Part of last week’s trip to Washington DC was to help raise awareness for March of Dimes health care reform priorities. The March of Dimes isn’t for or against specific bills, rather they have three key issues they want lawmakers to keep in mind:
- Coverage for maternity and pediatric care
- Prohibition of pre-existing condition exclusions
- Maintain Medicaid and CHIP eligibility levels for pregnant women and children
There was a contingent of us from California, so we went to Capitol Hill together to tell to Congressmen and Women our stories. We had two college women (former preemies), the nation’s youth fundraising leader (an amazingly poised sixth grader named Jordan) and her mom, along with some March of Dimes dignitaries like the State Director for the CA Chapter.
Our first and longest meeting was with Congressman Pete Stark from California. In our meeting, I spoke about my experiences trying to get health insurance for myself and Madeline, and how we were both denied because of our pre-existing conditions. I told him and his aide about how our only option for health insurance was COBRA, and how despicable I thought it was that through no fault of her own my child couldn’t get health insurance. It was hard to talk about Maddie, but I really wanted someone who could make a difference to hear about her story. Hopefully things will change before our COBRA option runs out in May.
After we left Congressman Stark’s office, we stopped by the offices of Henry Waxman, Maxine Waters, and Lucille Roybal-Allard (all CA representatives). One of Ms. Roybal-Allard’s aides then gave us a tour of the Capitol and its surrounding buildings. It was (admittedly) way too much walking for me, but it was an opportunity of a lifetime (and Mike kept asking me how I was every five seconds).
The inside of the Capitol Rotunda
Mike looks at some of the statues in the collection
The history inside the building was amazing. US History is one of my favorite subjects, so it was a really cool for me to see so much of it in person. We also were lucky enough to go to the gallery and watch part of a session of the House of Representatives. It was much more interesting in person than on CSPAN!
As amazing as the tour was, I am still so grateful Mike and I were asked to share our story with members of Congress. I am hopeful that having a face to go with health care issues made a difference. I didn’t expect any Congress members to look at me, pregnant with Binky, and say that they wouldn’t support reform that would make a difference for us. But I’m hoping that if they decide to vote against it, the image of my family and the countless others like us will pop in their heads before they place their vote.
{ 103 comments… read them below or add one }
I am glad that you were able to speak to people.
.-= Bobbi Janay´s last blog ..Review’s? =-.
Heather/Mike/Maddie and Binky: I cannot even begin to tell you how much I admire all of you. YOU GO!!!!
What an amazing thing you are doing to help others.
((((HUGS)))))
You’re amazing. What a great story to tell your Binky someday. Go team Maddie!
It is great to see the government rallying behind such a great cause.
.-= Steph´s last blog ..Who Says Dogs Can’t Dance? Single Doggies =-.
That’s so awesome that they asked you guys to go! That’s incredible! Great photos!
I’ve always wanted to visit DC. I hope that your congressmen & women listened and took to heart what you and the others said because reform is necessary.
If you spoke half as eloquently there as you write here (and I am certain that is at least the case!), you cannot have failed to make your point. Good on you for standing up for others and fighting for this cause. I know that travelling and speaking can’t have been the easiest thing to do at the moment, either – I have travelled during pregnancy, not even risky pregnancies, and it’s very hard! I hope you are home and resting and eating creamcakes and making Mike look after you.
.-= Kate @ UpsideBackwards´s last blog ..Counting =-.
Yes, we got home yesterday at noon. I think it will take me a week to recover!
Go Spohrs!! It’s awesome what you guys are doing!
Binky is going to be soo proud of her mama and daddy!
Love, Jenn in CA
.-= Jenn´s last blog ..Changes are coming =-.
You are very courageous. Thank you for fighting on such an important issue, even when it was hard and painful to do. We love you and are so very proud of you! ~Susan
.-= Susan (woo222)´s last blog ..Simple Earth =-.
It’s when the little people (as opposite to the rich and famous) who make the most difference. That is, I know you are famous but I am not so sure if you are rich, but hey, you hopefully get my point here
It takes kudo’t to go there and say your say, but that is how the world changes, because people like you and your fellow MODimers DO something…
.-= catherine lucas´s last blog ..Fall? Or autumn? =-.
LOL, definitely the opposite of rich. But thank you for the kudos!
Thank you Heather and Mike for continuing such a meaningful legacy of love for Madeline. I can imagine that it is not easy for you, but you have been willing to take on amazing challenges to make a difference in lives of others.
