Because Of You
We’ve had a whirlwind six days. This last weekend, we were in Boston for a wedding. Before that, as my dad mentioned, we were in Washington DC for two things – to talk to Congressmen & women on behalf of the March of Dimes (I’ll write more about that tomorrow), and to attend an awards ceremony that honored members of the March of Dimes community.
The March of Dimes contacted me last month to let me know that team March for Maddie was one of the top five family teams in the country. I was blown away – I knew we’d raised a lot of money, but I had no idea we were one of the top teams in the country. They arranged for Mike and me to come to Washington DC for their Volunteer Leadership Conference which culminated in an awards ceremony. I found out about a week before that I would have to give a speech at the ceremony.
At the awards ceremony, Mike and I met the President of the March of Dimes, Dr. Jennifer Howse. She thanked us profusely for our work and told us how sad she was about Madeline. The whole time, I kept thinking how she really should be thanking the countless people (because I literally lost count after the 3,000th donation came in) that gave because of Maddie. It was at the awards ceremony that I found out that I was the number four adult walker/fundraiser in the country, and most importantly, that Team March for Maddie was the number one family team for all of 2009.
In my speech, I talked about how generous people had been in the weeks after Maddie passed. Many people gave to a fund that was started in my family’s name (the money we used to start Friends of Maddie). But thousands and THOUSANDS of people gave to the March of Dimes in honor of Maddie, not only to our team, but to the over sixty teams started in her name. All told, over $100,000 was raised for the MoD because of my daughter. And while I am so humbled that my beautiful toddler could inspire people to give money during tough times, I am still angry that she had to inspire anything at all.
One of the causes of death on Madeline’s death certificate is prematurity. I won’t be satisfied until every baby, including Maddie’s little sister, is born healthy and on time. I am determined that Maddie’s death won’t be in vain. No parent should have to hold their child’s death certificate. So to all of you, THANK YOU for your donations. THANK YOU for starting your own teams and walking for such a worthy cause. THANK YOU for remembering my daughter and other babies like her that didn’t get a healthy start. Because of you, other babies WILL. I accepted that award for Maddie, but it was really for all of you, and there just aren’t words that express how grateful I am to each and every one of you.
Miss Britt says:
At a time when a lot of us would have curled up into a ball and refused to go on, you took your pain and turned it into something beautiful.
That deserves a plaque – at the very least.
Miss Britt´s last blog ..Today
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Mandy Reply:
October 12th, 2009 at 2:08 pm
That was said perfectly, Miss Britt.
Heather, I don’t know how you both did it, but you and Mike are wonderful.
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Jenny Reply:
October 12th, 2009 at 4:30 pm
Miss Britt said it wonderfully. I feel privileged that you shared your Maddie with all of us so that she could inspire us. You and Mike are so strong and you should be very proud of that.
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Emily Reply:
October 12th, 2009 at 7:34 pm
I agree 1,000%!!!! I feel lucky to “know” you and Maddie and am constantly inspired by your strength and determination. Thank you for sharing so much of your life with us, it is truly a privilege.
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Hollee says:
Heather,
I have followed your story but never commented before. I think it is so gracious of you to thank your supporters and I have been thinking of you and Maddie’s little sister as I follow along. We walk for the March of Dimes with my son’s best friend, Tess, every year (the team is the Tess Express), and her story did have a happy ending. Just wanted to thank you for raising awareness and being such an inspiration. -H
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nic @mybottlesup says:
no, my dear… because of YOU.
nic @mybottlesup´s last blog ..THE TWINS!!!!
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AmazingGreis says:
Amazing! So happy to see Maddie’s spirit live on through such a great cause.
XOXO
AmazingGreis´s last blog ..A great BIG thank you & my BFL Week 4 picks…
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Marya Havalah says:
As an 8 week old early little one myself, thank you for walking for preemies and for your strength and love in your daughters name. Your strength will hold up so many mommies and daddies and babies and the world will be a better place for it. Your love and memories and willingness to share with the world is I think a true gift.
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CarrieB says:
Bless you Heather. Your strength and Maddie’s inspiring personality have carried you this far. Please God that will continue,
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MommyGeek says:
This really defines bittersweet, doesn’t it?
Remembering Maddie every day, still.
MommyGeek´s last blog ..A Few Thoughts
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Pgoodness says:
Wow, Heather, that is amazing. And everything Miss Britt said. Xo
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Laurie says:
That’s incredible. I wish this amazing accomplishment wasn’t in the wake of such a loss, but what a gift that has been given to so many. Maddie would be proud.
