The Ice Bucket Challenge has completely taken over my social media feeds. It’s impossible to log onto Facebook, Twitter, or Instagram without coming across videos of accepted challenges. As someone who never thought she’d run a charity and is learning as she goes, it’s been beneficial and thrilling to watch the campaign take the world completely by storm. But like anything else that goes viral, I’ve started to see a backlash, and I think that’s disappointing.
If you somehow aren’t familiar, the Ice Bucket Challenge (IBC for short) involves dumping a bucket of ice water on your head AND/OR donating money to the ALS Association. After you complete the challenge, you charge three to five new people to complete the challenge within 24 hours. I’ve watched almost all of the videos that have come across my feed, and it’s been fun. Most people are pretty straight-forward with their videos, but some have been amazingly creative. There have also been dozens of celebrities who’ve taken part (like Taylor Swift, Jimmy Fallon, and Britney Spears), which is a huge coup for the ALS Association.

Britney gets the ice.
The grumbles I’ve seen usually fall into the following camps:
1. The Ice Bucket Challenge is “slacktivism” and does nothing to educate the masses about ALS.
While I’m certain there are people participating in the IBC who don’t really understand the point of it, I think they are far outnumbered by the people who have had their eyes opened to ALS. I see at least two threads every day where a commenter states they’d never heard of ALS or Lou Gehrig’s Disease before the challenge. That’s a huge victory right there! If a person is suddenly aware of a disease without being personally affected by it, they are more likely to pay attention to it in the future, and more likely to donate funds when they’re available – especially the IBC challengers who now do have a connection to the disease, albeit a superficial one. While the campaign may not spread individual facts about ALS, it makes the disease itself known, allowing people to find out more information on their own time.
2. The Ice Bucket Challenge is just about people who want attention -if they truly cared they’d just quietly donate money.
More than 1.2 million IBC videos have been posted to social media since the end of July. That’s 1.2 million pieces of free advertising and awareness, including HUGE celebrities lending their names to the cause. You couldn’t DREAM of better exposure than that! The numbers also prove that while lots people are posting videos, many of them are also making donations. In the last twenty days, the IBC has raised over $15.6 million for the ALS Association, which included money from over 307,000 new donors. In less than three weeks! Compare that to the $1.7 million the ALS Association raised in the same time period last year and you really see how successful this movement has been.
3. The Ice Bucket Challenge is bullying people into paying attention to a charity that doesn’t affect them/they don’t care about.
This is the argument that saddens me the most. Why do we have to be personally touched by something to acknowledge its importance? Around 5,600 new cases of ALS are diagnosed every year, a small number to be sure. That does not mean it isn’t a devastating disease that’s unworthy of any research or attention. ALS doesn’t discriminate – literally anyone can get it. But guess what? No one is forcing you to participate. I’ve also seen plenty of videos where the person taking the challenge used the opportunity to mention ALS and the charity of their choice.
3b. There are more deserving charities than the ALS Association.
UGH. I’m sure there are charities you have a personal interest in for a variety of reasons, but that doesn’t make the ALS Association less deserving. Talk like that diminishes everyone who has suffered from ALS, and that’s unfair. Every charity is important. Instead of whining about the charities you wish were benefitting from the challenge, donate to them. In fact, donate every time you see an Ice Bucket Challenge video. And while you’re at it, try to think about a way to raise awareness for your chosen charities that doesn’t devalue the importance of another charity.
I would LOVE for there to be a viral movement like this that raised money and awareness for maternal/fetal health issues, prematurity, and NICU families. I do NOT want that at the expense of the ALS Association. I hope that with all of the money they’ve raised they’re able to make huge strides in research. And I hope that all of us trying to raise awareness for our causes remember that there’s room for everyone.
Patty says:
Thanks Heather. My fa-in-law died of ALS two years ago. It was a horrible end to a life filled with so much love. Easily 500 people were at his funeral. Raising awareness for ALS is so crucial! I am so grateful for the ice bucket challenge for bringing awareness and needed research dollars. My children lost the best grandfather that anyone could have had, he was a rare gem, and is deeply missed. Your social media is full of these ALS reminders, but our social media is full of what we lost and can never have back.
defendUSA says:
Excellent read, Heather. I have donated this month to a myriad of charities and as a preemie once, I understand completely…I have done a couple of IBC’s. I’ll say that I am lucky enough after five years of not being able to give, to now giving back as much as I can.