You are wonderful people, parents, friends, and Americans. I am so grateful to you for giving voice to the need for reform to protect women and children and families. As always, I wish you comfort and peace and a healthy binky and thanks- a world of thanks for sharing your family’s story, for the luminous Madeline.
.-= Kelly´s last blog ..I Miss My Thumb – A Sucker’s Lament =-.
You guys rock!
And you look great in the picture!
xo from CT,
Amanda
hee, thanks. I am glad that picture was taken at the beginning of the day and not the end!
You rule. Thank you for fighting this fight and for working, in spite of your pain, to change the crappy state of health care in America. Your family, and every family in this country, deserves better. Cheers to you.
Wow, Heather, what a trip! I’m so glad you had the chance to speak to our representatives.
.-= Lynn from For Love or Funny´s last blog ..Middle Age is the bane of my existence. =-.
You, Mike, Binky and Maddie definitely put a beautiful human face on the healthcare issue. I cannot imagine any intelligent person hearing your story and not taking action to fix what isn’t working for the rest of us. Thank you!
Good job! This is what makes you guys awesome peoples!
.-= Rebecca´s last blog ..Why Reality Love Shows Fail =-.
You both are amazing. What a difference you and Maddie will make.
.-= Scary Mommy´s last blog ..Folks who go bump in the night =-.
Maddie and Binky are so lucky to have fantastic parents that love them so much they are moving political mountains for them. You guys are great! I’m not sure that I know too many other people who would put the needs of EVERY ONE struggling with a complicated pregnancy and the health insurance maze before their own needs. It hurt to tell Maddie’s story but you did it for them anyway! You guys really are my heros!
.-= charlane´s last blog ..Yo Gabba Gabba =-.
You go, girl! And I think it’s sweet that Mike keeps asking you how you are even if it does get annoying.
Sounds like an amazing trip! I hope things change for the better. You and Mike are inspiring and honoring Maddie in such wonderful ways. Binky is lucky to have such great parents. Thinking of you always. ITB
There are no words for how incredible you and Mike are.
.-= Jen @ lifelove’n'wine´s last blog ..Friday Fill-Ins – Maine Bound! =-.
I’m so proud of you for doing this, and I know Maddie is too!
.-= Angie´s last blog ..Meredith and her first pair of Fosters =-.
Thank you for doing that, Heather. You and Binky should not have to about health insurance during a time that you are so fully focused on just keeping everyone healthy.
I worry constantly about our health insurance and since my husband is self-employed, it is easy to see a day in the near-future that we can’t afford it. These problems should not happen in the US. They just shouldn’t.
Glad you had a productive trrip…now go lay down and put your legs up!!!!! Don’t over-do it!!!! Stay put Bink!!!! Auntie Shannon
I’m so proud of you. I know it was so hard, but you did it and you are awesome.
.-= pgoodness´s last blog ..My guys =-.
Thanks for telling us about your experience. I am sure you and the others did make a difference. It surely will have an impact on them to have heard your stories in person and I believe a positive one. Now I hope you get some rest, you must be worn out!
Awesome!! I hope that they do listen and that they do remember you and your family!
((((HUGS))))
.-= Heather´s last blog ..Not me Monday! =-.
What a legacy to leave for your daughters. Keep telling your story….you make an incredible difference, whether you know it or not!! ha ha
thank you for lobbying for health care on the part of us mommas.
.-= Momma Uncensored´s last blog ..ring-a-ding-ding =-.
So glad you got to speak to some representatives so they can put a face to a cause. I love this kind of activism. I will be giving money to the March of Dimes in Maddie’s honor this year.
.-= Deborah´s last blog ..A Very Bad Picture of a Very Fast Sketch =-.
Thank you for doing this. Part of my work involves facilitating contact between affected women and their elected representatives to share real life stories regarding health care access and work/family issues.
Personal contact is very powerful.
I am sure your story moved your reps as much as it has your readers. You and Mike really are wonderful, I’m sure that was difficult to do both physically and emotionally.
well, if you ever need more women to tell their story, you know where to find me! What a cool job.
What a great opportunity for you to be a shining light for preemies everywhere! Thank you!
.-= Jen´s last blog ..sometimes, I like to brag =-.
Your words make me a better mother everyday…
May your story help these Congressman vote to make us a better country…
You are an inspiration
I went to DC in September as a part of Campus Firewatch to talk to Congress about upcoming bills to make college housing safer for today’s students and to give grant money to colleges to further educate students about fire safety.