Laurie´s last blog ..Fashionista
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Laura Reply:
October 12th, 2009 at 8:50 am
Ditto!!
I am so, so proud of you and Mike, and your entire families for all you have done, but I so, so wish that it could have been under different circumstances. God bless you and your two amazing and wonderful daughters!
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Earth_Mommy says:
This post made me cry. My three were all born healthy and full term. My younger sister’s two were both eight and nine weeks premature. Heather, thank you for all the work you do. I don’t know I would have been strong enough. You are my hero *smoochies and hugs*
Earth_Mommy´s last blog ..Just In Case
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Erin B. from VA says:
Miss Britt said it perfectly.
Sending you and your family much love, always.
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Caroline says:
I’m blown away… but not surprised that your daughter inspired so many. What a bittersweet moment to be acknowledged this way. My love to you both, your daughter on the way – and to Maddie and everything she stands for.
Caroline´s last blog ..One Drop, U2 and Me (Part Two): The Concert
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DesignHER Momma says:
This post gives me chills! Although it’s bittersweet beyond belief, it’s still amazing what people can do when we come together for a common good.
DesignHER Momma´s last blog ..No, I’m not trying to smuggle.
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Tweets that mention | The Spohrs Are Multiplying… | » Because Of You -- Topsy.com says:
[...] This post was mentioned on Twitter by Emily Elling, Greis and earth mommy. earth mommy said: RT @MyBottlesUp: RT @mamaspohr: Because Of You – http://bit.ly/3svT1d {if doesn't inspire u to chk out friendsofmaddie.org i duno wht will} [...]
Karen says:
I gave for Maddie but wish there hadn’t been a reason to. I wish in my heart that Maddie had had a different start and a much happier outcome. I’m happy that so many people gave in her honor, remembering her in our own way, trying to make a difference for the next little baby.
I don’t feel right saying that I’m so glad your Team March for Maddie did so well. I desperately wish that you’d raised less because people wouldn’t have known about Maddie for such sad reasons. But, I for one, will continue to give, support, help and raise awareness so that no parent holds that death certificate.
(((BIG HUGS)))
Karen´s last blog ..What happens in Vegas
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Anna Marie Hinnant says:
With two preemies of my own, one who is still medically fragile and right now as we speak has pneumonia, I thank you for all you have done for the MoD. I just wish it didn’t have to be. Thinking of Maddie always –
Hugs.
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Jen says:
I don’t know if I mentioned this before, but I was born in ‘74 @ 28 weeks.
While most 28 weekers go on to live healthy, productive lives NOW, that was NOT the case then. I was given a 30% chance of surviving the first night and when my parents took me home on December 11, my pedi’s words were “she’s a sweet baby, but don’t expect much”. Thank goodness they didn’t listen to him.
I’m also the auntie of a 23- week baby girl born in 2000 who didn’t make it. And that is heartbreaking.
MoD is a great thing. Even through your unimaginable pain, you’ve done great things for preemie everywhere.
As one of those, I thank you from the bottom of my heart. And I hold what I know of Maddies story close to my heart.
Jen´s last blog ..parenting failure #4,632….or something like it.
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Kim Wencl says:
Congratulations Heather – Maddie’s spirit is shining so brightly through you right now!
Kim Wencl´s last blog ..My Days In D.C.
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Dawn says:
We’re number one!
Dawn´s last blog ..Serenity Now Sunday – October 11, 2009
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Maria says:
Walking was one of the bravest things I’ve ever seen anyone do. I have no idea how you found the grace and strength. Your family is amazing, lady. I’m glad they recognized you and the whole team.
Maria´s last blog ..heart-twisty grin
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Nicole says:
You are such a inspiration..and so is sweet Maddie. Your family has put a name and a face on prematurity and have made it near and dear in so many hearts, that may have not be touched otherwise.
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melissa says:
Miss Britt said it all. Thank you. Thank you for sharing Maddie with us. Thank you for being an inspiration to turn around and give back for a great cause.
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Momma Uncensored says:
exactly what miss britt said..
you kept breathing. you are a strong cookie.
