I really just expect her to be in the next room. I watch videos of her, and she is so full of life and personality that it just isn’t possible that she isn’t here anymore. She MUST just be in the next room with Mike, right?
Earlier today, I went into the bathroom. Before I knew what I was doing I called out, “I’m right here Baby Moo! I’m just going to the bathroom! Mommy will be right out!” and then I remembered. She wasn’t on the other side of the door. She wasn’t wondering where Mommy went. Instead, Mommy is wondering where SHE went.
I had a routine for when I needed to take a shower. I would pull her high chair into my bathroom. I’d strap her in and set her up with snacks, and then I could shower away while I watched her through the glass. I could hear and see her. Now, every time I shower I turn expecting to see her smile. I never knew a shower could be so lonely.
It seems like every day has an obstacle to overcome. Sometimes I can see them in the distance. The seventh and eleventh of the month, every Tuesday, there are big arrows and Xs pointing at them on the calendar. It’s the hidden land mines that are the hardest. The little things that I don’t realize are going to punch me in the gut.
I’ve been using Maddie’s things. I use her body wash, but today I realized HER bottle was almost empty. Her hair clips only hold a few wisps of my hair. At night I sleep with her dolls, and the last articles of clothing she wore. Her scent on her dolls is fading, her sweet baby essence now mostly in my mind.
I go to pick a piece of lint or a random dime up off the floor, and then I remember that Maddie isn’t going to come across it, so why bother?
After I was laid off in October, it took a long time for the reality of my new stay at home mom job to hit me. Mike was home with us for the first few months, so it felt like a really awesome vacation. And then when he went to work full time, I kept waiting for someone to say, “oh, PSYCH! Vacation over!” I expected someone to tell me that I had to go back to work, that I didn’t get to spend all day every day with this amazing awesome little person. I woke up every morning and couldn’t believe that it was MY JOB to take care of her. To teach her and play with her and be responsible for her.
Mike goes back to work today, Thursday, at 8 am. And I’m wondering if that’s when someone is going to say, “PSYCH! Maddie isn’t REALLY gone! You’ve just been in some weird alternate universe where you had to prove that you really wanted to be her mommy.”
Except, I know that I’m not in some bizarro world. I am not in denial. I’m just in disbelief. She was JUST HERE. She was playing and babbling in my house thirty hours before she left the world. How could it happen so fast? How could her attending doctor, only ten minutes before they decided to put her on a respirator, think the most pressing issue facing Maddie was her weight? How could she just BE GONE? She ALWAYS came home from the hospital. How come she didn’t this time?!
I know a lot of readers are new here. It’s important to me that you know Maddie was NOT a sickly child. She was a happy, vibrant child that occasionally got very ill. But she always got better. For every step backward she took two steps forward. And no one knows why this time was different. And that’s what makes this so hard. No one knows. No one expected it. I wasn’t prepared.
I wasn’t prepared.
Carissa says:
You make me smile with your remembererer-ing…
not prepared… oh my gosh!
So not getting easier to not see her around the corner.. huh?
MTmommy says:
I do not think a parent can EVER be prepared to lose a child. You should not be “expected” to have been prepared for that.
Maddie is an incredible voice, a tiny angel that allowed us to learn from her. As her parents, you and Mike were given a wonderful gift. Even for a very short short time, she was an incredible gift.
I am heartbroken for you as a parent, and wish there was some way to make your pain diminish.
catherine lucas says:
Grief always grabs you by the throat when you least expect it. It creeps up on you, and when you are in a state of “maybe/almost/possibly not hurting as much”, that is where it will hit. Grief outsmarts us…
Stock up on her body wash, smelling her sweet sence is a bit of her to keep with you.
Life can throw miserable tricks here and there, you will be on the lookout for Maddie for a loooooooooooooooooooooong time… gutwrenching really.
catherine lucas’s last blog post..Memories are made of…
Krissa says:
(((Hugs)))
Momcat says:
All that you are going through makes all of us parents face up to our fears as parents. How would we feel. No matter how old your children are, life is always fragile and not to be taken for granted. My son asked me what it is like when family dies and I explained to him that its like the passed on loved one is on the other side of one of those windows that they have in police interrogation rooms where our passed loved one can see us talking and living our lives but we can’t see them. They are that close. Death is not the end. I am living apart from my darling daughter who I only see once or twice a year. Sometimes when I am thinking of her I wonder whether she is thinking of me. Sometimes when I phone, I ask her why she didnt phone me and she says I was thinking of you but I got busy and didnt phone. To me thinking of your loved one is good enough. It is a connection of souls. We are not guaranteed time on earth together but we will always be connected to our loved ones though death separate us.
amanda says:
This shit is so hard. It hits you when you expect it – but when you don’t expect it – woah. It is a stupidly powerful force. I want you to know that through your telling of Maddie’s story on this blog, you have made it very clear that she was a vibrant, bright, happy child. Which is why, along with you, we are all here wondering, “how could she just be gone?”
We are here for you – for whatever that is worth.
xo from CT,
Amanda
Debbie in Memphis says:
My heart breaks for you and Mike. No one could be prepared for the loss of all the love and happiness Maddie brought you. I wish I had better words. I’m sending you both my love and keeping you all in my prayers.
Kelly says:
I think even if you were “expecting” it you still never would have been prepared for it… The fact that she WAS doing so incredibly well (sensational given the obstacles thrown at her – she was AMAZING) just makes it so much harder. I have never met you and Mike, never met your beautiful Maddie, but just reading your blog I feel like I KNOW you all. I get the sense of just how full of joy, life and vitality this little person was, and how that was your doing. You made me wake up and appreciate far more thoroughly every moment that I have with my beautiful girl, and I am so thankful now for her health rather than just taking it all for granted.
She was here for such a short time. I don’t think anyone in the world could have made it a better time for her than you and Mike did. Looking over the record that you have given of her life, I don’t think she could have been a happier child if someone had waved a magic happy wand over her.
I’m still reeling over this and wishing that someone had waved a magic healthy wand over her on that night… It is so incomprehensible to me, and I know it is even moreso for you.
I have said it before and I say it again – I wish that every tear that we all cry is one less that you need to. Every pain in our hearts is a little less to burden yours. I wish that I could just bring her back for you…
My thoughts are never far from you and yours. Big hugs to you. I wish I wasn’t half a world away – I’d be there in a nanosecond for you if you felt you needed some company today – or any day that Mike is at work. Likewise, I hope you get the alone time that you need to try to come to terms with it. Don’t try to make sense of anything – there IS no sense in it. Only heartbreak =(
Love to you
Jamie says:
No words, just hugs.
T says:
I love you Maddie’s mom. For the person you are, and the person you made the lovely Maddie into. There is no magic eraser to wipe all this unbelievable hurt and never ending pain. There is only the will to over come this unfathomable loss. I come to this blog, to you, to derive strength and courage from you. To live and love my life, like you do.
I do not know whether this will pass or not, because a loss so magnimous like this is supposed to live forever like a beautiful memory.
I pray that you and your family will stop hurting. I cannot express in words how sorry I am for your loss.
Sending positive peaceful thoughts to you and mike
-Childwoman-
T’s last blog post..
mom, again says:
I’ve tried to leave you a message so many times. But I always delete b/c everything sounds like no help to you.
I wish there were something I could say, that would help.
I don’t know you, except from your blog posts & some of Mike’s. But, it seems to me, you were strong enough to be Maddie’s Mom & you will find that strength again and be Maddie who isn’t here’s Mom. I don’t know how to help you get there or how long it will take. But I beleive you will get there.
Joe @ Irrational Dad says:
The smells… I couldn’t imagine not having the smells if my son wasn’t around anymore. I never thought of that until you said her smell was fading. So sad.
Joe @ Irrational Dad’s last blog post..Wordless Wednesday v. Bubbles
Candice says:
I don’t think you could ever be prepared to lose your angel, expected or not. However, I can see how if it were expected maybe you would have had longer to TRY to prepare yourselves. One good thing about not knowing, expecting, or preparing for it it is that up until her very last day, you could truly enjoy each other without the worry about what was coming. Again, I am so sorry. She was so beautiful and like you said, so full of life. It’s tragic, really. Hugs and prayers!
Candice’s last blog post..Happy Mother’s Day
Kim says:
Heather, I’m yet another “stranger” on the internet who somehow came across your blog, and hasn’t left. Yet another person who thinks it’s complete bullshit that you have to go through any of this, your daughter belongs with you. And yet another person who would do anything to take some of the hurt away. Anytime you talk, I’ll be here to listen, to hope for you, to send good thoughts, and virtual hugs your way. Your family is on my mind and in my heart every day.
I cry with your family, my heart aches with yours, and I miss Maddie too. She was soooo full of life and love believe me I get that she wasn’t a sickly child. You and Mike where her everything and the love that your family shares is so clearly evident in the photos, videos and your words, oh my, your powerful words. She lived. She loved. And she did those things better in the 17 months that she had than most of us have done with the years we’ve been given.
You’ve said you want her to associated with good things. Well, I can tell you that she’s forever changed my life and I’ll never, ever forget the famous Madeline. I’ve slowed down and appreciated, enjoyed, and been patient. And each time I do I think of your Maddie and say thank you. Thank you to you too Heather, and Mike, for sharing your daughter, your lives and your love with us, it’s been an honor to experience it. You’re amazing people.
XOXO
charlane says:
How can you ever be prepared. Even parents of very ill children, my best friend, was not prepared for the loss of her son even though she was told in no uncertian terms that it was coming. How do you get ready for all of your hopes and dreams, and love to be taken away from you.
I know that you are not ok, I know that you hurt more than anyone can ever understand, but I also know that you are very courageous for sharing Maddie with us, and continuing to share your grief. Your loss is way to big to hold all to yourselves, I hope that you find some support here and at least the idea of comfort knowing that the world grieves with you.
charlane’s last blog post..Happy Half Way Day
Kim says:
I wanted to also send you strength to get through today. To face the memories at every turn. Just do whatever you have to do to make it, talk to Maddie, come talk to us, scream, yell, drink, this would be my choice behind not getting out of bed!
XOXO
Tricia (irishsamom) says:
Oh my gosh, how could you ever be prepared for something like this? It’s not supposed to happen. And it shouldn’t have happened to you. I am sending you prayers and my mama heart is hurting for you. I know that’s not going to help, but I want you to know that we’re out here. My heart is breaking for you and Mike.
Tricia
x
Tricia (irishsamom)’s last blog post..Colouring outside of the lines ….
perksofbeingme says:
Oh heather. I love you. I’m sending you lots of thoughts of strength today. I love you so very much.
perksofbeingme’s last blog post..Wild flower fairy
Middle-Aged-Woman says:
I got nothing but love and hugs for you both.
Lindsay Phillips says:
I can not believe your strength!! Keep taking one day at a time!!! Hugs
Lindsay From GA
Peggy H says:
I have wanted to reply many times but felt I had nothing”good” enough to say. You are such an amazing woman…I can’t believe you have the strength to walk thru the house or take a shower…I would be huddled in the corner…I wish we could better understand why things like this happens…it is really crappy. We need a bettter word than SORRY…all we can say and do with technology you think some one would come up with something better…But they haven’t.
I am SO SORRY….
Jamie says:
I don’t think you can ever be prepared for something like this, Heather. Never ever. It’s not something you can prepare for. My mom has been gone two years and even now I’ll all of a sudden be like “What the EFF happened?” because I guess I still don’t really know (Mom had cancer).
I was thinking that you losing in job in October was a blessing in disguise. I’m sure you and Mike worried, but I think all of that extra time with Maddie was a gift you were supposed to have. That you deserved to have.
Jamie’s last blog post..Wordless Wednesday
La Petite Belle (Carmen) says:
I think (imagine) that losing a child is BY FAR, the worst pain anyone could experience. No one should bury their child. It’s just wrong and unfair. And I’m so sorry, Heather, I wish there was something any of us could do to diminish the agonizing pain you and your husband feel. I really wish there was something that would at the very least minimize it.
kristin says:
i send you warmth across the miles.
wishing you well that this mystery holds you close and lets you go…
oh, you are amazing.
Nik says:
You have made me a better, more appreciative Mom, Heather. I live in fear every day of something horrible happening to one of my children. They dont ride the school bus, go on playdates without me, or ride in other peoples cars. That is only the beginning of my list of things they dont do for fear of “something happening”.
What I realize is that YOU enjoyed, appreciated (and documented!) every moment in Maddie’s life. You crammed in more life, love and happiness into Maddie’s short life than I have in my kids’ 8 years.
And wow, what an impact you have both made in the lives of so many that you will probably never meet. I only wish that impact could have been made without the loss of your amazing Maddie. I truly cannot imagine the grief, horror and disbelief that you must be feeling.
I think of you so many times a day and rush to my laptop when I get home to see if there is a new post. Dont feel like you have to be strong for anybody. Cry. Scream. Ask Why. Be Angry.
I am angry for you.
kristen says:
hi heather,
you should know that maddie never seemed to be a sickly child – not in your amazing photographs and videos and not in your posts. i understand why that is important for you to say, and i, in turn, tell you that the maddie i see is exactly as you say – happy and vibrant. she’s the one i hope you carry with you, and the one that makes me smile and take a deep breath and try to be a better person.
i hope that mike’s return to work isn’t awful for either one of you.
xxoo
Tami says:
I am Sorry! My tears shed with you and my thoughts as always are with you and Mike.
Shannon Kieta says:
Heather…
They say, God has a plan. I have absolutely NO idea what his plan was for this tragedy. Perhaps Maddie may have suffered when she got older or something like that. I always try to make some sense out of what seems to be no sense at all. Like you said; What happened this time. She always came home. She always fought and got better. God must have needed another angel in Heaven. It really sucks. I never seem to know what to say. I have never known a heartbreak as deep as this. I wish we knew each other better because I swear I would be there for you always. I feel your pain probably as much as you do. And I would be willing to share my children with you!!! (That was supposed to make you smile)!So many people love you guys and would do anything to help. I know there probably isn’t much to do to help, but sometimes just knowing you have an army of friends really does help. Shannon
Spring says:
There’s no way you could have been prepared. Maddie was full of life and love and all the goodness babies are supposed to be full of. I don’t have amazing words to offer you, I just want you to know that you’re still in my thoughts & prayers; my heart continues to ache for you. Your honesty, your blog; it makes me try to be better daily.