Sadly, I would like to point out that the original IBC challenger passed away from a diving accident. He raised 100k in his friend’s name, Peter Frates, for ALS. I am sure he is going to be missed.
Julia says:
Hi! I just wanted to clarify that Pete Frates actually started the IBC. He’s from my hometown, Beverly, MA & you can read more about his fight on his website petefrates.com. Corey Griffin, who passed away a few days ago was a good friend and huge supporter of Pete and helped him raised hundreds of thousands of dollars for his ALS foundation.
Julia
Jill says:
I have an uncle and great aunt who died from ALS. Any way money can get to research is a blessing.
K.B says:
I saw Reba Mcacntires today and she Challenged 3 people. Kelly Clarkson, Melissa Peterman and Miranda Lamber and 2 I don’t remember. I hope they raie a ton more
Casey says:
I love Reba!!
Jerilynn says:
Great article, Heather. If you want to see a really clever ice bucket challenge, you should check out the one from the Foo Fighters. I’m a fan of any method to promote awareness about any disease. I do think it would be useful if each ice bucket challenge recipient was tasked with stating a fact about the disease. I believe some folks have taken it upon themselves to add this to the challenge, and it’s great to see the twists people have put on this activity to promote engagement and awareness. Heather, if you think of anything to promote awareness on prematurity, I’m so there to support it!
Heather says:
Thank you, Jerilynn! The Foo Fighters’ challenge is awesome!
Emily e says:
When did the ice bucket challenge become about ALS? When it went around my fb a month or so ago the challenger picked the charity and if the challengee did the ice bucket they picked the next charity.
I have a problem with bullying what people spend their money on. I donate to whom I choose to donate to, not because some internet meme told me to. I’m very glad that it has raised so much money for ALS. My husband is a fundraiser and it’s crazy the impact this has had so that’s awesome. I just don’t like the ‘I’m clalling you out to do this challenge’ aspect of it.
Kate says:
I read this article on charity cannibalism the other day–the idea that people giving money to ALS right now because it’s part of this zeitgiesty thing will decrease their likelihood to give to other charities. I think I was supposed to care that it’s happening. But the thing is, I’ve seen friends who I KNOW don’t give two . . . poops? . . . about charity who have donated money and/or raised awareness during the IBC, and others who are actually thinking about things like our uneven funding for different illnesses and what have you, and I’m like, “If they have gone from giving to no charity ever to giving to this one, that’s a win.” (And then someone else made the “deservingness of the charity” argument and I wanted to punch them. But that’s neither here nor there.)
I get fired up when people poop on the IBC because it’s obviously doing a lot of good, and also my BFF’s mom died from ALS and she’s all fired up so it’s kind of seeping into me. I may have gone on a rant that mirrored your post (but more shoutily) in the car home from book club last night. My point is: haters to the left.
(I am sorry for referencing poop.)
Heather says:
Reference poop all you want!
GingerB says:
Hey, doesn’t a poo reference just mean you can spot a like minded friend? We should all support all giving, shouldn’t we? I was tested once for ALS and spent a week on the edge of my seat, got a mis-diagnosis for MS that sucked joy from my life for five years, had a premature baby, then one with a rare metabolic disorder, stroke, and CP, and right about now I fear all alphabet soup acronym diseases … my issues may not be everyone’s, few folks get the value of services we’ve gotten from Shriners Hospitals, and still I just think we should all share more of what we have, with each other, when we can, and when the spirit moves us. And I am thankful that the spirit does indeed move us all, in diverse places and for diverse reasons. Each time it is a gift, given to the giver as well as the recipient, and that only means good.
Steph says:
Love this. Thank you.
Jen says:
Did you see the article on bostern.com? I think it’s called What an ALS family thinks about the IBC? Great article!
Heather says:
No! I will look for it now!
Louise says:
I’ll admit to being one of the people who raised an eyebrow about some of the people who posted challenges on my Facebook feed. Some of them are attention seeking and probably don’t understand what ALS even is, but you’re right, it’s a horrible disease and I’m thrilled that attention and money has been given to the charity helping to fight it. So, I’m really trying to change my attitude about the Facebook stuff.
Annalisa says:
Yep. No one on my FB feed who’s done the IBC has even mentioned ALS at all.
