and 12 years old.The Holidays will always be hard,B-days also.And sometimes when you feel as though your wound has healed,it is like a scab and it rips open all over again.But like the saying goes,what doesnt kill us,only makes us stronger.You have a long road.I am so glad that you were able to get so many pictures.and so much video of your beautiful little girl.Unfotunatly.our memories mostly consist of wires,tubes,monitors and pictures of him being hooked up to oxigen but we will always remember,and hopefully he will always know how much we truly loved him.Take care,our thoughts,and prayers,are with you through this tough time. Sincerly.Laurie.
Mike, Nancy & Little Man says:
Heather & Mike,
We are part of both communities…your online readers, but also, we have had the honor to meet you and your beautiful Maddie for a few hours (Matt Logelin’s playdate at Griffith Park – our son was the only little guy sitting on the same blanket with Maddie, Maddy, Bella, Sophie and Mackenna). Even now, we don’t know the words to say, but Maddie has been in our thoughts since we met her that day at Griffith. I was so glad to find a link on Matt’s blog and started reading since and feel like we really got to know her and we miss her. We miss her so much. Maddie is in our thoughts everyday. She is truly an inspiration to us. Our heart goes out to you both.
Charty: @VirtueIMC says:
Heather & Mike,
This is the reason that the blogsphere is such a force of nature. They will rise up in the name of righting wrongs – and to support another in their time of need. Your advocacy in the name of Maddie is what makes you two amazing.
I’m proud to say that I’m a virtual friend – one day I hope to be an IRL…
Charity
Charty: @VirtueIMC’s last blog post..Do as I say…
Sarah says:
I’m so grateful to you, for including so many “new friends”, for sharing someone so incredibly precious, for allowing us all to love and know and mourn your sweet Maddie, to grieve her loss and celebrate her joyful life with you, for giving us all the opportunity to share your sorrow and give in Maddie’s memory, to hopefully make a difference in her honor… you could have understandably shut yourselves away and suffered in silence, but you’ve opened your hearts and your grace and openness through your pain are amazing gifts of love to Maddie and her memory, even now.
Sarah’s last blog post..For Maddie
Andrea's Sweet Life says:
I made a comment to Mike about no one in “real life” reading my blog, and he said, “Hey, don’t I count?”
YES.
I wouldn’t give up my blogging friends for the world – and hopefully someday soon, I’ll remember to drop the “blogging” and just say “friends”.
Anna Marie Hinnant says:
We do love and miss Maddie. I’m so sorry I never got to meet her IRL, but thanks for sharing her with us. You are amazing.
Anna Marie Hinnant’s last blog post..For Maddie
Celi says:
I’ve read your blog from start to finish just these last few days and I must thank you for sharing your beautiful, sweet girl with the world. You, Mike, and Maddie have all been in my thoughts and prayers.
AnotherMommy says:
I only learned of your blog when Matt Logelin posted on his blog about your Maddie’s passing. Reading about Maddie and seeing her beautiful pictures made me so sad. A precious life was taken much too soon. Her spirit will live on and will inspire others. I’m glad that you are writing and getting support from others. Please just know that people you have never met or chatted with are thinking and praying about you and the rest of your family.
“Loved with a love beyond telling,
Missed with a grief beyond all tears.”
Bargain Mama says:
The internet is an amazing testament to the world not being all that bad.
Keep your chin up – and thanks for all you are doing with March of Dime in honor of Maddie. Maddie is a very special angel.
You and Mike inspire me!
God Bless.
Bargain Mama’s last blog post..Say NO to Crust!
Michelle W says:
I read something on someone’s blog who suffered the loss of their child, they said that grieving parents appreciate hearing that other Parents are holding their children tighter. I hesitated to say this, because on the one hand it seemed cruel, but I hope that in your case that it is comforting to you as well. Because I AM, I am holding them tighter, enjoying our precious moments more and if possible loving them more. My heart has not stopped hurting for the loss of Maddie, and although I didn’t know of her until after her passing I fell in love with her so quickly, and as painful as it has been I am reading from the beginning, knowing full well I am going to fall even more in love with her and all of you. My family is forever changed and March of Dimes has made my list of top charities.
You are truly a beautiful family, and always the Mommy and Daddy of little Madeline.
Michelle W says:
I have to add…
It’s amazing to me, that amidst your your immeasurable grief you’d pause to let your
strangersfriends know that their love and support is comforting and that they too are grieving. You all have such loving hearts and I am so glad Madeline was blessed with such loving parents.Alison says:
Maddie could not help but be loved, in IRL or online. She is still SO loved.
Hugs from me and the sister to you and Mike.
Alison’s last blog post..November 11, 2007 – April 7, 2009
flutter says:
I’ve fallen in love with your family at the worst possible time. I don’t know you, it’s true….but I am here for you now, and always.
flutter’s last blog post..RAINN dance
Olivia's Mommy says:
I came upon your site from my neighbor who is Marching in honor of Maddie. I cried the whole time reading about Maddie and all the wonderful comments from everyone. I can’t begin to express my sadness for your loss. My heart aches knowing another precious gift is lost. I too, am a mother of a preemie. My little Olivia was born at 25 weeks and 3 days. She was 1 pound 10 ounces and 13 1/2 inches long. She spent 76 days in the NICU. I was lucky to live close to the hospital and could not wait to spend every minute with her. Many prayers later Olivia came home weighing just 4 pounds and 5 ounces. She is our little miracle. She will be turning 4 in May. We count our blessings everyday and thank God for her. Besides having to wear glasses at 18 months, she is healthy and full of energy. In Honor of Maddie and all babies born too early I too, will be joining the walk. Some day all babies will be born healthy. Our prayers and thoughts are with you and your family.
Scott says:
Beautifully put.
I also wanted you to know that I did a dedication comic that will be appearing on my blog Monday.
Love
LiteralDan says:
I’m so glad you guys have seen this effect you have on everyone, but I have to say, you get what you give, and both of you have given plenty to everyone you’ve met, virtually and, I’m sure, in reality. Though as you point out, these days the line between the two is pretty well blurred.
I’m so glad you are blogging through this.
LiteralDan’s last blog post..An Easter feast: A story in pictures. And some words.
Amanda says:
I stumbled across your blog after wandering who this beautiful little girl was on everyone’s blog, but it wasn’t until after your angel had already gone. I’ve spent the last three nights reading your blog, looking at pictures and watching videos. My heart hurts for you so much. I have an 18mnth old daughter and watching your little Maddie reminds me of her so much. I’ve held her closer, loved her more, took tons of pictures and videos. I was struck by your comment that you had no regrets. You are an amazing mom, I hope I can say the same thing. No regrets. Your Maddie is so very precious. Praying for you.
Vanessa says:
Hi Heather and family.
Melissa S, is a friend of mine at work. She’s an amazing soul who has shared Maddie with me. I am connected in the blogging world via Vox and would love to share the Baby Walks. I want to be strategic, I would appreciate some pointers. I also do Facebook and have a circle of moms. You are in my thoughts, daily, since I learned of Maddie’s passing.
The Garza family sends ((hugs)).
Vanessa’s last blog post..Support
Ruth says:
Another stranger sending so much love to your beautiful family… xo
Isadora says:
Hi Heather I just found your blog and I am so happy I did. My heart aches for you and your family. Maddie is beautiful! stay srtong!!!
Isadora’s last blog post..Spring
Christine says:
Ive cried so many tears for you. And Ive clung to my little one not being able to imagine having the grace that you have had after such a loss. I may not know you, but you are in my thoughts and my heart breaks for you over and over. *hugs*
Kari (heartatpreschool) says:
And like you, we will never ever forget her.
Kari (heartatpreschool)’s last blog post..Thankful Thursday, on a Sunday
Kris says:
I’m not a blogger, and to be honest I had never read your site before last week. I read about Maddie on ishouldbefoldinglaundry.com and mattlogelin.com, and now I’m joining the thousands of people thinking about you ‘IRL’. I hope that you can have peace in knowing that your daughter clearly made such a valuable contribution to the world. When you’re feeling alone in the coming months, embrace this online community who cares for you. Thank you for sharing your pain – and your joy – with us.
Catherine Lucas says:
Have been looking at Maddie’s photographs, and she made a huge impression on my soul.
A courageous little girl, laughing, laughing, laughing.
She beamed out sunlight. We get to know her a little bit in those photographs.
My friend thinks I am a bit off to sit in front of a computer screen and cry over a unknown baby. Can’t help it… A life gone out like a candle, I wished I had seen her grow up…
Catherine Lucas’s last blog post..
Ashley says:
This vast expanse of a world, known as in internet is made smaller by the compassions of the blogosphere. We grieve with you because you gave us the priveledge to see and know Maddie through your eyes – and we fell in love.
Thank you for sharing your most precious gift with us. Your courage and strength are as breath taking as she is. I wish I could do more, say more but for all it’s worth I’m so sorry for your loss anf I praying for you now.
Ashley’s last blog post..It’s Not Fair!
amanda says:
I felt slightly weird for leaving comments on your site and Mike’s site, telling you both how incredibly sad and moved I was and continue to be about Maddie’s passing, because you don’t know me “IRL.” I didn’t know if you guys would feel strange hearing that someone you didn’t know was so incredibly sad about Maddie, and so inspired by her as well. So thank you for saying this. I read the story on ParentDish about Maddie, and it really made me think – these blogs and Twitter and whatever really do make the world much smaller, in a good way. And it’s because of blogs and Twitter that the whole world knows Maddie, and will never forget her, and will continue to be inspired by her. xo from CT,
Amanda
amanda’s last blog post..weekend. update.
Coloradolady says:
I felt that way too, felt I did not know you, but I have grieved for a child I never knew like she was my own. I have felt so sad and thought about Maddie everyday. It is hard to explain how people can be so connected yet not. Maddie was a bright light in a dark world….missing her is an understatement. It seems so unfair.
Coloradolady’s last blog post..Quilt Festival: Flower Basket Button Quilt
Jen says:
you certainly have a talent for words. we have never met personally, but have chatted a bit. I have followed your daughter growing and her struggles. When she passed, I felt it due the fact that I watched her life through your eyes. I know my words cannot comfort you and I wish there was some magic thing I could do to help you through. May you feel peace in the fact that your precious little girl has made such an impact in this world and now she is in the arms of your grandma and angels.
Lisa says:
I think someone said it up there…I fell in love with your family at the worst possible time. What you and Mike have gone through, is nothing that a parent should ever have to go through.
Your family has touched my heart in ways that words can not express. Maddie and your family will be in my heart forever!
Lisa’s last blog post..I’m coming out of hiding for a great cause
Jen says:
you certainly have a talent for words. we have never met personally, but have chatted a bit. I have followed your daughter growing and her struggles. When she passed, I felt it due the fact that I watched her life through your eyes. I know my words cannot comfort you and I wish there was some magic thing I could do to help you through. May you feel peace in the fact that your precious little girl has made such an impact in this world and now she is in the arms of your grandma and angels.
Jen’s last blog post..A clean house
Double Agent Girl says:
Heather – like many others, I have followed the Spohr family adventures for about a year. Like many others, I feel like I know you, Mike and Maddie – through your stories and photographs I have been witness to a beautiful family who beat the odds. When I read about this tragedy, I too, cried. People IRL cannot understand why we should be so moved by the death of someone we never knew.
But we did know. We DO know. And we remember. We will always remember.
You have come through this so strong, with so much dignity – too much grace. Too much of all of that when your world has shattered. I am in awe of such strength of character. I know you are driven by your love for Madeline.