Momma Uncensored´s last blog ..YES+
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catherine lucas says:
Well done family Spohr… And as you say, sad that we still need Marches of Dimes. Sad that nobody so far has found a way to keep babies safe inside their mothers wombs till they are ready to come out. It will be clear by now that Madeline has touched a lots of hearts indeed, thanks to her happy smile and the funny things she did and tried to say. Thanks again for sharing her too short life with us all, and hoping that Binky will have the same happy smile!
catherine lucas´s last blog ..Fall? Or autumn?
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Lindsay from Florida says:
I can’t find the words to give voice to how much light your family has brought to the world even in the darkest, darkest time of your own lives. Applause beyond measure to the Spohrs.
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AnnD says:
We had never donated to the MoD until after we heard of Maddie’s passing away. I couldn’t walk cause of my own pregnancy issues but I remember telling my hubby specifically to write In Memory of Madeline Alice Spohr on the check before his walk. I had to spell it for him. And now we will walk/write a check in Maddie’s name every year to the MoD! We love Maddie here in Lafayette, Indiana!
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Midwest Mommy says:
I love what Miss Brit said. There are so many people that care so much about Maddie and it shows.
Midwest Mommy´s last blog ..The Story of Cali
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Meghan says:
Heather,
I started reading your blog not too long ago through a link I found on Matt Logelin’s blog. Every morning when I get to work I go straight to your page. You and your family are such an inspiration to me. The strength and love you continue to exude every day amazes me. Thank you for sharing your life with all of us who have grown to love you and Maddie without ever having met you. I hope and pray for nothing but the best for baby Binky!
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Lisa says:
Truly amazing. I’m still in awe of how much people gave, the power of love and the power of one amazing little girl.
I’ll be walking every year, because I want every baby to have a chance, every family to be happy to hold their healthy little one, every baby to live.
You inspire me and so many others Heather, much love and hugs to you.
Lisa´s last blog ..Treating a Cold During Pregnancy
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Nikki says:
We are all so proud of you, Heather, and are sure that Maddie is too. Her beautiful spirit lives on through each donation, speech, walk and effort.
Miss Britt’s sentiments were perfect.
Thinking of you, Mike, Maddie and Binky every day.
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Erica fr Dallas, TX says:
Heather-I was so very happy to read your post and so very sad at the same time bc Maddie isn’t here
You are the one who did all of this work-you and Mike. Thinking of you both always and sweet baby angel Maddie.
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Trisha Vargas says:
Thank you Heather!!
(((HUGS))) from Florida
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Suebob says:
To walk on Maddie’s team was an honor. If it helped ease your pain for one second, it was worth doing. And you and Mike will never know how many other people you helped through your efforts.
Suebob´s last blog ..So There I Was, Sitting On The Toilet
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Adrienne says:
How wonderful Heather, that you have so many supporters!! But I know, it would be even more wonderful if Maddie were here, now. Thinking and praying for you guys, always.
Adrienne
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Tami says:
What a way to remember Maddie. It is also sad that it has to be this way. Maddie should be here and we all miss her big eyes and beauitful smile.
Hugs to you all.
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sarahcinct says:
Congrats Heather. You and your angel are doing amazing things.
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Rebecca says:
I admire your determination to continue fighting for babies to have a healthy start in life. Binky will remain in my prayers. ((hugs))
Rebecca´s last blog ..Why Reality Love Shows Fail
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Lynn from For Love or Funny says:
I agree with Miss Britt…I couldn’t say it any better.
Lynn from For Love or Funny´s last blog ..Seeing beyond the bumps
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Nikki says:
Congratulations on your award! I’m a March for Babies volunteer (actually I coordinate all the volunteers) for Dayton, OH chapter. I started volunteering after our daughter, Addy, was born 10 weeks premature last year. I read your story a week before our walk, and shared it with our chapter director and core volunteers.
I’m really curious to hear about your experience in DC. We did participated in the Ohio Advocacy Day last spring, w/limited success. I hope your experience was more positive!
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ali (adil320) says:
Thank YOU, Heather.
You have opened so many people’s eyes to the importance of supporting the March of Dimes. It was through YOUR words that most of us fell in love with Maddie, and YOUR willingness to share your pain, grief and family with us that prompted such a response.
Sweet Maddie is worth every cent that was given, but without you…we never would have known.
I pray, that your prayers will be answered and that prematurity will not be listed on anymore Rainbow Paper.