I lost my mother suddenly last July (and by suddenly I mean, I was in the hospital with my husband due to him having an adverse reaction to his BP meds; I had talked to her that morning to tell her the plans for my ILs to bring my DD to her for the week and at 1 that afternoon my cousin was on the phone with me telling me she was gone, typing it causes the anxiety to kick up a notch). While she was older (56) and my mom and expected to go before me, I wasn’t prepared. She was my calm, I went straight to my parent’s house and while there, grabbed the last nightgown she wore and stuffed it in my pillow case to have that feeling of closeness with her. No, it doesn’t smell like her any longer, but it’s still there, I can feel it at night and I know she’s still with me, just in a different sense now. And, it soothes me. We do what we have to do and whatever that is, it’s okay.
Hugs and love and thanks to you & Mike for sharing your story & your Maddie.
Erin says:
You are in my thoughts and prayers.
Ms. Moon says:
You couldn’t be prepared. She was so full of life that it was impossible to think she might die. For all of us, but for you? And Mike?
How can there not be a vast hole of disbelief?
Ms. Moon’s last blog post..Some Days I Bring Home Flowers, Some Days I Bring Home Ferns
Lisa says:
I don’t think there is anyway to prepare for that, but most especially when Maddie was so full of life. I’m glad you are using this blog as an outlet, I hope it helps just a little, tiny, itsy little bit.
I’ll be thinking about you today. I’m sure Mike returning to work will be hard for both of you.
Much love and many, many hugs.
Lisa’s last blog post..18 Month Check Up
AnnD says:
It’s funny that you brought that up because when I first heard about Maddie and clicked on your blog (which I had never visited before), that was what I noticed too.
I wrote my own blog about Maddie that day and wrote that it appeared to be a “normal mom blog,” not a blog dedicated to a sick or dying child….I pointed out that the previous posts had just been about April Fool’s Day and a trip to the park.
How could it have happened?
It struck me because it made me realize how quickly things can go wrong….it made my child seem so much more vulnerable. You often hear the phrase: “Children are so resilient.” It’s just not true.
It’s especially scary to me because my daughter has an auto-immune disorder and even though she’s been healthy and only had to be hospitalized for more than a few hours once so far, I worry about a similar scenario. She’s always come home, she’s always been okay…just like Maddie.
I read every day Heather and every day, I pray for you and Mike. I pray that God wrap his arms around you and give you comfort and strength but I’m not even sure what you need….my heart just aches and aches for you. There are no words…
AllI can say is that we’re here and we’re hearing you. We can’t imagine what you are going through but we hear you and we remember Maddie.
Karen says:
I’m so sorry that Mike has to go to work today. I’m sure it will be a mammoth day for both of you. Another shitty, lousy day. I wish there were some sentiment to make you feel a little better… I can only say I’m thinking of you and that I care.
Karen’s last blog post..Wordless Wednesday
Sarah says:
no words, just wanting you to know that I am one of many that think of your and your family every day.
Sarah’s last blog post..Feedings
JoAnn says:
Oh Heather, I grieve with you… My heart aches for you.
Kim H. says:
New commenter here — although I’ve read several posts about your Maddie around the blogosphere. I hope you find the tiniest shred of peace in knowing so many people out there are praying for you. It sounds like all who met Maddie were blessed to cross paths with her — most especially her Mommy and Daddy!
((((HUGS))))
Kim H.’s last blog post..Hair 101.
carrie says:
Heather, I read your blogs everyday and wanted to let you know your words are so heartfelt, honest & sincere that it helps me cut through the mundane and see my children in bright and positive light each and every day, regardless of their antics. You help me be a better parent. I just wanted to thank you for that and please know that you and Mike are in our thoughts.
carrie’s last blog post..Beautiful wallpapers for your desktop
Bec says:
That’s what scares me the most. How does this even happen?
Bec’s last blog post..Rude awakenings
Anna Marie Hinnant says:
I know you miss her. I can imagine the feeling of thinking she is just around the corner. She was such a bright, beautiful piece of this world that it’s hard to believe she isn’t here anymore. There is no proper preparation for something like this.
Shawn says:
I hope that your writing on this blog is helping you heal. Reading the blog Bring the Rain may help, too.
Praying in Jesus name for you. He is the only true thing that can help you.
Amy says:
I don’t think a parent could ever prepare for something like this, even if they know well in advance. I hope you are both able to have an “ok” day {if that is even possible}.
Patty says:
I also don’t get it. How did this happen? It’s not supposed to be this way, but it is. I’m Still saying the same statement… It doesn’t make sense! I think that when she was first born, her future was so unsure. You fought so very hard to make sure she got her chance in this life and she did. Back then, maybe you were a little “prepared” for the worst to happen, but now? No. This came so out of the blue there was no way to prepare and certainly no way to expect it. It seemed as though she was “out of the woods” for anything bad happening, but BAM it did. No one and nothing will ever “replace” her, but the memories you have are beautiful and you were so blessed to get those memories, those moments. She was perfection, she was love, she was yours, but not for long enough. You have every right to be sad, angry, every emotion you feel. Please know that we strangers grieve for you too. If it were possible to remove your pain, I pray for you honey, you and Mike. Hold him tight through all of this, cherish that love that you have. My heart hurts for you,
Molly says:
Hi Heather,
I am a new reader but wanted you to know that I never got the impression for a minute that Maddie was weak or sickly–on the contrary, she seemed small and mighty! And that is how I think of her when I think of you guys.
Karen’s comment above made me think of a book title I really like (the book is fine, I just like the name): Another Bullshit Night in Suck City. I guess it’s going to feel that way for a while, but I’m glad that you are still writing.
Molly
Jen says:
I am another person who just started reading your blog after hearing about your story on another blog. The whole thing is so sad and horrible. I cannot imagine what you are going through. I know there is nothing anyone can say that will make much difference. If I could I would just give you a great big hug.
Erin says:
My heart re-breaks for you and Mike every single time I read an update. Please know that everyone who comes across your blog is sending you their prayers and strength.
Midwest Mommy says:
Hugs! I just read through all the comments, I can’t help it but one really made me go wtf? Is it just me? Maybe I read it wrong. Wanna hear a knock, knock joke
Midwest Mommy’s last blog post..There were no chemicals used in the altering of this hair!
Stephanie (stranger) says:
Although I didnt loose a child (in only 19) I understand where you are coming from in a different sort of way. I lost my dad VERY unexpectedly 5 months ago. I understand what you mean when you say your are in disbelief,every day I wake up and wonder how he could be here one day and be completly gone the next day. I hate the fact that when I’m walk through the mall or driving down the road I think I see him for only a split second. It doesn’t make me feel any better, only worse. I wasn’t prepared either but some times I wonder if I would have rather been prepared or not. Recently I was in a very bad car accident. My dog was sitting on my lap and the airbag deployed. We bother came out without a scratch. I feel that maybe not so much me but my dog should have Been hurt in fact the emts couldn’t beleive he wasn’t dead. Ithink my dad was in that car protecting me. I guess what I am trying to say is that she isn’t completely gone, she’s there watching over you, you just can’t see her.
Trinity says:
For some reason, when I read your post this morning, I was reminded of the Dylan Thomas poem, Do Not Go Gently in the Night.
Do not go gentle into that good night,
Old age should burn and rave at close of day;
Rage, rage against the dying of the light.
Though wise men at their end know dark is right,
Because their words had forked no lightning they
Do not go gentle into that good night.
Good men, the last wave by, crying how bright
Their frail deeds might have danced in a green bay,
Rage, rage against the dying of the light.
Wild men who caught and sang the sun in flight,
And learn, too late, they grieved it on its way,
Do not go gentle into that good night.
Grave men, near death, who see with blinding sight
Blind eyes could blaze like meteors and be gay,
Rage, rage against the dying of the light.
And you, my father, there on the sad height,
Curse, bless me now with your fierce tears, I pray.
Do not go gentle into that good night.
Rage, rage against the dying of the light.
****************************************************
I guess I thought of it because as I read more about Maddie, I get angry that she is gone. I can only imagine your rage. Rage at God, the doctors…..probably rage at everything that she isn’t here.
Just yesterday I read a blog about a preemie born 3 months early and she weighed 1 lb. She died Monday. She was 10 months old. Her parents never brought her home.
I thought of you, I thought of what you are doing in Maddie’s name…I hope this other family can find your strength to fight for their baby girl in the wake of her passing too. (http://kayleighannefreeman.blogspot.com/)
Your story continues to inspire me.
Trinity’s last blog post..A Bittersweet Blog…..
Melissa says:
I don’t think there is one person that has visited your site that got the impression that Maddie was a sickly, ill child. The pictures and stories of her is what draws people to your site…she was a bright, vibrate, beautiful child that captured the heart of all that reads her story and I’m sure of all that crossed her path.
Thinking of you, praying for you, hurting for you.
Liz says:
I’ve read your blog for about a year now, Heather, and I have to tell you that it was clear that Maddie was the polar opposite of sickly or weak. Her vitality and liveliness was so clear in every story you told of her. Particularly in the last few months, her sense of humour and fun was so obvious. I often thought to myself, “This one is going to be a character.” I’d been away for about a week and came back to see the terrible news and I was in utter disbelief. I knew she had had struggles, but her energy was so palpable. For me, a stranger, thousands of miles away, I still look at your photos of Maddi and think “It’s not possible.” And if that’s how I feel…
Amazing Greis says:
One day at a time, one step at a time.
That’s all you can do.
I’m sending a great BIG hug your way!!!
XOXO
Amazing Greis’s last blog post..Wordless Wednesday – Stretching…
Jennifer says:
I can only imagine that it must feel like living in some alternate universe. The thought of her being gone just makes no sense. And she didn’t come across as being sickly at all! There was no reason to believe she wasn’t going to bounce back like she had before–just completely shockingly unexpected…
Jennifer’s last blog post..My Dirty Little Secret
Michelle Pixie says:
I have nothing but lots of hugs through the tears…
Michelle Pixie’s last blog post..Fighting Through
Marie says:
Your posts are so heartbreaking. I can’t imagine what you are going through because I’ve never been through anything like it, but I remember last year after my son was born, I would wake up in the morning and for a second, I would forget that I wasn’t still pregnant, that I actually had a tiny baby fighting for his life in the hospital. For just a second, I’d feel normal, and then it would hit me like a ton of bricks and I’d start living my stressed-out reality. So I completely understand how you just forget sometimes, and how it just takes your breath away when you are snapped back to reality. I’m so sorry for what you’re going through! Maddie should just be in the next room, and it’s not fair that she isn’t.
Megan says:
Extra prayers for you today. I know that today will be hard with Mike going to work. It is obvious how full of life and vibrant Maddie was. She had a unique love of life that everyone should have. (((HUGS)))
Megan’s last blog post..Four.
Susan says:
You can’t be prepared for this….you can’t…..one breath at a time……{hugs}.
JRo in NYC says:
I think the unexpectedness is what shook all of us. I woke up the morning after expecting to get an update on how Maddie was doing better. None of us was prepared. And I certainly wasn’t prepared for the feelings that I have now, especially towards a “stranger.” What we ARE prepared to do, is keep reading and being here for you. Good luck today, it must be hard that Mike is going back to you. I’ll be thinking of you.
JRo in NYC says:
I meant that “mike is going back to work”…….
AMomTwoBoys says:
Sweetheart, I can’t even imagine. I have to remind MYSELF all the time. I think about making plans with you, and I wonder if your mom will be able to watch Maddie.
I talked to you last week about what Loralee did to *unintentionally* preserve Matthew’s smell. I’ll help you with it on Tuesday, if you want.
I love you to the moon and back. And I promise you we will ALWAYS remember Maddie just as she was. Vibrant, funny, sweet, beautiful and HAPPY.
xoxo
AMomTwoBoys’s last blog post..iPhone FAIL
Chris says:
You and Mike continue to be in my prayers. I hope his first day back at work goes smooth.
I don’t know how else to say it, so I just will, but I hate that you two are faced with this new reality. It isn’t supposed to be like this.
Prayers for you and your families!
(((hugs)))
Chris’s last blog post..Once upon a kid…
Suzanne says:
I confess that when I first clicked here from Flotsam on the day Maddie passed, I thought she must have been sick a long time or that there was some other warning. Then I watched the videos of her riding her car or saying “WoooOOOOoooW,” or “Who did it?!?” or playing peekaboo. I read about her Matt Lauer crush, her love of hair products, and her love for her family. That’s when I realized, to my horror, that she was not feeble or ill. She had her challenges, but she was happy, normal and resilient. I felt sick knowing that no one could have known she was in mortal danger on that day or beforehand.
I donated to the March of Dimes in part because I could be going through what you are enduring right now. I could be in your shoes. Kids are strong and resilient but life…is fragile and often horribly unjust. I’ve also read the blogs of other families facing cancer or chronic illness. I see — in a way that just doesn’t sink in by reading a news article about something terrible on the other side of the country (or the globe) — that it is a folly to take the good times for granted.
When I watch Maddie’s videos on your Friday posts, I think that it is so unreal. I cannot believe that she is gone. I wonder what it is like to live in the new surreality of being without your child. I wonder how you get through the hours. I wish I knew you in real life so that I could call you every day or clean your bathrooms or make dinners for you. That’s what I would do if I knew you. Anything to ease the day-to-day burdens and make me feel less helpless.
I’m so sorry that she slipped away from you. I’m so sorry that you guys don’t have her anymore. It makes my heart hurt and I’m just so sorry.
MBKimmy says:
I pray for you everyday … you and Mike are never far from my thoughts. I find it odd that I can’t stop thinking of you … odd that my nightly prayers include a fmaily that I have never met. I love the blog world, I love the friends I have met and I love that I get to send out prayers and hugs to people like you! I love that even though i never met her … Maddie has changed my life. Not a day goes by that I don’t pray for all the MOD babies and that I don’t pray for all the mommies that have lost a baby. Please take care of you and continue to speak your heart … even if not on the blog get it out … get it all out!
MBKimmy’s last blog post..Less than a month
Christine says:
Oh Heather, I don’t know how to make it better, because I don’t know how it gets better. I do know that it sucks and that I am sorry everyday and that she was loved and happy while here and that so many will remember her even with her gone. Hugs.
Christine’s last blog post..I don’t like Mondays
Shauna says:
It it totally insane, all of it. I can’t imagine the disbelief you must feel. When I heard the news the first morning after, I kept thinking, “it’s just not possible”. Like you said, she always came home. And she was SO not sickly. I can’t imagine a LESS sickly child. She was bursting with joy and energy and vitality. It’s truly unimaginable that she is gone. I’m so, SO sorry.
Shauna’s last blog post..Mother’s Day weekend in pictures (no time for words)
Adventures In Babywearing says:
Your posts continue to amaze me and inspire. I don’t know if you can ever be prepared for such things.
Steph
Daile says:
My heart breaks with yours…..
patois says:
Even if you had thought you were prepared, you would never have been. I really wish it could be “PSYCH!” You all remain in my prayers.
patois’s last blog post..You’re Not Fooling Anyone, American Express
Sharon says:
I just want to give you a great big hug right now.