You beat the odds. She beat the odds. She came through with her little life, and you have such beautiful records of that life. Cherish them – remember how lucky you are, we all are, for sharing in such a beautiful life. For every day she stole back and gave to you and Mike.
I wish you peace. Stillness and peace and memories.
Double Agent Girl’s last blog post..Purple
Dana Zap says:
We will always remember Maddie! She has penetrated every one of us and probably has changed some of us for the better in only a matter of days! Only a very special child could do that…
Dana Zap’s last blog post..Sun, Apr 19, 2009
Amazing Greis says:
You are AMAZING! Thank you for continuing to keep us “your on-line family” close. Though we’ve never met IRL I know you and it feels as if I’ve known you for YEARS. Maddie has touched so many hearts and will continue to touch hearts. She was just as AMAZING as her mommy and daddy. It’s true the apple doesn’t fall far from the tree.
Love to you and Mike and the entire Spohr/Buchanan family. You will all continue to be in my every thoughts & prayers.
XOXOX
Kelly says:
What a beautiful post. Sending an infinite number of hugs your way. Pittsburgh is thinking of you and walking May 9 for you and your beautiful little girl. She is changing the world.
DesignHER Momma says:
I admit – I’ve tried to classify friendships before as well.
Some friends I see on a weekly basis. Others I see once or twice a year (but twitter with on a daily basis).
At the end of the day, no matter how hard I try to quantify, label or put someone in a box, they are called “my friend”.
Heather, I call you a friend. (but I do wish I got to see you more – you know, in person, not just your hot avatar)
~emily
DesignHER Momma’s last blog post..Yes, I was a Chick-fil-a virgin…
Jen says:
All my love is coming with Brittany this weekend! If I was cleared to fly I would be there with her to give you and Mike my love in person. I think about you every day and hope that you are finding bits of peace.
Jen’s last blog post..My Top Ten
maggie, dammit says:
Thank you for this gift.I know many of us worried that we were slightly out of line, that you might find the support a little weird or crazy. It’s a relief and a gift to have you validate our feelings. Thank you for your generosity.
Casey says:
Thank you so much for your grace, and somehow giving me the “okay” to feel this grief that I feel for you and Mike. Maddie is and always will be a truly amazing person and spirit. She has touched so many of us, as have you with your strength and courage to share what you are going through. Thinking of all of you many times a day.
Casey’s last blog post..Taking the (cup)cake
Jennifer Andes says:
I came across your blog very recently and just wanted to express my condolences for you and your family. Maddie was a gorgeous little girl and her spirit will live on. Your strength is amazing – I have thought of you a lot since reading your blog in the last week. Thank you for sharing Maddie with the world – it is the greatest gift!
Jamie says:
I’m so glad to see you writing, Heather. For so many reasons and I’m glad the comfort that strangers and people from long distances can provide has helped you and Mike in some small measure. Your little family continues to be on my mind, in my heart and in my prayers.
Jamie’s last blog post..Why not avoid just a little more.
Sarah says:
You and Mike continue to amaze me with not only your amazing hearts but your awesome strength.
Sarah’s last blog post..Thursday Ten – Up To Tempo Edition
Kristin says:
It’s crazy how many times this stranger has checked your blog in the last several days waiting to hear from you. I continue to tell Maddie’s story all the time — she absolutely lives on. Just remember that the only way OUT is THROUGH. I’m sending you peace as you are making your way THROUGH the tragedy of MAddie’s passing, and sending you love as you celebrate the little life that has grown so very big.
Meg says:
You are unbelievably gracious and sweet …You are brave….it shows. You are an inspiration to all…it is no wonder your daughter was so happy and wonderful…. Sounds to me like she learned from the BEST!
As you say, strangers or not, our prayers are genuine.
Be well.
Barbara says:
I’m afraid I’ve been lurking. I didn’t know what to say. I found your blog after Maddie flew away. She was a beautiful little girl, both in body and personality. I feel priviledged to have been able to read about her in posts written so beautifully.
I’m so, so sorry for your loss.
Barbara’s last blog post..109/365 – Wired
Bonnie says:
I never knew you, or knew of your blog, until last week. When I stumbled across it, through a post on a blog I read, I was overcome with grief for you and Mike both. As a mother of a young baby who’d had some NICU time for breathing difficulties as well (albeit NOTHING compared to Maddie), I could put myself in your shoes all too easily. My heart has been just breaking for you both. The more I read, the more in awe I am of Maddie’s brave, beautiful life. What a little angel she is. I’ve been just captivated by her pictures, her beautiful, gorgeous smile and lovely little curls. May God be with you, to comfort you, bring you peace and hope is my prayer for you daily.
Bonnie’s last blog post..Book Fair!
suzanna says:
you guys have strength i hope you never have to use again. i didn’t know about maddie until she was already gone but have spent hours reading about her…what a beautiful child, a child i will never forget, a child who has made me be a better mother to my own children. i hope you find peace in the fact that maddie’s short beautiful life has changed so many other’s lives.
Stacey says:
Thank you for posting that, Heather. I continue to send prayers your way. Your loss rocked the world.
Stacey’s last blog post..Purple
samantha jo campen says:
Thinking and praying for you every day. Thank you for letting us be a part of your life.
samantha jo campen’s last blog post..Empty
tiff says:
I’ve read for a little while. I can’t remember how I came accross you and the beautiful Maddie. never commented, just slipped in quietly from time to time to peek into your space.
I just wanted to wish you strength and peace as you take this journey.
My family thinks of yours often.
tiff’s last blog post..The circus.
crustyMom says:
The videos and purple balloon launches are beautiful. Dear Maddie is a beautiful young angel. I think that you and your husband are the types of people that deserve to have the world and deserve to have every good person in your life–what you’ve done for Maddie, and March of Dimes, and yourself..I admire it.
We had a kite launch in my town this past Saturday, it was one of those “attempts” to hit the guins. book of world records to have the most kites up in the air for 30sec..there wasn’t any wind, but as I sat there and looked at my three sons fumbling with their one kite-purple purchased for Maddie-I couldn’t help but wish that I could be walking up to you, someone that I’ve never met, and give you the biggest mom hug ever.
Your words full of sincerity and honesty and I think you’re absolutely amazing! Maddie continues to be with you through your actions and words.
G-d Bless You! I will continue to be here, your stranger blogger from Chicago, keeping you and your family in my prayers!
crustyMom’s last blog post..When It’s Time To Fix The Pipes
maya says:
Love you guys. You are beautiful and strong. I am so proud to call you a friend.
maya’s last blog post..No cattle were hurt in the writing of this post
Suzanne says:
What a graceful and generous post. I don’t think I could cry any more (every day) or be any angrier (really fu**ing angry) at the universe over your loss. As another commenter said, I feel a little wierd at being so moved by someone I don’t “know.” But it’s ok. I’m not nuts. Every one else feels the same. Your family is beautiful, your little Maddie is so compelling, and the effect of your & Mike’s memorial to her is real.
I hope you guys take care of yourselves. I want to repeat the remarks of another commenter above, which were so beautiful (you have awesome commenters): “There’s something about the unique pain of being a mother that starts with the physical pain in pregnancy – you learn to lean into it, because it’s the only way to survive. ” By leaning into your pain, you’ve made the world a little brighter. I guess it really is better to light a candle than curse the darkness.
Thank you for being you.
Suzanne
linzandkenzmommy says:
You receive all this love and support for the amazing people you are and that is why your story has touched so many. The connection we your blog friends feel is as powerful if not occasionally more powerful that of our IRL friends. Why??? Reading and writing are both powerful and here we do both…sounds simple but speaks volumes. Our family prays for you “Maddie’s Family” each night when we’re saying our “amens” as we call it, and there is not an hour that goes by that we’re not sending love your way. The impression your strength has made is beyond incredible, Heather…you and Mike are truly inspiring in such a devasting time!
linzandkenzmommy’s last blog post..Easter
jen says:
i love that you mention the melting pot of friends and “friends” … it’s so true.
it has been truly amazing watching so many people come together to support you and your family. and keep maddie’s light shining. strong. i’m proud to be a part of it.
(because i can’t plant purple tulips until fall … argh … you can rest assured that a big pot of purple flowers will be outside my front door this spring and summer to remind me everyday to live it fully. and to cherish my girly-girls. everyday. even when i feel alone and frustrated. and next year, i can’t wait to see purple tulips pop up and remind me of your maddie … because even though i never met her … she’s taught me so much. thanks for sharing her.)
jen’s last blog post..any given day …
Lisa in Toledo says:
I was sent to your blog from Matt, Liz and Maddie and I was so touched and saddened by everything, I have read almost your whole blog. I am so sorry for your loss, my heart aches for you and your husband (and the rest of your family). Maddie has touched so many people with her story that I sit here and type this with tears in my eyes. I have been praying for you and yours, and I will continue to do so. May Maddie’s wings fly and God hold you all in his hand. God bless.
Maria says:
Heather, it truly inspires me that in these times, you can still reach out and speak to all of us. Your words are beautiful. It’s comforting to hear from you, and honestly I cling to every little tweet and blog post. I can’t explain why exactly.
We didn’t exchange too many emails, but I consider you a friend and I hope that I have a chance to meet you so I can give you a big crazy hug.
The outpouring of love and support I’ve seen has absolutely changed the way I feel about communities online, about friends.
Your daughter changed the world. She really did.
All my love,
-M
Maria’s last blog post..the tide
Briana in Texas says:
First of all, I wanted to say how sorry I am for your loss. I came across your blog last week, and since then haven’t been able to stop reading all of your posts. I feel like I’m reading a book, with a horrible ending. Maddie was so beautiful, and I can’t imagine what you are going through right now. It’s strange, because I find myself thinking of you and your family at random times during the day, and my heart hurts so badly for you. I don’t have children of my own, but know that I am thinking of yall, and you will be in my thoughts and prayers.
Tami says:
I dont know you nor do I Blog. When I found your Blog I feel in love with your little girl. Now I ache for your Loss. I still cant believe she was taken so Quick from your life. I want to wake up and check back on your site to to see if I am not dreaming. I just feel so bad you your loss.I have a special needs child and I can not imagine losing him. I think it is so great that so many people show thier support and honor maddie like they do. As hard as it is to watch her Video’s . I am happy to see her big blue eyes and hear her scream for Joy. It still tears my heart out. Your family is has been in my thoughts and prayers more then you know.
Hugs,
Lu says:
My heart knows you and you have touched enough blogging people in my community that our spirits know each other. I will be making a donation on behalf of your daughter to the Cincinnati crew that will be walking in her memory. I am praying for your and your family. I hope you know that your little woman has touched so many people and look at how she has brought us all together to offer you some kind of comfort. Take care, be blessed and be comforted.
Leslie says:
Heather and Mike,
I started reading your blog (and later Mike’s blog) shortly after Maddie was born. I checked your blogs every day (okay, multiple times a day) for updates and was always pulling for you all. Through your blogs, I shared in the joy that Maddie brought to this world with her big smile and her bright eyes. I shared in the joy that she brought to you and your families through your words. Thank you for letting all of us share in your grief. Please know that we’re all pulling for you now more than ever, and we’ll never let that sweet, joyful girl of yours leave our hearts.
Love,
Leslie
Leslie’s last blog post..
Megan from mommyesquire says:
Thank you for sharing Maddie with all of us. The Internet can be a wonderful source of support – especially for us moms.
Stacy says:
I am another unknown, and I came across your blog while reading another blog. I sobbed while sharing in her triumphs, all the while knowing how tragic the ending would be. Maddie has touched my life in so many ways in the last few days…thank you for sharing her with the world.