You are amazing.
xoxoxoxo
ali
ali (adil320)´s last blog ..Follow Friday
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Alexandra says:
You and Mike are the ones that turned all that flipped your world upside down, into something beautiful.Maddie lives on through this, and all the babies that will be helped with their lead angel in front…
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Brandy says:
Heather,
Truly, truly…it feels like the least I could do was give a few dollars. You and Mike have such big hearts and it pains me, and this community, to see them broken. Collectively, I hope our donations have helped your mend a tiny bit.
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Heather says:
That is so great! Like everyone else has said, MissBritt said it best.
Hugs to you and Mike.
Heather´s last blog ..Goin on day 3
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Colleen says:
Good for you, good for Maddie and good for March of Dimes. Every baby deserves the very best start they can get in life, thank-you for helping, Heather.
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Kate says:
Wow, an inspiring post. As a woman with no children, I know you have really opened my eyes to the issue of prematurity.
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deej says:
You are so awesome!
I know in my heart that Maddie will remain an inspiration and as long as you and all of us are around, we will remain dedicated to this worthy cause in her honor and memory!
Top Team in the entire nation – that is HUGE! Again , you, Maddie and Mike are all H.E.R.O.E.S in my book.
Hugs, hugs and many more hugs!
Can’t wait to see Binky Spohrhead in the 2010 March for Babies!
deej´s last blog ..Don’t Look Back
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maya says:
thank YOU heather. love you always.
maya´s last blog ..Movie Monday
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leel says:
Bravo. A tough week, but look at how much you have done for families and babies – all babies! As hard as the last 6 months have been, I hope this shone a little ray of sunshine. I agree, it sucks that Maddie had to be the inspiration. She lives on in the memories, and the good that people do in her name. Hugs! Leel.
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Courtney says:
I am so glad that everyone pitched in or helped in some way. I can’t imagine losing a child as I am not a parent yet and I pray for you all everyday! God Bless.
Courtney´s last blog ..Stand Still
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Casey says:
I know you don’t know me, but I read your blog and comment every once in a while. I had the strangest dream last night; I dreamt that you had a third, beautiful daughter. I (obviously) don’t know if you guys even want a third, but it was so clear to me in the dream. 3 little girls. How random, right?
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Jenn says:
Dear Heather,
From the moment I “met” you, I was in awe of your strength, bravery and your committment to Maddie. But, today I realized something else you are…(always have been) Heather….you are a HERO!
You turned the devastating loss of your daughter into a cause…one that will save many young lives. You could have stopped caring. You could have refused to get out of bed in the morning and do nothing…let alone start at a foundation in your daughters name!!
You came to your site every day and you shared your emotions with us…as raw as they were at times. You opened yourself up and you faced the consequences of your words…whatever that might be. You constantly remind us the beauty of your child and you share your most treasured memories, pictures and video’s of Maddie and allowed us, a group of strangers not only fall in love with her but to also mourn the loss of your baby.
You so bravely shared the news of your new daughter with us even though there might have been a few Dumb Asses who instantly passed judgements. You shared your thoughts, fears, joys, expectations and hopes of this new baby and you even trusted us with her due date.
Because of YOU Heather…Maddie’s beautiful being will NEVER be forgotten. Because of YOU Heather, we will all continue to work hard to make sure Maddie didn’t die in vain. Because of YOU we all fell in love with this little girl we never got to know yet we know well.
I’m really happy the March of Dimes recognized you for your efforts! You deserved to be recognized Heather. I hope you and Mike enjoyed yourselves and I hope you embraced the praise you received.
Today is Thanksgiving in Canada so, to you I say Happy Thanksgiving my friend! I thank you for not only being Maddie and Binky’s HERO, but for also being mine.
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Missy Reply:
October 12th, 2009 at 9:41 pm
I couldn’t put it better. Wonderfully said Jenn.
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Jenn Reply:
October 13th, 2009 at 5:31 am
Thanks Missy….so nice of you! I forgot to tell Heather, I bet she raised a lot more than $100,000 b/c they probably didn’t take into account the Canadian tolls. I also had a “Team Maddie” and we raised just over $1000,00 to help our March of Dimes. I think both Heather and Mike are amazing people. I am lucky I get to know about their lives!
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Tara. says:
Wow! That’s amazing, Heather. No, absolutely not, Maddie’s death will not be in vain.
Tara.´s last blog ..Praise God, From Whom All Blessings Flow!