Meanwhile, I’ve been googling ALS and MS for the better part of two weeks (my brother is going through a bizarre medical odyssey of tests about widespread muscle and joint pain, and if tests do not turn up anything else, chances are he has one of those two… scary prospect), and hadn’t even seen anything about the IBC while browsing the web about ALS until it started popping up on my FB feed.
What I’m saying is, the IBC must have been a good idea at first, but what does it say about it that it has become divorced from the actual reason for doing it? To me it’s that for the one person who does the challenge out of genuine concern, there are many more who are just doing because “it’s cool!”. I hate to be a curmudgeon here, but it’s not cool to do the IBC unless you are willing to also raise awareness about ALS alongside with it.
Heather says:
Wow, that makes me very proud of my Facebook friends, because every video I’ve seen has mentioned ALS!
Annalisa says:
In their defense, most of my FB friends are about 10 years younger than me (the perks of going to college twice!), so I’m willing to cut them a bit of slack about making it about them… But that the potential is there, well, that’s what bugs me.
Margie says:
So true, Heather.
Valerie says:
This may be my pregnancy hormones talking but I have become enraged over the past few days because of the backlash. I have no other way to put it than people are stupid. Flat out stupid. I think this challenge is WONDERFUL. Who the frick cares about the hows or whys or anything like that? Do these people not watch the videos of people who actually HAVE this disease and how horrible it is?!?!? I have said that eventually someone is going to post about not doing the challenge for this reason or that reason and I’m either going to block them, go off on them or somewhere in between. I say if people are standing on their heads while reciting ABBA, who is that hurting?
Sorry, I’m so glad you posted this. This has really started pissing me off lately. My dad died in January from a brain tumor and I’d give anything to get this type of publicity and exposure to help with GBM research. Some people don’t seem to care unless something effects them personally. Then, everybody better be watching and donating. Jerks.
Jerilynn says:
Valerie, I am so sorry about your father. I would also love to see awareness towards GBM research. In defense of the folks who are against this, everyone does have a right to his/her opinion and how/what they want to recognize. I think there have been so many media fads that people want to ensure they are discerning what is being done out of genuine concern vs. a joiner mentality. I don’t think it merits cutting someone off or going off on them, or that it makes them jerks. Having said that, I admire and respect your passion towards advocacy and I think the challenge is great.
Jordan says:
Jerilynn, I agree. Just because someone says they aren’t going to do the challenge itself doesn’t mean they aren’t supporting the cause. I have seen a few friends post that they were challenged and weren’t going to do it- but instead were just going to donate. That’s what I’d do myself if I was challenged– I’d rather just donate.
I was kinda skeptical at first, because there are SO MANY social media fads that sometimes it’s hard to discern what is actually doing some good. Of course, we now have actual proof of how much good it’s doing- $15.5 million and counting! (we had an ALS rep on campus yesterday that told us that they had less than 2 million last YEAR in total, so that says something!)
At the end of the day, people are learning about ALS (and other charities that have been donated to via this idea), and money is being raised. That is what makes this “challenge” really matter.
Heather says:
I’m so sorry to hear about your dad, Valerie. I totally understand the strong desire to raise more awareness and money for GBM – that’s what Jackie died of two years ago. I have hope that because this ALS campaign has gone so viral other charities will have similar success. I hope that it will soon be GBM’s turn.
Jolene says:
Me too Heather, me too. My sister lost her husband shortly after Jackie passed away in 2012. I’d love to see more awareness about GBM.
Elaine says:
Thanks for this, Heather! My dad died from ALS and I did the challenge. Am almost more happy about the awareness raising than the money – think of all the college kids who now know because of doing something crazy! Would breast cancer be as treatable as it is now without Pink Ribbons? Maybe someday ALS will be like MS.
I also have a totally unknown medical issue – primary lymphedema, or lymphedema (limb swelling) not due to cancer surgery or treatment – and even many medical professionals don’t know what it is. It’s a nuisance that has really limited my life and is also expensive – insurance will not cover the $200 order-made stockings I use to control it, JUST BECAUSE I GOT IT FOR NO REASON. If I’d gotten it from cancer, I’d be covered.
So yeah, am racking my brains for something to raise awareness next spring on National Lymphedema Day.
Casey says:
Thank you for this, Heather. My thoughts exactly.
Kim says:
Big movements will always have haters. Being hidden a computer monitor creates courage.