Ally from Tally says:
You are right, I feel like I know you….I feel like I know Maddie. I am grieving right along with you and everytime I read your blog, I cry…I have a one year old who although was born right on time, has had respiratory virus after respiratory virus that have knocked him down and put us in the hospital and put us with a nebulizer at home that is used time and time again. I cannot imagine the feelings you are having…the sadness, the anger, the depression, the whatever comes at you feeling that day. So, know that you have blog readers grieving with you all the way from Florida…It was so great that Maddie brought you so much joy and happiness for her short time on this earth…I am a new reader, but have read your past posts and she was such a special little girl.
Ally from Tally’s last blog post..Now we’re really having fun!
Amy says:
I am glad that so many people unknown to you have helped ease the pain just a teeny bit. Even those of us who do no have blogs – like me – have held you and your family in our hearts. Keep writing… we are here to listen, read and send love!
Scary Mommy says:
I have said to my husband so many times over the past 2 weeks, “How can I feel so heartbroken? I don’t even KNOW them.” Thank you for this post, and again, for sharing Maddie with us…
Scary Mommy’s last blog post..Twitter Etiquette: A guide to getting unfollowed
Janet says:
I’m not sure if you have heard the song “Held” by Natale Grant but i just did and it is awesome….That is if you believe in god anyway:) I have been a believer all my life but 2yrs ago this May i lost a baby boy (Ian) and that really deepened my relationship with god and thru him i was able to mourn, and then heal(to a point)or should i say better understand…
I had a friend tell me that we are all children of god and it’s up to him weather he is willing to share. Ian was just to special and awesome for god to share with me and i now have an angel watching over me and someday i will be with him again…. I feel the same for that beautiful amazing child that is now with god watching over you
Shauna says:
You better believe we love and miss your girl, and we always will. You keep hanging on Heather- and we’ll all be there for you if there are times when you can’t.
Shauna’s last blog post..Dear Sweet Maddie
Lisa says:
My heart breaks over and over again for the loss of your little girl. Each and every post brings tears to my eyes. I had not visited your blog prior to this happening, I heard about Maddie on Twitter, and now I, along with the rest of the world, am captivated. Fly high, sweet Maddie. And big hugs to you and Mike.
Becca says:
This was beautiful Heather. I am one of those people whom your family “doesn’t know” but I feel like we’ve been life-long friends by me reading your blog. I too, grieved when Maddie was taken from you and I still think about her (and you and Mike) every single day. We love you.
Becca’s last blog post..wedges and flats and sandals, oh my!
lauren w says:
This is beautiful. Maddie has touched so many people’s lives and your family is an inspiration to us all. Maddie was an incredible little girl whose smile captured everyone’s heart.
lauren w’s last blog post..Communicating in Your Child’s Love Language
trinity says:
Your daughters laughter was such a precious thing! To know what she had been thru but yet she still had such an infectious laughter…that will stay with me. As I watched her video clips i cried at the site of her knowing that we will not have more time to get to know maddie.
please keep blogging. your posts touch so many and even at your weakest you are still so much stronger because of that beautiful baby girl.
much love to you & your family and even rigby too who must be devastated in his own puppy way
trinity’s last blog post..Be Thankful
Jeanette says:
I can’t imagine…how do you just “stop” being a Mommy? You can’t.
As you said, I don’t know you but you and your daughter have touched my heart.
She was here for a reason and I think we all see what the reason is now. To show there is love and human kindness in the world. People are caring and good. That we take on each others pain and sorrows and lend our help when we can.
Jamie says:
Another sweet, charming post! You really are an inspiration. We all feel as though we DO know you because we, I, have followed your blog. We have laughed and cried along with you…the crazed tummy toucher,… the potty wenches, to the day we all received notification of Maddie’s untimely passing. Still, your ability to see the silver lining and hold such complete grace… YOU ROCK! Thank you again for sharing your beautiful Maddie with us. She is an angel!
Still praying for you, Mike and your families.
Mom24@4evermom says:
You are so amazing. Great words. We’re all here for you.
Ellen says:
This post made me cry all over again. Heather, your words are so, so, so…I just can’t come up with the word. Thinking of you all and especially beautiful Madeline every single day.
Ellen’s last blog post..If this doesn’t make you smile
raino says:
your story has touched many of us in way that you can’t even imagine. not just with the fact that many of can relate to the idea of losing a loved one and worse, a child. but what has also touched me (as it has you as well) is the interest, offers of support and love from around the world.
may you take strength from all of these things.
raino’s last blog post..They call me ‘Squirt’
Amber says:
My husband doesn’t understand why I continue to come to the blogger world when I leave so sad. I just have to tell him that it could be me instead of this or that person and if my being there or my words help just one person then I’m doing some good. I continually think of your family as I go through my daily activities and I wonder how you are doing at that moment. Here’s to hoping that Maddie is seeing you guys through those moments with her smile and laughter! Sending love and strength!
Amber’s last blog post..
Jennifer says:
I’m so sorry.
Insta-Mom says:
I have no words to describe how in awe of you and Mike I am. So strong and so beautiful. Hugs. Huge hugs.
Insta-Mom’s last blog post..Wet and slobbery
Mama Kalila says:
Tears. That was beautiful.
I don’t know what I would do w/out my blog friends either… Oddly enough this hit me around the same time I read about Maddie. You and another mom on here both going through rough times has really made me think about things or rethink things. I’m grateful for that… but hate that it happened this way.
I don’t know if I’ve mentioned this before, but I’m definately praying for you and your family.
Mama Kalila’s last blog post..Back to Palm Sunday
Corinne says:
I am riveted by your story. Your daughter was absolutely stunning, and I can’t begin to express how sorry I am for your loss.
My little girls and I are doing our part to “remember Maddie.” They love to watch her video. The scream when she screams. They laugh when she does. And every night, in addition to our regular bedtime stories, we tell the tale of a little fairy named Maddie Alice who flies all over the world making scared little girls brave, unhappy little girls joyful, weak little girls tough as rocks. Maddie’s memory will live on in us, compete strangers. Thank you for sharing her with the Internet. I am thinking of you often.
Tara-Lynn says:
I stumbled across you when I read the news about Maddie on three different blogs I check regularly. I am so very sorry for your loss. Maddie was a truly beautiful little girl – that smile of hers would melt anyone’s heart. Life is really not fair. Take good care, and I am sure that beautiful angel is smiling down at her wonderful Mommy and Daddy. Hugs to you.
Tara-Lynn’s last blog post..Bits and Bites
Sherri says:
My mother and I cried when we watched the tribute video of Maddie. She was so beautiful and precious and we are so very sorry for your loss. You’re in our thoughts and prayers, as no mother should ever have to go through this!
tara says:
i am in awe of your strength- beautiful words. i am another one of those “strangers” who came upon your story – you, mike and maddie have touched my heart and i will never be the same. i have sobbed and sobbed and i’m not done yet. you are all constantly in my thoughts. so many hugs to you.
Lee Ann says:
I am new to Twitter, and learned about your blog through Jen Lancaster, actually stayed up that night for hours reading it backwards chronologically-my husband asked me why I was crying, and I showed him some pics and video of Maddie. Before long, he was in tears as well. Stay strong, you are incredible, and your family will be your rock. I pray for you, your husband, even Rigby! You have many people out here in the world who care about you. Maddie will live on with every child she helps because of the outpouring of love from people who loved to read about her life!
Lis says:
Beautiful words, very beautiful. Your strength is inspiring to me.
I’ve been blogging for a few years now, reading your blog for a little over a year. The blogging community is amazing and I’m proud to be a part of it. It is funny how you can feel like people you never met are friends, but they truly are.
I just joined Twitter the day after reading about Maddie. It was a new way to be involved, spread the word about MoD and to be connected with all my internet friends who were grieving for Maddie.
Know that you and Mike will be forever in my heart. Maddie touched my heart with her smiles and her big beautiful eyes. That’s not something I can easily forget.
Lis’s last blog post..5 Things I Did to Transform My Picky-eater
Ange says:
Heather, this is such a beautiful post. Your strength amazes me. I, too, got into the whole Twitter thing when I became a WAHM and felt isolated from the world. It was/is an amazing community of people and I’m so proud to be a part of it, especially during this time of rallying support for you & Mike. Watching the numbers grow in Maddie’s honor is so uplifting. Thank you for such a heartfelt post to all of us ‘strangers’. We love you and pray for you constantly.
Ange’s last blog post..Family Day
Lindsey says:
Thank you Heather. Thank you, thank you, thank you. I am fairly new to the blogging world. I have had a blog for years, but only shared it with very close IRL friends. Secretly though, I read other peoples blogs and I love them. I came across yours when someone I follow on Twitter posted about Maddie. I then spent days on your blog, looking at every picture of sweet Maddie. I cried and laughed and cried some more. I mourned for a little girl I never met and I told stories about you and your family like I “knew” you. Other moms understood, but some people looked at me like I was crazy. I let them affect me and I felt strange about commenting on your page because really, how much difference could I make to you? You don’t even “know” me. But now I understand. We do know each other. We are both mothers. So again, thank you for sharing, for letting me into your life, for letting us all in to grieve with you, to laugh with you, to support you and hold you up. Now I understand the magnitude of blogging and how we can all “know” each other. You, Mike and Maddie are never far from my mind.
kim says:
I started my blog specifically because of my amazement at the blogging community, among other things, back when a fellow blogger suffered tragic circumstances in her family.
I haven’t been brave enough to try Twitter, but I understand the need to reach out especially when as a SAHM (or WAHM) we sometimes can feel incredibly isolated.
My love (and it is love, whether we will ever know each other “IRL” or not), prayers, EVERYTHING go to you and your family right now as you adjust to life without Maddie. You brought her to life for us out here, and our hearts are broken for you.
kim’s last blog post..Snoozy Sunday
Janelle says:
I was at a beach party yesterday with my girls, watching a friend through my daughter Marley up in the air and I thought about you and your story, which I learned about from Matt Logelin’s site (and followed since then). I just burst into tears, trying to hide myself from friends, not knowing how to explain why I was crying. How do you explain to someone that you are crying & mourning over the death of a little girl that you don’t even know? Who’s parents you will never even meet? My husband would think I was nuts. But your story has touched me deeply, being the mother of two little girls, I am awed by your strength, which I can guess, you are not feeling very strong right now, but you are. I feel so much love for your little girl and I grieve so deeply for the both of you. Thank you for continuing to share your story and reminding me every time I visit your blog to cherish every temper trantrum, kiss every tear and remember how fragile life is.
Janelle’s last blog post..Babies don’t keep…
Michelle Pixie says:
You and your beautiful family has inspired and touched me and my family more then words will ever be able to express. Thank You!
Michelle Pixie’s last blog post..Self-Portrait
Michelle says:
I sent a link to your website out to many family members and friends yesterday. This morning my daughters teacher told she’d read it and cried too. I wish I’d found it sooner and gotten to know Maddie before she was an angel. So many of us who never even knew she existed when she was living are being touched by her story. So very sorry for your loss.
Susan says:
Thank you for such a wonderful post, we are all still here for you and Mike. I pray for you everday. You and Mike are wonderful people and I hope that someday you find peace even though I know it is a long way off. Much Love, Susan
Susan’s last blog post..Sunday
ryanandjoesmom says:
Thank you. Thank you for letting madeline change my life. Thank you for letting us mourn with you. Thank you for accepting our support – no matter how we get it to you. Love and hugs to you and Mike!
ryanandjoesmom’s last blog post..Plans
Mariah says:
You have allowed us into your life and WE DO KNOW each other through this strange thing called the internet you may not know me, but I knew you and I gazed at Maddie’s pictures for months. Although I only met you briefly at Maddie’s Memorial, I felt connected somehow. Again, as I have said before, your grace and strength is amazing.