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Glenda says:
Heather, You are an inspiration. Your generosity helped others raise the money in Maddies name. Because of you the MOD has gotten all of this help. Hold your head up and know that Maddies name will always go on inspiring others to give and help with the awareness. This is bittersweet but congrats. You deserve it!!!
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Molly says:
Congratulations, Heather and Mike! That is awesome. And I feel angry too that Maddie had to inspire anything other than awe and laughter and normal toddler wonderment.
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Notesfromthegrove says:
I made my first donation to the March of Dimes last month and made sure to put Maddie’s name on the check! She is making her mark on the world, that’s for sure.
Love you guys.
Notesfromthegrove´s last blog ..Tortilla Soup Bar!
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Aunt Becky says:
*sobs*
I wish I hadn’t had to donate for Maddie. I wish I wasn’t forming a team for her and walking for her this year (and Amelia).
*kicks something nearby*
Aunt Becky´s last blog ..Go Ask Aunt Becky
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ruth says:
you guys are amazing.
ruth´s last blog ..Random stuff
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April says:
It’s really the least we could do. As everyone else, I continue to be in awe of your strength, but I am also touched by the beauty of this community that came together. As you know, my parents lost their child and I just wish that they’d felt this kind of support. I see this as a testament to the love that we can all feel and give to each other.
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Jamie says:
We should be thanking you. You inspire us to get up, hug our families and enjoy our life. You remind us to enjoy everything that we have, every second. Thank you for sharing your life, your hard times, your good times and above all thank you for sharing Maddie. You are awesome. Congrats on the achievements with MoD.
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Michelle says:
Your strength and humility amaze me. I should be thanking you for the gifts you’ve given and the reminder that no matter how difficult, we can go on. Maddie’s passing will never be in vain.
CONGRATULATIONS, YOU DESERVE IT!!!
Michelle´s last blog ..Papa Bear vs Yogi Berra
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Chrissie says:
((((HUGS))))))
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Marti from Michigan says:
I agree with Michelle above, YOU DESERVE THIS PLAQUE, both of you, all of you! Maddie was there in spirit when you gave your speech, I just know she was.
I too have tears in my eyes. I’m going to get together a team for the 2010 MoD walk and we will do it in Maddie’s honor! I do know that without the MoD, a lot of babies would not make it, so it is a definite worthwhile cause.
May God continue to bless the Spohr family, as well as Bampa and Mrs. Bampa!
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Issa says:
I got chills reading this. I am so happy that you were recognized. I wish you never had to be…more than anything. But I’m glad you were.
Issa´s last blog ..Guest Post: MIL issues
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Erica says:
Dear Heather,
You are such an amazing lady and every time I read a new post on your blog I am inspired even more by your courage, strength and the extreme grace you possess. You always carry yourself with such dignity even in and especially in the most difficult of situations. You continue to fight for the causes you believe in even in the most difficult of situations. The love you have for your precious daughters, your husband, your parents, your family and friends always shines through your posts and equally the love that surrounds you can also always be so clearly felt. In fact because you are such an amazing lady you are surrounded by so much love and support from not only all those that know you but also those like myself that know ‘of’ you. YOU really are such an inspiration, Heather. I am honoured to know of you and your family and espcially of your precious World Famous Maddie. The work you have done and continue to to do is so praiseworthy and that is exactly why you have the love and support from so many people all over the world. Your precious World Famous Maddie will always be remembered by all of us.
Thinking of you always.
With love
Erica in Luxembourg
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thatgirlblogs says:
Well done!
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Sherry From KS says:
What a great honor you received (and deserved), and how great is it that so many people came together to help such a worthy cause!
Sherry From KS´s last blog ..Happy Halloween!
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Judy says:
Great job!!
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Deborah says:
Wow, what an amazing honor to receive! I can’t imagine how bittersweet it must have been.
(((hugs)))
Deborah´s last blog ..A Very Bad Picture of a Very Fast Sketch
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Mary in Texas says:
Wow. That is a LOT of money to raise in memory of Maddie. Staggering, really. I have so much respect for everything you’ve done to bring awareness to prematurity. It’s amazing that through your pain, you’ve managed to do something SO incredibly positive. You are definitely an inspiration to me.
You and I were due with our first daughters around the same time, and here we are again…I’m due with a girl on February 15. I was on bedrest for 5 months with my first baby, and I barely made it to 37 weeks. I sort of understand the mindset of the pregnancies being compared since I’m on the same timeline again (first baby was due February 17). This is when blank happened last time, etc. Hang in there. Each day that passes is a relief. You will make it!