Joanna says:
I think some of the backlash might be because it’s happening around the same time as the events in Ferguson. So it’s hard for some people to get behind the viral video craze, even if it’s for a great cause and creates awareness, when they see the horror of what’s going on there, and how racism is claiming lives in our country too.
Heather says:
I understand that, but I think it’s possible to care about both things. I know I do. I actually have looked at some of the videos as a nice break from all of the horror in the world right now.
Amy says:
In defense of skeptics….. My niece participated in a cold water challenge this winter that challenged people to jump in cold water OR donate to a charity (NOT both, at least not how she and her friends interpreted it). Even my kids wondered why someone wouldn’t just donate to the charity. So when I heard about this challenge, I thought it was the same thing. Just about doing something silly, take a video while doing it, and avoiding donating money to a good cause. I know now that this is so much more, and am astounded at the money that has been raised so far.
angi says:
YES! Too many people have compared it to the “what color is your bra movement for breast cancer, etc.” The difference is it is WORKING. People are donating. Most people are talking about ALS when they perform the challenge. Many of those have lost sight of the ice bucket or donate and are doing both.
I know internet sensations and viral videos can be annoying, but when they’re for a good cause and clearly generating movement for that cause. I’m proud to see them continue on.
Martha says:
Hear hear!
Jordan says:
I think a lot of the backlash is because people assume that people are dumping the ice/water over their heads IN LIEU of donating. While that’s not true, a lot of people don’t see the point in making the spectacle. Personally, if I was challenged (which I have not been), I would just make a donation because the thought of videoing myself doing anything, let alone dumping water on myself, freaks me out! Haha.
I go to a school that is very vocal about charity and service work- it’s one of the reasons I LOVE this school. Yesterday at chapel, we had an ALS Foundation representative (who was an alumna and our college president’s daughter!) come speak to us about the challenge and about ALS. We’re having a big fundraiser for ALS on campus later this year, so the challenge was a great segue for her to talk about that to us. So to get us excited about the upcoming fundraiser, our school’s president did the IBC- in the middle of chapel, on the stage. The school/our President also made a donation. Definitely a chapel-highlight from my 4 years here!
Personally, I’m a giving person–service and charity are big things in my life. So ANYTHING that is bringing charity and good causes like The ALS Foundation (I had a distant family member die from ALS when I was younger) to the forefront is a good thing in my book.
Melissa says:
That’s what I was thinking. At first I thought it was fantastic, and a great way to raise awareness for a disease people don’t know anything about. But I read an article that talked about donating money to ALS rather than buy ice, buckets and spend the time making/uploading a video of you dumping it on yourself. But if I’m wrong and these people are donating money too than I’m all for it. I’m the same as you… I’d rather donate than dump cold water on myself any day!
Heather says:
So cool that an ALS Foundation rep came to speak with you all. It’s been stunning to see how much money they’ve raised. I can only imagine how thrilling it is for the foundation!
Megan Beecroft says:
Thank you, thank you, thank you!!! This was perfectly stated. I am so annoyed at all the people bitching about the IBC and how it isn’t ‘doing anything’. So much money has been raised, so many people are aware of a disease that they previously knew nothing about. My grandfather passed away from ALS almost 20 years ago now, and it was awful. I think the IBC is awesome and was SO happy to see it go viral.
Erin says:
At least in California all the critiques I’ve seen have focused on that we are in a multi-year drought and it’s wasteful/harmful. Given how bad it is here, I would agree. Donate money, douse yourself in cotton ball, but leave the water out of it!
Heather says:
Yes, the drought is a huge, terrible thing here and it’s the #1 reason we Spohrs haven’t dumped water on our heads.
Rachel says:
This attention drawn to ALS is all the more important as patients die off so quickly, and in the process, they become more and more disabled (and often home-bound, communicating via eye-gaze). So it’s difficult to have a representative who draws attention to this monster of a disease. That’s much easier for Parkinson’s or MS etc. Gleeson is one notable exception I am aware of.
I was annoyed, however, that our employer used an Ice Bucket Challenge for a different charity that they already advertise multiple times a year. I was excited to see the e-mail, until I saw that.
Heather says:
I never thought of that but you’re right!
