We have completed eight days of 24-hour oxygen. You’re probably thinking, “We? Isn’t Maddie the one on oxygen?” While that is technically true, Maddie and I are both prisoners of the oxygen rocket. The nasal cannula is about eight feet long – just long enough for her to romp around on our king-sized bed. While a king bed is large, it’s not exactly an ideal amount of space for a one year old to play. Which means someone has to be with her to make sure she doesn’t crawl right off the bed.
To say it’s hard would be an understatement.
The first few days of 24-hour oxygen were fairly easy. Maddie slept most of the time as that was when she was at her sickest. But the last four days? HOLY COW. She is OVER being confined to bed. She is OVER having a cannula taped to her face. She is OVER IT. And so am I.
I don’t blame her for being completely bonkers. I am thisclose to going bonkers myself! It’s like being on bed rest again. St. Mom has been awesome, coming to spend time with Maddie, but I just feel so badly for Maddie. She needs to be crawling around, practicing her standing, eating tons of food. Instead, she is in bed, coughing so much she whimpers, gagging and vomiting at the taste of her steroids and antibiotics.
It’s really sad. And, while it’s so much better to be sick at home rather than sick in the hospital, I’d rather she not be sick at all.
Two more days of oxygen. Two more. I hope we make it. And I hope those two days are enough to heal her little lungs.
tonya cinnamon says:
hugs to you all… crossing fingers that 2 days no more oxygen…
being sick sucks..
does she like the big leggos that might help keep her occupied a bit.
Middle-Aged-Woman says:
And THEN, if, God forbid it should happen again, you will ask the O2 guys for a longer hose!
Bec says:
hhhmmm…maybe you could put it in a little wagon and tether her to it so she can crawl around?
Seriously though, I hope she’s able to come off the o2 in two days.
Becs last blog post..Wieght and strollers
Lucy says:
I’m saying a little prayer for both of you:
For you – A little prayer of patience and humour to get you through these next few days (As a mum who had to do the same sickie toddler-wrangling with an IV in the foot, I know how draining it is to be on alert 24/7.)
For Maddie – a paryare for strong lungs, high spirits and that she always keeps her fighting spirit. She is one tough little darlin’!
Lucys last blog post..Christmas magic
Danes says:
I think you’re a St. Mommy too….
ali says:
gah. hugging you both right through my screen.
alis last blog post..buddy the elf! what’s your favorite color?
Ms. Moon says:
You’ll get through the next two days because Maddie’s spirit didn’t just come out of nowhere. She got it from you and her daddy.
You are three strong people.
Ms. Moons last blog post..A Pleasant Evening Indeed
Lori says:
Poor sweetpea! I hope she gets off the oxygen soon. And steroids are the WORST medicine. When my preemie got RSV the first year I just couldn’t get her to take the steroids. I had to take her into the dr. office to get them! But, they put them in soda and she was able to keep them down. I think they just used a TBSP of soda mixed w/ the dose. Worked like a charm!
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Alison says:
*fingers crossed* Healthy lungs for Maddie, healthy lungs for Maddie, healthy lungs for Maddie. And strength for Heather!
Alisons last blog post..Sister, twin, heterosexual life partner?
patois says:
I’m crossing my fingers as well – tho it’s hard to type like that – that two days is enough and you’re done with it.
mandy says:
Hang in there, guys!!! We are all thinking of you.
AMomTwoBoys says:
UGH. I can’t even imagine.
Two more days. Or, at this point, one. ONE more day!
AMomTwoBoyss last blog post..Are Your Panties In a Bunch Yet?
Tina says:
Thinking of you and your gorgeous girl
Christy says:
I completely agree with Dana!
Stefanie says:
I’m so sorry. This must truly be some serious suckage. But it will fly by what with all the good tv on over the weekend. That was sarcasm. Meanwhile, we still haven’t tried Sadie’s tube cause we’re SCARED and now Elby has a fever. Fun fun times here as well.
Stefanies last blog post..Sadie, Sadie Post-Op Lady