so many acronyms, too little time

The CT scan went well this morning. I was really nervous about her not eating for an extended period of time, but her night nurse did a great job of helping me make sure Maddie ate at the last possible moments. It was a bit of fiasco getting her down to the CT area. They…

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Every time I mention cystic fibrosis, take a shot.

Maddie just had an IV inserted in her right arm. She cried and whimpered the whole time and it about broke my heart. Now she is sleeping so deeply I think the USC Marching band could come through and she wouldn’t notice. Just another mommy scar that I will throw in her face when she’s…

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Introducing Dr. Lung

We finally met the elusive Dr. Lung. She introduced herself and listened to Maddie, and then said that she wants to give Maddie a full work-up so she can get to know her anatomy. She is going to get a CT scan to completely rule out pneumonia, and it will also show the structure of…

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Maddie Marches Down Wilshire Blvd

Today I walked five miles and my daughter was transferred to a different hospital. I know you think both of those things are lies since I a) abhor exercise, and b) Maddie has been on the brink of transfer every day, but today both actually happened! We started the day by attending the March for…

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The Wheels Are Square

Mike called me this morning at work to tell me that the decision had been made, and Maddie was going to be transferred to the Westwood hospital and that her lung procedure was going to be today. He said he was told that it would happen in a few hours, so I didn’t have to…

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