Jackson says:
As an animal events organizer for injured, abused, and neglected dogs I can tell you that thinking of creative ways to raise money is not easy. The restrictions on what you can and cannot do can be daunting (e.g., raffles are governed by each state’s Department of Justice) so I applaud any group that organizes a benefit for a cause. I do not believe, contrary to what some have said, that many people who do the bucket challenge know what ALS is, and that is what gets lost when fundraising has a gimmick such as an ice bucket toss. Nevertheless, if it raises money for ALS research, that is a plus.
Jess says:
People calling this “bullying” makes me sad. I read your blog 5 days a week. I do not have children. I had no idea, in this day and age, that premature babies were at such risk, and for so long after birth. I assumed that medical advances were such that premature babies were taken care of. You are not “bullying” me into the March of Dimes. You are EDUCATING me (thanks, by the way).
Heather says:
Wow, that makes me feel really good! Thank you, Jess!
Darcie says:
This guy makes it real (it’s silly for the first 2 minutes, but beyond that it’s truly moving)
http://www.upworthy.com/literally-the-only-asl-ice-bucket-challenge-you-need-to-see-its-not-at-all-like-the-rest?g=3
Shea says:
I think it’s amazing that so much money has been raised for ALS, but I still think it’s acceptable to not be totally gung-ho about everything related to the ice bucket challenge. Here’s the thing — California is in the middle of a horrific drought…and hundreds of people are dumping gallons of water on their heads? I guess I’m a party pooper but it just seems wasteful and counter-productive to me, even more so given that a lot of the ice bucket challengers I see on my Facebook are not actually donating. So dumping ice water on your head is punishment for NOT donating to charity? I just don’t get it. And for the record, before anyone decides to get angry with me, I have donated to ALS already. I did not, however, do the water dumping part and I do feel like I’m being judged for that.
Heather says:
You definitely don’t have to be gung-ho about it! We will not be dumping water over our heads because of the drought. If people are judging you for not dumping water over your head they really need to reexamine the point of raising money and awareness for a charity.
LT says:
I really appreciated what you said! Some of my friends have said they are glad this challenge hasn’t caught on in our friend group which makes me boil. Maybe it’s because I’m in non-profit work or maybe it’s just my personal values but wow I think this has been amazing and I hope other philanthropic, research organizations get motivated too by this! I may share this with my friends, thanks!
Dre says:
I agree with all of your points, Heather. My one and ONLY issue with the challenge is the massive amount of water being wasted. Obviously it’s for a good cause, but as someone who hasn’t been able to shower more than twice a week for 2 years now, I can’t watch the videos. I often can’t even flush my toilet without bringing in a bucket of water we’ve had to fill up in town and bring home. With each person using at least 5 gallons of water, that’s millions of gallons of water being dumped.
I’m happy that the challenge has raised such awareness for ALS, but it does show that the awareness of the worst drought in California’s history is severely lacking.
Heather says:
Yep, I totally understand this point and it’s the biggest reason we won’t be dumping water on our heads!
Practical Mama says:
Thank you for this post. I admit, I initially found the challenge and the posts annoying and questioned the purpose. Especially, when I heard people saying “you would either donate or pour a bucket of ice water on you”. It just didn’t make sense.
As the challenge went viral and I read how much was donated, I was blown away. The reach is beyond the borders of the US. I see many people on instagram donating to ALS charities in their own countries. I hope it helps the research and improving the quality of lives of ALS patients. Sure, there are other causes to donate, but you never know what will go viral and what not.
Lorrie says:
Heather, Thank you for the post….having just lost a very dear friend last week to ALS, this could not come at a more perfect time for the community I live in and where my children go to school. However, I donated AND did the challenge. And we have encouraged EVERYONE we challenged to find out about ALS, Donate and do the challenge. We donated for each of our children who did the challenge also. We were all talking the other night about ALS, and it has brought so much awareness to it and I know many people who have now gone and researched ALS.
Heather says:
I’m so sorry about your friend, Lorrie. xoxo
Tracy says:
I just LOVE all of your points. I sadly have known what ALS is my entire life. My grandpa died of it before I was even born and my cousin died of it 10 years ago. My family absolutely is loving the attention to ALS because now the world is learning about this terrible disease with no cure. I know my grandpa and cousin are up there laughing about this ice bucket thing- the one thing my cousin worked towards after his diagnosis was just this- awareness. It’s amazing!