My trip fell in between what would have been my daughter’s 26th birthday on 9/12 and the 6th anniversary of her death on 9/20. I had never been to DC before so that in itself was amazing.
But the opportunity to tell my story about my daughter to members of Congress was incredible and I was pinching myself most of the day because I knew not many people have such an opportunity.
I’m so glad that you got to share your story as well.
I’m sure we made our daughter’s proud!
.-= Kim Wencl´s last blog ..My Days In D.C. =-.
That’s really amazing Kim! I am so glad you had the opportunity and I’m certain you made a difference.
After the CFW activities on the hill were over my other daughter Anna and her best friend Stephanie joined me in DC for an intense girls weekend of sightseeing. It was so much fun. We were at Arlington Cemetery on 9/20 which is the 6th anniversary of Elizabeth’s death. Butterflies are very signficant to us because we released them at the cemetery after the funeral and a few days later my Mom saw 2 butterflies when she asked for a sign from Liz that she was OK.
As we sat in the trolley waiting for our cemetery tour to begin we noticed that the man sitting right next to me had a huge tattoo on his forearm … of a monarch butterfly! We all smiled and knew that it was our sign that Liz was with us in spirit. The butterfly is a symbol of re-birth and new life.
.-= Kim Wencl´s last blog ..My Days In D.C. =-.
Here’s a quote I just found that I think you will like:
“Perhaps they are not the stars in the sky – but tiny holes in heaven where the light of our loved ones shines through letting us know they are happy.” Native American Poem
.-= Kim Wencl´s last blog ..My Days In D.C. =-.
I’ll bet Maddie is so proud of her Mom and Dad. ANd Binky will be, too.
Awesome job Team Spohr. Your hard work is truly an inspiration.
Heather, you continue to amaze and inspire me. I hope those Congressmen and women have an image of you ingrained in their heads and vote with that image and the image of so many others on their minds.
Love and hugs.
.-= Lisa´s last blog ..11 Years =-.
You Guys are Amazing Heather and Mike!!! I am so happy that you were asked to do that they could not have picked better people!
You guys are so brave to go out and speak about Maddie when it must be so hard. I hope some good will come from it. Thankfully, the tide seems to be turning with this administration!
What an awesome experience!! Very cools pics too thanks for sharing. You and Mike are such an inspiration and I no sweet Maddie is so very proud of her parents. Maddie and little Binky are very lucky to have great parents. You guys will make a difference! I can’t wait to see what the future holds
Have a great week!
Andrea
Hugs in Oklahoma!!!
.-= Andrea´s last blog ..My First Recollection of Abuse =-.
Thank you for all your courage and perserverance! I am so happy that MOD has someone as wonderful as you & Mike (& Maddie & Binky too) to help them!
.-= Lindsay´s last blog ..Closed for the Season =-.
Dear Heather and Mike,
I continue to be so awe of you amazing people and of the way you have both channeled so much energy into a cause you believe in and in raising awareness for your cause. You have and will continue to make a difference. Your precious World Famous Maddie has and will continue to make a difference. You are such amazing and wonderful people, Heather and Mike, and for me it such an honour to read this blog. Thank you for sharing with your readers.
With love
Erica in Luxembourg
You are amazing. I am so proud of you. It is an honour to be able to ‘know you’ through your blog. Thank you.
I’m sure these last couple of posts have been written with such mixed emotions. To have good things come out of such an awful situation doesn’t seem fair. You’re making Maddie and Binky so proud. Hugs and love.
.-= Kristin´s last blog ..Smiling through the gray =-.
Heather, I wish I had the words to tell you how I feel. It makes me angry that the insurance companies have the gall to exclude people from their policies.
I am glad and thankful that after all you have gone through, you still have the heart to go out and tell your story to help others. Maddie is making a huge difference and she will continue to do so for many many years to come. I know it must be bitter sweet to do this, but just know that everyone is here cheering you on and giving you support no matter what xoxo
I hope people listen to you. I am wishing you the best. You are an inspiration to everyone.
Good for you! I hope the representatives you spoke with really listened and will keep your words in mind when they vote on this historic bill.
.-= Lisa_in_WI´s last blog ..Shameless Plug for Donations — Help me Raise $500! =-.
Heather -
Thanks for being so honest with the folks in Washington. Your story is exactly the kind of story they need to hear for things to change in our country. I appreciate your bravery!
I am so glad that you are being heard. You WILL make a difference. I can tell.
.-= Danielle´s last blog ..Things that make me go Hmmmm =-.