I want to ask “why God” when I read this, but I know your sweet little girl blessed your life, and you, hers.
I’m just so sorry. Prayers, and many hugs.
Sharon’s last blog post..One Week
Meagan Francis says:
I have been following your story but have had a hard time spending too much time here–because honestly I am barely able to deal with the fact that something like this really could happen to one of my children or my nieces and nephews or best friends’ kids. Even thinking about it is painful. I can’t imagine how I would continue to live afterward…but here you are, living. So it must be possible. But to be *prepared* for it? Who could be, or would even want to be?
Meagan Francis’s last blog post..Blueberries for Mom
Corinne Cooper says:
I should really learn not to read your blog while I am at work….it gets me everytime. Isn’t it funny how being layed off became the best gift you could have ever asked for…? Being able to spend so much time with Maddie was such a blessing for you & Mike. Before she left this world way too soon she gave you both the gift of some amazing memories that I am sure you will always cherish. My heart continues to break for you.
Jenny from Mommin' It Up! says:
Oh, Heather. Your writing is so heartbreakingly beautiful. I wish you didn’t have cause to write these things, but thank you for sharing with us. It’s part of Maddie’s legacy that these posts WILL help others going through the loss of a child.
Jenny from Mommin’ It Up!’s last blog post..Keep it Simple for the Old Folks
Maria says:
I’ve never experienced the sort of shock and horror in my entire life than I did when I woke up at 3 am and saw that Maddie had passed. My mother said to me the other day that you and Mike must have had extra strength from all the trials you went through, but I told her no, that this was NOT expected, that you weren’t ready. Were NOT prepared.
Cried and cried this morning, for you, for Mike, for Maddie.
Please keep writing.
Love love love,
-M
Maria’s last blog post..Girl Talk Thursday – girl crushes
Carrie says:
I am so sorry for your pain – I can’t imagine how you feel. But I will hug my little boy a little tighter today because of your words, and cherish every moment of him fussing on the other side of the bathroom door today. Thank you for sharing this.
Carrie’s last blog post..Happy Mother’s Day!!!
RookieMom Heather says:
So so sorry. There are no words. Count me among the many who don’t know you but want to hug you, that wish it would do any good.
RookieMom Heather’s last blog post..Happy 4th birthday to my rookie baby
Amy says:
The smells… the fading smells…reading about that made me feel so sad. I don’t think you could have ever prepared yourself for something as tragic as this. Thinking of you today…
Jennifer says:
Heather,
I am so sorry for your loss, I can’t imagine what it is like for you. I read your posts every day, and they make me cry so hard, I can’t stop thinking about you and your family. Through your words, photos and videos, I feel like I know Maddie and my heart just breaks for you. The worst thing that could happen to a mother happened to you, and it happened so quickly & out of nowhere. It’s so unfair, she was doing so well, it just doesn’t make sense. Please know that everyone who reads your blog cries for you and your family, there are no words to say that will make this better. The only way I could think of is to keep Maddie’s memory alive through the photos, videos and stories of her. She is a beautiful child, every time I see her smiling face on your blog I start to cry, I am crying right now as I write this to you. You and your family are in my thoughts and prayers. Once again, I am so very sorry for you, no one should ever have to lose a child.
Love,
Jennifer
Katie says:
Heather,
I have only been reading since Alexa (flotsam) linked to you on that horrible day in April. I have not commented until now because I know nothing I say could possibly help. But I can tell you that from looking at your pictures, videos, and archives, the LAST impression I am left with is of Maddie as a sickly baby. Even those early NICU pictures leave an impression of a VIBRANT ROBUST child. Larger than life! That is why it is so hard…even at this distance…to get one’s head around the fact that she is gone. My heart goes out to you but please don’t worry about anyone thinking of Maddie as weak or frail. Definitely definitely not. Many hugs.
Erin says:
My heart aches for you both. Thank you for sharing your grief with us so we can grieve and mourn with you. May you find rest today in His healing arms!
Erin’s last blog post..Organic on a Tight Budget…Really?
Heather of the EO says:
I’m just so sorry. I want magic words of healing and I want to type them here. But there aren’t any. I’m just so sorry.
Heather of the EO’s last blog post..From the Mouth of Miles
Veronica says:
Here is a virtual hug, I wish I could help ease your pain.
YOu are never prepared to loose the most precious person in your life. Even with 6 months to ‘prepare’ it was the biggest shock. I think the hardest part is that I thought my last breath would be hers and that I would leave this world too, because I could never imagine the world without her. My husband was there when we got the call, and I was numb beyond belief. I was not prepared to live with a hole in my life or my heart. No one is ever prepared, especially for a child. Especially a child as alive and vibrant as your Maddie.
Keep those clothes and the dolls close. I did too, and even 8 years later, I still keep some. Even when the smell fades, it is one of the only things you have to hold onto. Hold on as long as you need to. I wish it were easier and an alternate reality. I truly do. Some how you take each day as it goes and the pain gets manageable. Songs, favorite movies, toys, clothes and the little things will be overwhelming at times. Cry, get mad and do what you have to to get through.
If you ever need anything, please ask. We will do what we can.
Here’s a hug to help get you through today.
Notesfromthegrove says:
I wish there were magic words to make the hurt go away. Sending you lots of love…
Notesfromthegrove’s last blog post..Would you like thighs with that?
Janet says:
There are so many things I want to say to you but this isn’t the place. Just know that despite Maddie not being with you in the physical sense, she is with you in every other way and she always will be. The three of you are in my prayers daily. Much love and peace to you…
Janet’s last blog post..A Delicate Dance
Jen says:
I wish that my tears could help in some small way. Sending you and Mike all my love and peace.
Jen’s last blog post..Random Tuesday Thoughts – Holy Shitto Batman
VDog says:
I feel the same way. How can this be real????
Big hugs and kisses to you and Mike.
Danes says:
There’s no preparing for this because it is completey against the order of the universe to lose your child. I still can’t believe it’s real either…I keep thinking, “No, this is not real. Maddie can’t be GONE…right?” It’s because the thought is too horrible to even accept. I love you very much.
Jill says:
I have a friend who lost her brother a couple years ago and she looks for signs around her nearly every day that he is still there with her. At first the signs seemed to find her and they were jarring and comforting all at the same time, but now, two years later, they are what she clings to, to make sure she never forgets and to remind herself that his body may not be with her anymore, but his spirit will never leave her. Would she trade all those signs to have him back? In a heartbeat. But maddeningly, unfairly, it doesnt’ work that way, does it? Maddie is sending you signs, too, leaving you reminders that she loves you.
Jill’s last blog post..And on the second day, she tolerated messes and almost tossed her cookies…
Meg says:
It’s good that you keep writing. It will help you. And it’s also helping many of us, I think, to have the glimpses you give us of that place that every parent fears. I can’t even let my mind go there, to think about the agony and the shock and disbelief and how after one fateful day, your life has forever changed. Yet, I keep coming back to read your posts, to see what it must be like to go to that place.
None of us ever wants to go there… and we’re all sorry beyond words that you’re living it. Your posts are your gift to us… we’re here, sending love and prayers and positive vibes your way, trying in our own small way to help keep you afloat, to let you know that we support and love you.
Meg’s last blog post..A drink with jam and bread
Stephanie says:
I am just a stranger from NY delurking to finally comment though I know there are no words that will bring her back. Maddie did NOT seem like a sickly child-never once did I have that impression-I have cried every time I read your posts or Mike’s and my heart hurts for you so bad. I won’t say it will get easier because I can’t imagine it will. I am so sorry that another mother has to go through this. It’s not fair, it shouldn’t be. She should be here with you. And I am so sorry she isn’t. If wishes and tears and wants of more time could bring her back she would be in your arms. Again, I am so sorry……
Kat says:
Oomph. My heart.
Thank you for sharing this time of your life with us.
Kat
Kat’s last blog post..Motherhood (in any form) Deserves a Celebration
Maternal Mirth says:
Maddie was an amazingly happy, vibrant and beautiful. I was shocked to hear the news and my heart broke instantly for you, for Mike, for your family. I wish there was a way the hearts were repaired and the world was not this alternate universe… God, I wish.
HUGS!!!!
Maternal Mirth’s last blog post..‘Hygiene’ Has Become a Dirty Word.
april in NJ says:
After reading your posts the last 2 days… my heart is so heavy with sadness. Here I am… a stranger who didn’t even know this wonderful, beautiful, amazing, sweet (I could go on and on with the adjectives) girl. And then I can’t even imagine what it must be like for you–her mother. I want to scream and hit someone FOR you. I want to scream AT someone FOR you. But most of all… I want to bring her back for you. I really do. I’m so sorry that this is your reality now… hoping that it gets easier with time. Much love and hugs from NJ.
Sara says:
Thinking of you everyday, even though I don’t know you at all. Just wanted you to know- you and your family are in my thoughts and prayers.
Sara’s last blog post..I would go out tonight, but I haven’t got a stitch to wear.
Melanie says:
My heart hurts so badly for you and Mike. So badly. I think about you guys all the time. I just can’t imagine. Its unfathomable. Truly.
Kristin @ Contented Me says:
I wish there was something I could say that would help to ease your pain, but I just know that words won’t do. I’m just so so sorry for you. I pray that you find peace in your heart.
Kristin @ Contented Me’s last blog post..design inspiration: fireplace nook
Tina says:
I just can’t imagine. ((((HUGS)))) I’m so sorry.
Tina’s last blog post..You Capture. Colors.
Upstatemomof3 says:
I have only come to know Maddie’s sweet face since her passing. But none the less she has had a huge impact on my life. I sit here holding my 8 and a half month old daughter and I feel guilty for the blessing that I sometimes take for granted. I alwasy feel compelled to write something and let you know I am reading your story but I never know what to say to you. I want that sweet little girl to be home with you, where she belongs.
Upstatemomof3’s last blog post..He Graduates – Again!
Melissa says:
Heather, I would want answers too. During such a horribly painful time, it’s so difficult to not be able to put a ‘how’ to things. How did this happen? How can it be? The fact that she was with you, happy and healthy, just a mere 30 hours before she passed away is just gut wrenching. The disbelief just makes it harder to even try to understand. I can’t imagine. I just can’t imagine.
It’s so good that you are writing these feelings down and getting them out in the open. Just your words hitting the ‘paper’ is a step toward healing. Not forgetting, not moving on, not getting on with life or getting past things – just healing. Finding a way to still be a part of this world when Maddie isn’t by your side.
Thank you again, so much, for sharing your grief and your thoughts with us here. I agree with many of the other comments – you’ve inspired me to look at things differently and I can never thank you enough for that. And I can’t imagine how much your words will help other Moms who have to go through this unspeakable tragedy.
Hugs and strength sent your way with love from Wisconsin. You were and continue to be an amazing Mother and an inspiration to the rest of us.
Melissa’s last blog post..We went. We walked. It rained.
Vicky says:
The thing that struck me the first time I came to your blog, which was the day she went into the hospital that last time, was how vibrant, happy and absolutely glowing she was. I’ve never thought of her as being sickly, which honestly makes this all the more hard to believe that she is gone from this earth.
Again, I wish that each one of our tears would lessen your tears and that each little bit of our pain would chip away at yours. If only……….
I think all you can do is make it through this minute, then the next. All you can do is breathe. I hope today is not too bad for you as your husband is gone for the day. Be kind to yourself today, do whatever you want to do, whatever that might be. Be kind to him when he returns home. It can’t be easy for him either.
I believe in God and His plan. I certainly don’t understand it, but I guess we aren’t meant to. I know that whatever horrible things we go through in this life, Jesus is right there with us wrapping his loving arms around us. I hope you feel some of His comfort today.
Valerie says:
You sweet mama. Many hugs to you. I know where you are, I have been there myself. I know your pain and I am so sorry for you. My son always came home too, until that last time that he didn’t. Hold on, it will get easier. I know you don’t think it will, but it does. I said a prayer for you before writing this comment, that God would surround you in peace and joy today. Huddle close to your husband, love each other, comfort each other and hold on together.
Valerie’s last blog post..So Scary
Karen says:
Heather–
You don’t know me. I don’t even remember how or when I ran across your blog. I’ve been following it for some time.
There is nothing I can say to help, of course.
Still, I’ve also been following Meghan O’Rourke’s reflections on grieving on Slate.com. She once quoted a snippet of poetry by Franz Wright; I think you might appreciate it. It is all I can offer you, beyond the assurance that your experience has driven me to sit up, listening to my own young sleeper whuffle and snuffle through the dark of night on more than one occasion, despite how precious the opportunity for my own sleep might seem.
I basked in you;
I loved you, helplessly, with a boundless tongue-tied love.
And death doesn’t prevent me from loving you.
Besides,
in my opinion you aren’t dead.
(I know dead people, and you are not dead.)
Andrea says:
The smells oh the wonderful smells our children have…I can’t imagine them ever fading. I can’t imagine not hearing the sounds of my son laughing and running through the house. Thank you for your sharing your feelings. It has made me realize even more how precious life really is. What happened to your sweet Maddie makes it very hard not to question God and his plans. Or for me at least. I try very hard to believe with every inch of my body and soul but its hard. How can He have taken her like that? Why?? Its not fair. it just plain sucks and i’m so sorry. I cry for you and your husband. I wish there was some way I could help. I hope that you can find some comfort throughout each day even if its just for a few seconds.
Sending lots of hugs and prayers your way.
Andrea’s last blog post..End of an Era
Jenn says:
OOhhh Sweetheart!
My heart aches as I read your words and weep. Thank you for writing today…your words are so profound, so raw and even though you don’t feel it or see it at this moment…so healing for you. Thank you for trusting us all enough to express yourself and share your grief with us. I am humbled by your strength. Sending you warm and gentle hugs and many blessings…..until tomorrow (if you choose write). You are in my thoughts and prayers. Your Friend, Jenn
Beth at I Should Be Folding Laundry says:
There is no way you could have been prepared and all of these moments of intense grief that take over you (and will take over you), there is no way for you to be prepared for those moments, either.
The best preparation you can take is knowing that she is with you, she LOVES YOU SO MUCH and that you were the greatest, most intense, most amazing love and SHE got to feel it. All because of you.
Maddie is a precious gift to you and you are a precious gift to her and just because she is gone, doesn’t mean you won’t still feel that love throughout your life, because you will…I promise. It just won’t be the same or feel the same; it will become so bittersweet. I am just so angry at the the world and GOD and whoever that you are living this nightmare.
Showers were always the loneliest place for me.
My prayers, my love, my thoughts, my heart, they are with you.