Susan says:
My sister Marsha died of this horrific terrible thing in 2002. She was 63. It not only took her away from me but her children had a terrible time understanding what this did to her body. It is one of the most horrible things that can happen to a person. Your mind is good but your body just doesnt listen to what you want it to do and you end up in a wheel chair not being able to move of speak. She suffered for 18 months and THANK GOD she died peacefully. I miss her every day. I know she is my angle in heaven with my parents looking over us.I pray to GOD every day that they will be able to find some kind of cure for this. I am so thankful that this is finally being brought to attention.
Heather says:
Oh Susan, I am so sorry about Marsha. My heart goes out to you xoxo
Procrastamom says:
So well said, Heather. I just watched a video this morning of my city’s Mayor doing the ice bucket challenge (In a very creative way, I must say. He rode his bike past a line of local kids who all dumped buckets of ice water on him in turn.) and of course there were a few comments deriding the fact that there wasn’t more attention paid to other charities. I would never have been aware of it myself if it hadn’t touched my life via my co-worker’s wife, who died from ALS five years ago. It is a horrible, debilitating disease that shuts down previously healthy people and traps a still fully functioning mind & brain in non-functioning body. I’m glad this challenge is bringing awareness to ALS.
Stephanie says:
My good friends from college lost their mother and mother-in-law to ALS. It was absolutely devastating. She became more and more disabled to the point of not even being able to move or talk, but yet, she was completely cognizant the entire time. It robbed their family of so much. Their son only knew his grandmother for a short 16 months; their daughter will never know her. It was the saddest and yet most uplifting memorial service I’ve ever been to. I gave to ALS in her memory two years ago, and will do so again, regardless of the IBC.
christine says:
Heather,
As usual, you nailed it again – thank you for another good read.
Serennne says:
Okay, I have breast cancer (doing very well right now, so no fuss about that) and I think anything that raises funds for these horrifying diseases is worthy. Dump ice water or not, donate and that’s great…but raise awareness, that’s key. For ALS or cancer (of all kinds, not just me and my pink ribbons) or any of the other causes that so desperately need support, it’s about education. You do that, hopefully we all do that, and we can help people get through rotten times in life. We can help other people…isn’t that what it’s about anyway? ????
Serennne says:
Wow, that was really way more ???? Than I expected, that was supposed to be a smiley, hehe.
Heather says:
EXACTLY! And I’m so glad to hear that you’re doing well, Serenne!
Theresa says:
Thank you for posting this, Heather. My friend’s mom has ALS, and he wrote something on Facebook directed at friends who are tired of seeing Ice Bucket Challenge posts/videos. He asked for people to imagine for just one second what it might be like to be impacted by ALS, whether you, a family member, or a friend is diagnosed. He asked for patience and understanding from those who are tired of scrolling past the videos on Facebook. It makes me sad to think that he needed to ask for that at all, but even worse, I was disappointed and angry when someone commented on his post about all of the wasted water, particularly in California during the water crisis. Many of his friends and family came to the defense of the Ice Bucket Challenge, and my friend politely asked that his post not be turned into a debate about the water shortage. It is sad to me that this was necessary at all.
Long story short, THANK YOU for writing what you did. It is so important to raise awareness, regardless of the cause, and I think you did an amazing job of explaining why this is so great for ALS. The Ice Bucket Challenge has helped raise awareness for people who knew nothing before (if nothing more, now more people know that ALS exists!) and it has helped to raise funds for the ALS Association. I would say those are all good things!
Theresa says:
To clarify, please understand that I completely understand that the drought in CA is very real! Neither my friend or I are insisting people participate in the Ice Bucket Challenge (I completely understand choosing to donate in lieu of creating the video). My disappointment was the way in which this person chose to express their feelings. Some of the people I know in CA have decided to modify the Ice Bucket Challenge and jump into the ocean so they can participate, but this way they aren’t putting water to waste. To each their own, but please please please don’t think I’m discounting the drought. That was never the intent of my original post!
Suzanne L. says:
Heather, you are so eloquent. I love the idea of donating to a favorite charity every time you see an ice bucket challenge. Although I have not personally been affected by ALS, I have studied ALS and evaluated the swallowing of a patient with ALS in hospice. It is such an awful disease. And yes, there are many other awful diseases/conditions that need money too…there IS room for everyone!
Skye says:
I agree with you 100%! There are SO many worthy causes – they shouldn’t try to compete or take away from each other. And if you ever think of a good viral idea for Friends of Maddie awareness, Maddie has many friends in your readers!