Sara says:
Hi Heather, I’ve been following your story for awhile, but have never left a comment. Your story has made my heart laugh and cry SO many times, and it has affected me more than you will ever know. My baby girl had trouble at birth, and was recently hospitalized for pneumonia/rsv, so I was able to relate to your fears myself.
Every day, I try to honor Maddie by telling someone her story, and “paying it forward” to somebody in Maddie’s name. People can’t believe how emotional I have become in regards to your story, but they must not know the love that all mom’s share for each other, especially when it comes to pain and our children.
I’m thinking about you every day…your husband too… Maddie is a BIG part of my family’s life now, and my baby girl will grow up knowing of the angel who changed her mommy’s life.
All my love,
S
Sara’s last blog post..what i love about post-pregnancy…
Amber says:
You and Mike (and your families) continue to be in my thoughts and prayers. Your Maddie was certainly a very special little girl, her life brought so many people together. Thank you for sharing her with all of us, I for one am a better mom, daughter, and person for having known her through your blogs. Sending you love and prayers today and always.
Amber’s last blog post..going purple…
Karen Sugarpants says:
I was just talking to Sam this morning about how I don’t really know you and how much Maddie meant to me anyway and the weird feelings that go along with that. Thank you for giving so much of your lives, yourselves, your thoughts and feelings. It’s been a life-changing thing to get to know you, albeit online. You’re a beautiful family, dear new friend. I hope to meet you in July if you’re going to BlogHer.
xo
Karen Sugarpants’s last blog post..Twitter is Ruining Mah Brainz
the mama bird diaries says:
Wonderful post. I’ve been thinking often of you all.
the mama bird diaries’s last blog post..my favorite memphis girl comes to nyc
Jenn Saylor says:
I don’t know you, but I do know you…we are both moms and I think that unites us all. My heart is so burdened for you all – you all are an amazing family. Maddie was such a beautiful little girl…I have loved looking at all her pictures. You all are in our prayers.
Thanks for allowing us into your life…it has meant the world to us.
Jenn Saylor’s last blog post..Fussin’, fussin’, fussin’…
bessie.viola says:
You are so eloquent. This weekend I cried over your little girl again, and felt a little bit like a weirdo for doing so… her presence is very much on my heart. Thank you for saying that you understand, and thank you for allowing us this look into your daughter’s life.
We’re still praying for you daily. Sending sadly insufficient internet-hugs.
bessie.viola’s last blog post..months 13 & 14
Megan says:
I cried and cried when I heard the news about Maddie… and then I felt a little strange…I mean…I’m what you call a lurker here, I suppose…but I have been lurking for so long that I of course felt like I ‘knew’ you…Your family was just a regular part of my day… I cheered and prayed..and smiled at so many things I could relate to as a mom… I think you’re amazing… And I truly thank you for taking the time out to make those of us who grieve with you in our own outside way feel like we really are part of your family…
Darla Wentz says:
Wow Heather that was beautiful. I am truly amazed by your generousity through this difficult time. You are absolutely an amazing person and have inspired me to start my own blog. I will continue to keep your family and sweet little Maddie in my prayers. Thank you so much for sharing Maddie with us all. Take care.
Darla
Darla Wentz’s last blog post..Last night
Gretchen says:
Like many others – I know you/your family only through your blog and the wonderful generosity you have shown to share you life and your amazing little girl with me through it. I was heartbroken to hear of your loss. Last week I was watching one of the slideshow dedications to your sweet little Maddie when one of my daughters (7 years old) walked up. “Mommy, who is that little girl?” I replied: “She is the daughter of a lady who writes a blog on the internet – and she got sick and passed away.” My daughter continued to watch the slideshow with me – and at one point asked “Mommy, why are you crying if you didn’t know her?”…I didn’t answer. A few minutes later she had tears of her own and said “Nevermind Mommy, I understand.” We stood there together watching the slideshow and marveling at your beautiful little girl and how she seemed to radiate happiness even through photographs. A little while later I saw my daughter showing that slideshow to her 2 sisters (her older sister and her twin sister) and explaining to them that she had passed away. Every one of them wore purple all weekend and when they were asked about “matching” (because they never do) – they said “We’re wearing purple so Maddie knows she is missed – even by people who never really knew her” and went on to explain about “on this blog that Mommy reads, etc…” I just wanted you to know that you have touched the lives of so many just by sharing your personal experiences and the life of your daughter on the internet – although I wish the circumstances were happy ones instead – I am glad that you can “see” how much of an impact you have had and how many lives you have touched – and that those people can touch you back in return. Thank you…
Deb - Mom of 3 Girls says:
That was simply beautiful and related so much to how I feel about Twitter and blogging as well – I’ve been at home with my girls since last summer. I only discovered your blog recently (after the Chris Mann concert), but your stories and photos of little Maddie drew me right in and I’ve cheered, prayed and grieved with you ever since. I know I’m just one more ‘stranger’ but you have been in my thoughts and prayers daily and I am amazed and awed at your strength and devotion during such a difficult time. Many hugs…
Deb – Mom of 3 Girls’s last blog post..Weekend Top Five – Soccer and sunburn
Kristen says:
You and Mike and Maddie are always in my thoughts. I’ve got the music from your tribute playing on a loop here, and my 4 year old son has started requesting “the baby Maddie” song (In My Life) as his lullaby.
Thank you, for letting us hear you still.
andrea says:
my condolences to you and your entire family. maddie just was so unique, and special. the gilkes family is thinking of you and praying for you. thank you for opening up your heart and letting us in.
in prayer, andrea gilkes
mrs.chicken says:
I’m so glad you wrote this. You’re right. This is real life, all of it.
Thinking of you.
Just Jiff says:
I have signed up iwth Twitter but have only used it once. I use Facebook. I’d love to follow you there.
Just Jiff’s last blog post..Fever Virus.
Sara says:
I have been reading for several days now and not wanting to comment because, simply, I felt intrusive. I want you to know how heartbroken I am for your family and how brave I think you are to share so much with everyone.
Sara’s last blog post..and if they thought of rain
Bridget says:
We do love and miss her. And not a day goes by that I don’t think of Maddie and of you and Mike.
Is there more purple in the world than there was before? Or do I just have on lilac-colored glasses? Will I ever look at purple again without thinking of Maddie?
Bridget’s last blog post..I’m in a music video…seriously.
Kari says:
I too came across your blog not too long ago and have been reading through your archives for the past week. I’ve gotten to know your family through reading and am overwhelmed by the tremendous love your family emcompassed. Thank you for sharing your heart.
Thinking of you and carrying you in my heart.
Amy says:
My heart is still aching for your family each and every day. Maddie touched my heart and I was so glad to be one of the people that could dedicate a blog post or two to her. She will be greatly missed by everyone.
On another note, I was a family team committee member for our local March for Babies walk in Worcester, MA which took place yesterday, and myself and the other committee members and volunteers did take a moment while setting up to remember Maddie and think about what it is that makes us walk. Yesterday, I walked in memory of Maddie and in honor of my two preemies. My daughter and I released balloons for Maddie last week, and every night she asks me “Is Maddie still in Heaven?” and every night I tell her “yes, she is, but someday we’ll meet her.”
Amy’s last blog post..March for Babies
Amanda (@mom23greatgirls) says:
Heather –
What a beautiful post. Your and Mike’s story touches so many of us because we have lost a child ourselves, had a premature infant, or simply care. Maddie was and will forever be someone who had changed the lives of many – that truly is amazing. I remember you writing that you didn’t want people to forget Maddie – through your words she will never be forgotten. Time may pass and life might move on but remembering Maddie is something that many of us will do when we wear purple, see a MOD container (which I might say I have no idea how much change my husband and I have put into over the past week and a half) , or see a purple balloon and it will cause us to pause – even if for a second and in time not cry but remember her smile and her laugh and then smile ourselves.
I remember asking a counselor how long it would take before I didn’t wake up every morning and have on my mind right before I went to sleep pain and sadness and she gave me the best advice ever:
She said that in time I would and that the time had no preset length. She told me not to make anyone feel as though it did. I know that for me I lived minute by minute for a while and then in time I was able to move hour by hour and then finally day by day. Your love for Maddie was so strong – you loved her minute by minute, hour by hour, and day by day – let yourself know THAT is the definition of love and that it never ever goes away.
Big, huge hugs from Georgia.
Amanda
Melina says:
Just wanted to thank you…for thanking us.
I send you much strength.
elismsue says:
Heather…You are a model of grace and humility. You are simply receiving back what you have already given away and shared with all of us. You shared your Maddie and we grew to love her and her radiant, expressive face, the love she had for both of you and you documented her life. All of this what you have given us. In return I am sure that we all want you to feel loved by us.
Hugs
elismsue
Sabrina in Philly says:
Everytime I read your blog my heart hurts and it never fails…the tears flow. Bc I hurt for you and your husband and what you are missing, a part of your hearts! A mother or A father knows your pain…maybe some of us might not know the certainty of it…but we know your love, so we know your pain….
It was a pleasure to put something up for your Maddy! She was so beautiful!! If that post could bring just one dollar to you…one dollar to the march of times…then it was definitely worth it! I would do it again and again everyday, for your lost and for your family!
Your post was beautiful, you and Mike are beautiful people~ And even though I have never even met your family, I think of you almost everyday!
Sabrina in Philly’s last blog post..Ladies only
Alexandra says:
Isn’t it something how life humbles you. Just takes you and breaks you down, and rebuilds you slowly into something new. Rebuilds you so you can recognize the love there is out here for Maddie. I never met Maddie, but fell in love with her over your blog. She was something not of this earth, from the beginning…she was so obviously beautiful, but then so smart, and such a rascal. Just `1 1/2 yrs with her , and you felt like you tasted everything the world has out there to give. She was as special as you thought she was, she was ethereal. What a love. And we all loved her, and will miss her…and, oh, I’m crying again…I’m going to miss her so so much.
Casi says:
BEAUTIFUL!!!
Casi’s last blog post..Tragedy Strikes Before Polo Match
christieo says:
Every time I come here, you amaze me with your strength. Truly. You’re going through probably the most difficult time in your entire life, a time when it’s ok to shut yourself away and grieve, but instead, you choose to come out and share your moments and take time still to recognize other people. You are a very kind, wonderful soul and I can see why the blog community and the world, really, has rallied around you and your family. You have a gift, and I am sure that baby Maddie knew that too.
christieo’s last blog post..Before and After: Love and Marriage
Procrastamom says:
In the shadow of sadness, there is grace. You are that grace, Heather. You embody it.
Leita says:
Continuously inspired by you. thank you. I have a “Maddie moment” at least once a day where I weap for all who were near and close to Maddie… my eyes well with tears merely by thinking of you all. I hope and pray that someway somehow all of the many people weaping for you can lessen your grief. I truly believe that souls choose their parents, and it is plainly obvious to me why Maddie chose you and Mike. bless you bless you bless you.
Kelly Burton says:
And now I sit here with a bowl of soup, crying with you again, and saying another prayer:
May the Lord make His face to shine upon you.