Beth at I Should Be Folding Laundry’s last blog post..You Capture. Colors.
bessie.viola says:
No one could ever be prepared. No one would ever WANT to be prepared. Before I was a mom, I would always say that God has a plan for each of us.
Now that I’m a mom, I still know it to be truth but I don’t want to accept it. At all. In fact, I’ve been pretty angry about that “plan” since your Maddie passed. Because I don’t understand a world without your Madeline in it, and where you and Mike are suffering so. I don’t understand it either. But I’m still praying for you and wishing you peace.
bessie.viola’s last blog post..progress
Jesika says:
I was grocery shopping the other day and I came across the green shampoo for curly hair and I just stopped where I was and thought of Maddie and my heart hurt for you and Mike. You are in my prayers everday!!
jodi says:
Heather and Mike,
I am sorry. So sorry. I wish there was a way to make this go away for you. If love alone could have kept Maddie with you, know that she would still be alive. I think of you and of Maddie often. I see purple and I think of Maddie. A girl I never met. I pray for you. A family that I never met. I pray that you find the peace in this. I pray that you have the strength to get out of bed everyday.
Hugs to you.
kris says:
I don’t think anyone is ever prepared! {{{{{{{hugs}}}}}}}
kris’s last blog post..You capture: colors…
Emily from Mommin It Up says:
I am so, so sorry.
Emily from Mommin It Up’s last blog post..Keep it Simple for the Old Folks
Jenny says:
I am just another stranger who has been following your blog since I saw it on the March of Dimes website.
I am so sorry for the loss of your Maddie. My heart absolutely breaks everytime I read an entry from you. I can feel you pain in your words.
As a mom of 28 week mono/mono twins, your reality is my biggest fear. I was so afraid of loosing my girls because of illness…I still am. As a mommy of premature babies, we fight so hard in the NICU and have to fight even harder once they are home. I don’t think you ever stop fighting.
Maddie was a lucky little girl who was blessed with a mommy and daddy who love her so much. She will always have that blessing…and I believe she knows that… eventhough she is not with you physically. She will always be with you. She will never leave you.
Toni says:
No words will soothe what you must be feeling, but please know that you are loved and prayed for by all of us *hugs*
Toni’s last blog post..The Motherload of Q’s
Sanya says:
Godspeed.
Grace @ Sandier Pastures says:
Your posts never fail to let me cry and appreciate the time I have with my daughter more. Heather, I don’t know what to say. No mom or dad can ever get over with the grief of losing a child. We can move on but the memories will always remain.No one could ever be prepared for things like this and this mystery-only God knows why.
I hope you get to meet and hug Maddie once more even in your dreams.
Grace @ Sandier Pastures’s last blog post..Things you might NOT know about Dubai
Jebs_girl says:
I just started reading your blog within the last month or so. I am so sorry for your struggles. There is nothing I nor any friends or family members can do to help you right now. It’s just part of the healing process you need to go through. I know how lonely you must feel right now with your husband going back to work, but know that a lot of people are thinking about you and praying for you (and your husband). Not having Maddie on this earth is one less wonderful, beautiful being, but know she is watching down on you.
Jebs_girl’s last blog post..Project365 – Day 15
karla | looking towards heaven says:
I still think about you daily.
Hugs and prayers for you.
She will always be with you.
karla | looking towards heaven’s last blog post..Kitten Updates
Denise says:
Loosing a child is the hardest thing…..words cannot be said to make any parent feel better, actions never done. Nothing replaces the lost feeling and the emptiness that is there. I lost a child only 1 1/2 hours after she was here – I felt as if I were the only one that truly missed her – it was ME that felt her inside of me, it was me that truly knew her….but she had 2 big sisters and a daddy that miss her too – they were looking forward to the new adventures of having a little one around. Greif is hard to go thru – so many things to have to deal with. It’s been 7 years since we lost our Lizzie. Your freshness in this brings so many emotions back – and I truly feel your heartache. You were soooo blessed to have these months with her – I wish I would have had more time….with Lizzie. To see her grow….I have are some molded hands and little feet of her and a few photos we took of her…and a lock of her hair. You have some precious, precious videos, and so many adorable photos, that will never be able to take that ache away – of missing HER being here with you. You are going thru some REAL times now, hard as they may be to face – but they are real. All the feelings you are feeling are real – it’s so hard for people to know what to say – the RIGHT things to say – cause they aren’t feeling like you are feeling. They aren’t hurting how you hurt. I remember this oh so well – people would stay away cause they didn’t know what to say. I felt so alone at times – cause people just didn’t know what to do or say – cards are great – but you miss the way things were. I know how that feels. I wish I were there to give you a big hug! I believe though that God is there – He feels all this hurt you are feeling. He i s what helped my family be able to cope with the loss of our Lizzie. He made us a stronger family for having gone thru this terrible loss. We have many NEVERS we will get to experience with Lizzie – but I know she is with my Saviour, and for some reason I do not understand, HE felt HE needed her more than we did. I can’t comprehend it, I don’t even want to. I can’t tell you the pain gets easier – it just gets more bearable…as harsh as that may sound. You will never forget this feeling of missing Maddie – SHE lives on thru you and Mike! What a BLESSING you and Mike were to little Maddie – What GREAT parents you are!
I have enjoyed all the photos you have shared of your lives the past few months….they are so adorable. I know one of the things I did that helped me was to scrapbook the beautfiul photos (and journal) we had of Elizabeth Ann. It was painful, but it was healing for me….I want you to know, I am praying for you and Mike as you walk this path set before you. I also want to share a verse that has meant so much to me in walking this path that we have walked and my family continue to walk.
Proverbs 3:5-6 (KJV) “Trust in the Lord with all your heart, lean not on your own understanding. In all your ways acknowledge Him and He will direct your path.”
Thank you for sharing your heart with us. Your blog I know is touching many hearts! And many are lifting you and Mike up in prayer!
Kelley Land says:
I wonder where Maddie went too. A friend of mine said once that he never hoped more for a place like “heaven” then he did when his father died. When our loved ones leave us and go where we can’t yet go, where we have nothing beyond imagination to envision, where we can no longer touch them, we HOPE there’s an actual place where they are. A place where, one day, we’ll be with them. Surely this can’t be all there is. Surely there’s more to being a human than living and dying and then nothing. I definitely have the hope that Maddie is still Maddie, wherever she is, and that you will be with her again. That doesn’t help now, though. Not when you need her with you so desperately. I, who don’t know you personally, think of you often. I am terribly, terribly sorry that you are navigating this world without the light that is your Maddie. There’s nothing right about it.
–Kelley in GA
Kelley Land’s last blog post..“Put Something Silly In”
Lauren says:
I wish I knew something to say that would make your day a little brighter, but I really don’t. I am so sorry for your loss. My heart breaks only imagining what you are feeling. Please know complete strangers are thinking of you and sending love your way.
Lauren’s last blog post..Wordless Wednesday – And She’s Out
Melissa says:
Hugs….
Megan says:
What words can I possibly add to this? I cannot fathom the heartache. My heart breaks with yours.
Megan’s last blog post..Creating Enthusiasm for Books Beyond Reading
Becky says:
Fuck, Heather. FUCK. Fuck. Fuck. Shit.
I’m sorry, lover. Shit. I’m so fucking sorry. My hammy arms are getting ready to hug you when I come out.
Love you a lot.
Becky’s last blog post..Can’t Sleep, Kids’ll Eat Me
Katherine says:
I am so sorry for your loss of your vibrant little curly-head. I don’t believe that there is a “reason” this happened or that it’s part of some “plan”. I do think we humans are skilled at creating meaning and purpose out of thin air. I know you and Mike are continuing to do good work that is helping other families… Wish that helped you more though…
Sarah says:
Thoughts, prayers and love with you always.
Deidre says:
ok I can’t write at the moment, I am in tears and I know time makes things get harder, sadder..Disbelief….I just can tell you, each hour is different. I was a young widow, and now my dad just died so rapidly….I was in the kitchen this morning, just looking at a bottle and realized that my Dad is never walking into the house he spent so many months getting ready for my daughter and I. We just moved in June to be closer to my parents. Shit 6 months later he is dead….I get what you mean….why….who knew…. and he wasn’t sick. He would flip if he knew how many tears he has caused my mother and me….ok we are both in a state of shock….I think oh shit no daddy and no grandpa for my daughter Paige….then I think of you and think…I can’t be in your shoes….I know it is brutal…just breathe…go smell the insides of her drawers….they always smell of the person scent.
Deidre’s last blog post..Home Funerals
Melissa says:
(((HUGS)))
PattyB says:
It is true that you are never prepared to lose a child. I lost my first child when she was 6 months old to SIDS. I put her down for a nap, and because I was pregnant with my second child, also took a nap. When I woke up, my husband was doing CPR and was already on the phone with 911. I was napping while my first-born daughter was dying. Talk about guilt! This is something you will never, ever get over. It does, however, eventually get better, that I can assure you. You are in my prayers daily. I now have 5 more daughters I have been blessed with! I never could have imagined that in my future back then. I wish you the best of luck and genuine happiness again some day. Take your time in getting there.
Stacey says:
I won’t offer you platitudes, quips, poems or sayings. They have all been said before.
I do not know you, your husband or your daughter. Your blog has let me into your world and your pain. I will thank you for sharing. It’s amazing that you do this. I am not sure I could or would.
I cannot imagine the depth of your sorrow, but your blog will teach many people many things. Most importantly, to cherish each and every day. We never know what the future holds and each day we learn how unfair and unreasonable the world can be. Some of us learn this suddenly, others in smaller doses.
I wish you peace, love and happiness as you push on through your grief.
Lisa says:
Words are difficult to come by. I can only imagine that many things that others would choose to say would anger me (if I were in your place), but people that didn’t say anything would anger me too. I can’t begin to really know or imagine what you are thinking and feeling, except for what you write here. I appreciate the glimpse into your life, and even though I have no perfect words to share with you, I care.
Katrina says:
I’m a new reader (since April 9) and my first thought when I learned Maddie had passed away was “but what was wrong with her?” because from her photos just days before she looked so happy, healthy, and full of life — quite the opposite of sickly.
I was talking to a friend just last week and was actually quite angry about it. I said to my friend, “I just don’t understand…in this day and age…why did she have to die? Didn’t the vent do it’s job? Wasn’t there something else they could have done? I just don’t get it!” My friend said it was just her time. Really?? Her time to go? Um…no, I don’t think so. It wasn’t her time. If she had been 93 then yes, I could say it was her time. But not at 17 months.
Your post today haunts me. I can almost feel your lonliness, from how you describe it. I’m so sorry
Katrina’s last blog post..mysqlerror
Kathy says:
Heather, you have been hit by huge, devastating truck. I believe you will be some better someday…I hope you will.
STACIESMADNESS says:
{{hugs}} you could never be prepared for something like this…my heart breaks for you!
STACIESMADNESS’s last blog post..You Capture, Colors!
Karen Sugarpants says:
I wish I could take this pain away, love. Big hugs. xo
Karen Sugarpants’s last blog post..Calling All Cyclists
Kathy in Indy says:
I came to your blog through Matt Logelin’s blog. First of all, I am so sorry for your loss. I too lost my daughter, she came to early. Never having the opportunity to know her has always been a battle. I always thought, if I had just had one day with her. But, after reading what you are going through, maybe I was wrong.
It’s been 21 years now. I still remember her due date. I still remember her birth date. I still remember her gentle kicks, and flutters – and watching her on the ultrasounds. It gets easier, but it never goes away.
I have 2 incredible sons now. They could never take Megan’s place, but all the same I am blessed with them.
Maddie was amazing. Which means you are an amazing Mom! You gave her so much happiness. She was secure, loved, cherished. You did good.
Best regards,
Kathy
Kellie says:
I don’t think one can ever be prepared for the loss of their child. Even if she HAD been sickly, I don’t think we can ever truly be prepared.
Each of your posts make my heart ache a bit more. This one…this one, though, makes it break. I can feel and sense what you’re describing and it’s just wrong. It’s so wrong.
A friend and I were talking about Maddie last night. I explained to her who Maddie was and that, ever since I learned of her death, I’ve been pulled to your blog daily. She asked me why. Why was I? How could I read the heartbreak you’re dealing with. I didn’t have an answer for her. I responded “I have to. I don’t WANT to read the heartache and the sadness, I HAVE to.” And, that’s the truth. I never WANT to know the ache and the sadness and the heartbreak one feels over losing a child. But, I feel I HAVE to.
I’m so sorry, Heather. I know my words don’t mean jack, but I truly am sorry.
Kellie’s last blog post..I’m Still Here…Are You?
Heidi says:
I found your blog in March and I was so excited. I instantly knew that I really liked you, but I *loved* your daughter. Sorry, it’s true. I went back and read your archives and soaked in all the Maddie I could get. More Maddie! I couldn’t wait to follow your adventures and watch Maddie change the world because you could just tell that she infected everyone with happiness and hope.
And so here I am now, devastated for you, crying buckets over your baby and I can’t begin to understand how Maddie, who was so alive and so amazingly wonderful beyond words, is gone. How could life be that cruel?
I want to comfort you and make you feel better but I can’t. It’s lame to keep saying it over and over, but Heather, I am so sorry, so very sorry. I really am.
Heidi’s last blog post..It’s Not a Penis, It Just Looks Like One On the Internet
Crystal Faulk says:
I have never read your blog before Maddie passed away. I have now read every one and and I feel like I know you both. I have cried numerous times and I think about you and her everyday. I pray for you and Mike everyday, numerous times. I lost my little brother in November of 07 at the age of 24 people told me each day would be better they lied. I was a complete zombie for 7 months and even quit my job because I could think of anything but him. Its now been a year and seven months and I ca actually say his name without losing it. But I still have my moments. After 4 months of being a zombie my husband made an appoitment with a psycharist and after 3 cancellations I finally went I still go once a month just to talk with someone about how I am feeling.
Amanda says:
As someone who first came here the day that Maddie last went into the hospital, I agree with others who’ve said that she does not in any way seem to have been a sickly child. Quite the opposite. You’ve done such a great job documenting her exceptional happiness and vibrancy. Reading your archives (and Mike’s), it’s impossible not to fall in love with her. It’s so patently unfair that she’s not still here with you.
Amanda says:
It’s days like today that the words I’m sorry seem so very inadequate. They aren’t enough, they don’t convey what I want to say. I remember taking Addison’s clothes and putting them in a ziploc – I wanted them to stay the way they were – forever. I wanted to make the room stand still – not change the sheets.
I wanted time to stop everywhere because it had stopped for me.
Heather (and Mike) – if shear will could bring Maddie back I see from your friends that we would all take a moment and do whatever it took to do it.
Heather – I know that today is so hard with Mike going back to work.
I wish I could will Maddie back to your arms.