I can’t believe anyone could criticize you and Mike for any choices you make. First, the only people who matter in this are you and Mike. And hey, I don’t know if anyone has noticed, but from what I read (I don’t know you), you sound like pretty strong, incredible people and any baby you bring into this world won’t be anything but loved and lucky. Congratulations.
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DAnielle says:
Heather, You are a woman of great strength and courage. You and Mike have opened yourselves up to the world and shared with us your beautiful daughter…I wish that it was not under these specific circumstances that I became a fan/supporter of your Maddie..but she has left her footprints on my heart! I think of her often as I do you and Mike. I pray everyday for you both to have moments of peace and also to watch Binky. I always come back to “oh the places you will go” and the end when it says “youll move mountains” through you Maddie is moving way more than mountains.
Continued prayers for strength and healthy nine months
Danielle and Madalyn (my 34 weeker)
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Melanie @ Mel, A Dramatic Mommy says:
Wow! That’s amazing. Congratulations.
Melanie @ Mel, A Dramatic Mommy´s last blog ..Maybe You Need to Ask Different Questions
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Krissa says:
Wow. Just, wow! Great big hugs to you and remembering Maddie “extra” today.
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Erin says:
You deserve it, you are amazing. Thank you for sharing your story
Erin´s last blog ..Thinking Back
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Yolanda says:
Heather –
Good afternoon. What a beautiful and well deserved honor. Good job to everyone who walked and donated.
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Steph says:
Another great post as usual. I am so glad you can help bring awareness to the March of Dimes. No family should have to lose a child.
Steph´s last blog ..Who Says Dogs Can’t Dance? Single Doggies
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Stacy says:
“And while I am so humbled that my beautiful toddler could inspire people to give money during tough times, I am still angry that she had to inspire anything at all.”
This. So much good has come out of your story, but it’s one you should have never had to tell.
As much as everyone is proud of what your family has done and inspired by Maddie’s story and amazed by your courage, we’re all still heartbroken for you as well. It’s so, so unfair.
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amanda says:
I can only speak personally, but your family’s story has made the MOD one of the top recipients of my charitable donations. Maddie is leading the way…
xo from CT,
Amanda
amanda´s last blog ..let me entertain you
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Aidan Donnelley Rowley / Ivy League Insecurities says:
Sometimes I wonder why I am blogging and I come up with many reasons. And I am sure you have many reasons too. We all do. But you have an amazing one among them: you are making a difference. A big one.
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pamela says:
that is so beautiful.
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Kim says:
We just take your lead Heather! I am so happy to know that you have such a great support system! All of the best for a healthy Binky baby! xo
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Joy says:
Now i’m all gooey and tearful.
You and Mike are amazing and beautiful. I’m both so sorry for thats led to this and so amazed at the force of the universe that’s brought all these people together to help MoD in Maddies’ name.
Joy´s last blog ..best birthday present ever.
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Danielle says:
I love the March of Dimes and even more so now. I send money in about every other month and since following you, make sure I always say that it is for Maddie.
Danielle´s last blog ..Things that make me go Hmmmm
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Rebecca says:
Because of your writing about Maddie, I now toss in a few coins at the cash register when it says “March Of Dimes” donations. I think of Maddie every single time. I don’t have much to give, but I give. You’re amazing Heather!
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Undomestic Diva says:
We only did for you what you would have done for us. And as I recall, you were there too, the leaders of our pack. xoxo
Undomestic Diva´s last blog ..My laptop caught the clap
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Lisa says:
You, Mike, and Maddie will continue to inspire all of us, every day.
Lisa´s last blog ..It’s Turning Colder
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Deb says:
Madeline lives on. Maybe not the way we wish she would….but here’s proof positive that she does.
Maybe, just maybe, Maddie’s story will be an integral part of stopping prematurity forever. And so many parents will have Maddie to thank. I know you’d much rather have her here, of course…but – I’m lighting a single candle.
Much love,
Deb
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Alexandra :) says:
CONGRATS, HEATHER!!! And Maddie’s death will absolutely NOT be in vain.
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Eric's Mommy says:
Wow, so inspiring!
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Vanessa says:
Thats amazing!! Congrats to all of you.