It’s different for me, bc Maddie was not mine, but I smile when I think of her dancing on streets of gold. I hope you have smiles sometimes, too.
xo to you & Mike
Kelly Burton’s last blog post..Yesterday’s meetings
Suzie an "unknown" from Iowa says:
You are both so perfect and you speak so eloquently admist such tragedy!! I am a better person for “knowing” you all!! You are all very loved!! We think of you daily and our hearts break!! Be well my friend!!
cat says:
sending you guys all the white light i’ve got.
Bonnie says:
You and Mike were my last thought before sleeping last night and my first thought on waking up. Hang in there.
Bonnie’s last blog post..Sadness
Ann Wittgraf says:
I have shed so many tears for your beautiful Maddie. What a ray of sunshine and such a beautiful spirit she possessed. I can’t even fathom what you are going through and none of this makes sense. We all love your daughter right along with you and her spirit lives on in each of us. I will never forget her. I believe in God and know you will see her one day.
Rick @ Tiny Prints says:
As a father of a toddler, I try not to imagine what you are going through. It is inspiring to see so much support however. It’s amazing what twitter can do at times.
Our thoughts are with you.
Rick @ Tiny Prints’s last blog post..Birthday Party Inspiration: Ella’s Sweet Shop
Lauren says:
I have been thinking of you and your family ever since I first read about your Maddie on Matt Logelin’s blog. Thank you for sharing her with everyone. I hope you and Mike find peace and comfort soon and know that your family is loved. Hugs…
Jill says:
You are beautiful and amazing and graceful. I am thinking of you all and praying for you.
MJ says:
I am so sorry for your loss. Thank you for sharing your story and your little girl with us all. She is incredibly precious.
Janice (5 Minutes for Mom) says:
Oh soooo true, “My blog friends and my real life friends are now one and the same.”
Even in my life, I am also throwing out those terms. Now it is just “Friends.”
{{{HUGS}}} to you my friend. I am so glad you have had such wonderful support.
I think of you CONSTANTLY! I wished I had been there at Maddie’s service. And I wish every day I had flown to LA for that UBPirl party at your house. Now I must wait till heaven to meet Maddie IRL.
Janice (5 Minutes for Mom)’s last blog post..5 Minutes for Books: Things I Want My Daughters to Know
Rose says:
Please know your Maddie will be remembered by one more SAHM in Dallas. Her spirit is amazing and your love for her touches my heart.
Jill says:
I found your blog through another. I sat and read every post and fell head over heels in love with your Maddie. Thank you for sharing her with us. She is indeed a beautiful child. I pray that God comforts you and your family. You will be in my thoughts and prayers.
Haley says:
This really touched my heart! I do care…alot. The saddest thing is that I found your blog just days before Maddie passed…and I’m still in shock.
I’m sorry for your loss, but proud and blown away at how the world of Mommy Bloggers and the internet has rallied around you.
If you need anything….anything, just ask.
Prayers and blessing for your family.
tela says:
I’m one of ones who “do not know you,” but a friend of mine was stuck in an elevator with you for some time a few months ago. Even then, I really didn’t read your blog for follow you on Twitter. I was going through “something” with the Interwebs community the last few months or so.
How quickly I make things about me.
Anyway, the outpouring of emotion for you and your family has been awe-inspiring. I signed up to do a walk for Maddie in Ohio, I fb’ed about it, and in a few minutes I had two donations from people who barely know me, but read what Amy wrote about your beautiful Maddie on our MoD page, and felt compelled to do something.
I think we all just wish we could do more. I know I do.
Modbev says:
I have been on Twitter for a long time. Someone said to me this morning, “How many Twitter people have you met?” I had to stop and think, “You mean in real life?” The answer, it does not matter. I agree with your post. I no longer separate. I talk about what this or that person said, what is happening in their lives just like I would my neighbor. So many of my Twitter and blog friends I feel I have known forever and in some cases, I know them better than IRL friends. You and Mike continue to amaze me with your thoughtfulness, strength and generosity. I don’t know you, yet I feel I do.
Modbev’s last blog post..Here’s a thought: Turn off the TV! And the computer, too.
Rebecca C says:
Well said, we do miss Maddie and we should all do what we can to make sure that this doesn’t happen to another little one, all of us should work together to make sure the MoD has the funds to do what they can. All of us should remember Maddie in our interactions with our children and others children.
I know I will remember. Maddie has touched mine and my families heart and she will always be remembered. She will always be loved.
My daughter Audra says “She likes that one when looking at Maddie’s picture” and that is her seal of approval. We will continue praying for your family and Maddie.
april billick says:
Beatiful words… every night I pray for Maddie Moo as you called her. I finally had the… courage? strength?… to watch your video remembrance to Maddie… and I have never cried so hard. But… I’ve never laughed or smiled either b/c I could see what an angelic beautiful child she was. You were so lucky to have her. She’ll always be with you in spirit and in the spirit of all these fellow posters. I pray that you find peace as each day passes and that your hearts heal with time.
Susan says:
More internet hugs to you. Lots.
Susan’s last blog post..Fed up
Jennifer, Playgroups are no place for children says:
Beautiful, Heather. Your words are so inspiring. Holding you, Mike, and Maddie in my heart.
Jennifer, Playgroups are no place for children’s last blog post..At least he’s not a hostage negotiator
Jenny from Mommin' It Up! says:
It was easy to look at a picture of Maddie and just FEEL connected to her – those eyes! IT was so good of you to share her with us through your blogging and photography. She touched many lives – I’m glad the blogging community could give you a touch back.
Jenny from Mommin’ It Up!’s last blog post..My Patronage, the Kiss of Death
ritchiewoman says:
I have been thinking of you and Maddie every single day, though I am another who does not know you. Your beautiful daughter has touched me in a way that I didn’t think was possible. Your strength inspires me. You will remain in my thoughts forever more.
Farrah says:
I have seen and heard your story all over bloggy-land. Today is my son’s birthday. He would be five today. But he died when he was three days old.
I know how your heart breaks. Mine is breaking like that too, still. Losing your child is like losing a part of your soul. And yet, seeing the love and strength that comes from being up held by those around you makes it seem a little easier.
I am praying for you and your family.
Thank you for sharing your journey with everyone. It is a horrible “club” to be in, this group of us who have had to bury our children. But it helps to be able to walk it together.
May God’s peace fill your soul and give you hope.
Prayers and Blessings,
Farrah Brown
Farrah’s last blog post..Wave of Healing
Jen Zweig says:
You guys are so strong – you and Mike were so amazing to listen to at the service. It was so wonderful to sit next to people that cried for Maddie yet had never met her. She touched people just by your words, pictures, and stories. And those will never go away.
Love you!
Amy says:
This was such a wonderful post. It shows how much you do care for others. I think that is what a blogging can do for you. I am a SAHM and I love having my adult time and to see what others are up to. Thanks for taking the time to blog and share your feeling. I hope you have a great day.
Amy’s last blog post..Crushes
lisa says:
hello.
i’m not sure why i’ve felt so compelled to write you. although it’s seems so many feel the same way i do. i stumbled upon your blog through a photo that was posted. it was of a little girl in purple. the caption said “for Maddie”. i clicked and landed here. i was instantly surprised by the sight of two beautiful eyes smiling back at me. the blog name made me laugh. I thought, oh great, another blog to follow.
then my eye caught the title ‘Home’. i read the first line. ‘we picked up Maddie’s urn today.’ my heart sank. this was not what i expected. the tears immediately began to well as i continued. i couldn’t fathom the pain as i read the words ‘ i wept over my daughter’.
everything i know and believe tells me that nothing comes into our lives that God does not allow. even heartache and suffering. it is so EASY for me to believe this as i lay my three healthy children to bed at night. i can honestly say my faith has yet to be tested. as i read your words i ask myself if i could speak as you do. i also believe that we are given the strength to survive the pain that comes into our lives. i believe it more as i read your words.
i know my words are not enough. but i truly wanted you to know that i will pray for Maddie. for your families. for you and your husband. for your relationship with each other. (and please know this is not a flippant ‘i’m praying for you’ comment.)
thank you for continuing with your story.
**there is a song by a band called Casting Crowns. Praise You in This Storm. it immediately came to mind as i read your words. it’s on iTunes.
Libby says:
I think about you every day. multiple times a day. Our only connection is that I know what it’s like to be a mom and love a child. Your loss breaks my heart everyday, and I’m also amazed by your strength. Take care.
Karen B says:
I don’t know that I have ever commented on your blog, but I have been following you (and Mike) for a long time. I have a medically fragile daughter, and I have been so impressed and humbled by how you both handle all the ups and downs of life and parenting with grace and good humor. I cried and prayed so hard for you, especially these past couple of weeks, and have had more than a few angry moments that you should have do deal with the unthinkable. Your precious Maddie was such a beautiful, spunky little girl, and the world is a better place for her having been in it. I am grateful for all the stories and photos you and Mike have shared, and continue to share. You are incredible people.
Lisa says:
we’re thinking about you & Mike all the time.
Marsha says:
I have been coming here since Matt Logelin spoke of you and your sweet Maddie. I am so very sorry for your loss, it is so hard to grasp that a sweet little girl with a smile as sweet as sunshine has left.
Even though I do not “know” you I grieved with you….tears have been shed and determination to make a difference have been stirred. Maddie made a difference here in this world. The proof is in the donations coming into the March of Dimes. She became real with the stories, the pictures, she will not be forgotten.
Your friends that did the NICU survival kits in Maddie’s honor inspired me…I will be doing some for our area’s NICU families. Having spent time in the NICU myself with my firstborn son it is a scary place. Having to go home without him was rough. Good things and miracles happen there and a lot of bad things as well.
Amanda says:
Your Maddie has really touched my life. Even though I do not have any kids of my own yet, I do have a two-year-old brother and a four-year-old sister, and I cannot imagine what you are going though, but I thank you for posting new blogs. So sorry again.
Amanda’s last blog post..I don’t believe this…
punkinmama says:
You are such a special person. It’s not fair what life has dealt you, but you are dealing with it with so much grace. You are continually in my thoughts.
punkinmama’s last blog post..marching for maddie
Keary Naughton says:
Heather and Mike,
I have been reading your blog for over a year. I was heart broken when I read about Maddie, such a smile. My husband and I lost a little boy 3 days after he was born 23 years ago next month. My mother said at the time it doesn’t make a difference if they are 3 days or 3 years old it is still the same. I know that it sounds trite to say that time does help, but it does. Keary
Upstatemomof3 says:
I feel so sad that I did not find your blog before Maddie passed. Sill I feel like i knew her. I have read your story and I have cried many tears over her loss. She was a beautiful girl with the most amazing smile. I cannot possibly put into words the emotions in my heart but I must say that I sincerely wish I could do more than turn my blog purple. I know it is not enough but it is what I have, that and the prayers I send your way every day. God Bless.
Upstatemomof3’s last blog post..Self Portrait
Tamaya says:
Thank you for your beautiful update. Through your blog, your daughter touched so many people’s lives, and those people care about you too. You remain in my thoughts and prayers.
Tamaya’s last blog post..OK Week 27 was a joke. This is actually Week 27 and 3 days
Marti B. says:
I’m still crying and still praying for you. I can’t donate simply due to job loss, in this economy, but prayers I can say because they are free, and because there is a real Person at the end of the prayer Who hears them and grants the answers of them.
My one concern is that you strive to keep your marriage alive. This happened to me after the loss of a child, and I don’t want you to go through that. You’re a beautiful couple and I pray that God stays in the Center of your marriage.
I put a picture of Maddie on my computer desk top so I can pray for your family everytime I log on, which is often. It often moves me to tears.
