Comments on: NICU FAQ http://thespohrsaremultiplying.com/2009/03/nicu-eff-ay-que/ Sun, 21 Mar 2010 14:54:22 -0700 http://wordpress.org/?v=2.9.2 hourly 1 By: Michele Pulaski http://thespohrsaremultiplying.com/2009/03/nicu-eff-ay-que/comment-page-1/#comment-32576 Michele Pulaski Thu, 05 Nov 2009 20:50:34 +0000 http://thespohrsaremultiplying.com/?p=778#comment-32576 This is just a wonderful, wonderful list. Thinking back to how my beautiful baby girl almost died and how out of our minds her father and I were with fear, grief, and the exhaustion which all came with camping out at the hospital, you put in writing what I know to be true and what should be passed along as "must have" information to as many as possible. THANK you! .-= Michele Pulaski´s last blog ..<a href="http://sarahbearsstory.blogspot.com/2009/11/help-fight-for-healthy-babies.html">Help Fight For Healthy Babies</a> =-. This is just a wonderful, wonderful list. Thinking back to how my beautiful baby girl almost died and how out of our minds her father and I were with fear, grief, and the exhaustion which all came with camping out at the hospital, you put in writing what I know to be true and what should be passed along as “must have” information to as many as possible. THANK you!
Michele Pulaski´s last blog ..Help Fight For Healthy Babies My ComLuv Profile

]]> By: Mandy http://thespohrsaremultiplying.com/2009/03/nicu-eff-ay-que/comment-page-1/#comment-26699 Mandy Mon, 21 Sep 2009 18:46:28 +0000 http://thespohrsaremultiplying.com/?p=778#comment-26699 Hi Heather, I just wanted to let you know that this post is a lot of what inspired me to create Survival Mode Parent, an organization designed to help parents with kids in the NICU or PICU with their basic needs. You can find us at http://www.survivalmodeparent.org. I reference this post often. Thank you so much for it!! Mandy .-= Mandy´s last blog ..<a href="http://feedproxy.google.com/~r/SurvivalModeParent/~3/yZTGT0QCqF4/starting-small.html">Welcome to Survival Mode Parent!</a> =-. Hi Heather,

I just wanted to let you know that this post is a lot of what inspired me to create Survival Mode Parent, an organization designed to help parents with kids in the NICU or PICU with their basic needs. You can find us at http://www.survivalmodeparent.org. I reference this post often. Thank you so much for it!!

Mandy
Mandy´s last blog ..Welcome to Survival Mode Parent! My ComLuv Profile

]]> By: Damians Mom http://thespohrsaremultiplying.com/2009/03/nicu-eff-ay-que/comment-page-1/#comment-21638 Damians Mom Fri, 07 Aug 2009 20:29:22 +0000 http://thespohrsaremultiplying.com/?p=778#comment-21638 Wow, this is great! I wish i had this when my son was in the hospital. He was there for 3 months and it seemed like all anyone every said or asked was the stuff that you listed as stuff not to say or ask. This would have helped. I was always hearing oh hes going to be fine this person had a preemie and hes doing great now. But every baby is different and has different things to deal with. How did they know he was going to be ok??!! We were also asked about every day "do you know when hes coming home yet?" or "When can we see him?" Wow, this is great! I wish i had this when my son was in the hospital. He was there for 3 months and it seemed like all anyone every said or asked was the stuff that you listed as stuff not to say or ask. This would have helped. I was always hearing oh hes going to be fine this person had a preemie and hes doing great now. But every baby is different and has different things to deal with. How did they know he was going to be ok??!! We were also asked about every day “do you know when hes coming home yet?” or “When can we see him?”

]]> By: Kim http://thespohrsaremultiplying.com/2009/03/nicu-eff-ay-que/comment-page-1/#comment-12906 Kim Wed, 03 Jun 2009 21:44:29 +0000 http://thespohrsaremultiplying.com/?p=778#comment-12906 I live in Utah and just returned home with my twins from the NICU yesterday. What a journey! During the second week, which was particularly difficult, I received a bag in memory of Maddie. It had everything you listed in the NICU parent kit and then some. They even made treats for the nurses and brought lots of magazines that helped pass the time. There was a card with Maddie's picture on it and I wondered about this beautiful little girl. I read through your blog today. My heart aches for your loss. Maddie's life and your struggles have inspired many people and it made such a difference for me. Every time I realized I had forgotten something, I looked in the bag and there it was..a disposable camera, lotion, my toothbrush..little things that made such a difference. I won't forget it. Thank you. I live in Utah and just returned home with my twins from the NICU yesterday. What a journey! During the second week, which was particularly difficult, I received a bag in memory of Maddie. It had everything you listed in the NICU parent kit and then some. They even made treats for the nurses and brought lots of magazines that helped pass the time. There was a card with Maddie’s picture on it and I wondered about this beautiful little girl. I read through your blog today. My heart aches for your loss. Maddie’s life and your struggles have inspired many people and it made such a difference for me. Every time I realized I had forgotten something, I looked in the bag and there it was..a disposable camera, lotion, my toothbrush..little things that made such a difference. I won’t forget it. Thank you.