I really, really do.
Cat says:
I cannot even begin to imagine. I wish I had words to comfort you. XO
Jess says:
I think it’s impossible for anyone to be prepared for such tragedy. And certainly not a parent. What kind of parent are you if you ARE prepared?
Maddie is so lucky to have a mom who loves her so much. So lucky. She may not be behind the shower wall, but she still feels your love. And she misses you too…
Becky says:
I don’t think preparation really comes into play for this. There will be the landmines, the feeling that she’s still be there, and…I wish there was a way that I could help.
A book you might want to look into is Gloria Naylor’s Mama Day, though it might be too raw a pain right now. She incorporates such a sense of healing while keeping a place for grief that’s remarkable.
I read your blog every day. First your newest entry and then I wind backwards, revisiting Maddie.
Amy @ Milk Breath & Margaritas says:
I’m so sorry Heather. My heart truly breaks for you and Mike. I cry reading every post and knowing how sad I am – at this distance – makes me realize how little I could ever really understand the depth of what you are going through.
I’m holding you in my heart and praying and thinking of you constantly.
Amy @ Milk Breath & Margaritas’s last blog post..Bartender Can I Have A Blankie?
sue says:
perhaps you should get a job., for a few hours a day just to get you out of the house and meet people and have your mind occupied.
your baby is gone and she is at peace and she will always be in your heart .
be thankful you have Mike for support…so many people all over the world who lose their child dont have that.
Glenda says:
My heart breaks for you and Mike. I’m sending you hugs! Maddie will forever be in your heart. XO
Christy says:
Oh, god Heather. Of course you weren’t prepared…how could you be? I think the fact that Maddie was such a lively little girl makes all of this the hardest to fathom–how could it be?
Keep using her things…hold on to her in whatever ways you need to. Whatever it takes to make those obstacles surmountable. Hugs to you & Mike
Christy’s last blog post..Sowing The Seeds
April says:
I don’t know if it’s possible to ever be prepared for something like this. What you’re writing is every parent’s grief in the event that they lose their children. I want to say that I appreciate that you’re writing about it. My parents lost a daughter when she was 3. You are helping me to gain an understanding of what it must have been like for them. (She wasn’t sickly either, she was hit by a car.) I hate that any parent has had to experience the kind of grief that you’re going through, that they went through. But you’re writing about it is making a difference to me, at least.
Amy in Oregon says:
You can’t prepare for that, even if your child were sick or terminal, you still would not be able to prepare for that.
I’ve been reading a little more than a year now, and that vibrant, full of life, BEAUTIFUL child is who started my day every day. She was the COMPLETE opposite of sickly. I miss her.
Thank you for writing.
Amy
Oregon
Katie in WI says:
To look at a picture or a video of Maddie is to see life. Vibrant, joyful, beautiful life. That she’s not here right now is all kinds of wrong. Unfair.
Heather, your writing is amazing. Honest, clear, crushing. You are a gifted writer. I hate that you are suffering, I hate that what you write about is heartbreaking, but I do love to read your words.
sandi says:
When I clicked on your “about” tab I read about your last name and the wiki entry that said “adapted for dispersion and surviving for extended periods of time in unfavorable conditions”. It made me wonder about how you and your husband Mike were managing through this? How are you “two” doing? My heart aches for the both of you and know there are so many of us just saying prayers for you. At different times through the day I think of how your story has effected me and I stop to pray for some strength to get you through this.
Laurie says:
You could never have been prepared for this. I want to say something clever, something comforting, but there just isn’t anything. *hugs*
Ginger says:
Sending you hugs, love, and what strength I can by my “mindpower” – you deserve all the help we internet folk can provide. Don’t feel you are wrong to be grieving and wanting her back, Heather, because nothing else would make any sense at all. Feel your feelings.
Ginger’s last blog post..Hope, nothing with feathers
maggie, dammit says:
How could you ever be prepared? In your case, if you’d been prepared, you wouldn’t have been living properly.
I never know what to say, and God forbid I ever say anything to make it worse, I just want you to know I’m here.
maggie, dammit’s last blog post..I don’t do this very often, but…. “HOMEWORK”
Frances says:
You are such a strong person and your little Maddie is watching you with a big smile right now so proud of you! You will one day see her again and you shouldn’t have had to be prepared. She was your “little person”. It will take time but things will get better and having her memories around will help! You have a strong network of people who are here for you!
Frances’s last blog post..It’s ARRIVED!!!!!!!!!!!!
Kristen McD says:
I don’t think preparing for a disaster of this magnitude is possible. It’s just… it’s just unnatural. And I’m so sorry.
Kate says:
I am so sad to read about your pain. I do not know if the comments left for you on your website provide you with comfort. I don’t know what can comfort someone who has been through what you have. But I’m here, one of thousands, reading, and thinking of you and wishing so much this did not happen to you.
Kate’s last blog post..My miscarriage, my fault
Andrea's Sweet Life says:
My dear, sweet friend.
I thought of this poem by Pablo Neruda while reading your post today.
When I die, I want your hands on my eyes.
I want the light and wheat of your beloved hands
To pass their freshness over me once more.
I want to feel the softness that changed my destiny.
I want to you to live while I wait for you, asleep.
I want your ears still to hear the wind, I want you
to sniff the sea’s aroma that we loved together,
to continue to walk on the sand we walked on.
I want what I love to continue to live,
And you whom I love and sang above everything else
To continue to flourish, full-flowered.
So that you can reach everything my love directs you to,
So that my shadow can travel along in your hair,
So that everything can learn the reason for my song.
Andrea’s Sweet Life’s last blog post..Slumlords
Chris in NY says:
Isn’t it funny to think that when you were laid off, you might have been upset at the idea….”Will we be okay without my income? Will I get bored at home? I don’t know if I can do the stay-at-home gig!” And now it turns out that the layoff was the greatest gift in the world….it allowed you to devote your time to Maddie’s last months here on earth. That cloud had a silver lining. The loss of Maddie is simply a large black cloud.
I’ve been following your blog since I heard about Maddie’s passing on “Mommy Wants Vodka.” My heart breaks for you and Mike. I don’t have any helpful wisdom…I just know that Maddie must have been one very special little girl because I’m reading about her and seeing her everywhere in this internet! My thoughts turn to you many times during the day and I can’t imagine how you’re coping with it all. I think, though, that your writing will prove to be the best therapy. You’re putting your heart and soul into words and I hope that helps with the healing. And for the record, there’s no such thing as being prepared. My father suffered for 2 years with cancer and we knew the end was coming. That didn’t stop me from being shocked when I finally got the call.
Thank you for sharing this all with us. We are grateful for your raw honesty.
jacci says:
I can’t read one more post without commenting. I found your blog from another blog’s link. I’m so happy I did. I feel as if I know Maddie because of your words, stories and photos. I know there is really nothing I could ever say to make it even a smidge better. But I can think of you and Mike and your beautiful little girl and pray. You are so inspirational to me as a mom and as a woman. One day I was looking at pictures of Maddie, and I thought to myself, “wow, this little chickie has really seen and done so much!” I even had to show my husband the one of her at a ball park- classic! What a full, vibrant life Maddie had. I will be thinking of you from Ohio, especially tonight around 8 o’clock.
Elle says:
It’s clear that Maddie was a beautiful, vibrant and happy baby. Her smile is contagious! You’re an amazing woman. Your family is in my thoughts everyday.
Sending you lots of love, energy and peaceful thoughts.
Elle’s last blog post..bummis
Becca says:
As I said when I commented on several of your past posts – I just don’t have any words. When I read your posts, I cry, I get anxious, and my heart starts beating really fast. Like I am imagining this very same thing happening to me, and it just hurts. So, I can’t even imagine the pain, torture, and sadness you must feel about losing little Maddie. I look at your Flickr photos and I see a stunningly beautiful little girl and I too think, WHY??? WHY is she gone? It’s not fair. I think of you and Mike and Maddie every single day. It’s just not fair.
Becca’s last blog post..a whole lotta randomness!
jacci says:
So I thought I read he returned to work at 8pm, I obviously need a reading lesson or two.
Kristin says:
My heart breaks for you.
Kristin’s last blog post..Tightrope Walking
Marti from Michigan says:
This is so not fair Heather! Keep crying, it’s OK. Crying is healing…..deep, cleansing healing. Cry until your eyes are so swollen you can’t open them. Tears are healing. This is just not fair at all! I am a Jesus follower, a church goer, but this one thing I just don’t understand, why God took Maddie.
Just keep crying because tears are healing. I’m still praying for you guys.
LD says:
no one could ever prepare for what you’ve had to live through. I cry every time I read your blog, but I keep reading it. Because someone has to bear witness to your pain and to the wonder of her life. Keep writing– we’re all here for you, even from afar.
LD’s last blog post..Voices from Academe-Labor of Love
lilfootsmommy says:
Thinking of you. Sending hugs.
lilfootsmommy’s last blog post..Where I’m at…
christieo says:
I don’t think there is any way a person could ever ever prepare for losing a child, even if it was expected. It is just something that should never ever be.
I come here often to check on you and I always start to leave comments but they always sound so trite that I end up erasing them. But I always want you to know how much I hate that you have to go through this and how much I wish I could hug you from all the way over here in Florida. I don’t, in a million years, know how I would get through it, it would be hard to remember even to breathe. I pray for you that you will have peace one day and that you will be able to breathe without having to make a conscious effort to do it.
My grandfather passed years ago but last year I was walking through the grocery store and they had a random display of white hankerchiefs on sale in one of the aisles. He always had those white hankerchiefs (of course, he called them snot-rags because he was hilarious). But I broke down right then and there in the middle of the aisle. Sometimes you just don’t see it coming, but at least, as far as with my grandfather, it helps me remember things about him that I otherwise might have sadly forgotten. Many hugs to you.
christieo’s last blog post..I Want to Know Where all the Pens Go.
Tammy K says:
My thoughts and prayers are with you and Mike!
Kelly says:
I am reading still. Today I just don’t know what to say, even a few stupid words. I wish I could hug you.
Kelly’s last blog post..And still…
Kristen says:
I have been reading your blog lately. My heart is broken for you and I just wish I could give you a hug. Your feelings come across so beautifully in your words and I am so sorry to hear what you must go through every minute.
Jenn says:
How can you ever be prepared? Even if your child was sickly I know it would be heart wrenching.
My mom passed when I was 7, and the tale of her death is something I don’t normally talk about. We had gone to my grandparents house to swim, but when we got there my mom wasn’t feeling well. They took her to the ER, but the dr ended up sending her home with some medication for her stomach. She was feeling so ill we decided not to travel home that night, and she and my dad went to bed. The next morning my dad came in with a dazed look his face, and told my aunt (who was also there) I think she id dead. My aunt was in ER nurse, and ran into the room pulling my mom off the bed and giving her CPR. She said she knew instantly she was already gone, but for my grandmothers sakes administered cpr. My grandmother and grandfather stood there shocked looking at my mom. She died in their house, and she was only 28 years old. They were devastated!!! My grandmother said it took her 8 years to not think of my mom every second of every day. My mom was the one in the family that had the biggest smile, and always planned everything. It was a huge loss. She had not been sick either so it was a shock. No mom should ever have to lose her child. Every year on my mothers birthday my grandmother quietly send flowers to the church her funeral was at. A tribute of sorts.
She said it took her a long time to feel normal again. She said there is always a void in your heart, but time makes the hurt bearable. She had never talked about this with me until we found out there was a chance we could lose Jude. Her story was so sad, but comforting because she talked with experience. I just thought I would share.
Your comment about sleeping with her dolls brought me to tears……
Jenn’s last blog post..Grumpy no more
Prudie says:
I came across your blog via Mr. Lady’s (don’t ask me how I came across her’s b/c I can’t even remember) and I’ve been reading for I guess the last month now.
I just wanted you to know my heart aches for you. My heart aches for Mike.
I am so terribly sorry for you.
I just wanted you to know.
Haley-O says:
You could never have been prepared. Nothing can prepare you for such a thing. I pray for you (and Gorillabuns) — that you’ll find some peace…. Know that people are thinking of you, that you’re in our prayers. ((HUGS))
Haley-O’s last blog post..Cheaty Gets a Part-Time Nanny
cindy w says:
Oh Heather, of course you weren’t prepared. Maddie had come through what everyone thought was the worst of it (her time in the NICU). And after she turned 1, it just seemed like… ok, she’s in the clear now. Even her doctors didn’t see it coming, so of course you & Mike didn’t. I can’t imagine how disorienting it must be to feel her absence now.
Big hugs to you & Mike. You guys are in my prayers, always.
cindy w’s last blog post..Constipation Watch ‘09
Krystle says:
Hi Heather,
My name is Krystle, I have been following your blog for a little while and have commented once before, but anyways, aside from that whole wack of unimportant nonsense, I just wanted to say that of course you weren’t prepared, and you know what, how could you have been? How could you even still understand or grasp that your little angel isn’t here anymore. With all of the comments left on here, not one of them can make things a little better, I mean kind words are amazing, but it doesn’t bring Maddie back, so I certainly won’t sit here and blab on and on about how it’s okay and you’ll get through it. In time though, a part of you will heal, this absolute gutwrenching heartache will pass, you will always have heartache for the loss of your little girl, but one day it will be easier to talk about her and I think you’ll just remember her more as this perfect little being that made such an impact and influence on your life, instead of just thinking how terrible her loss is. I’m not trying to undermine her passing, I surely hope you kind of understand what I mean.
Anyways I think about you and Mike and your little one every day and know that she is still with you, and will always be there for the rest of your life’s experiences, I know that will never be good enough but I hope some day it will rest your heartbreaks a little more.
Lots of hugs and love,
Krystle (Ontario, Canada)
Kim says:
No one’s ever prepared Heather. No matter how or what. We just have to be here for each other when the moment comes.
Tiffany says:
I log on here to check on you even though i’m in Indiana and we’ve never met. But wanted you to know your words pull at my heart and make me wish I had been lucky enough to meet your little miss.. She’s a special one, that one
Ellen says:
I read in another comment how they had started many replies but always deleted them. I admit I never read the blog before everything happened, but now I read it often. To read stories about your wonderful little girl. It is times like this when words just dont seem enough. But I wanted to let you know that I am reading and thinking about you – I wish it was more.
Kathryn says:
Heather your blog has really shaken me to the core.
I can only feel a glimpse of your pain, but it sends me reeling and in tears. I couldn’t finish singing a lullaby song to my daughter tonight cause it just seems so unbelievably unfair that your Maddie is gone. No mother/parent should have to suffer like this…there’s just no rhyme or reason to it.
I don’t know what else to say cause words are so inadequate at times like this. Please know I’m thinking of you and wishing I could take away this pain. Tears from around the world are being shed for you & Mike.