I also want to say that I am a LONG time reader but a very rare commenter HOWEVER after the commenting mess the other day – I want you to realize just how many of us are out here – supporting you… loving Maddie (and of course you guys) even if we don’t comment. PLEASE don’t let the 1% of totally rude people stop you from blogging and sharing your life with us. You are the first thing I check every morning… even before my email…
Today is Thanksgiving in Canada and I’m giving thanks for Binky – who I can’t wait to “meet”!
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Ray says:
Wow, that is SO AWESOME that OVER 60 TEAMS started in Maddie’s name, and that you’ve already raised OVER $100,000 dollars!! That is ABSOLUTELY WONDERFUL and I am so happy for you, Mike and everyone else involved. =D Congrats on your achievements. I know it won’t stop here though, because you’ll never stop fighting for Maddie or Binky (now that she’s on the way). ;o)
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Katrina says:
This is so wonderful!
Katrina´s last blog ..Our Sandbox
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sam {temptingmama} says:
Wow. Wow. Wow.
I am surprised, but not shocked. Your beautiful daughter brought so much light to everyone who knew her or knew of her. That’s evident. Maddie is a special, wonderful little lady.
I love you all!
XOXOX
sam {temptingmama}´s last blog ..Cure JM
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cj says:
we will never forget Miss Maddie and she will forever impact lives.
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Julie says:
Heather,
From a fellow blogger who also has lost her first child, I revisted your blog after several months away. First, I want to say that I am SO HAPPY that you are adding to your family. We have been trying for awhile after our son’t death last summer and when I see it happening for you it gives me strength in knowing that blessings are still bestowed on much deserving people. Our pregnancies were strangely similar with complications and premature births. Second, thank you for being a voice to the many parents out there in our shoes who seem to have lost their voice…their strength…and momentarily, their way. This is such an awful journey, and you are totally right…no one in their right mind can even think of judging those of us who have watched the light of our lives pass on in front of our very helpless eyes. Its tragic and completely unfair, but to chanel grief into a positive is an amazing thing.
Lastly, as a fellow blogger, I understand writing about a difficult subject and how people respond to things in the worst of ways. Please keep writing~I will too. The more of us that find our voices, well, perhaps we can help guide others that will unfortunetly come after us.
I will pray every day for a healthy pregnancy. And recommend the only book that eased this suffocating pain: The Grief Recovery Handbook. I wish someone would have shared this with me sooner. There aren’t many things I can do to lessen the pain, but please know that I am walking beside you as a fellow member of a “club” that no one wants to be a part of.
Thinking & praying for you and your family…
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Alison says:
Aaaand, I’m crying in philosophy discussion. (Class hasn’t technically started, so shhh about the non-academic use of wifi, k?)
Much, much love to you and Mike. And as always, much, much love to Maddie and Binky.
Alison´s last blog ..Numbers
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kim~CraftyMamaof4 says:
Heather,
I have been reading your blog since before Maddie passed away but I have not commented much, if at all. I have been honored to meet you in real life and have also been honored to be a part of the March for Maddie in Pittsburgh. Maddie has a place in the hearts of me and my children.
We recently lost my cousin Annie at 8 weeks old, she too was a preemie. I feel as if I have lost one of my own children. It touched my heart when my 3 year old said he wanted to release balloons for Annie as we did for Maddie and even asked me to get a special purple one to send to Annie to give to Maddie.
Through the loss of these 2 young souls I have gained a greater awareness for the needs of preemies and their families.
The March for Maddie (and sadly now Annie) will become a yearly event for my children and I as we march to help raise awareness of the needs of premature infants
Thank you for sharing Maddie with us.
kim~CraftyMamaof4´s last blog ..I Heart Faces Week 40 ~ Excited!
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Tina says:
Your strength has inspired us and for that we thank you.
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Dee Dee says:
You have inspired me to be a MoD donor. My twins were born premature and I faithfully donate to Children’s Miracle Network at my hospital b/c I think their equipment helped save my girls. I now see that the research done through the MoD also helped my girls. So thank you for inspiring me. I will start donating. Hope I do it right by writing in memory of Madeline Spohr on the subject line.
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Nikki says:
Hey Heather, I posted earlier today, but I was thinking about you and Binky and wanted to come by and send more well wishes. Your strength is more of an inspiration that you will ever now.
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Debby says:
What a wonderful thing you are doing. That is a beautiful award.