Lauren says:
307,000 donors from 1.2 million videos is exactly why I cringe whenever I see one of those videos. The overwhelming majority – 75% – of people posting a video are not donating. If all of those people who didn’t donate took the money that they spent buying a bag of ice for the video and sent that to charity instead, imagine how much good the ALS foundation could do. (And I recognize that there are some people who legitimately cannot donate and make a video instead, but none of the people in my fb feed are in that category.)
I’m also concerned that this is adding to the mentality around giving where there has to be a gimmick attached, but that’s a whole other conversation about commercializing giving and how that tends to take money away from the actual cause (looking at you, pink breast cancer stuff).
Annalisa says:
Agreed. I feel like there should be a requirement to do the IBC *and* donate. If you can’t afford both, your priority should be on spending the money on the donation.
Heather says:
I just saw this statement today:
From the ALS Association of Greater NewYork:
On Wednesday, August 20th, The ALS Association’s national office and its 38 chapters have received a combined $31.5 million in donation compared to $1.9 million during the same time period last year (July 29 to August 20). These donations have come from existing donors and 637,527 new donors to The Association. The Ice Bucket Challenge is quite literally “soaking” the nation and we are thrilled at the level of awareness and dollars the challenge is generating. Coming during what for most charities is typically a very slow time of year in terms of fundraising, we’re especially thankful to the thousands of people who’ve been doused with ice water and/or donated to fight this devastating disease.
Anne says:
I didn’t have time to read this all right now and while I am not certain what backlash you speak of I do know that while a group of persons started this challange in our community they hoped to raise funds for our local foundation and to support the 38 who suffer from ALS in our area. On the news this evening was mentioned that while what started here has gone viral, persons have been donating to the States by accident and that Canada’s foundation would appreciate we support our own. There is a difference with ALS Association and the ALS Foundation. While looking for a cure is definitely needed, supporting our local community members who suffer from this debilitating disease is just as important!
Meg says:
I helped my mom make her video for the challenge yesterday. One of her oldest and best friends (from nursing school forty years ago!) lost her younger brother last week from ALS and challenged her family members and friends to do both the video and the donation. The timing of the challenge has been bittersweet but she’s glad more people are learning about what a horrible disease ALS is. Not that other diseases aren’t bad, but this one is only predictable in that it will be expensive, have uneven progression, and be fatal within years.
We don’t have a drought in the DC area, but my mom stood in one of her gardens so the water & ice would have been put on the ground in that spot anyway. I don’t think it was more than two gallons of water.
Laura says:
My friend’s dad was officially diagnosed with ALS not even a month ago, and I hadn’t even heard of the disease until doctors were considering it as a possible diagnosis for him. I think it’s great that people are being made aware of this disease, and I’m hopeful that the amount raised will help his body to not deteriorate so quickly.
Auntie_M says:
Thanks for posting this, Heather. My grandfather died from ALS and a friend’s mom did, as well. I was surprised when this bucket challenge started trending as most people have never heard of it nor it’s devastating effects.
Like you, I also would love to see great strides taken in money being raised for premature births and also child loss awareness.
But for now it makes my heart smile that this ALS Ice Bucket Challenge has made this disease so more well-known.
Giselle says:
I think people that say the challenge is stupid and people should just donate don’t really understand. Someone can donate and say hey I donated, I challenge so and so to donate, too, and most likely it would die there. By making it something fun to watch/do, it continues to spread.
Also, the majority of people that complain it’s a waste of water probably use a LOT more water taking a daily shower. They could skip a shower one weekend day and do the challenge instead to spread awareness, for example. Make a sandwich instead of using a whole pot of water to boil potatoes for dinner. Use water from the pool and have it go right back in the pool. Do the challenge with a glass of water instead of a whole bucket. There are lots of ways to be creative about it.
And I also agree with you, Heather, that helping one charity doesn’t mean that people can’t or won’t support others. I have several causes (animal abuse, preemies, nutrition and education for underprivileged children, among others) and just because I donate to ALS this year for the first time, it will NOT cause me to stop supporting these other important causes because they are important to me!
I think it’s sad that people have to find something to complain about when it comes to.. Well, anything and everything. As you explained, this has been an incredibly successful campaign!
Yay for ALS and congrats to them. I hope they do amazing things with this money!