Marti B. says:
I forgot to add that tears and grieving, are prayer too. God hears those.
Molly says:
I can’t begin to say how very sorry I am for your loss. Maddie has touched so many and will be remembered always. Thank you for sharing your precious daughter.
Vera says:
I’m just another mommy blogger who has woken every morning lately with a heavy heart thinking of your loss, smiled at sweet Maddie’s face on your Flickr, watched with amazement at the wonderful way in which you’ve used March of Dimes to forever change the world in Maddie’s name, and prayed for your sweet family.
Vera’s last blog post..Lots of Randomness
Loural says:
I can’t tell you how much your blog has moved me. You have such grace in the face of such adversity.
My nephew was born quite premature and was only 1 lb 14 oz. We thought he wouldn’t make it….for quite a few years he had so many problems it was a constant struggle because he was so up and down. He is now 7 and is finally overcoming some of his health problems.
The tears and the prayers, the long sleepless nights and the ache when he was in the hospital is still with me…as is the fear. The fear that I would lose this bright beautiful loving funny boy that I loved more than I loved my own life.
I cannot imagine…I can try but ultimately I cannot…I cannot imagine the heartbreak a parent goes through. I cannot imagine surviving it. I watched my parents and saw their grief when my brother died at 18….and I pray that I never have to go through that. The fear of the possibility of losing a child I love and the over whelming grief of the actual loss.
My tears, my prayers and my thoughts are with you and your family…I pray Maddie has found her wings and is soaring right now.
Tam says:
I only found your blog when you made your first post after Maddie passed, and it took my heart. Her big blue eyes and blond curls- what a beautiful girl. I went back and read your old posts- what an amazing girl. She has really given March of Dimes meaning for me and purpose. Thank you for sharing her, and continuing to share yourself. God Bless.
Tam’s last blog post..Where have WE been?
Christa says:
My husband and I have added you to our nightly prayer list. You and Mike amaze us at the strength you and have shown. Please know that your sweet Maddie Moo will never be forgotten.
Susan (5 Minutes for Mom) says:
Isn’t it so amazing how through blogging and tweeting we can become so profoundly connected. It is such a gift for us all… friendships are so important and feeling isolated at home with a new baby is so hard.
I am so glad to hear how Twitter friendships helped you through those days and how through Twitter and the blogosphere we have all been able to share in the joy of Maddie’s life and the sorrow of her departure.
I think about Maddie and you constantly. My Sophia is the same age and this weekend she had a fever. I couldn’t stop thinking about you and Maddie and how hard it must have been to have her in the hospital and how helpless you must have felt. I kept thinking how lucky I am that my little girl just had a little fever from a cold and I felt guilty in a way… that it is so unfair that Maddie didn’t just have a little fever from a cold that would be gone the next day.
I am so infinitely sorry.
Susan (5 Minutes for Mom)’s last blog post..5 Minutes for Books: Things I Want My Daughters to Know
Amanda says:
Heather,
I cannot tell you how much I have thought about you and Mike this past week. I wanted to let you know that you have taught me so much about what it means to be brave. I know you talk about how brave sweet Maddie was…..and you are right. But your strength through this horrible event has amazed me. The fact that you have returned to the “blogosphere” means so much to all of us who read your blog. I understand that this must be so hard and my heart ACHES for you. I know I live a thousand miles away, but if there is anything you need I’d be happy to assist. Plus, if you’re ever in the mood for some Memphis BBQ, you have a place to stay with us.
Haley-O says:
This was so beautiful…. We don’t know each other really – we follow each other on twitter but have had no correspondence. And yet, you are constantly in my thoughts and prayers. I pray for your comfort…. I’m so glad you are comforted by these comments because I so want to comfort you….. Hugs.
Haley-O’s last blog post..The “Igor”
Jennifer says:
You are an amazing person. I thank you for letting us share in your life.
Jennifer’s last blog post..It’s Monday again
Aubrey says:
Thank you for sharing this little miracle with the world. Thank you for sharing her strength, and yours, with us. She was remarkable and I only hope that her love will heal your hearts.
Aubrey’s last blog post..Pressing Here Cures Headache
Antonia says:
Hi Heather, I’ve read your blog for maybe a month now, I’m one of those people who found your site through Matt Logelin’s site, big surprise, I’m sure, but after reading this post, I felt compelled to write. I’ve never commented before, and even after viewing your Flickr i’m still hesitant to comment. My heart truly does go out to you and your husband. I wish I had the words to comfort you, but I know very little I say will. At work; I work at a YMCA, I find myself wearing purple to incorporate into my work attire, I never had a lot of purple things, but lately I find myself buying more purple things. Thank you for all you’ve done…you’ve touched a lot of people…myself included
Antonia’s last blog post..Define 10 Years…
Stefanie says:
It doesn’t change anything but you certainly are loved all over the world! I’m glad to know you guys. I feel just lucky. I wish I could take a tiny bit of your pain away. But I can’t. So I’ll just try to hang out and soak some up.
Stefanie’s last blog post..I Believe
mama2addie says:
You are truly amazing! Your beauty and grace are so encouraging! Maddie has got to be so proud of her Mama! Thank you so much for embracing us. We’re always here for you!
mama2addie’s last blog post..March for Babies
mama2addie says:
You are truly amazing! Your beauty and grace are so encouraging! Maddie has got to be so proud of her Mama! Thank you so much for embracing us. We’re always here for you!
Laura says:
You’re not just a good writer. You’re a fabulous writer. As a writer myself, I feel qualified to say it. And looking at all the comments proves it. I have cried tears for Maddie every day. Your powerful words have allowed everyone to see and feel as you do. What a tribute to a beautiful, beautiful life.
Amy says:
I came across your blog through another…and have been totally captivated reading about you and your family. You have made me want to be a better mom to my boys! I have loved reading about Maddie and keep being drawn to her story. It has become my habit, as soon as I get my boys tucked in at night, to open up your blog, click on Archives, and read the next chapter in your lives. So far I’ve gotten through Maddie’s first six months, and I love watching and reading how she grows. She was such a bright light. You are such a great mom, so patient and loving, and truly a role model. I send you love and strength and good thoughts.
Lori says:
Your strength is inspiring. I don’t know how you do it. Your family has touched many lives.
Bec says:
I’m glad there has been some comfort for you.
Bec’s last blog post..Our big day
Michele says:
Heather,
I began following your blog recently through another blogger’s link. I am all you have described in your latest post, just another person, caring for your daughter, a stranger. Yet as a fellow preemie mom, I can understand your experiences on a different level. My daughter was born at 15 oz. and 25 weeks gestation. That is why your posts about the daring Maddie captured me, as did your grief at her loss. You have written of Maddie’s trials and pain. My daughter also endured tests, machines surgeries and prcedures NO ONE should ever have to face. At one point I prayed that I could change places with her, to be one who would be poked and prodded. Then, later on I realized. She is stronger than me.
From your writing I learned that Maddie has a magnetic personality, radiating spunk and joy. I can’t say most people would be that way after facing enormous challenge. This is just one of the reasons I admire Maddie.
Thank you for sharing so much of yourself and in doing so, helping others. I wish you healing and happy memories of your angel girl.
This weekend in Spokane, Washington, I will be “Marching” for your Maddie and my Emily.
Kelly says:
I just want you to know thoughts of Maddie, you and Mike cross my mind every day since you (we) lost her. I caught up on the Caring Bridge blog for Jackie. Once again, I read the archives up to the current post. I loved seeing her with Maddie’s “I’m Brave” shirt again. Of course, I read about that first in your archives. Thank you for posting.
Deidre says:
Mothers have amazing strength and I think you had more strength when Maddie was in Hospital through the years than now. You have dealt with so much pain and I feel your pain is soften to gratitude. Remember Maddie’s essence is just the same today as it was 2 weeks ago. She is just around the corner. All is well. Don’t ask why, just know that God’s arms are wrapped around you and your family every moment of everyday. Blessing are abound. Clearly….they come to you in many forms everyday. We are here for you. We will not let up on our support.
Amy C says:
I haven’t commented on your blog before, but I have been reading for about 6 months. I’m a friend of AnissaM’s IRL and, like others, I wasn’t sure how you would feel about “strangers” grieving. I was out of town and away from the internet and didn’t even know Maddie was sick until several days later. I cried when I read the news. My son is a 25 weeker not much older than Maddie, and even though they had different issues, I felt a connection to you as a fellow preemie mom. I know there’s nothing I can say to make this better….I just wanted you to know there’s one more family mourning and missing Maddie.
thatgirlblogs says:
maybe there’s a book in here somewhere? because any good that can come from this would be something you really, really, really deserve. Hugs.
Miss E says:
You are an absolutely amazing woman. You inspire me everyday to be a better wife, friend, daughter… The way you have carried yourself through this tragedy shows your inner grace and beauty. Know that you have so many people who love you, Mike and Maddie and will never forget…we will honor your sweet family in our thoughts, words and actions.
Thank you for thinking of us as your “real” friends. It’s an honor to have a friend like you.
Much love from Scottsdale, AZ
Miss E’s last blog post..Lights and Tunnels
Coco says:
I am so very sorry for your loss. I found out about Maddie through Becky @ Mommy Wants Vodka and so many other friends. I’m sad that it took a tragedy for me to find my way here.
Your Maddie was and is a beautiful child. I’ve cried many tears over her precious picture. Thank you for taking the time, even in your grief, to let all of us know how you’re doing.
May your sweet angel know peace until you all meet again.
Coco’s last blog post..Nickles and Dimes and the Fourth of July…
Rachel says:
Heather and Mike,
I am so very, very sorry to learn of Maddie’s passing. I think I read your blog from beginning to end the other night. What a lovely, luminous baby girl. I’m so glad so many have rallied around you all. I’ll keep your family in my thoughts.
Rachel
Lori says:
I have been on hiatus and just read about Maddie. I am so terribly sorry. I am so, so sad and never even met her, but your pictures and stories were enough to give me an idea of what a beautiful little girl Maddie was. I am so sorry for your loss. Many hugs and prayers for you and Mike.
Lori’s last blog post..Hiatus
Cristy says:
I, too found your blog from a few others. I can’t imagine how you are feeling. I am happy that so many people are reaching out to you in your time of need.
Cristy’s last blog post..Dear Izzy
Candice says:
I started reading your blog after I noticed a link from Baby on bored. I immediately loved looking at all the pictures of Maddie and I was always interested how she was doing. I live in Canada, I don’t know you. I have a daughter of my own who is a toddler. I cannot begin to understand what you must be going through. I am so sorry that your precious angel is no longer with you. Please be strong for her. We will all remember her forever.
Trish says:
My heart aches for you and I’ve shed many tears over your loss.
I lost a little girl to sepsis on 4/1/97, so I know your pain. I wish I could erase your loss. I wish I could give Maddie back to you, even if for just one more day. You have a beautiful blog filled with pictures and stories that have made me laugh and cry and I thank you very much for allowing me in to read about your Maddie.
You and your husband are in my thoughts and prayers.
Maura says:
I am so sorry for your loss.
I’ve thought of you every day… and most moments within each day. Maddie has inspired our twin moms club to step up our donations to local NICUs. We’re sending the NICU bag you suggested for as many families as we can.
Maddie has inspired me personally. I know that I will think of Maddie for the rest of my life. I will think of her… of you… and of your husband.
You have changed mothers everywhere by sharing your story with us.
Thank you for sharing Maddie and your beautiful words. I hope you keep us updated in your life.