Debby´s last blog ..THANKSGIVING IN CANADA
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Kelly says:
I have read your blog nearly everyday since Maddie passed and have never commented (which I have recently learned is not kosher in the blogging world, so sorry about that). But I wanted to comment today, because I am a fundraiser for the March of Dimes, and everyday when I read your blog in the morning, I am reminded why I do the job I do. I think of you and Maddie when I meet with potential donors, because I never want a parent to go through the pain you experienced. So thank you for your supporting the March of Dimes during the most difficult time in your life and I promise you, there are so many people working so hard to make sure Binky and every other baby are born healthy. You are truly an amazing person! keep smiling:)
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lisa wood says:
Heather, Congratulations to you and Mike for having the strength to carry on, and to Beautiful Sweet Maddie…may you be smiling knowing that you will never be forgotten.
Amazing Strength, Amazing Courage, Amazing that you have what it takes to keep on going and to also honor your precious baby girl in the best way possible.
You are one in a million…hugs, love and kisses sent your way.
Lisa
lisa wood´s last blog ..Sends Chills Down My Spine
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Amyinbc says:
Good for you both for keeping Maddie’s spirit alive with the generous funds donated in her name. Know you both would rather NOT have that distinction but turning a bad situation around for other families is truly wonderful and giving of you.
Maddie has done more than many on this earth do in a life time in the brief time she was with you.
She was and is truly an angelic soul.
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Allyson says:
Thank you from the bottom of my heart for holding yourself up and having the grace to carry on. It is because of people like you that Peyton had all the care he needed as a preemie. You know you always have my support, my gratitude, and a piece of my heart. Always.
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wordygirl says:
What a bittersweet moment. We are all so proud of you and love you so much!
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Mary C says:
What an amazing award to recieve. You inspire me to do things that I never would have done before. Thank you to you, Mike, and Maddie.
I hope you enjoyed your trip here to New England. It was a bit chilly. If you come again my Mike can take your Mike to a Pats game or Red
soxs game (depending on the season) and we’ll do some girl shopping. It would be nice to meet you and your family.
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Jen @ lifelove'n'wine says:
Wow, talk about a tear-jerker. I am so glad that Maddie could inspire something so wonderful. I wish she could still be here for you. You are incredible for taking these horrible circumstances and turning them into a miracle for others.
Jen @ lifelove’n'wine´s last blog ..Friday Fill-Ins – Maine Bound!
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Erica says:
Dear Mike and Heather-
On Saturday I was honored to be the keynote speaker at the Seattle March of Dimes Annual Fundraising Auction. I spoke during the Fund A Need portion of the auction about our story of a 31 weeker, 6 weeks in the NICU and the emotional rollercoaster entwined throughout the experience.
Your story and Maddie gave me an even stronger purpose to stand in that ballroom to tell people why they need to raise their bid card and donate money to the MOD.
I just wanted you to know how your story affected a mom in Seattle. Thank you for your advocacy and for being Maddie’s parents.
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Tricia (irishsamom) says:
Your sweet, sweet Maddie is still very much making a difference in the world and bringing people together. She is definitely a miracle child.
Love and hugs,
Tricia
Tricia (irishsamom)´s last blog ..Remembering 9/11 – Repost – 8 Years
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Barb says:
You inspired me to submit my daughter’s story to our local March of Dimes chapter to be the Ambassador Mom for 2010 locally. I was chosen and I will speak at the walk in 2010. It was after watching you on YouTube that I was like, she has been through so much and is standing there giving her story. I’m terrified of public speaking and I get very choked up when it comes to talking about what we have been through with my daughter but I feel I owe it to my child and all the other preemies and families to raise awareness. My daughter has the happy ending but so many don’t…people need to hear the stories and people that have been through it need to help. Thank you for everything that you and Mike have done. You are both amazing people:)
Barb´s last blog ..Pumpkin Patch & A Port A Potty
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Mrs. Flinger says:
I had an entire comment but Miss Britt really did rock it.
Love you.
Mrs. Flinger´s last blog ..OHMYGOD I Am One Of THEM. AKA: I’m clearly medicated
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Leslie says:
I will always be here to support you, the March of Dimes, and Friends of Maddie.
Love you.
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Al_Pal says:
Miss Britt said it so well… congratulations and I’m sorry. ;s
Truly amazing. *HUGS*
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Reluctant Inspiration « says:
[...] to their foundation – enough to provide 40 families with NICU support packs. They raised more than $100,000 for the March of Dimes through donations that were made in honor of Maddie. And in October they traveled to Washington, [...]