“It was much more interesting in person than on CSPAN!”
It really is. I remember my first trip there when I realized that usually there are like 30 people (if that) on the floor instead of a huge audience. The House Gallery is one of my favorite places in the world.
And on a personal note I forget that meeting with members of congress and visiting the capitol isn’t something that most people do weekly. I take it for granted sometimes but it’s nice to see you and Mike appreciate it so much. Glad you enjoyed yourselves in that amazing building.
YES seeing the mostly empty floor was pretty weird. And even though the rep talking was, IMO, a nut job, it was amazing to be in that room and we absolutely appreciated the opportunity to hopefully make a difference.
Did Mike get a chance to scream, “Your placenta!” at any point? Because that would’ve been awesome.
I think it’s so great that you guys were able to do this. And hopefully it WILL make a big difference, for all of us.
.-= cindy w´s last blog ..why does she always get sick on the weekend? =-.
he MAY have whispered it a few times, but throughout the course of the weekend it was screamed a few times…I’m kind of clumsy.
Being that I am in the same boat, and will never be covered by an insurance co. because of a pre-existing condition……all I can say is THANK YOU! You are truly making a difference.
I am in awe of you every single day! You are doing such great things and I know your voice has already made a difference and will continue to do so.
.-= Michelle Pixie´s last blog ..I’ll Swing =-.
thank you for speaking out. our congresspeople need to be made aware first hand of these serious issues so it’s less easy for them to overlook or brush under the rug. this is what lobbying is supposed to be rather than the vote selling that happens all too often. kudos for your efforts! glad the capital was an enjoyable experience!
I am once again amazed by you. I don’t think anyone who has heard your story could forget it.
Thank you so much for going to Washington and telling your story. It makes me sick that we’re even having this discussion in our country right now and that some people think that Obama is RUINING the US.
Stepping down off my soap box.
Heather, you and Mike are so brave. Thank you thank you for getting out there and talking to people, putting a face to the issue, and working with the MOD to help make changes.
.-= Karen´s last blog ..What happens in Vegas =-.
You and Mike. Are. AMAZING. Yes, it IS despicable that children, and adults for that matter, cannot get insured because of things they have no control over. Utterly despicable.
Love to The Spohrs always.
xoxo
.-= Alison´s last blog ..Numbers =-.
Go Spohrs!!!!
I am so in awe of you both. What important issues you are fighting for!!! I am so proud of you for all you are doing for all those tiny faces out there and in heaven. Your Maddie would be so proud!!
I also have to say that exclusions from health care because of pre-existing conditions is just so wrong, and it will affect so many more of us than we realize. I know you have done so much to help the MoD, but also any person who has been denied health insurance because of a pre-existing condition. It is so unfair. Those are the people that need insurance the most!
Good for you for making such a difference in the world. Your daughters are two of the luckiest babies ever to have parents like you!!!
Now go get some rest and eat some ice cream!!!
xoxoxoxo
I can’t believe how strong you and Mike are!
I read every day and every day I cry – with joy, heartache, happiness, sadness.
I saw this piece this morning on the Today show and it complements your post today, this baby is healthy but can’t get healthcare:
http://today.msnbc.msn.com/id/26184891/vp/33289879#33289879
Everyone, please contact your representatives RIGHT NOW and implore them to support the Weiner and Kucinich Amendments.
.-= GreenInOC´s last blog .."Insurance Companies Have A Right To Their American Dream" =-.
Check out this article:
http://www.walletpop.com/blog/2009/10/12/if-four-month-olds-are-being-denied-health-insurance-coverage-i/?icid=main|main|dl3|link6|http%3A%2F%2Fwww.walletpop.com%2Fblog%2F2009%2F10%2F12%2Fif-four-month-olds-are-being-denied-health-insurance-coverage-i%2F
The author says it so well- according to our health care system, “Only the healthy have any right to health.”
I, for one, think it is shameful.
Heather n Mike: you guys are awesome!!! Maddie’s legacy and you speaking out WILL make a difference!!! You rock!!! Keep doing what you’re doing!! Now take a week to relax & recover. Take care of yourself & Binky. Sending you hugs!!XXX
Aw, I’m so proud of you.
.-= Aunt Becky´s last blog ..The True Story Of Joey The Mean Hamster And Other Stories =-.
What an awesome thing you guys did! I hope something does come of it! God Bless
.-= Courtney´s last blog ..Stand Still =-.
Go YOU!