Kim says:
I only recently had started reading your blog, and yet when I read of Maddie’s passing, I felt such heartache for you. Being a new mom, I never realized just how ferociously I would love my babies. It’s because of this that my heart truly aches for you. The next day, I was carrying my babies upstairs to bed, and thought of you and Mike. I cried for you, and yet I’m a stranger.
You’re an angel, to keep blogging, while standing in the middle of your greatest grief. I wish you and Mike peace, strength and love. We’ll never forget Maddie.
Brianna says:
Like so many others, I do not know you and your precious family but I stumbled onto your blog and cried tears of joy and sorrow when I read about what you all have been through. I myself have an 19 month old little boy and I tonight after reading your beautiful words and watching the amazing video you posted to honor beautiful Maddie…I went in and picked my son up and rocked him for a while…held him so tight and kissed his head over and over and prayed that the lord may give you and your family strength in this difficult time.
You can tell just by looking at her pictures that she was special little girl and that your lives will forever be better for having her in it. Thank you for sharing your lives with all of us out here. You are your family are in our hearts and thoughts and prayers!
Tia says:
I came across your story while reading another blog the day Maddie was in the hospital. I have a son close to her age and I was thinking that night about you and Maddie and how we had to spend a night in the hospital and how scary it was not knowning what was wrong. Since Maddie’s passing I have thought of you every single day. I have cried for a little girl I never had the honor of meeting. I cry for you and Mike most of all. I do believe she is your angel now, talk to her, she will listen. Thank you for sharing your sun eyed girl with us. She has touched my life and my heart.
Chrisie 29weekermom says:
I am so sorry for your loss. I am the mother of a 29 weeker myself. I didnt stumble across you blog until after Maddie’s passing, but I read really far into the archives. My daughter and Maddie were only a few months apart in age and we have so much in common. I am ripping up my check for March of dimes and donating online instead for Maddie. My heart aches for you guys and I hope that somehow, someway you guys are able to find peace. Maddie is unbelievably beautiful and has touched so many lives. I hope that you are able to keep us updated on your lives and Maddie will never be forgotten!
Fairly Odd Mother says:
Even those of us who never had the privilege of meeting Maddie in person fell in love with her, so powerful was her presence and personality. And you and Mike have affected me in very profound ways. May Maddie live on in the hearts of many.
Fairly Odd Mother’s last blog post..TV Turnoff Week: Day 1, 8:00am, and already an Epic FAIL
jess says:
i stumbled across matt logelin’s blog about life and death with his daughter maddie…when he wrote about your maddie it broke my heart…i have spent the last few days addicted to your blog and reading the ups and downs of maddie’s life…i laughed and cried along with you…i’ve never met you and i’m sure that i never will, but know that i am sending much love and many hugs your way…maddie touched my life in a way that i never thought possible…and i will continue to keep all of you in my thoughts…please let rigby know that my dogs pete and maddie are sending love and milkbones her way…
jess’s last blog post..just pete sassin his mama…
Erin says:
I came across your blog via a friend’s blog in memory of your Maddie. I’ve read through all your archives, and even though I had learned of the most recent turn of events from my friend’s blog, it still made me cry. You are a beautiful writer, and your love for your daughter shines through in every entry. Your story has touched me deeply, and I wanted to let you know that I am another stranger, just stopping by to say hi and let you know that I’m thinking of you, and praying for you. Your life, and Maddie’s life have touched mine in so many ways.
Ms. Moon says:
There is some vast change in how we connect and we find the people we need to find within these changes. So many people, through your words and Mike’s words and all the pictures you posted of your beautiful daughter, truly learned to care about that girl with the eyes of joy.
I keep saying this, but it is we who should thank you for sharing your daughter’s life with us.
We’re thinking of you. We are holding you in our hearts. We are taking notice of light and seeing Maddie in it.
There is no loss without caring.
You made us care.
Ms. Moon’s last blog post..Rejection and Dejection
liz says:
i am so very sorry for the loss of your beautiful madeline- wishing you peace and comfort.
liz’s last blog post..Traditions
Heather says:
Hi Heather,
I don’t even remember how I found your website, but I did…just a few days before your sweet girl went to heaven. I’m sure this has been said before, but your/Maddie’s story has changed my life. My son was born the same week that Maddie was and I’d been having a tough time – doubting myself, my decisions, my parenting choices. Your family has been an inspiration to me…I am dead set on making every day the best it can be. The video montage you put together was AMAZING. I smiled, laughed then cried and cried and cried. I can’t even begin to imagine how you must be feeling and I know nothing will ever fill your heart with the joy that Maddie brought you…but please know that your Maddie has made a difference. May God bless you with peace and love.
Alexicographer says:
There’s a post on today’s NYT about how the important role friendships play when people are ill or need help. I read it and thought of you (I’ve been thinking of you a lot, and my heart broke — again — when I read your last post, though I didn’t know how to respond to it and didn’t try) and came by to see how you were doing.
This is such a lovely post and a beautiful testament to the power of the blogosphere.
My heart is with you.
Paige says:
I found your website through joyunexpected.com. I was so distraught to read about your loss. I have spent the past few days reading and learning about your little Maddie and I am so heartbroken she is gone. I am a parent and I am so very sad and so very sorry for your loss. As a mother, I can see what a gift you were to Maddie. You and your husband were her angels here on earth. And now she is your angel, watching over you. Thank you for sharing Madeline with us. She has inspired me to remember my blessings and the things that really matter in life. You are all in my heart and in my prayers.
Love, Paige
Paige’s last blog post..So stinkin’ yummy
Issa says:
This is beautiful Heather. You are beautiful. Every day, I am more thrilled that I got to watch that amazing angel of yours on this blog. Maddie will never be forgotten. In sharing her with us, you have made sure that she will always been remembered.
You guys are in my hearts. If you need anything let me know. Hugs. Issa
Issa’s last blog post..Taking the easy way out
Tina Hosko says:
Love you Heather. I think of you constantly and I really appreciate your posts. Thank you for letting me get to know your Maddie. I couldn’t imagine a more beautiful and delightful baby girl or more dedicated and loving parents. Although we have known each other IRL for 25 years, I feel closer to you than ever. Thank you for everything and I am praying for your strength.
Father Muskrat says:
still thinking of y’all and hoping for some comfort.
Father Muskrat’s last blog post..interviewed by twippley skwood
Melanie @ Mel, A Dramatic Mommy says:
My favorite color is purple. I’m surrounded by it at home. Now, it makes me think of you, Mike and Maddie. Watching the internet rally around you and your family has renewed my faith in people. It’s hard to be cynical in the face of such an amazing display of caring.
Melanie @ Mel, A Dramatic Mommy’s last blog post..Mother’s Day Gift Idea: Snaptotes
Eva says:
Heather and Mike,
I write this note, like so many others, giving support to both of you during this time. I fell in love with your story after reading blog after blog you had written. You are an amazing mother, I hope that I will someday be blessed to have the kind of strength you have. You both are the most caring parents I have met in a long time. You are an inspiration for all women. Keep being strong!!
tammy says:
Your grace and thoughtfulness of others in this time is so amazing. I don’t know how you do it. God Bless You!!!
I am so sorry that I only discovered your blog just last week from a link on a mommy-blog that I have been following for 2 years now.
With that said, my heart breaks for you and your family. Maddie is a beautiful, beautiful girl. I am going to read the archives because I feel I have missed so much.
My thoughts and prayers are with you and Mike.
Angie says:
I became connected with your blog through Matt Logelin’s blog. I don’t “really” know Matt and don’t “really” know you. However, the three of us have had daughters named Maddie/Maddy. Perhaps it’s the sharing of the name – knowing how precious my Maddie is and how precious yours must be. My heart breaks for you and I am thinking of you.
Sareh says:
Heather – I think of you, Maddie and Mike every day. I have also been following you on twitter to keep up with you throughout the day. You have made me a better mother – have made me cherish every moment of being a SAHM. Instead of whining because I don’t have enough “girlfriend time”, I take in and enjoy my Emma. You gave me that perspective. Like others have said, I cry right along with you….I feel as strongly for your family and your loss as if it was my own. I hope you find peace and know that I”m thinking of you and sending love.
Sareh’s last blog post..The name of the game is….POOP!
Kate says:
Heather.
I think about your family every day. I shed tears for your family and for your huge loss. Maddie is beautiful. She is everything beautiful in this world. We all grieve with you. You are never alone.
Alison says:
I think of Maddie, you, Mike and Rigby every day. I am so sorry for your loss. Your family will be in my heart forever. I hope that knowing how much Maddie has done for the March of Dimes brings some peace, she WILL live on forever.
Abbey Parker says:
I don’t know you, but reading your blog for 8+ months made me feel like Madeline was a death to my family, and that you and your husband were a part of my family. My tears were real for you and her, your little Maddie Moo as you called her. I can’t say how sorry I am for your loss. Your words of comfort to us, your readers, is unbelievable. I’m sending you love from Central Texas. Hope to stay in touch with a “new friend”.
Abbey Parker’s last blog post..Dancing with the Regular Folk?
Emilly says:
Heather and Mike,
As a newer reader, I was surprised to find myself so attached to you and your family. Reading your stories, anecdotes, jokes, etc. have become a part of my day that I look so forward to. When I heard the news about your wonderful, amazing, beautiful daughter I was devastated. Since that day, I have been unable to even attempt to come up with the words to tell you how sorry I am, how sad I am, and how much I will truly miss your Maddie. But the fact that you, despite your unimaginable loss, can continue on with your blog and go so far as to thank your readers for something so simple as a kind word or a prayer…I just knew I had to tell you, that I needed you to know that your little Maddie touched more people in her short life than you will ever know. And I believe she will continue to do so because even her memory is that strong and powerful.
My thoughts are with you. My prayers are with you. And a little piece of my heart is with Madeline…
Sincerely,
Emily in PA
Jade says:
I was put on bed rest for PPROM 22 days ago. (I’m 23 weeks pregnant) While I was googleing things I discovered your website. And It has given me more hope then I have had for 3 weeks. I know we will have struggles and hard times. But I hope the are full of loving and happy struggles and hard time. I know that does not make since. But while I was reading about your life and family I felt like you loved every moment you had. And it has honestly made me heart ache a little less. My thoughts and prayers are with you and your family. And Maddie. too
Kristen, eta delta chapter says:
Sister,
I have spent the last two weeks feeling utterly sorry for myself that I had to bury my mother my senior year of college. I have also spent the last two weeks in total awe of the love and support Delta Gamma has given me.
I just found your website today (via a sister on Twitter) and realized that we are sisters. My self-pity stopped and my love for DG grew. I cannot begin to imagine your pain.
I love you and Maddie very, very much as a sister and legacy and will be praying for you nightly. I hope that Delta Gamma is helping you through this time just as they have helped me. Hold on to your anchor of hope.
Tau Delta Eta and ITB,
Kristen
Dawn says:
I started reading Mike’s blog shortly after you two brought Maddie home. Through his blog, I learned of your blog… and through them both I came to love your daughter…and your love for your daughter. Her happy smiling face. The cute little antidotes you both would share. Your love for your daughter was so evident it poured through the screen with every posting. I would tell my friends of you and your adorable little family. They would ask me, “And how do you know them again?” “I don’t…but I feel like I do.” I would say.
My heart breaks for you. Tears have been shed for your beautiful little girl. You both are such strong people for continuing to share with us in your time of loss. Please know my thoughts and prayers are with you.