Love from Germany
Deb says:
Oh, Heather.
I’m another stranger who found you and Mike thru Maddie’s story.
My heart aches for you. I have no answers. Those of us who have lost a child…there is a scar on your heart that will never heal. Lessen, perhaps. Heal? I don’t know.
May you and Mike find strength in family, friends, faith…and strangers on the Internet. I wish nothing but hope, happiness and a “new normal” for you both.
tara says:
i am so so so so sorry. i am thinking of you every day. and wrapping my virtual arms around you.
kathryn says:
oh heather,
i am so so sorry for your loss, for your heartache…your madeline is beautiful.
may you find little bits of strength and peace each day.
kath in nh
susannah says:
I don’t know if, how or why any of these comments could make you feel any better, but I need to comment anyway. If just to say that your daughter was beautiful, a stunning little pixie life-force. I am so sorry for your loss, that you have to endure this. It’s not fair, none of it is fair, and your story shakes me to the core. Hugs and strength, grace and courage. I have no idea what else to say but that.
ruth says:
I stumbled across your blog a couple of months ago and I just wanted to say hello and express, like so many others, how sorry I am for your loss. A friend of mine who lost a five year old child many years ago told me at the time that she felt like an “exploded person” for a long time afterwards- as if “everything on the inside was on the outside”. She kept wondering into “what hole in the universe” her child had vanished. I have had some loss in my life but never as any as profound as the loss of a child. I can’t imagine. She tells me that it gets less painful eventually. She still celebrates her child’s short life, 15 years later , and says his name often so that he will never be forgotten. I will never forget him either and I will never forget your Maddie, even though I never had the honor of knowing her- except through your wonderful words. You honor her everyday. Much love from the East Coast.
Kim says:
my heart is breaking for you and your husband…you are both in my prayers…
Kim’s last blog post..My 25 Things
Kim says:
my heart is breaking for you and your husband…you are both in my prayers…
Emily says:
Oh Heather, it’s just not fair. SO not fair. I don’t know you (IRL), but I wish she could come back, that she would pop her head around the corner when you called to her. It seems possible from here, when I can see her beautiful face in all your pictures any time. I don’t know what I would do, gosh I miss my daughter when she’s asleep. But like so many others, you and Maddie have taught me to hold her tighter and to be more patient during those toddler explosions. I don’t know what else to say except that we’re here thinking about you for whatever it’s worth.
Stephanie says:
I love your memories. Your Madeline is so very, very special. Thinking of you, as usual.
Kellie says:
The death of a child is something a parent is never prepared for. Even if in the back of your mind you realize that anything can happen, you don’t think it actually will happen.
My thoughts and prayers go out to you and your family during this difficult time. They say that time heals all wounds, but I think the wound left by the loss of a child can never be mended.
((((HUGS)))))
Kellie’s last blog post..Infant Shoes…
Inanna says:
Just sending strength and love.
Jennifer says:
This is so unfair, Heather. I mean, seriously. It pisses me off. It is so unbelievably wrong that Maddie was taken from you. I’ll never understand why these things happen. I can’t imagine how gut wrenching the grief and the only thing that seems appropriate for me to say is that I am so so sorry. My heart truly aches for you. Keep writing and we’ll keep reading…you keep Maddie’s beautiful spirit so very alive and both you and she have touched so many…we are forever changed because of your words.
Sandra says:
I can only imagine it must feel like the wind is knocked out of you on a minute by minute basis. Maybe second by second.
Sandra’s last blog post..Pinecrest Weekend
Lynn from For Love or Funny says:
I’m so very, very sorry… I’m thinking of you… My heart is breaking for you.
Lynn from For Love or Funny’s last blog post..I’m freaking myself out
Maile says:
My husband and I think of you and your family all the time, and I check on your blog daily. On the flip side of your awful loss, I admire your good fortune to have been the parent of such a phenomenal child. That connection alone, a deeper connection to her than anyone in this world can have, makes you and your husband truly special and privileged people. I too wish I could bring her back for you. An amazing number of people identify have come to care about your family over the last two years, and have been enchanted by your beautiful daughter. It is a testament to the extraordinary qualities and love that all three of you always shared, and always will.
Maile’s last blog post..Zooming Past Our Door
Maggie says:
I wasn’t prepared. – Heather
I don’t believe we can be prepared for our loved ones to ‘leave the world’, as you said.
I cared for my parents for three and a half years. They were both ‘terminally ill’, as the experts told me. I knew they were going to die from their illnesses. The doctors told me. I prepped myself for it. I was ready.
And then, as both of them took their last breath, they took my breath with them. I was completely taken by surprise. No matter what I had been told, no matter how much I prepped myself . . . I was stunned. I was wordless. There was nothing I could do and nothing I could say. I was useless.
I buried them both, and after my Mom died (she was the 2nd one to die), I closed the shades, locked the doors, and stayed there, alone, for three months solid.
So, I know that helpless/useless/anger-fed feeling. Even though you might not find comfort in this, know that you’re not alone with that feeling, or thought, or whatever the hell it is. For me, it took about three months to get a grip on this part of grief. I hope it doesn’t take much longer than that for you.
You’re still ‘on the beads’, Heather, and you’ll stay there until you can tell us about the day you thought of Maddie and found yourself smiling, again. No matter how long it takes, kid. Take care.
Ninabi says:
I continue to hold you and your sorrow in my heart.
Maddie was so beautiful and so very strong. I recently found your blog and I read your archives completely. Only a very, very strong little baby could survive all that she did when she was born. She was brave, too. I was touched by her sweet nature despite all the pain she had had to go through at times.
I’m so sorry that your greatest joy in the world is now your greatest heartbreak.
I’m always thinking of you.
Denise in Texas says:
Like others, I am yet another stranger out in webland. I am grieving the loss of Maddie right along with you and Mike, yet I know it doesn’t lessen the pain for you. Life has a way of bringing you to your knees, knocking the breath out of you, making you wonder how you can possibly go on…..yet you do. Everything will bring memories of Maddie, and eventually the pain will be more bearable, but you never forget the one you lost. And she was such a special little angel; take comfort in the fact that you and Mike brought such joy to her life, as she did to yours. Thank you so much for sharing your child of joy with the blogworld.
Heather says:
I’ve been reading your blog through a link since the day your little Maddie passed. I felt a connection immediately because I’m a Heather, my husband is Mike and our little girl is a Maddie too. I can’t imagine your pain and I just want to say how very sorry I am for you and your family. Through your pictures and videos, she just radiates joy, health and happiness.
Jennifer says:
Heather,
I am a new reader to your blog. Unfortunately, I didn’t start reading until after Maddie was gone. A friend of mine, who was a regular follower of your blog, told me of your situation and that’s when I began reading. I have read back, awhile back, and I absolutely fell in love with Maddie. I know it may sound ridiculous, since I never knew her personally, but I miss her. I wish I had some magic words I could say to make everything better, but that’s just not possible. Please know that I want to give you and Mike a big cyber-hug, if that makes sense. I am praying for you, Mike, and your families.
Jennifer
Jennifer’s last blog post..Good & Busy Weekend
Anita says:
Heather,
I’ve been reading your blog and checking back on you since you lost your little Maddie. My heart is aching for you. I am so so so so so so sorry for this terrible situation. Words cannot express how sorry I am for your awful loss. I believe you when you write that Maddie was special, you can tell just by looking at her how delicious she is and that she was almost too good to be true.
Meghan says:
your pain is so palpable. i just want to hug you. i have read your blog since last summer and i continue to read you blog every day. your ability/commitment (? i don’t know what to calli it) to share your grief is heroic. i obviously am echoed by thousands with how much we all loved hearing about (and still do) maddie. it must be achingly hard, but i am so glad that you still share stories with us. i wish there was something i could do for your family. i would do anything to take away your hurt. big virtual hugs.
Deb (Long Island, NY) says:
Heather,
I am not new to your blog. I think I have been enjoying your blog for about a year now. I have never commented. Although I wanted to many times recently, I just couldn’t find the words. “I am sorry” just doesn’t feel good enough. I was in shock when I heard about Maddie. I had not been online the days before, so I had no idea she was sick. I never expected that. So, I can imagine how unprepared you were. I do not have a blog but read a few. I have come to truly care about the people I am reading about, and my heart aches for you. I wish I could help you. I can only say what some others have said. Keep writing, and I will keep reading. Thank you for sharing and continuing to blog. I was so hoping you would.
With love,
Debbie
T-Girl says:
Dear Heather,
I am so sorry you are going through this nightmare. You are never goingt to be the same. What you and Mike have experience is a truly defining moment, but you WILL get through it together!
It will not be easy, loosing a child is never easy, but time will help, and please, please be sure that Maddie will still be part of your life as much as you let her. Her soul and spirit will always be with you. Keep talking to her, it is OK, she can hear you and I am sure she would do anything to take away the pain.
Thank you soooo much for sharing with us. A huge hug to you
T-Girl’s last blog post..Day 11 monitoring
Loralee says:
We lived next to an elementary school and when Matthew would nap, the playground noises often sounded like him crying to get up from nap time.
I got up to check on him during those recesses for a long time after he died.
The shock of the unexpected loss takes a long time to subdue. (And I wouldn’t be surprised if you fight it leaving because it SHOULD be shocking forever. You know what I mean.)
The transition from shock and disbelief to a whole new and different kind of “Normal” is a long and tough process.
But we’re here to listen and love you the whole way through. xoxoxo
Loralee’s last blog post..Sideblog: Best friends
anymommy says:
Who could ever be prepared for this? I love the picture you painted of Maddie in her high chair and you in the shower.
anymommy’s last blog post..Just Another Moment
rachael says:
i would give anything and everything i have to bring your baby back to you. just know that she IS here. even though you cannot see her, she is still there. she is still sitting outside the shower door waiting for you to get out and when you are asleep she is still sleeping next to you. even if you aren’t able to hold her in your arms or smell her baby scent she is still your proud little angel following you around and watching over you.
Janie Odum says:
Heather – I found your site from Liz McCarthys site. I’ve been reading it every since. My heart just breaks for you. I know there is nothing that anyone can say to make things easier but I just want you to know that many people are out here thinking of you and Mike and praying for you guys.
Janie – Westland, MI
Kim says:
You can tell from all of your photo’s of Maddie, that she was so full of life, and so very happy. You could of never prepared yourself for something like this Heather… NEVER! Just do the best you can, and know that memories are something that are yours for the keeping….
Lana Holland says:
I just want you to know that I am SO very sorry. I don’t know what else to say… just that I am so sorry.
The other day I had a very tearful woman ask to hold my baby. Usually I don’t let strangers hold my boy, but that day, something about her just made me change my mind. I handed over my baby boy, and she just sat there, holding my baby and crying into his neck. She’d sniff him, then cry. We must have sat there forever (24 minutes). Me, looking completely uncomfortable, and her just balling. Then she explained that she recently (about 6 months ago) lost her red headed little boy. And holding him was just a bit of sunshine in her stormy day. She said that it wasn’t the same, but it helped. And not much helped “these days.” I thought about you that day. And I really hope that you find something that helps.
I don’t know why I shared that.
We’re feeling for you. I hope you find your solace.
Lana – Austin, Texas
Quart says:
XOXO, Heather.
Amy says:
Hi, Heather. You don’t know me…but I feel like I know you. That is the incredible thing about your writing. It is so honest and real and painful and beautiful and connected.
I just bought my 14 month-old twins each a Maddie monster. I know they will get lots of snuggles.
I know so many of us have kissed more knees, and sniffed a bit longer in the napes of necks, then we would have before. Thank you for the gift of deeper appreciation. Thinking of you in Oregon, Amy
Bonnie says:
Heather-
I was outside today in the garden and just started thinking about you guys. Oh, how rough this all must be. I can not even fathom what your thoughts are every day. The joy of thinking of Maddie. And the pain that comes along with it.
Anyway, just thinking about you guys.
Bonnie’s last blog post..Hard working man
Milla says:
I just started reading here a bit ago. . . but I am so, so sorry that you don’t have your baby girl with you. It’s so unfair, and wrong, and the shock comes through this side of the computer, and all I can say is that I’m so sorry. This blog is such a record of Maddie’s life– I feel sometimes like I can look up and see her as you’ve described her, wonderful and full of joy.
Debby says:
All I can say is what a blessing it was that you were laid off and you were able to spend the precious time with Maddie. I thank God for that blessing he gave to you.
Debby’s last blog post..Skye’s new pool ….
April H. says:
I’m not a mother. I cannot even begin to know what you are feeling. But I do know what is like to walk this world without a sibling. My twin, in fact. And as much as I hate that feeling that she is not here on Earth with me, I know she is here with me. She surrounds me. She is in my heart, my soul, and she is with me at all times.
I know this doesn’t help, but she is with you. She is in your heart and your soul and she will be with you forever. It may not help now, but one day, you’ll take comfort in that.
You are in my thoughts every day. You have touched so many lives by sharing your story. Thank you.
April H.’s last blog post..Weigh-In Wednesday : Late
SFox says:
I am totally gutted by your posts. I can’t imagine anything worse than losing a child. Reading your blog, I can see Maddie was a bright, beautiful ray of pure sunshine and she was so loved. I am so, so sorry for your loss.
SFox’s last blog post..Little People who don’t stay little.
jackie says:
Though we are total strangers, I am just heartbroken for you and your family. She was a beautiful little girl. I am so sorry. I pray you can find some peace and comfort in sharing her story with the world. Thank you for allowing me to share in your memories of your precious little angel, Maddie.
Colleen says:
Heather –
I am one of those new people to reading your blog. I was so moved by Maria’s love for you, Mike and Maddie, and so concerned for her grief that I started reading. I never once thought Maddie was a sickly child. One look at her big eyes and shining smile speaks volumes of her glowing spirit. Heather – Her energy, your love, it jumps off the pages and grabs us.
A dear friend of mine lost her almost three year old daughter last year. It was sudden, shocking and I think it will haunt me for the rest of my life. She spoke about seeing Jospehine when she would turn a corner. She told me how she expected her to come running down the hall. And that sometimes she’d forget and think Josephine was just down the street at her mom’s house. The only thing I can tell you from her experience is that somehow you will find a way to keep going. I talked to her today. Today was a good day for her. She does have them. Eventually you will too. I can tell you have so much love in you Heather. This isn’t fair. It isn’t fair.
