Comments on: Maddie The Medical Marvel

By: Crohn's Disese

Crohn's Disese — Wed, 08 Jul 2009 11:27:35 +0000

I’m very afraid about crohn’s disease. I have some symtoms in abdominal pain, often in the lower right area, and diarrhea. Should I go to see the doctor? Please help.

By: Michelle-White Trash Mom

Michelle-White Trash Mom — Thu, 12 Feb 2009 07:55:18 +0000

Aw sweetpea, she’s so perfect and that picture makes my heart burst. Really. You are way ahead of the game if you’ve already figured out the fact that the doctors will run tests—-until it’ insane—-because they don’t know what else to do. Keep strong, keep reading, keep reaching out. You and daddy will figure it out, work out what is best for that precious lamb…who I can’t wait to meet IRL…I am 100% with kate…you’re the advocate. Go with your gut.
I will share/call/email you with other thoughts and some of my experiences with my oldest daughter, hospitals and tests. Learn from my mistakes. xoxoxxo big love to you.

Michelle-White Trash Moms last blog post..Toddlers and Tiaras: Flippers and Spray Tans?

By: Kate

Kate — Mon, 09 Feb 2009 02:07:10 +0000

I am going to start by saying I do not have children yet, I am surrounded everywhere by them. I have nannied for three family's in the last 15 years. I have tons of nieces and nephews. I am one of five children. I had a brother with developmental issues, I have nieces, nephews, friends, etc with babies that have medical issues, learning issues, etc. I am just going to say only you and Mike can be Maddie's advocate. You get to decide what testing is right and wrong for her. You spend the time with her not doctors that see her a handful of times for a very brief period of time. They are doctors they are supposed to look for things that might be wrong. Things have symptoms that if you did not know any better and even when you do know better that would make one think they suffer from every single thing out there. You are her advocate. Take the tests you feel are right for her and above all follow your gut. You and Maddie both deserve that. Ok off my long comment...wow just tell me to shut up already! Kates last blog post..365/31/2009 Pure Happiness

By: Sue

Sue — Sun, 08 Feb 2009 16:38:36 +0000

My 22 month old full term baby had a huge head (90th percentile head and about 20th percentile body) and her body grew into her head. She is still tiny though. My ex-preemie now at 13 months old is almost the same way. Her height isn't even on the chart yet and her head is about 50th or more. I agree with everyone else, go with your gut. You're with her more than her doctors are and have been through enough to make an informed decision. Sues last blog post..Some People's Kids...

By: Bec

Bec — Fri, 06 Feb 2009 14:01:27 +0000

I hear you on the weight gain thing. Erin's the same, the same weight as well. We've been stuck here for months. MONTHS I tell you! It's driving me nuts. When Erin was admitted to have the NGT reinserted *rolls eyes* (can you tell I'm still pissed about that??) they did all these tests because she had one symptom - not gaining weight. It couldn't that she refused to eat. No it was Crohn's disease and I'd just missed the excruciating stomach ache and the horrific poop. Or maybe it was cystic fibrosis and I just hadn't been paying attention to my daughter drowning in her own lung secretions. Seriously, doctors need to shut the fuck up sometimes and stop panicking the parents. As if we don't have enough to worry about without adding to that these imaginary ailments. Becs last blog post..Getting grown up

By: patois

patois — Thu, 05 Feb 2009 17:50:18 +0000

Ditto Mandy. patoiss last blog post..How About Giving Me a Boost?

By: mandy

mandy — Wed, 04 Feb 2009 23:18:44 +0000

my feelings have been mentioned by others above so i’ll just add that i’m sending positive and loving thoughts to you guys.

By: preTzel

preTzel — Wed, 04 Feb 2009 23:01:44 +0000

My neice, who is now 11, was not a preemie but she had a ginormous head. We all thought it was impair her some how because it was THISBIG and looked lopsided. On top of that she looked like the Goodyear Tire baby. She walked at 10 months. She is a beautiful 11 year old that is going to be GINORMOUS because she is taller than my 13 year old and wears a size 12 woman's shoe! Go with your gut on this Heather. What is it telling you? I believe that every child deserves medical testing to make sure they're healthy but *you* know Maddie best. It is your decision. If it were me I'd probably hold off. preTzels last blog post..Rambling Thoughts 'O Mine

By: Joe

Joe — Wed, 04 Feb 2009 23:00:19 +0000

That’s a tough line to walk; What needs to be done, and what is unnecessary. I hope everything works out. Hopefully the doctors are just stupid and are only trying to pad their checking accounts, and Maddie’s just fine.

Joes last blog post..Played Us Like a Fiddle

By: Anissa@hope4peyton

Anissa@hope4peyton — Wed, 04 Feb 2009 21:25:15 +0000

Its a heavy little head too, isn't it? It's ok, you're going to do what's best for her and having answers (whether good or bad) is always better than letting it fester in worry about "what if". We had to do a lot of invasive procedure to check for things that weren't there or were possibly there or there was the slightest flicker of a possibility...and though it was tough, and some were totally unnecessary in the end...it felt better to know that the tests were negative. Anissa@hope4peytons last blog post..Have you done something good for someone else lately?