]]> By: Amy http://thespohrsaremultiplying.com/2009/03/nicu-eff-ay-que/comment-page-1/#comment-4786 Amy Mon, 11 May 2009 17:28:16 +0000 http://thespohrsaremultiplying.com/?p=778#comment-4786 I wish the people in our life had read the list before they came to see us or contacted us when our son was in the hospital. He had to have two surgeries and spent over a 100 days in the NICU. I actually had a co worker ask how we were going to afford to keep him in the hospital or pay the hospital bill. We also had people just randomly show up at the hospital and I sent them away. My addition to the list would be call the parents before you visit. They may need some time to themselves and will let you know when they are ready for visitors. I just don't think people know what to think or say when presented with the situation. I wish the people in our life had read the list before they came to see us or contacted us when our son was in the hospital. He had to have two surgeries and spent over a 100 days in the NICU. I actually had a co worker ask how we were going to afford to keep him in the hospital or pay the hospital bill. We also had people just randomly show up at the hospital and I sent them away. My addition to the list would be call the parents before you visit. They may need some time to themselves and will let you know when they are ready for visitors.
I just don’t think people know what to think or say when presented with the situation.

]]> By: permanentlymine.com » Blog Archive » Remembering Maddie - 4 weeks later http://thespohrsaremultiplying.com/2009/03/nicu-eff-ay-que/comment-page-1/#comment-4785 permanentlymine.com » Blog Archive » Remembering Maddie - 4 weeks later Wed, 06 May 2009 17:29:23 +0000 http://thespohrsaremultiplying.com/?p=778#comment-4785 [...] of things NOT to say, a list of things she and her husband Mike had or wished they’d had. A NICU Parent Care Kit. [...] of things NOT to say, a list of things she and her husband Mike had or wished they’d had. A NICU Parent Care Kit.

]]> By: For your daughter, and my daughter « Mind Your Knitting http://thespohrsaremultiplying.com/2009/03/nicu-eff-ay-que/comment-page-1/#comment-4784 For your daughter, and my daughter « Mind Your Knitting Sat, 02 May 2009 03:07:43 +0000 http://thespohrsaremultiplying.com/?p=778#comment-4784 [...] put together parent care kits based on a list that Heather Spohr made of things that are essential for parents who spend any time in the NICU, then donated them to their local NICU. [...] put together parent care kits based on a list that Heather Spohr made of things that are essential for parents who spend any time in the NICU, then donated them to their local NICU.

]]> By: AMomTwoBoys » What You Can Do http://thespohrsaremultiplying.com/2009/03/nicu-eff-ay-que/comment-page-1/#comment-4783 AMomTwoBoys » What You Can Do Fri, 17 Apr 2009 04:20:04 +0000 http://thespohrsaremultiplying.com/?p=778#comment-4783 [...] Read this post and do what Kristen did.  It’s a perfect way to honor Maddie.  Heather’s NICU FAQ with a list of items can be found here. [...] [...] Read this post and do what Kristen did.  It’s a perfect way to honor Maddie.  Heather’s NICU FAQ with a list of items can be found here. [...]

]]> By: » A brilliant idea | babybloomr http://thespohrsaremultiplying.com/2009/03/nicu-eff-ay-que/comment-page-1/#comment-4782 » A brilliant idea | babybloomr Thu, 16 Apr 2009 13:43:23 +0000 http://thespohrsaremultiplying.com/?p=778#comment-4782 [...] Update 4.15.09 10:38pm PT: I am shocked people are reading, and the things you are saying are blowing me away. Please. Please do go and do this yourselves. If you need guidance, as we did, here is Heather’s post: http://www.remembermaddie.com/index.php/2009/03/26/nicu-eff-ay-que/ [...] [...] Update 4.15.09 10:38pm PT: I am shocked people are reading, and the things you are saying are blowing me away. Please. Please do go and do this yourselves. If you need guidance, as we did, here is Heather’s post: http://www.remembermaddie.com/index.php/2009/03/26/nicu-eff-ay-que/ [...]

]]> By: Mary http://thespohrsaremultiplying.com/2009/03/nicu-eff-ay-que/comment-page-1/#comment-4781 Mary Thu, 16 Apr 2009 13:30:29 +0000 http://thespohrsaremultiplying.com/?p=778#comment-4781 You and your family have made and will continue to make an amazing mark on the world. You and your family have made and will continue to make an amazing mark on the world.

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