You are brave and strong. Not sure I could do what you are doing…making the world a better place in spite of the tragedy you have endured. People who can put aside their own fear and grief to help others…hero. You are a hero. You rock. Now put your feet up and rest after your long weekend!!
Putting a face on this debate (I don’t even know why it IS a debate, but that’s another thing entirely) is so, so important. Thank you.
.-= J´s last blog ..Another romantic Saturday night =-.
Im so proud of you….you are just so smart, confident and amazing!
.-= Erin´s last blog ..Thinking Back =-.
Thank you for putting a face to an issue that needs more attention and understanding.
.-= Burgh Baby´s last blog ..That’s What I Call a Nightmare =-.
That is so cool that you got to go face-to-face with them and tell your story! I hope this makes the difference for you and other people like you!
.-= Christiana´s last blog ..Booty-full =-.
You are making a huge difference. What an awesome thing for you to do. ;o)
Heather –
Good afternoon. I am so proud of you, you were very courageous and I am sure you did well.
I am so sorry for your loss. I was heartsick to read about Maddie’s passing earlier this year. I didn’t know of her until then, but I think about Maddie a lot now in my day-to-day life, and of you and Mike and how you are doing.
My undergraduate alma mater, a Catholic college, solicits prayer requests from alumni every year for the month of November in honor of All Souls Day, and I included Maddie’s name on my list of people to pray for. I just wanted you to know that your firstborn daughter has touched the life of a twenty-something woman in central Indiana. I pray that happier times lie ahead for your family as you prepare for Binky’s birth. When she arrives, she will be surrounded by love.
.-= Frema´s last blog ..My eight-month-old son… =-.
You are truly amazing and doing such wonderful things, I feel all of us have learned from Maddie, Mike and you. You are inspiring:)
.-= Barb´s last blog ..Pumpkin Patch & A Port A Potty =-.
Thanks for all the work you do. Isn’t washington amazing? My husband is a native Californian and when we first got to go to DC he walked around amazed by it all. Seeing it through his eyes made it look exciting and not like that place my schools were always schlepping us to when I was a kid.
You guys are an inspiration.
.-= ruth´s last blog ..Random stuff =-.
I know Maddie is truly proud of you and all the hard work you are doing to make sure that no one else has to suffer like you guys have. xo
.-= Domestic Extraordinaire´s last blog ..His Name is Logan =-.
Heather,
Thank you for doing that. I can only imagine how difficult this was for you and Mike, but a huge thank you. I know you did this on behalf of Maddie which is a wonderful cause.
But as someone who has spent her entire adult life with a pre-existing condition (in fact, today I “Celebrate” 19 years of living with this very rare disease) I owe you a big thank you for fighting for this for those of us with all kinds of pre-existing conditions.
Currently I am fortunate enough to be covered with medical insurance through my husband’s employment. But, having had to use COBRA before, and having had to live through the “how on earth would I get insurance” on my own I have to say this is such a huge issue for so many of us and there is no way a “thank you” can be enough
Still, it’s heartfelt when I say THANK YOU for going to Washington and fighting for pre-existing conditions.:)
While I know you would trade it all for a more ordinary life, with your Maddie beside you, I hope it brings you some comfort that Maddie’s legacy is so strong and vital and so worthy of that courageous little girl. She’s proud of you, and Binky will be, too.
The American Health system makes me sad. I watched Michael Moore’s Sicko and while his documentaries do tend to be biased (even though I find myself on the side he is arguing) the stories of the Americans featured on it who were denied basic care, in comparisons to other countries such as my own where anyone can walk into any hospital and not be turned away due to the hospital’s affiliation- I really really hope Obama’s plans for health care reform do some good.
Without a doubt, I am sure you made a lasting impression on them. In a good way! I am happy that you were able to have this opportunity. Speaking from a person with a preexisting condition point of view, it’s not right that there are people that have to suffer financially and medically when there is nothing that they can change about it. Thank you for speaking on that population’s behalf.
.-= Amanda´s last blog ..11 days =-.
What an amazing experience, and it’s so strong of you to get out there and do things like this, while going through all you have and still are, physically and emotionally.
.-= Maile´s last blog ..Food, fun and philosophy =-.
heather,
what you are doing in terms of speaking out and fighting to make things better for others is simply awesome. Amazing is the word I continually find myself thinking when I think about you as a mother and your courage. As a mother of 3 preemies I can’t thank you enough for your efforts.
Thank you as well for this really informative post – and the pictures really made shared the magnitude of your experience, so thank you for including them.