I had a complicated first pregnancy. I naturally conceived identical twins. At 17 weeks one of my sons died. They don’t know why. I had to carry him to term though and delivered him after our living son Brandon was born. His name was Noah. I held him briefly and we spread his ashes at sea on their first birthday. It sucked and it wasn’t fair. It’s not at all the same as what you are going through. Not at all. But on some level I can relate to what you write. From my own experience I will say that losing Noah was something like having a perfectly good tooth yanked from my mouth without warning, for no discernible reason. It hurt like hell. It burned. It bled. It tasted bad. I couldn’t eat and I couldn’t breathe without pain. As time passed the raw wound healed but there is still a hole there. A place where something was supposed to be and isn’t anymore. In a way that hole is a small comfort to me. To know that it was real and I didn’t dream it all.
I donated to Maria’s walk for Maddie. And I just bought two Maddie Monster’s for my niece Sophia and another for a new life, born just last week. Her name is Morrigan. I know that these sweet girls will hug these little pieces of Maddie. I know that Maddie will bring them comfort and love.
You and Mike don’t deserve this heartache. I wish I could hug you but all I can do is send you strength whenever you need it.
Much love,
colleen
Alexandra says:
Please let us always know how you are surviving. That’s what it is: just surviving, second by second.
I love you and Mike and pray for you. I pray that you believe that you will see Maddie again. I know you will.
Tasha says:
I read your blog often, mostly to check in to see how you are doing. I don’t know you and you certainly don’t know me, but I have read your blog day after day and just sobbed. I don’t have any magic words for you because there are none.
I think that it is amazing that you are so real and honest about where you are and how you feel right now. I think that getting what you are thinking out and expressing it is probably the healthiest thing you can do for yourself right now.
No one is meant to deal with the loss of a child. We just aren’t wired for it. I hope that you will always feel that you have total freedom to express yourself any way you choose through your blog.
It keeps me coming back to check in on you and I just keep praying that the Lord will carry you through this valley.
Tasha
Trish says:
Of course you weren’t prepared. How could you have been?
I’m sorry for your pain and the loneliness. I wish it didn’t hurt. I wish she were still here. I’m so sorry.
Trish’s last blog post..Random Tuesday: April can kiss my a$$
AB says:
I’m so heartbroken for you- I’ve read so many of your posts and you were such a good mom that no sense can be made of this. No one can make this easier for you- but if there is any consolation in how many people are affected (and maybe take their own less for granted?) and feel your pain.. there are a lot of us.
Thinking of you often and sending my sincerest sympathies… nothing could be worse.
Delenn says:
Thinking of you and your daughter. I recently got laid off and the one thing people said to me was “at least you will have time to spend with your daughter”. I scoffed at that…I am definately not the stay at home type of mom, I love kids when they are older (she is 1 year old), etc. What you said, those things you did…reminded me that one can never take those things for granted…that one can never be prepared.
Wishing you peace.
Ana says:
Heather, I have to tell you – I discovered your blog days after Maddie’s passing, when amomtwoboys was posting for you. And when I did, I immediately started reading your archives, searching for an explanation. Looking for blogs about how sick she was, about how she was losing her battle with a terrible illness. But nothing. Just an insanely vibrant, beautiful, larger-than-life little girl. It would not have made it any less sad or unfair had she been sickly, but it would have been an explanation that maybe I could comprehend. But this is completely incomprehensible and impossible to believe. It has haunted me since I first “met” Maddie, so I cannot even imagine how you and Mike must be haunted. I say this every time I visit, but I am so, so sorry you are going through this. And I am so, so sorry that that sweet little girl is not here to light up your life and this world.
Kristel says:
Oh Heather
I have thought, over and over, of the right words to say, knowing full well there aren’t any. I’ve meant, time and time again, to say something- anything. But I wanted it to mean something. Even if it were a millionth of a fraction of what your little girl has meant, not only to me but all the people who never got to meat her but have been so touched by her. But it never came. And time passed, so cruelly and quickly, and it seemed too late. But it’s never too late. To remind you how loved you are and how hearts around the world break to know what you have lost and how many people would do anything… everything… to change it, if they could. Anything.
I’ve felt guilty for never commenting when things were good, because I didn’t feel I had a right to share in your happiness, your joy and your beautiful little girl. And now I feel guilty for commenting because I never commented before… and because I couldn’t possibly understand and because there is nothing I could say.
My hurt pales in comparison to losing a child, but I understand how painful dates can be. You count them in your head, you notice them on the calendar. They hit you when you least expect it. And the thing is, chickey-poo, that it only gets worse. That first year is so tough but after that you can’t count in terms of days and weeks and that one thing you so desperately want to get back to keeps getting further away. As painful as they are for you, dates are one more thing you can at least hang on to. Because I know you don’t believe it but some day, perhaps long in the future, one of those dates will pass and it will be just as painful to realize that you didn’t remember. It’s a no-win situation and if only there was anything I could do to change that for you, I would.
My heart hurts for you. And I am so sorry that there are no words that could help. It sounds trite but all I can do is thank you for being so selfless as to share your little girl with the rest of us. If love could build a bridge…
Nicholas says:
I wish I could hug you right now!You are such a strong person and your little Maddie is watching you with a big smile right now so proud of you! You will one day see her again and you shouldn’t have had to be prepared. She was your “little person”. It will take time but things will get better and having her memories around will help! You have a strong network of people who are here for you!
If you want some source of laughter! Please do go to my site!
Rachel says:
I am just so terribly sorry for you and Mike. I read your blog every day to see how you are doing. For some reason I haven’t bookmarked it; I just always type “remembermaddie.com” in the URL box and up it comes…
…well, tonight my son was being difficult, and I started to get mad, and then it came up in my head:
Remember Maddie.
And I remembered Maddie, and I thought about you, and your agony, and how you would give anything to have her back, and I shut my mouth and left the room until I could calm down.
Thank you, Heather, for sharing Maddie with us. Like others, I really do believe that she is still with you. I just wish that you could hold her.
Lissa says:
Love you Heather.
mandy says:
I can offer nothing but to say that, for all of us who have lost children, we understand.
I witness. I am reading. I understand.
mandy’s last blog post..I Left My Heart in San Francisco
Funsize says:
I do the same thing, expecting to wake up in the morning and feel my son hiccuping and kicking me from the inside. I still get phantom kicks. Who could expect your baby to die, nobody thinks that could ever happen to them. Until it does. I’m so sorry momma. I’m so sorry this is your new reality.
((hugs))
Funsize’s last blog post..More Salt in my Wounds
Lillian says:
daily remembering you, mike and maddie…there are no words.
Lillian’s last blog post..exciting announcement!
Michelle W says:
I was thinking of you today as I do everyday, it is in the poignant moments of my day when I reflect on all you’ve lost and my heart breaks again. It doesn’t seem possible when I look at that face, hear that laugh and see the brightness in her eyes. I don’t expect to find words that would comfort you, all that would comfort you right now would be having Maddie where she belongs, in your arms. Just the same I wish more than you know that I could heal and comfort all of you.
Blue rain says:
I think of Maddie, Mike and you everyday. Reading your blog, feels like, serum of courage, strength and faith are being injected in me.
Wish I could take away your pain :((
Be Well…
Blue rain’s last blog post..So,
Barbara Howard says:
It occurs to me as I read through your blog that there are many events that we human beings are unprepared for, at least on a thinking level. We are therefore jarred to an emotional level to deal with these things, as you have learned through the past months, with your difficult pregnancy, Maddie’s complicated birth, her awesome life, and her awful death. It also occurs to me that HOW we respond to these events is a true measure of our humanity, and often shines a light on who we truly are.
I know my observation can’t give you comfort, but please know that you are only doing what you can do, knowing the absolute depth of your love for your beautiful daughter and your utter despair at the emptiness you’re experienced at being left to plod through the days and nights without her.
I send you my love, and every positive human vibration it is possible to share, and hope for strength and healing for both of you.
Barbara
Gwen Jackson says:
Everytime I read your words I just ACHE for you. It seems so unfair that Maddie is gone. It IS unfair. She deserved a full life with the people who loved her.
I know it’s a different ache, but my sister passed away in 2007. I remember that I didn’t want the hurt to go away, because I thought that when it went away that would mean her importance in my life would go away too. So when people would say, “It will get better”, it made me feel worse somehow. What I didn’t know was that it was possible to remember, to relive the moments with her, without feeling the extreme and severe pain. I hope that you can get to that place one day – where you can remember without hurting so deeply. I’m thinking of you – ~gwen
Gwen Jackson’s last blog post..A Twig for Tears
lisa wood says:
how can you be prepared for that? No mum should ever be prepared for that…you are just amazing how you can share what you are going through…..i cry every time i read about your beautiful Maddie and wish that i just hug you. You have made me realise how important life really is. I can not imagine your pain, but know this….I can imagine that you should not be going through this…Maddie was just so beautiful and you could see by her photos how much she was loved. Keep strong and know that we are all here for you.
From one Mum to another……love hugs and kisses sent your way xxx
lisa wood’s last blog post..Grateful….Life Works In Mysterious Ways
vickie says:
I was thinking of your family today as I noticed a random purple tulip had popped up in a place where I didn’t know one was planted. I have no magic words – just know that so many people wish you were not going through this. ((hugs)).
Chris says:
You have made it so clear how healthy and vibrant and full of life Maddie was, I feel like I KNEW her from reading your entries, and watching the videos and pictures. She was an amazing, incredible little girl and I can’t imagine anyone reading this thinking she was anything but full of life and love.
I don’t think anyone is ever “prepared” for grief. Grief is sneaky, and all consuming and just plain mean. It’s different for me, it was my mom. My mother was my absolute best friend in the world my entire life–even those dreaded teenage years–and looking back I should have “been prepared” but I wasn’t–I’m still not. The grief of losing the person you are closest to in the world, it sneaks up at awful times. Absolutely, you can prepare for those days you KNOW are going to get you, but then there are the insididious, sneaky times grief comes up and hits you, and no one can be prepared for those.
On a lighter note, I have purple flowers blooming all over my yard and every time I look at them I think of your Maddie.
You have an amazing gift in your writing Heather. I come back and read every day even though more days than not I end up in tears as I feel your pain. Thank you for sharing Maddie with us–she, and you are amazing and an inspiration.
Jodee says:
I automatically buy everything purple for my daughter and myself now… Thinking of you every day!. (( HUGS)))
Jodee’s last blog post..Wordless Wednesdays
Vinegar Martinis says:
Maddie’s story has touched me in ways I cannot express as eloquently and beautifully as it deserves. Thank you for sharing your words, your daughter, and your feelings so freely with us.
Many prayers and hugs for you and your family!
Vinegar Martinis’s last blog post..Somebody’s Gotta Go First
Charmed says:
I am so sorry for your loss. I cannot even begin to imagine the pain of losing a child. You will be in my thoughts and prayers. I pray your pain lightens every day.
Jasmin says:
I know there is nothing I can say that will make a difference in how you are feeling. I am sorry that you have to go through this at all. I wish that I’d happened accross your blog under different circumstances.
I know nothing anyone says will bring you solace but I wanted you to know that reading your blog has given me a bigger appreciation for the time I get to spend with my children. It has changed me.
I think about you every day and send a quick prayer to God asking him to help carry you through this most difficult time.
Jasmin
Emilie says:
I checked out your site from the Blogger Awards and liked it. I voted for you. I hope you win.
Please check out my site nominated for the best blog design. http://bloggerschoiceawards.com/blogs/show/73022. I hope you will vote for me also.
Emilie
Cute Obsession
rachel-asouthernfairytale says:
Aww honey.
Hugs and much love.
rachel-asouthernfairytale’s last blog post..Share A Little Comfort and Get a Little Comfort with Kraft
Amy in OHio says:
Every time my mind wonders to you I have to jolt myself back into this horrible reality. I think a lot of us will be stuck on April 6th for a long time, going to bed with prayers towards you and Mike and of course Maddie, knowing that little wonder would bounce back and be in her bikini in no time. Then I remember where you are and I remember this horror.
I’m probably not saying it right, but I wish I was crazy and I wish this was all a bad dream and I wish there was something, anything to make things better. I know there isn’t, so all I can do is read your beautiful words and miss your beautiful Maddie. Love you Heather.
Amy in OHio’s last blog post..Kroger Winners
Ali says:
I hope you can find peace Heather, just some peace.
Ali’s last blog post..The Great Switch
Linda says:
Heather,
I have never met you, but I feel like I know you, and I wish I did. I had never met Maddie, but I feel like I know her, and I wish I did.
My husband often wonders why I am crying while on my computer. You have tought me so much about being a mother, and a woman and for that I want to thank you.
You and Maddie are on my mind constantly, I wish there was something I could do or say that would help. xo
Adelas says:
Nothing wise to say, no comfort other than an extra number in the comment-post count to prove we’re listening.
At the risk of sounding ridiculous, I have to tell you that I catch myself doing something similar. As a watcher-from-afar, here and on any blog, I have to imagine the things happening when I read about them. I have to imagine the inside of a house, the sound of a laugh, the particular facial expression. I animate whatever I’m given (blog post, flickr photo) (or what happens after the video camera turned off). Afterward, when thinking about the poster, I wonder where they are, what they’re doing RIGHT NOW.
And there are times now that I’m re-playing your videos, re-visiting your flicker stream, and catch myself doing it the same as I was doing 6 weeks ago: “Heather just posted this video of Maddie from a while ago, I wonder what they’re doing today” or “Maddie is so bubbly, I just can’t wait until the day I can meet those two”…
God forbid it sound as if I can compare my jolts back to reality to yours, but if nothing else, it serves as a reminder each time *I* do it that I need to lift you up in prayer. And I do. Even if sometimes it’s just a groan as I allow my heart to ache for you, trusting that God “gets it”.
Seana says:
Just some hugs! Letting you know that you are in my thoughts and prayers. Every time I read your posts I appreciate what I have more and more. Nothing is for granted and I am learning that through you, Mike and Maddie.
Seana
Monica says:
I came here through Amalah’s blog…and I keep coming just to feel that if I read this, I would be able, by some magicall power, to take some weight, sadeness or the sense of emptiness out of you.
I don’t know if my English is good or not, I’m from Chile..so I speak Spanish…And I don’t know if I’m expressing the things I want to say in the right way..
I just wanted to say I am sorry
Ms. Lee says:
Dear Heather, Mike, and Rigby,
First let me offer my deepest sympathy for your loss. Second, let me thank you for sharing the incredible Madeline Spohr with this world. I lost my daughter to prematurity in April 2007 and never got to experience the incredible girlyness of having a daughter. I have a baby son who is my world and heart but boys and girls are different. Through your blog I got to experience vicariously what having a daughter would have felt like. I will say, although I know you can’t believe it now, that things do get better. You are now fundametally different people than you were before Madeline, you are living in the dark shadow of loss. I will never be the same person I was before my daughter’s brief time here but I have healed enough to function, to be an incredible mom to my beautiful son, and to smile and laugh again. Please take care of each other. Hugs.