Sincerely,
Dawn in MO
Dawn’s last blog post..Spring is in the Air
Vanessa says:
I have felt so sad these past two weeks even though I do not know you, but I feel like I got to know Maddie and your whole family by reading this blog. It is so amazing how everyone on the internet can come together when you need them most. This post made me tear up. You are in my thoughts and prayers everyday.
Jessica (at It's my life...) says:
I’ll forever be sad that I’m one of the people who only got to “know” you after Maddie passed away. That said, I can’t help, but feel a sense of pride and a swell of sadness whenever I see a purple avatar on Twitter, a purple monster for sale, or a blog proudly wearing purple for Maddie. It is heartwarming and wonderful to see a huge community often criticized for being fake and superficial reach out to cradle and hold up one of their own at a time of need. It’s also wonderful to know that children like Maddie and Thalon will live on in so many hearts around the world.
I am awed by your grace and poetry at this time.
Sending you hugs from someone who doesn’t know you.
Jessica (at It’s my life…)’s last blog post..Ode to the last M&M
kim o'connell says:
You truly are an amazing writer and an incredible person. I love you!
ToKisstheCook says:
I haven’t known what to say for a couple weeks now and was hoping that would change. It hasn’t but I’m still hear, thinking about you and Mike and Mad anyway. I take a deep breath and I send as much your way as I can muster.
ToKisstheCook’s last blog post..Why Violet- You’re Turning Violet!
Monica says:
I am another person that does not know you but I wanted you to know that your beautiful daughter Maddie has touched my heart and soul in so many ways. You have touched my heart by your grace. Please know that you are in my thoughts and prayers.
amy says:
I am glad you are feeling the love from us bloggers and commenters. Maddie’s life has touched more than you will ever know..
Ana in Chicago says:
Dear Heather and Mike,
I only “met” your beautiful daughter one week ago Sunday as I stumbled on your blog. Since then, it has been difficult to focus on much else. I am another heartbroken mom who aches for you and your family. It is so difficult to make sense of this, how such a vivacious, larger-than-life little girl can be gone. I hope it provides some small measure of comfort to know how deeply your beloved Maddie has touched so many. Know that she has touched me, and I am changed because of it. On Friday I called the local March of Dimes to inquire about volunteer opportunities. On Sunday, I will be manning the Mission Tent for the Chicago walk. I will be doing it in honor of Maddie and in gratitude for my thirteen month-old son. This is only a small step, but I am committed to doing more. And it is because of Maddie.
Cindy Woodmansee says:
Thank you for sharing your beautiful Maddie with all of us “strangers”. I think of you every day and I’m praying for your broken heart. What an amazing donation to March of Dimes in her honor. Wow. She is a very loved little girl. Again, so sorry for your unbearable loss.
Connie says:
You are more than likely one of the strongest people I know. Thank you so much for sharing Maddie’s story from start to finish. Most of all thank you for reminding everyone else that what they hold in their arms is more precious than anything and to never take it for granted.
I think about you and your family a lot and hope that at least some of our words can give you peace.
Connie’s last blog post..Filth Wizardry
iMommy says:
I’m awed that you can spend the time an energy right now to say a thank you to us – these people that don’t know you, but feel as if we do. Other commenters said it right – you have an amazing grace. You’re in our thoughts.
iMommy’s last blog post..Protect Yourself From Twitter’s "Mikeyy" and Other Java-Based Attacks
Erin says:
Thank you so much for sharing your story with us – I’m sending love to you and your family and will be keeping you in my thoughts and prayers. I’m truly amazed at your strength during such a difficult time.
Erin’s last blog post..One more week (???)
Kristin says:
I am one of those SAHM’s that need twitter, blogs and facebook to stay sane. Most of my closest friends are ones I’ve never even met, so I completely understand where you are coming from. Thank you so much for sharing Maddie with us. She has touched our lives in so many ways. I will proudly be a part of March for Babies in Indy this Sunday and will think of you and your family, and of course beautiful Maddie as I walk.
Kristin’s last blog post..We Are All Connected
Elise says:
Heartfelt greetings and warm wishes from another blogger you don’t know – I will be walking for Maddie in the March of Dimes walk in Spokane this weekend. I went to a Quaker high school and instead of saying prayers outloud for a person, we were taught to “hold that person in the light” – to think about them and and hold up what is special and true to them. I have been and will continue to hold you and your family in the light.
Elise’s last blog post..love actually
Denise says:
Once again, thank you for sharing, thank you for being so right on the mark and amazing. Meet you at the watercooler?
Denise’s last blog post..Remembering Columbine: The Impact on a Student Teacher
SusieO says:
It is amazing to me how you, Mike and Maddie continue to give love to us even now. Thank you. I hope you feel the power of love wrapped around you tightly when you need it most. I think of you all. EVERY day. More than once.
SusieO’s last blog post..The Heavens are Very Lucky, Indeed
Lucy says:
Heather, your generosity of spirit just floors me. To be thinking of and thanking us in YOUR time of need….you truly are amazing.
Lucy’s last blog post..Whoa old Nelly!
kelly says:
i don’t have a blog and i have never left a message to anyone on the few blogs that i read, but i just HAD to write to you (especially after you left this post). i came across your blog the other night and after reading and learning about maddie, i could not stop smiling at her gorgeous face and crying uncontrollably about her way too early passing. my heart goes out to you and mike, that is all i can say.
two things happened after i found out about maddie…first, as i was shutting down my computer, tears still streaming down my face, i saw my open iphoto screen and my eye got caught on a picture from our easter album. it was a picture of my daughter’s easter basket and sticking out of it, staring right at me, was the book “Madeline”. the second thing that happened was the next morning, the first (i mean first!) thing my 2.5 year old daughter asked was for me to read her “Madeline”. ahhh…
i know i only got to get a small taste of her amazingness online, but she will be in my mind and heart forever.
Katie says:
Still another person you don’t know. But, Thank you for sharing Maddie with us. Thank you for your strength and love. It’s amazing, your love comes through even the computer. My heart aches for you. My family and I are praying for you.
Karen MEG says:
I cannot imagine trying to respond to all the comments and e:mails.
Thank you for this post and thank you for opening up to us and letting us in at this deeply personal time. To be honest, I did feel a bit strange writing a post about your little Maddie, as I had just started following you via twitter the week before and just stumbled on your blog … but it was the least I could do, whatever little I could do to help and spread the word about Maddie and MoD.
I think about you and Mike and your loss everyday. You are both so gracious, and the spirit and your love for Maddie just shines from the screen.
I hope you’re at BlogHer in July.
Karen MEG’s last blog post..Playing with the cool kids
Sheenah says:
I found your blog only after Maddie had passed. I read some of your archives, drawn by her smile and your talent. I have to say what a strong and amazing person you are, and what an amazing little girl Maddie was, from someone else who doesn’t know you.
Sheenah’s last blog post..I Am Mobile
Meg says:
I’m one of those “you don’t know me…” people who found you on Twitter. I’m still lurking about, sharing your pain and your grief. Your Maddie was a lovely little lady – such excellent photo material indeed.
I know only a teeny tiny fraction of your grief. Three years ago, my oldest son who was 9 at the time suffered a pretty serious stroke. We are lucky – he’s fine, mostly – but has some left-side weakness, a permanent reminder of how his (and our) life was permanently changed in February 2006. Not a day goes by when I don’t curse that stroke and ask why me, why my son.
Yet, I’m lucky. So lucky. He’s still here. The damage could have been so much worse. We learned to count our blessings when he was in the hospital and in rehab, because only then did we realize that he could have been affected in much worse ways. Nevertheless, it’s a constant reminder and we struggle all the time with feelings of guilt for feeling “grateful” and the anger and self-pity that sometimes sneaks in and catches us by surprise.
Anyway… this is not to burden you any further than you already are, but instead to hopefully show that there are many, many well-wishers out there, people who have true empathy for you. Maddie is in God’s loving arms now, and God is taking care of you, too… perhaps through the thousands of “internet friends” who have encircled you with lavendar love and purple support.
Peace and Godspeed to you and your husband, Heather.
Meg’s last blog post..Rainy Monday Haiku
Lesley says:
I haven’t followed you and your family long, but I think of you everyday. Maddie would be so proud of the way you are carrying on through pictures (they were beautiful). I won’t say that I begin to understand the pain that you feel, but remember you have thousands of people lifting you and Mike and your family up in prayer during this most difficult time.
When you are ready, I wanted to share a site with you of another Mom who has an angel daugther. She lost her 4 year old almost a year ago to Stage 4 NB cancer. She is such an inspiration and I thought her blog might be of some comfort to you as well. Her name is Crys Aigner and her blog is http://meandmyzacks.blogspot.com. She started that blog in memory of her daugther, Alexa.
Again, even though we have never met, know that I pray for you and hope that you may find some comfort in that.
Lesley’s last blog post..Videos
Courtney says:
I have been reading your story/blog for the past few weeks now…I am sorry for your loss, you all are beautiful people and gracious and kind! I could only donate a little, but I will donate more, thank you for allowing me to read your families beautiful and sad story, if I hadn’t I wouldn’t have found the March of Dimes! Thank you!
Courtney’s last blog post..Did you know that…
CJ's mom says:
Heather- Like many others, I am a complete stranger who has forever been changed by your beautiful baby girl. I check on you and Mike every day. The videos are precious, the photos stunning. I find your words to be such a beautiful tribute to Maddie. I am so very sorry for your loss. I just wanted you to know that I carry thoughts of you, Mike, and Maddie with me everywhere I go. She has touched all of us. Thank you for sharing her story with the world.
MemeGRL says:
Hey, no fair offering us the comfort. That’s supposed to be our job. But thank you for allowing us to share your beautiful Maddie and grieve and celebrate her with you.
MemeGRL’s last blog post..WFMW–No-Touch Bathrooms
Z says:
This is such a beautiful post. And I’ve been astounded by some of the conversations I’ve had these past few weeks, with people living here on the opposite coast from you, who’ve read your story and been touched by it (including me!) and then found each other over here to talk to…
Z’s last blog post..Spring Awakening (one month ago…)
Danielle @ ExtraordinaryMommy says:
I hate that I didn’t know you before your loss. I hate that I spent a weekend at Blissdom but left before could be ‘irl’ friends. I love that you have had so many IRL friends who truly treasure you and I love that you have had so many ‘unknowns’ reach out to tell you and Mike they care. Because, we do.
I love that the comments, the posts, the LOVE have helped in some itty-bitty way.
You are stronger than I could possibly imagine. You are graceful with your words.
Just a beautiful post.
Nancy says:
BEAUTIFUL post! More hugs and prayers to you!
Stephanie says:
I totally agree with your words. My IRL friends and my blog friends have begun to “blend” together. We all care for each other and that is what matters most.
Thanks for sharing.
Stephanie’s last blog post..I’m gonna soak up the sun…
AS Novus aka Mamacita Caliente says:
This blog has inspired me to not take things for granted. It is amazing that you use this format help others!
.-= AS Novus aka Mamacita Caliente´s last blog ..adventures in babysitting… =-.
Al_Pal says:
*sniff*
I came here from the community keynote list.
Not sure how I missed it the first time around.
Beautiful.
Terri says:
Dear sweet lady, thank you for sharing, I lost a grandbaby who passed away from brain cancer at 2 years old, these precious angels are always in our heart.
Allie says:
Hello there
My name is Allie and this site was recommended to me by a friend. I guess Im searching for something anything. My daughter Isabelle passed away a week and 3 days ago. I just wanted to say that Maddie is beautiful. I was windering if anyone has any advice for me because I feel so lost. Im searching for someone who might understand everything going through my head