Last, but not least, I loved your post from yesterday, too, because it made me stop for a moment and think about all the generosity of spirit that was reflected in the donations that were made when Maddie passed away and how Maddie’s legacy will live on. It is nice to think about such goodness in the world… and you are a shining example of it.
Kristi
I got a behind the scenes of the Capitol once! We were waiting in line to get in for a tour when I was about seven. And my dad took a picture of my sister and I, and as soon as he was done, I ran around behind him and my mom. At that moment, he handed the camera over to my mom.
And smacked me in the face with it, splitting my lip WIDE open. Capitol infirmary, here we come!
I ended up with 7 stitches in my lip.
Your trip sounds better.
.-= AMomTwoBoys´s last blog ..My Thoughts On The Past Week =-.
I am so glad your voice is being heard.
Thank you for being the voice that so many voiceless little ones and their families need.
thank you for everything you are doing for the people that can’t be heard. i live in ca too and there are options when cobra expires for those of us who can’t get insurance. its called cal-cobra. i believe i called my insurance company (kaiser) a few months before my cobra expired to get the paperwork processed. now that my cal cobra is expiring i found another insurance plan offered through the state for those of us who can’t get insurance – here is the website
http://www.mrmib.ca.gov/MRMIB/MRMIP.shtml
today was a big step towards the health care bill – hoping that it passes – me and my hubby are lucky my parents are paying for our cal cobra. we all need to be heard -affordable health care for everyone is a right not a privilege
Wow you guys were so lucky to be able to go to Washington! Too bad you didn’t see our Pres running around somewhere.
I think healthcare reform is on its way in. From what I understand, some committee approved it today (Tuesday that is).
Maddie is very proud of you, she knows what’s going on, I know she does!
Heather, I live in the DC area. I wish the weather would have been better for you. The days haven’t been too bad, but man the nights have been chilly! I had my boys in shorts and it was fine, then night rolled around and we were out running errands and I looked like a bad momma with both of my boys in shorts. Oooops. Needless to say, we made a trip to the storage unit on Sat. to get warmer clothes.
COBRA is a joke. I know you are glad to have it, but it so ridiculously pricey! Oh, and the price cut makes it oh so affordable (please note the sarcasm). I’m sure you have made a difference!
.-= Candi´s last blog ..Put them in the closet… =-.
Wow. Great blog, photos, journey. I hope that you & your & Madeline’s story will stay with them for a long time!
what an amazing experience..hope your feet recover soon:) So glad that you got to tell your story, and that Maddie can be shared with all.
Great to see the photos of all that history.
Thanks for sharing.
Love sent to you and baby number 2.
Lisa
.-= lisa wood´s last blog ..R.I.P Aisling Symes =-.
Heather and Mike,
I am beyond honor that you two were able to be on hand to talk to Congress about this issue and that you also were honored by March of Dimes. You have done so much good work in your time of grief. Thank you.
THANK YOU for having the courage to go there and tell your story. It is a SAD SAD day when people are uninsured because of things that are far beyond their control Good work.
Also, I’ve voted for you twice today!
Love to the Spohrs…
Heather,
Shortly after you lost Maddie I found your blog and read the whole thing, from the beginning. I thought you were incredibly funny, intelligent, well written, and dynamic. I knew as I read it that you would do great things with your life, and that you would use your horrible experience to make a positive change in the world. In fact, I left a comment along those lines way back in the very dark days shortly after you lost your little girl. So I’m not a bit surprised to see you raising tons of money for an important cause and taking on the government. I know you don’t know me, but I just want to say how proud of you I am. I know you are (and always will be) in deep mourning, but that’s not stopping you from making the world a better place. I can’t wait to see what other mountains you climb.
Well done! I’m so glad you are out there, going to bat for other families who stand to lose (or gain) so much.
Also, the middle statue that Mike is looking at? There’s just something about that pose that cracks me right up. Like he’s about to snap his fingers, wiggle his hips, and call me GIRLFRIEND!
Good for you! Hopefully, you made the difference to at least one or two of the people who make the decisions!
COBRA is despicable. The whole healthcare situation is ridiculous…
.-= Alicia´s last blog ..To Archer Gene, Five Months =-.
Thanks for doing this on behalf of all of us who know the pain of losing a child.
I’ve been following your blog for a few months now and I’m amazing by your strength through all of this.
Losing a child is one thing but following up with another high risk pg is another. It is something I’m still not ready to do and the thought simply takes my breath away.
Good luck on the next few months and know that many people are thinking and praying for you each day.
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