Stefanie says:
I know you already have a few hundred comments but I had to share publicly that MADDIE WAS NOT SICKLY. She was, like you said Heather, vibrant, thriving. When I heard she was gone I immediately went into denial. “That’s just not possible. She was fine!! She had a little cough. That just doesn’t happen.” I still can’t wrap my mind around it. I feel like I’ve been punch in the stomach everytime I think about it. I’ve asked a lot of doctors I know to try and explain to me how this can happen and they all say, “It usually doesn’t, but sometimes…it does.” NO COMFORT THERE. I feel angry for you, sad for you, hurt for you. But I’m not you and in the end, you are carrying this. And Mike is carrying this. All we can possibly do is try to lighten the load. Never hold back on telling us how we can do this. We are all wishing to try.
Stefanie’s last blog post..My Babies Look Good in Hats
Callista says:
Oh wow. This is my absolute first visit to your blog, what a post to start on. I’m so sorry for you loss, your writing is incredible, I just wish it could have been on a happier subject. HUGS
Lee says:
I am a fellow LA mom who learned about your story from I’m not sure where but I’ve been reading along and today I must simply say your story has touched my soul and of course how could you have ever ever been prepared?
There are no words but you have many many people praying for you and thinking of you and your family.
Lee’s last blog post..My Life/Her Life Before My Eyes
Chris says:
I have been brought to tears by your touching post. I ache inside for you and am so, so sorry for your loss. I can’t imagine what you must be going through. I know that I will hug my daughter a little tighter, kiss her a bit longer and read her just that one more book tonight because of your story. Thank you for your strength to share what you are going through.
God Bless you and your family.
Chris’s last blog post..Announcing: Amazing Moms!
Julie says:
I’m thinking of you and your Maddie. Was just in the ER with my baby for breathing problems… have been there many times with all 3 boys, who were all preemies. None of them sickly, as you say. It has never escaped me, what can happen, and I am so very sorry it happened to you. More sorry than I could ever express. None of us could ever, ever be prepared for the worst possible outcome. Bless you and bless Maddie. We have not and will not forget her- you can be sure of that.
Sarah says:
I am just *so* sorry. I don’t have any comforting words, if I ever have had them. I ache for your heartbrokeness. I wish there was anything I could say or do. We’ll look at pictures of your sweet Maddie and just remember how she made the world a better place, both while she was here with you and now that she’s gone. So much love and hugs for you and Mike.
ErinR says:
Your Maddie was a beautiful, vibrant child with the heart of a warrior. She was not a sickly child at all. She was a force of nature.
ErinR says:
Umm, sorry. That smiley face looks so wrong in my previous post. Sorry about that.
Jody says:
I know we’ve only talked/emailed/posted a few times. I just have to say that my heart is just broken for you. I’m at a loss for anything to say. There’s nothing anyone can say that makes any of this any better. Maddie was gorgeous. She seemed to be an awesome child. Life isn’t fair. I can honestly say with each post you write these days I just love you and feel for you. Know I think of you and pray for you often.
Amanda says:
You don’t know how badly I wish I could do something to make this all better for you, to bring Maddie back to you. My heart breaks every time I read your words.
Amanda’s last blog post..My disappointing Mother’s Day
Corey says:
Heather,
I never “knew” you until after your sweet Maddie died. I saw her pictures all over the blogosphere thought she was such an adorable little sprite, so full of joy in every picture I ever saw. She made me want to read every word you had ever written about her.
You might try keeping one of Maddie’s toys or blankets in a Ziploc bag to keep her scent longer. I remember when my Jess was born, thinking that I might not recognize her in a nursery full of babies, but if you blindfolded me and let me sniff their little heads, I could find her in a heartbeat.
Much love, and many prayers for you & Mike,
Corey
Corey’s last blog post..Can I Get a New Family in Aisle One, Please?
preTzel says:
Heather. You and Mike continue to be in my thoughts. ((((HUGS!))))
preTzel’s last blog post..Angels and Demons
Susan says:
I think I can understand your anger about “she always got better before, why didn’t she THIS TIME?” The not knowing why, and knowing that you will never have that knowledge and real closure, has got to be just infuriating and frustrating and awful. I am sorry for your pain. I am sorry that sweet memories like taking a shower have now turned into pain. I hope in time (such a cliche) that the sweetness alone will remain and you can celebrate the good and release the bad.
Angel says:
That baby brought joy and strength into the lives of everyone she met. That beautiful little baby was a gift. She was smart and courageous and passionate and silly and she deserved to live forever. Babies should not be allowed to die. It is not fair, and it is not right.
My heart goes out to you, Heather and Mike, for the incredible loss you’ve suffered. I began reading this blog this past Mother’s Day. In that short time, I’ve seen joy and hardship and the worst pain I can think of. God bless you both for being so strong in the face of such an immense tragedy. I don’t think I could do it.
Angel’s last blog post..would I shoot up a school?
bridget says:
I’m just finding your blog today and wanted you to know that my heart breaks for you. We, too, are parents of a preemie…now 10…and I will look at him with fresh eyes today.
Your pictures of Maddie are beautiful. Those eyes!
I wish for peace for you and your husband. I’m glad she had such good parents…I can just tell from your blog what an beautiful life she had with you.
bridget’s last blog post..Teacher gifts: homemade, kid-decorated and delicious!
Melody says:
(((Hugs))) I don’t even know what to say, but I want you to know I’m thinking of your precious baby girl, and I’m praying for you guys.
Kira says:
My heart breaks for you each and every day. Not a day, probably not an hour, goes by that I don’t think of your Maddie. It isn’t fair that she is gone. It isn’t right.
Sending love and wishing it could truly help you right now.
Sareh says:
I can’t imagine what you’re going through and I’m not sure I have the words to express how deeply heartbroken I am for you, Heather. I think about you, Mike and Maddie all the time and when you update, I talk to my husband or mom or sister and talk about you as if you were a close friend. At times I cry for you. All I wish for you is peace….sending hugs and good thoughts to you as always.
Sareh’s last blog post..The name of the game is….POOP!
Dawn @ My Home Sweet Home says:
My heart just hurts for you. I really just don’t know what else to say, but know that you are prayed for.
Dawn @ My Home Sweet Home’s last blog post..9 Days of NAPP Day 2: NAPP on Twitter
amanda says:
Keep being strong. You have so many supporters!
amanda’s last blog post..It hit me. Hard.
Mikki says:
I just want to write and tell you how very sorry I am for your loss. You are an amazing mother and an amazing person. You and your daughter have such a strong, incredible and loving bond. Nothing will ever break that, not time, not death, not anything. I know that hearing it will get easier will not help. Part of you doesn’t want it to get easier, Maddie is your daughter. Losing her shouldn’t ever get easier. And it doesn’t really, what gets easier is seeing those who are still living, still around you. It will get easier to hear them, to see them, to understand them. But the pain of losing Maddie will always be there. That is not a bad thing; it is a loss that can not compare with anything else. As silly as it sounds, as trite as it sounds, one of the things that helped me the most was someone telling me that my baby was waiting for me, that I would see him in heaven. I know that it is a long time from now but it gives me hope that he is there waiting for me. Know that Maddie is waiting for you. You will see her again.
You and your family are in my thoughts and prayers.
Love,
Mikki
Connie says:
No one is ever prepared, even when death is “expected” it is still death and it hurts, deeply. I send you love and the hope that you’ll eventually get to the place where those things that hit you hard now, will bring smiles instead.
Some day it will happen, when you’re not expecting it, and you’ll realize that you have a different relationship with your grief. At first you may feel guilty, but eventually you’ll realize that it’s ok. There’s no way of knowing when it will happen – it could be months or years – but it will.
Thinking of you always and wishing life was different for you and your beautiful husband and baby.
Connie
nicole says:
I first read your twitter page the day you lost your precious Maddie. I saw you write your last tweet before the terrible news, and I kept coming back to check over and over. I checked your friend’s time lines the same way. I instinctively connected with your tweet because my daughter, not much older than yours, survived a life-threatening condition at birth. Gasping, my heart stopped when I heard the news. I’m so sorry. Even though I’ve only posted to your blog once, I have checked your twitter page every day since Maddie died. I’ve cried every day since she died. I am only a stranger, but her life has touched me deeply, and has made me more grateful and appreciative of what I have. Thank you for being wiling to share her with us all. She is yours forever even when the reminders fade. Nothing changes the love you still share. Trust this. You are inseparable in a way that’s not fully possible to understand. Look inward. Feel inward. That’s where she is and will always be.
Paul @ Palabuzz says:
I know what you are going through right now. My brother died last May 4, 2009 and sometimes I thought that I am hearing his voice but then I remember that he is already dead.
Paul @ Palabuzz’s last blog post..Taken from Broad Daylight
melanie says:
***hugs***
melanie’s last blog post..Six Word Saturday – Lily
Krissa says:
You were not prepared. You had no warning, no hint….. You would never have been ready, but you COULD have been prepared. I am so sorry that you weren’t.
Leita Reyna says:
Remember remember remember- the joy I think the fact that it was so unexpected reminds all of us readers that this could be any of us at any time… and perhaps that’s why we (I) are so moved and feel so connected to you and feel an uncontrollable need to comfort you… continuously sending prayers and lots of love to you and your family.
Leita Reyna’s last blog post..Care from a 4 Year Old
Kirsten says:
I only started reading this blog the day Maddie died… I read back through the posts, back to where the blog first started. You conveyed her life so well in your words, she lives on in these pages.
You’ve brought her into my life so much that it aches my heart to read each new post. I wish I could be there to give you a big hug, or take you for coffee or something. I wish I could make it all better.
But remember this: Though she can’t come back, all you do in her memory keeps a part of her alive within your soul, within the world. Every baby who is helped in memory of Maddie, each time someone is brought to awareness about children in need because of your beautiful girl is a mark in her honour.
In my beliefs, we are brought back to life many times to learn all the lessons of the universe. The lessons Maddie had to learn in such a short time were many, and her soul will go on having learned them. The lessons you have learned are harsher, I believe. But one day your soul will go on, too, richer for having learned them. The thing you should know is that some souls are deeply entwined with one another. Lovers, siblings, close friends, parents, children… in all our lives they can be found, their souls inextricably linked with ours.
You will see Maddie again. When you see her, you will know her. It may not be in this life, but you will see her. She is one of your companions throughout eternity, and while she is not physically with you now, she is never truly far away.
I’m not telling you that you’ll feel better. Just keep sharing your pain, so that we can help share the burden.
Kirsten’s last blog post..It’s the little things that make this job so worthwhile.
Lindsay from Florida says:
I had a whole post written out about how much I loved one of your videos (the one where you ask a young boy who I’m guessing is your nephew “How do you like them apples?” in response to a question he asked). Even though I’ve never met you, your spirited response to such a simple question of his just seemed to sum up the humor, love, and joy that I, during these last few weeks catching up on your blog, have come to realize define you.
I then dramatically shortened that part of the post because there’s really only one thing I can write that seems to have any meaning at all, and that is simply what has already been written 1,000 times: I’m sorry, Heather. I am so SO excruciatingly sorry. You have been dealt the most difficult hands life can deal, between your daughter and your best friend. I do not know why you must endure this…I’m not sure there is a “why” when such a light as your Maddie left this earth far too soon. I, another stranger, hold you in my heart every day. I will offer no cliches…but I do hope and pray that life will one day allow you to re-discover joy and laughter…they are so clearly a part of you, so clearly the defining traits of your mothering of Maddie.
Holding you and Mike close today in my thoughts.
Casey says:
How could you be prepared? How can you not miss her with every fiber of your being? I’m amazed that you can write about Maddie with such grace, but then again, it’s clear that you and Mike are extraordinary people.
I’m thinking of you often.
Casey’s last blog post..Mother’s Day in a Pieshell
Kristen says:
Like the other’s I think of you and Mike daily and the unbearable pain you are going through. Sending you good wishes and prayers. Maddie was a beautiful little girl who will be remembered by so many.
A reader from Massachusetts
Jane says:
Very, very sorry. I can’t imagine the loss you feel. Keep trucking along and processing through this grieving process. I read a poem once with the line “the sadness of the present days Is locked and set in time, And moving to the future Is a slow and painful climb. But all the feelings that are now So vivid and so real Can’t hold their fresh intensity As time begins to heal.” Believe in the power of time – it will get better. You’ll always have a hole in your heart – the loss of a child is against the natural order of things – but it will get better with time. I pray.
Mary says:
I think the ones we expect to be difficult are the ones that we’re at least kind of mentally prepared for. You expect to be kicked in the gut and punched in the face, so it’s not QUITE as surprising when you are. It’s the random day when you see something that you’d tell the other person and suddenly, there’s the kick at 20x the strength it was the last time. Cry, scream, throw things, break things. And keep journaling, however you do it. Whether you post it or keep it to yourself in your own diary, keep doing it. We will all continue to hold you up and help in whatever way we can. Although I don’t know your family personally, please know that if there is anything I could do, I will do it.
Jessica says:
I read your blog and I weep heavily for all of you… I simply cannot even fathom. I just wanted to tell you that you, Mike and Maddie have affected my life profoundly. My days with my children are different because of you three, I don’t take any second for granted. Thank you for sharing your laughs, your joys, your tears and your sorrow with us. I am sending you love from someone that you will probably never meet but I am here, and I am praying for you all.
Noelle says:
Dearest Heather, I tried for a couple of days to come up with the “right” words to say. I could not. So I just wanted you to know that I am thinking of you both and wishing it didn’t have to be this way.
Nina says:
I don’t know what to say……..I’m sorry, I’m sorry Maddie is gone and I’m sorry that you are hurting. I can’t even imagine……I’m so sorry
Mama Kalila says:
hugs… and prayers
Mama Kalila’s last blog post..MPM – 18 May – 24 May
jv says:
Every update makes me bawl my eyes out. I am feeling so much pain for you. I can only imagine your grief, yet it literally blows my mind. Hugs hugs hugs.
Myspace Layouts says:
Sorry to hear that news.
Myspace Layouts says:
Sending you good wishes and prayers. Maddie was a beautiful little girl who will be remembered by so many.
Myspace Layouts’s last blog post..Abstract Myspace Layouts
Sarcastic Mom (Lotus Carroll) says:
The unexpected stuff is always the worst with grief, I’ve found. Fucking shit.
Sarcastic Mom (Lotus Carroll)’s last blog post..Next time, I’ll aim for the pickles and tuna.
merlotmom says:
My heart breaks for both you and Mike. I wish more than anything that Maddie were still with you and that it was all just a horrible nightmare. Just take it day by day, minute by minute. I am here for both of you.
merlotmom’s last blog post..Notes from the PMS Trenches